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AUCD - Concurrent Sessions: Group 6

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Tuesday, November 19, 2019 3:00 PM - 4:15 PM

Session Description

AUCD Concurrent sessions are small group discussions, presentations, or panels. They last 75 minutes and are hosted in small meeting rooms throughout the event space.

Featured Presenter(s)



Promoting Integrated Employment Outcomes for People with Intellectual and Developmental Disabilities


Karrie Shogren, PhD, Director, Schiefelbusch Institute for Life Span Studies, UCEDD/LEND

This presentation will highlight research from a collaboration between two UCEDDs, the Kansas University Center on Developmental Disabilities and the Paul V. Sherlock Center on Disabilities at Rhode Island College. The session will address employment trends for adults with intellectual and developmental disabilities in Rhode Island and interventions to promote self-determination as part of efforts to promote integrated, competitive employment for transition-age youth with intellectual disability in the state.

Using Virtual Technology to Expand Employment Supports


Wendy Parent-Johnson, Ph.D., Executive Director, Sonoran UCEDD

Technology provides opportunities to expand the reach of employment and behavioral supports, and create virtual networks that support job coaches to provide quality supported employment services. Iowa, Nebraska and South Dakota UCEDDs have partnered to implement this innovative project funded by the Kessler Foundation. We will share activities to date, outcome data, policy recommendations, and lessons learned for expanding the use of technology in the delivery of employment services.

Supporting Self-Determination and Employment through Supported Decision-Making


Joan Christopher, JD, research instructor, director of community service, Georgetown University Center for Child & Human Development, UCEDD/LEND

DC and Missouri have partnered with the National Resource Center for Supported Decision-Making and the National Supporting Families of People with Developmental Disabilities Across the Lifespan on multi-level strategies to launch supported decision-making and return decision-making to the hands of people with disabilities, seniors, and their families. Hear from subject matter experts, policy makers, self-advocates, and family members and learn about replicable partnerships and strategies for your state.

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Living Well- follow the journey as eight states create system changes to enhance Home and Community Based Services.


Julie Fodor, PhD, Director, Center on Disabilities and Human Development, UCEDD

The Living Well projects supported through ACL are designed to create replicable blueprints of state systems that support people with disabilities to live in the community with greater independence, safety, health, and well-being. This presentation provides a brief overview of the key principles driving the Living Well initiative and the road map each state has created to address the key principles. Unique successes, barriers, and solutions are addressed.

A Transdisciplinary Model of Change: a Family Centered approach to treating Neonatal Abstinence Syndrome.


Jennie Jacob, MSPT, Physical Therapist, The University of Arizona, LEND

Opioid exposure in neonates continues to be a national epidemic with significant hospital costs and public health implications. Banner University Medical Center?Tucson NICU has changed its model of care by utilizing the family as primary treatment for substance exposed infants. This model has resulted in decreased postnatal opioids, reduced length of stay, decreased hospitalization costs and strain on public resources, and increased preservation of the family unit.

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Leveraging Communities of Practice to Encourage Inclusion of People with Disabilities in Type 2 Diabetes Prevention Programs


Adriane Griffen, DrPH, MPH, MCHES, Senior Director of Public Health and Leadership

This presentation will include panelists discussing lessons learned while participating in a Community of Practice (CoP) focused on disabilities and type 2 diabetes prevention. During this presentation, participants will learn adaptive change techniques such as 1) Recognizing the benefits of participating in a CoP; 2) Learning how to engage and partner with local community organizations; and 3) Identifying how to recruit people with disabilities.

Bringing Positive Psychology, Cultural Competence and Person-Centered Thinking to Life for People with Co-occurring IDD and Mental Health Issues


Diane Jacobstein, PhD, Clinical Psychologist, Georgetown University Center for Child & Human Development, UCEDD/LEND

This session from the Mental Health SIG will explore the convergence of Positive Psychology, cultural and linguistic competence, and Person-Centered Thinking in practical applications to support people with co-occurring developmental disabilities and mental health concerns. The session will feature approaches that shift focus from deficits to strengths and improve quality of life, strategies for deepening attention to culture and language, and practices to increase alignment of system structures.

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Interdisciplinary Approaches to Address Sexual Health Education Across Disabilities and the Lifespan


MAUREEN VAN STONE, JD, MS, Director , Kennedy Krieger Institute

Kennedy Krieger faculty and staff from a variety of disciplines will share best practices and approaches for providing sexual health education to our patients, students, and families, as well as training for clinicians. The panelists will discuss ways for breaking down stigma, fear, and barriers, in order to provide appropriate care for individuals with disabilities, who are frequently left out of the conversation about sexual health and wellbeing.

How the California UCEDDs Contribute to the Statewide Self-Advocacy Network (SSAN)


Wesley Witherspoon, Self-Advocate Community Liaison, USC, Childrens Hospital, UCEDD/LEND

All three California UCEDDs have paid staff who are individuals with intellectual and developmental disabilities. Each member of this panel plays an important role within their prospective UCEDD. In addition, to creating positive change within each of the three California UCEDDs, the members of this panel are valuable contributors to the Statewide Self-Advocacy Network (SSAN). SSAN is a cross-disability network that is leading change in California.

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Tools for Effective Advocacy


Marie Reilly, MD, Attending Physician, Institute for Community Inclusion/Boston Children's Hospital, UCEDD/LEND
Caroline Gooden, PhD, KY LEND Director, Interdisciplinary Human Development Institute, UCEDD/LEND
Stephen Sulkes, MD, Strong Center for Developmental Disabilities, UCEDD/LEND
Dylan Bulkeley, Director , Brink Election Guide
Join us for an engaging session in which we discuss increasing stakeholders� powers for advocacy. Marie Reilly will discuss Harnessing the Power of Twitter to Advance Your Cause. Caroline Gooden will introduce a Starter Kit for Advocacy for adults with intellectual disabilities. Stephen Sulkes will introduce a Legislative Toolkit to Activate a Trainee Network. Dylan Bulkeley will introduce the Brink Election Guide to use Accessible Technology in 2020.

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Self-determination and People with Disabilities: Rights and Decision-making in the Classroom and Across the Lifespan


Sheida Raley, M.Ed., Assistant professor, Schiefelbusch Institute for Life Span Studies, UCEDD/LEND
Arlene Kanter, LLM, Professor , Syracuse University College of Law
Karrie A. Shogren, PhD, Schiefelbusch Institute for Life Span Studies, UCEDD/LEND
This session includes three thematically-linked presentations related to self-determination across the lifespan. The first presentation presents results from a survey of guardians and those in related roles to understand their knowledge and utilization of less restrictive alternatives. The second presentation explores recent developments in laws and policies that promote the right of people to make decisions. The third presentation presents findings on promoting self-determination in inclusive, secondary general education classes.

Universal Design in the Classroom


Corinna Stiles, PhD, Center on Disabilities and Human Development, UCEDD
Patricia Bahr, MSE, Program Manager, Center for Disabilities and Development, UCEDD/LEND
How information is projected and received in society changes with the latest and greatest available technology. We incorporate technology into our social lives but then are reluctant to embrace technology to support new ways of thinking, learning, and working. This presentation explores the use of technology in universal design for learning, growing self-determination in virtual worlds, and employment-centered training for people with disabilities.

Family Navigation Programs


Sharon Milberger, ScD, Director, Developmental Disabilities Institute, UCEDD/LEND
Allison Kumnick, B.A., Medical Student, LEND Trainee, Mailman Center for Child Development, UCEDD/LEND
Robin Stewart, LCSW, Ed.M., Community Programs Coordinator, UC Davis at the MIND Institute, UCEDD/LEND
Family navigation programs function to connect children and adults with developmental disabilities to services in their community and provide guidance to caregivers. By adapting to families� cultural and linguistic needs, navigators can improve both the health and happiness of caregivers and their loved ones as they grow and age together. This presentation features three successful navigation programs, serving both children and adults, each with unique models and innovative initiatives.