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AUCD - Poster Symposium 5B: Behavior Supports & Community Living

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Tuesday, November 19, 2019 1:30 PM - 2:45 PM

Location: Congressional B

Session Description

All posters for the AUCD Conference will be presented throughout Monday and Tuesday in a series of Poster Symposia that run at the same time as concurrent sessions. During these 75 minute poster symposia, 12-15 posters on a similar theme will be grouped together in a room. Posters will be displayed on large boards and have a table underneath for accompanying materials. The session will be introduced by a moderator, poster authors will be asked to provide a very brief introduction of their poster, and then attendees will be free to move about the room to speak with poster presenters directly for the remainder of the session. Attendees are also welcome to move between symposia rooms and view posters on other topics. Conference posters submitted ahead of time are also available electronically in the conference app and linked below.


Addressing the Issue of Fall Risk for Adults with IDD: Creating Solutions in the Community
Mindy Renfro, PT, PhD, DPT, Associate Professor , University of Montana Rural Institute, UCEDD

This is a 3-part presentation to outline what we can do as a community to assess fall risk and reduce the prevalence of fall-related injuries in people with intellectual and developmental disabilities (IDD). We will review the most current research on fall prevention in IDD, share collaborative experiences in both rural and urban community settings and then discuss future needs and goals.

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Furthering the Faith and Disability Movement: What you need to know to effect change in your community
Shelly Christensen, Master of Arts, Author/Executive Director, Inclusion Innovations

Over the past decade, including people with disabilities in faith community life has emerged as a movement, Researchers, authors, disability and faith-based organizations are impacting how congregations welcome, include, and support participation. Led by Shelly Christensen, Liz Weintraub, and Karen Jackson, participants will examine three components that drive the Faith and Disability Movement?Individuals? stories, fostering belonging and inclusion, and developing local, regional and national networking communities.

The Impact of Trauma on Early Childhood Development
Trupti Rao, Psy.D., , Westchester Institute for Human Development, UCEDD/LEND

In Westchester County, NY, over 50% of the children entering foster care from 2015-2018 were under the age of 5. The goals of this project are to create a developmental profile of these children and explore their number of traumatic experiences. This poster will present preliminary findings of the birth, developmental, and child welfare histories of children entering Westchester County foster care during this time period.

Implementing the PEERS Social Skills Curriculum in an Inclusive High School
Emily Graybill, PhD, NCSP, Associate Director, Center for Leadership in Disability at Georgia State University, UCEDD/LEND

The PEERS Social Skills Training Intervention was developed by faculty at the UCLA UCEDD. The Georgia State University UCEDD piloted the PEERS curriculum in an inclusive high school in Georgia. The PEERS curriculum had high social validity for the participating students. Additional results from the pilot implementation will be shared.

Individualized Treatment for Fear of Blood Draws for Individuals with Intellectual and Developmental Disorders: A Single Case Design Study
Nicole Turygin, Ph.D, , Westchester Institute for Human Development, UCEDD/LEND

This study illustrates the treatment of two adults with intellectual/developmental disabilities who presented to an outpatient clinic for treatment of long-standing refusal of blood draws. A desensitization based on individual responses to blood-draw related stimlui was conducted and single case design methodology was used due to the hetereogeneity of the participants. Both participants were able to successfully obtain blood draws by the end of their treatment.

Collaboration with Parent-Run Organization, a Support Agency and Adults with Developmental Disabilities to Improve the Quality of Life
Alan Kurtz, Ph.D., Area Coordinator, The University of Maine, Center for Community Inclusion, UCEDD

This poster describes our UCEDDs collaboration with a new parent-run organization and a provider agency to improve the quality of life for six adults with developmental disabilities. It will include a description of the evaluation activities we conducted of a residential program, programmatic recommendations we made based the evaluation, and our collaboration with the organization, agency, and residents in implementing those recommendations to improve residents' quality of life.

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Constructing New Personal Opportunity and Wellness Indicators Scales Using the National Core Indicators
Parthenia Dinora, Ph.D., Associate Director, Partnership for People with Disabilities, UCEDD/LEND

This poster will present two newly developed scales, constructed from variables in the NCI. Using Confirmatory Factor Analysis, the researchers developed a new Personal Opportunity scale (consisting of factors clustered in the areas of social participation, rights, and choices) and a Wellness Indicators scale (consisting of factor clusters related to heart health and behavioral health). Implications for researchers and policymakers will be discussed.

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Charting the LifeCourse: From Conceptual Framework to Promising Practices
Jennifer Turner, LCSW, Senior Research Associate, University of Missouri, UCEDD/LEND

The Charting the LifeCourse principles are recognized as a person centered framework, helping individuals, families, and teams develop a vision, think about what they need to know and do, and identify how to find or develop an integrated array of support. This presentation provides a theoretical overview of the framework, focusing on examples of promising practices for person centered collaboration across the lifespan, and in a variety of disciplines.

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It Takes a Village: Training Case Managers to Support Parents with Disabilities
Kara Ayers, PhD, Associate Director, University of Cincinnati UCE, UCEDD/LEND

The �It Takes a Village� project emerged from a need identified by a UCCEDD community partners to train case managers in how to best support parents with disabilities. Increasingly, family-centered care is a standard of excellence and an expectation across multiple care systems. The �It Takes a Village� project demonstrates a curriculum to creatively support diverse families while upholding standards of care for all.

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Factors Impacting Access to Home and Community-Based Services and Supports for People with Intellectual and Developmental Disabilities
Caitlin Crabb, MPH, , Institute on Disability & Human Development, UCEDD/LEND

This presentation will present results about factors that impact access to 14 different long-term services and supports for people with IDD residing in the community, using National Core Indicators survey data from 2015-2016. Of particular importance are state-level factors that have not been studied in extensive detail.

Examining Differences in Community Participation in Adults with Autism Spectrum Disorder
Michael Murray, MD, Director, Division of Autism Services, Penn State College of Medicine/ Dept. of Psychiatry/Division of Autism Services

Adults with autism spectrum disorder (ASD) demonstrate low levels of community participation; studies have neglected to measure the satisfaction of community participation for each individual. This study examined patterns and perceived value of community participation of individuals with and without ASD. Findings point to a need for further exploration of predictors of poor community participation in adults with ASD as well as effective interventions to support greater engagement.

Where Have All the Children Gone? Preliminary Findings to Identify Segregated Residential Settings for Youth with IDD in the U.S.
Rebecca Dosch Brown, MFA, MNLEND Coordinator; PhD student; Parent-advocate, Institute on Community Integration, UCEDD/LEND

This poster shows preliminary findings from a literature review/environmental scan aimed at identifying segregated community settings run outside of state DD systems likely to be considered ineligible for Medicaid HCBS funding under the 2014 CMS HCBS Settings Rule. This poster focuses specifically on sites for youth with IDD and is part of a larger study on policy implications of the rise in privately-run segregated residential settings for people with IDD.

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A Qualitative Examination of Families? Experiences of Tube Feeding Children with Gastrostomy Tubes while in Community Environments
Jaclyn Larson, Family Discipline Faculty, The University of Arizona, LEND

This was a qualitative study examining families? experiences when tube-feeding their children in community environments. Caregivers were interviewed to gain their perspectives. Caregivers were parents or foster parents to a child or multiple children who had a gastrostomy tube. It is important for professionals to understand the family experience when coaching other families on incorporating feeding tubes into their lives.

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Innovations and Best Practices in Medicaid Managed Long-Term Services and Supports: An Opportunity for the AUCD Network
Sarah Swanson, MPH, Assistant Professor, Munroe-Meyer Institute of Genetics & Rehabilitation, UCEDD/LEND

An increasing number of states are moving the management of Medicaid Long-term Services and Supports programs (I.E. Medicaid Waivers) to Managed Care Organizations (Insurance Companies). This poster will provide an overview of state implementation, will provide specific examples of innovations and offer strategies for the AUCD network to become involved in these efforts. Stop by to get a policy brief that was recently disseminated.

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