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AUCD - Poster Symposium 4C: Clinical Service, Health, Wellness

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Tuesday, November 19, 2019 10:30 AM - 11:45 AM

Location: Congressional C

Session Description

All posters for the AUCD Conference will be presented throughout Monday and Tuesday in a series of Poster Symposia that run at the same time as concurrent sessions. During these 75 minute poster symposia, 12-15 posters on a similar theme will be grouped together in a room. Posters will be displayed on large boards and have a table underneath for accompanying materials. The session will be introduced by a moderator, poster authors will be asked to provide a very brief introduction of their poster, and then attendees will be free to move about the room to speak with poster presenters directly for the remainder of the session. Attendees are also welcome to move between symposia rooms and view posters on other topics. Conference posters submitted ahead of time are also available electronically in the conference app and linked below.




Presenters

Compassionate care: adjusting clinical practice to meet the needs of patients with Autism Spectrum Disorder
Meggie Kobb, MDiv, Chaplain, Hospital of the University of Pennsylvania

A description of discrepancies in health equity for patients with ASD in the hospital setting, corroborated by published research. Provides information on the impact for patients, and how providers can adjust their clinical practice to meet those unique needs, as well as system-wide recommendations.

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Toe Walking: Intervention for Children with ASD
Sandra Heimerl, DPT, LEND Director, Center for Development & Disability, UCEDD/LEND

Toe-walking occurs in the general population though the incidence of toe-walking is more prevalent in children with autism spectrum disorder (ASD). It often impacts a child's gait and function and result in joint contractures. Despite a 20% toe-walking prevalence in children with ASD, there are no published intervention studies. Research results of the effectiveness of conservative management using casting and ankle foot orthoses will be presented.

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Toe Walking in Young Children with Autism:Prevalence and Clinical Associations
Rosa Seijo, M.D., Assistant clinical professor of pediatrics

Assessment of toe walking in a clinical population of young children receiving an ASD diagnosis and the association of toe walking with age of ASD diagnosis, clinical features and autism severity in an ethnically diverse population

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EXPLORING THE IMPACT OF SELECTIVE EATING ON KEY LIFE DOMAINS AMONG TRANSITION-AGE YOUTH WITH AUTISM SPECTRUM DISORDER
Linda Bandini, PhD, , Eunice Kennedy Shriver Center, UCEDD/LEND

This poster describes a qualitative research study designed to assess the impact of selective eating on key life domains of transition age youth with autism spectrum disorder.

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Making the Case for Sex Education for Individuals with Autism Spectrum Disorder
Lindsay McCary, PhD, Psychologist, Waisman Center, UCEDD/LEND

This poster will present the process and final product of an issue brief created by UCEDD and LEND staff and trainees at the Waisman Center, University of Wisconsin- Madison. We make the case for expanding current sex education curricula and materials to better support the learning needs of individuals with autism spectrum disorder. We include findings from a comprehensive literature review as well as recommendations for future directions.

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Moving the Needle- A Quality Improvement Initiative to Improve Access for Autism Diagnostic Evaluations
Kathleen Kastner, MD, , Waisman Center, UCEDD/LEND

This poster presents an overview of a quality improvement initiative designed to improve access to autism diagnostic evaluations. The initiative includes implementation of an alternative evaluation model for children with a high likelihood of receiving an autism diagnosis. Preliminary data indicate this model successfully achieves a shorter evaluation length, thereby allowing more children to receive diagnostic evaluations, ultimately with the goal of decreasing wait times for an evaluation.

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A Longitudinal Study of Children with Early Autism Spectrum Diagnoses: Predictors and Outcomes
Patricia Towle, Ph.D., Psychologist, Westchester Institute for Human Development, UCEDD/LEND

Longitudinal studies of Autism Spectrum Disorder (ASD) are important for both clinicians and caregivers to understand outcomes of children diagnosed early. Few studies have followed children from as early as the age of two to school age. This study focuses on prediction of autism and disability severity at school age from early childhood characteristics. Seventy children were followed, half of whom were diagnosed before age 25 months.


Longitudinal Development of Autism Symptomatology in Toddlers and Young Males with Fragile X Syndrome
Kelly Caravella, MA, , Carolina Institute for Developmental Disabilities, UCEDD/LEND

This study presents original research examining the longitudinal development of autism symptomatology in young males with FXS between the ages of 2-8.


Identifying Strategies for Improving the Identification Process: Asking Parents
Jennifer Hall-Lande, Ph.D., Researcher/Psychologist, Institute on Community Integration, UCEDD/LEND

The importance of early intervention warrants efforts to identify potential strategies for supporting parents in obtaining an earlier identification (i.e., clinical diagnosis and/or educational identification) of autism spectrum disorder (ASD) for their child. To identify such strategies, we conducted a survey study to examine (a) parent-reported barriers and facilitators to obtaining an identification of ASD; and (b) sources parents access for information on ASD (e.g., scientific article, blog, Facebook).

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An Instrument for More Comprehensive Sampling of Restricted and Repetitive Behaviors in Infants and Toddlers with Autism Spectrum Disorder
Patricia Towle, PhD, Psychologist, Westchester Institute for Human Development, UCEDD/LEND

Campaigns such as Learn the Signs, Act Early endeavor to have children with ASD identified as early as possible. With the change in the DSM-5 diagnostic criteria, several studies have shown that younger, milder children, specifically with fewer restricted and repetitive behaviors (RRBs), are less likely to be diagnosed. This is a pilot study for a new instrument to comprehensively sample RRBs in very young children being evaluated for ASD.


Understanding history of autism in Nepal to support ethnically Nepali children with autism and families in the US.
Bidur Dahal, MS, Education Coach-Outreach Professional, Vermont Leadership Education in Neurodevelopmental Disabilities, LEND

Addressing ASD need is in early developing stage in Nepal. Information for the presentation will include results of a literature review on autism in Nepal. The information from presentation can be utilized here in the US to develop ideas as to how providers can support ethnically Nepali community in the US to understand ASD assessment and intervention approaches in the US and access culturally appropriate comprehensive services.

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Weight Management of Children with Autism Spectrum Disorder in Primary Care
Carol Curtin, PhD, LICSW, Director, Eunice Kennedy Shriver Center, UCEDD/LEND

This poster will present recommendations from the MCHB-funded Healthy Weight Research Network (HWRN), including a review of the extant literature on obesity in children with ASD, review and management of conditions associated both with obesity and ASD, strategies for child and family guidance, and the role that schools and other care providers can play in supporting healthy life style behaviors in children and youth with ASD.

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Parent- Reported Barriers and Facilitators to Obtaining a Diagnosis of ASD: A Systematic Literature Review.
Jennifer Hall-Lande, Ph.D., Researcher/Psychologist, Institute on Community Integration, UCEDD/LEND

The importance of early intervention warrants efforts to identify potential strategies for supporting parents in obtaining an earlier identification (i.e., clinical diagnosis and/or educational identification) of autism spectrum disorder (ASD) for their child. In order to identify such strategies, we conducted a systematic literature review to examine parent-reported barriers and facilitators to obtaining a diagnosis of ASD.

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What We�ve Learned from Two Waves of the Wisconsin Family Autism Survey
Lynn Hrabik, MPH, RDN, , Waisman Center, UCEDD/LEND

As part of a federally-funded project to improve access to a coordinated, comprehensive state system of services that leads to early diagnosis and service entry for children with ASD/DD, a collaborative family survey was disseminated to learn about experiences in accessing the existing system. This poster will showcase similarities and differences over the 2 data collection periods, key take-aways and how the results can be used to improve the system.


Caregiver Training Video Series for Children with Autism Spectrum Disorder and Restricted Eating
April Johnson, Master of Science in Nursing, , University of Cincinnati UCE, UCEDD/LEND

The vast majority of children with Autism Spectrum Disorder experience selectivity with eating at some point in their lives. Parents report feeling overwhelmed and confused about how to help their child overcome difficulties with eating. This project describes training videos developed to guide caregivers during mealtime as well as our dissemination plan.


Autism Spectrum Disorder (ASD) Readiness Research Survey to Pediatric Sub-specialty Fellowship Directors
Youjin Seong, PhD, , LoneStar, LEND

The purpose of the study is to assess pediatric surgical fellowship program leaders? perceptions regarding readiness of institutional clinical sites to serve the needs of patients with ASD. An assessment of willingness to accept future training was included in the evaluation.

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A Pilot Study Evaluating Over-Referral of Children without Autism to the Autism Interdisciplinary Team
Susan Berry, MD, MPH, , Louisiana State University Human Development Center - New Orleans, UCEDD/LEND

This pilot study evaluates screening protocols for referral to our Autism Spectrum Disorder Interdisciplinary Diagnostic Clinic. High referral rates of children who do not have autism result in long wait times for evaluation, diagnosis and intervention. We analyzed evaluations of 32 children to determine false positive rates of various parent report screeners, the STAT, and the CARS-2 to decrease false positive referrals to the clinic.

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