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AUCD - Concurrent Sessions: Group 3

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Monday, November 18, 2019 3:30 PM - 4:45 PM

Session Description

AUCD Concurrent sessions are small group discussions, presentations, or panels. They last 75 minutes and are hosted in small meeting rooms throughout the event space.

Featured Presenter(s)



The HCBS Settings Rule: Accomplishments and Challenges
Valerie Bradley, MA, President Emerita, Human Services Research Institute

This presentation includes NCI data regarding selected mandates in the HCBS Settings Rule including choice, employment, inclusion, privacy and person-centered planning. It also provides information on the continuing role that national disabilities organizations are playing in support of the Rule, an overview of state successes and challenges in implementing the Rule, and the role played by the Michigan UCEDD in support of the Rule.

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Counting What Matters/ From Invisible to Visible to Valued: Using Data to Improve Health of People with IDD
Susan Havercamp, PhD, Associate Professor of Psychiatry, The Nisonger Center, UCEDD/LEND

This interactive session will provide an update on cross-agency and cross-organization efforts to improve the health of people with intellectual and developmental disabilities by improving data collection, analysis and utilization for policy and programs. Participants will gain an understanding of latest developments in health surveillance, contribute to envisioning a learning collaborative on data analysis and utilization, and develop connections within the network around advancing health through improved data.

Building a National Movement to Identify and Support Individuals with Fetal Alcohol Spectrum Disorders
Ann Carrellas, PhD, Associate Director for Research, Developmental Disabilities Institute, UCEDD/LEND

Fetal alcohol spectrum disorders (FASD) are the leading cause of preventable intellectual disabilities, affecting approximately 1 in 20 persons and costing the nation more than $4 billion annually. However, less than 1% are diagnosed (May, 2018). Case studies from four UCEDDS illustrate how community collaborations are forming to address the urgent concerns raised by the lack of identification and services for individuals with an FASD and their families.

Using Data to Identify and Evaluate Student Support Interventions
Jodie Soracco, M.Ed, BCBA, Research & Development Director, Nevada Center for Excellence in Disabilities, UCEDD/LEND

School climate initiatives are often evaluated through whole school reports where disaggregated data for subgroups are often overlooked, particularly at the secondary and tertiary tiers. This interactive presentation will walk participants through how to document and evaluate advanced tier supports by ensuring smaller subgroups, such as students with special education services, are receiving the attention they require as well as evaluating whether those interventions are benefiting students.

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Exploring the Role of University Centers of Excellence in Developmental Disabilities (UCEDDs) as Partners in Localized Community Equity Initiatives
Anna Corona, MPH, Program Manager, AMCHP

This panel will discuss a state-local partnership approach to community-level work that aims to address disparities in the provision of developmental screens with subsequent referrals as appropriate. More specifically, the panel will highlight concrete examples of the role of three UCEDDs in partnering with local community leaders for their place-based equity efforts. Perspectives from both UCEDD staff and local community partners will be represented.

Employment First: Turning the Queen Mary
Cindy Thomas, Director, Institute for Community Inclusion/Boston Children's Hospital, UCEDD/LEND

Turning the Queen Mary requires tug boats and skilled navigation by people who have different roles and responsibilities, not so different from Employment First. This session will include presentations by six UCEDDs highlighting work that is underway in and across states to move Employment First forward. The session will include time for discussion and participants will be challenged consider what can be done to accelerate the pace of change.

Cross-Center Scale-Up of the EnvisionIT Curriculum: Ohio and Illinois UCEDDs Leading Change Together
Tamar Heller, PhD, Department Head, Institute on Disability & Human Development, UCEDD/LEND

Presenters from the Ohio and Illinois UCEDDs will share updates on the implementation of the EnvisionIT (EIT) curriculum in both states. EIT is an online college and career readiness curriculum for middle and high school students with and without disabilities. In addition to sharing observations and outcomes regarding EIT, presenters will reflect on challenges and opportunities afforded by the partnership and share strategies for effective collaboration within the AUCD network.

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Project SCOPE: Changing the Paradigm for Technical Assistance in Addressing Neonatal Abstinence Syndrome.
Eric Moody, Ph.D., Director of Research and Evaluation, Wyoming Institute for Disabilities, UCEDD

This panel will discuss the use of the Project ECHO Model for technical assistance to provide training and information to providers, educators, and family members in Ohio and Wyoming who serve or are connected to children and families impacted by the opioid crisis. Using teleconferencing technology, over 400 stakeholders were reached using this model. The panel will outline the processes and outcomes of using this paradigm.

Mental Health and Intellectual / Developmental Disabilities: Model Programs Across the Network
Matthew Wappett, Ph.D., Executive Director, Center for Persons with Disabilities, UCEDD/LEND

This panel presentation will highlight some of the major initiatives across the AUCD network to address the mental health aspects of intellectual and developmental disabilities. This panel will highlight speakers from 6 different UCEDD/LEND programs and will showcase their collaborative and interdisciplinary efforts to build the capacity of professionals, families, and self-advocates through training, research, and service.

Engaging transition-aged youth with disabilities receiving SSI and their families to improve employment outcomes.
Catherine Ipsen, PhD, Rural Director and Director of Employment Research, University of Montana Rural Institute, UCEDD

This presentation will report on findings from the ASPIRE, Maryland PROMISE, and Wisconsin PROMISE projects, three of six PROMISE demonstration projects focused on improving the economic outcomes of adolescents with disabilities receiving SSI and their families. It will explore different dimensions of youth and family engagement including (1) strategies for effective case management, (2) strategies for effective training delivery, and (3) use of incentives for increasing engagement in future-oriented activities.

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Disability Studies Engagement on Campus
kathryn fialkowski, MTS, Director of Academic Programs, Institute on Disabilities, UCEDD

The Institute for Human Development at Northern Arizona University and The Institute on Disabilities at Temple University present a model of engaging with Disability Studies beyond the traditional books and coursework to broaden the campus lens of diversity to celebrate disability. IHD at NAU will discuss Disability Heritage Month that happens every October on campus. Temple will discuss the use of first-person narratives in pre-service training and across different settings.

Deinstitutionalization Today: Trends, Current Practices, and Ethnographic Examples
Sally Gould-Taylor, PhD, Interim Executive Director, Institute on Disabilities, UCEDD

This session highlights longitudinal research conducted by the University of Minnesota's Residential Information Systems project examining changes in living situations since 1977. Key research findings will explore challenges associated with shifting our attention from closing large institutions to community living options. Temple University researchers will share the lived experiences of former State Center residents as they transition into the community in Pennsylvania, highlighting the processes of closing a state-run institution.

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Three strategies for improving employment outcomes
Alberto Migliore, , Institute for Community Inclusion/Boston Children's Hospital, UCEDD/LEND

Join this conversation to discuss three strategies for improving employment outcomes of people with disabilities including: a) Sharing tips and tools for developing strong, lasting partnerships with employers to expand the poll of employers; b) Leveraging inclusive apprenticeship for honing job seekers� talents and skills to expand their employment opportunities; and c) Leveraging key metrics, data-based feedback, and micro-learning for improving the effectiveness of employment support professionals.

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Self-determination and Self-Advocacy
Sheida Raley, M.Ed., Assistant Research Professor; Assistant Professor, Schiefelbusch Institute for Life Span Studies, UCEDD/LEND

This presentation includes topics related to self-determination and self-advocacy. First, findings on the impact of personal factors (age, gender, and disability) and environmental factors (employment, education, guardianship, residence) on overall self-determination of adults with disabilities will be presented. Second, the relationship between personal factors (age, gender, race/ethnicity, disability label) and student self-determination will be described. Third, student�s attitudes, perceptions, and experiences with self-advocacy and self-advocacy models will be explored.