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AUCD - Poster Symposium 13: Advocacy

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Tuesday, November 13, 2018 1:30 PM - 2:45 PM

Location: Congressional A

Session Description

All posters for the AUCD Conference will be presented throughout Monday and Tuesday (this is new in 2018) in a series of Poster Symposia that run at the same time as concurrent sessions. During these 75 minute poster symposia, 12-15 posters on a similar theme will be grouped together in a room. Posters will be displayed on large boards and have a table underneath for accompanying materials. The session will be introduced by a moderator, poster authors will be asked to provide a very brief introduction of their poster, and then attendees will be free to move about the room to speak with poster presenters directly for the remainder of the session. Attendees are also welcome to move between symposia rooms and view posters on other topics. Conference posters submitted ahead of time are also avilable electronically in the conference app and linked below.

 


 

 




Presenters

Parenting with Intellectual and Developmental Disabilities in Washington State
Sharan Brown, J.D., Ed.D., Associate Director, UCEDD, Center on Human Development & Disability, UCEDD/LEND
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This poster presents findings from a mixed methods study investigating experiences of parents with IDD in Washington State and their involvement with Child Protective Services during the first year of the child's life. The results of analysis of the National Data Archive on Child Abuse and Neglect dataset and birth and hospital records of mothers with IDD who gave birth from 1999-2013 in Washington are included.

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Belonging to History: Raising the Visibility of Disability Experience and Advocacy through the Indiana Disability History Project
Jane Harlan-Simmons, M.A., , Indiana Institute on Disability and Community, UCEDD
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The Indiana Disability History Project is documenting memories and experiences of Hoosiers with disabilities and their allies. With over 100 captioned videos, the project's website showcases a wide-ranging collection of disability experience and advocacy. This presentation will share the project's development, rationale, methodology, and outcomes. It will illuminate the potential of first-hand testimony to shape our view of the past, enriching the common narrative with greater inclusiveness and diversity.

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Developing Young Families as Inclusion Champions
Kathy Miller, Masters Social Work, Director of Community Services, Institute on Disabilities, UCEDD
Cathy Roccia-Meier, BA, Strategic Commm, Rhetoric and Public Advocacy, Temple University, Philadelphia, PA, United States, PA - Institute on Disabilities, UCEDD;

Empowering families of young children with disabilities is a proven method to support inclusion. Through the Partners in Policymaking Model, families are educated on research based best-practice and armed with tools that creates a foundation for inclusive lives. This sets the trajectory for their children in inclusive settings, while ushering in a new paradigm across their communities as these families take leadership roles.


Intersectionality and college students' advocacy behaviors
Valerie Frey-McClung, MA, Grants and Research Specialist, Center for Excellence in Disabilities, UCEDD/LEND
Lesley Cottrell, PhD, Morgantown, WV, United States, WV - Center for Excellence in Disabilities, UCEDD/LEND;

This presentation increases participants? understanding of the role of intersectionality in the advocacy behaviors of college students. Intersectionality refers to the ways in which multiple identities (e.g., gender, race, religion, and disability) contribute to unique experiences. The presentation describes the findings of a cross-sectional survey of undergraduate students attending a land-grant university.

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What Happens in the Hospital? Incidence and Outcomes for Persons with Intellectual and Other Developmental Disabilities
Dian Baker, PhD RN, Professor School of Nursing , UC Davis at the MIND Institute, UCEDD/LEND
Dian L Baker, PhD RN, CSU Sacramento, Davis, CA, United States, CA - UC Davis at the MIND Institute, UCEDD/LEND;
Tara Sharpp, PhD RN , CSU Sacramento, Elk Grove , CA, United States, CA - UC Davis at the MIND Institute, UCEDD/LEND;
Shannon Adamo , MSN, RN, UCDavis Medical Center, Sacramento, CA, United States;
, UCDavis Medical Center, CA, United States, CA - UC Davis at the MIND Institute, UCEDD/LEND;

Persons with intellectual and other developmental disabilities (PWIOD) have higher rates of acute care hospitalizations. During these hospitalizations they experience more complications and poorer outcomes. Therefore, we studied the demographics, incidence, and outcomes for PWIOD during hospitalization in a university hospital. Study results indicated potential safety concerns. The implications include a need for enhanced partnerships with families to develop training and care coordination.

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Beyond Fairview: An Oregon Story of Supporting Inclusive Community Living
Alice Miller, MSW, MPH, Policy & Advocacy Program Coordinator, Oregon Institute on Development & Disability, UCEDD/LEND
Larissa Yoshino, MPH , portland, OR, United States, OR - Oregon Institute on Development & Disability, UCEDD/LEND;

This poster will present Oregon's history of moving towards deinstitutionalization. We will highlight the policy and advocacy efforts of the disability community in Oregon that led to closure of the Fairview Institution and the establishment of the Fairview Trust Fund, a vital resource for supporting community living for people with developmental disabilities.

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Advocacy Training Bootcamp: Development and Evaluation of a Workshop for Professionals in Developmental-Behavioral Pediatrics
Mana Mann, MD, , Rose F. Kennedy Center, UCEDD/LEND
Dinah Godwin, LCSW, Baylor College of Medicine, Houston, TX, United States;
Rob D. Keder, MD, Connecticut Children's Medical Center, Hartford, CT, United States;
Marsheena Murray, PhD, MetroHealth/Case Western College of Medicine, Cleveland, OH, United States;
Marisa Toomey, MD, University of Kentucky, Lexington, KY, United States;
Jenna Wallace, PsyD, West Virginia University, Morgantown, WV, United States;
Ben Kaufman, MSW, AUCD, Washington, DC, DC, United States;
Ellen Silver, PhD, Albert Einstein College of Medicine, Bronx, NY, United States;
Adiaha Spinks-Franklin, MD, Baylor College of Medicine, Houston, TX, United States;

Few studies have evaluated knowledge and attitudes about child advocacy among professionals and trainees in Developmental-Behavioral Pediatrics. We presented a workshop at the 2017 Society for Developmental-Behavioral Pediatrics national meeting with the following topics: social determinants of health, effective advocacy strategies, Medicaid policy, and advocacy initiatives in communities. We assessed participants knowledge and attitudes around advocacy in Developmental-Behavioral Pediatrics.

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Combining voices of self- and family-advocates, educators, and health providers in one-page advocacy sheets to advocate for inclusion and resources.
Lance Ford, MS, , Center for Learning and Leadership, UCEDD/LEND
Angela Harnden, PhD, Oklahoma City, OK, OK - Center for Learning and Leadership, UCEDD/LEND;
Megan Peters, PhD, Oklahoma City, OK, OK - Center for Learning and Leadership, UCEDD/LEND;

This presentation will explain the process used to create one-page advocacy sheets using an interdisciplinary team. Attendees will learn about the importance of using data and personal stories together in advocacy, where to find publicly available data for advocacy use, and how to create their own advocacy one-pager. This project is ongoing and the presenters would love feedback and suggestions from conference attendees.

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Health Care Advocacy Toolkit for People with Intellectual and Developmental Disabilities
Erin Taylor, B.S., Health Promotion Coordinator, Oregon Institute on Development & Disability, UCEDD/LEND
Angela Weaver, MEd, Portland, OR, OR - Oregon Institute on Development & Disability, UCEDD/LEND;
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Taking Charge of My Health Care� Toolkit was created to help people with intellectual and developmental disabilities learn how to better advocate for their health and health care. The Toolkit consist of 9 modules that cover a variety of health and health care topics and is intended not only for people with IDD, but disability service providers and family members.

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Creative Ways to Form an Inclusive Community Advisory Committee (CAC) Based on a Relationship of Reciprocity
Pat Osbourn, M.A., Associate Director of Community Programs, Center for Development & Disability, UCEDD/LEND
Marcia Moriata, PsyD, Albuquerque, NM, United States, NM - Center for Development & Disability, UCEDD/LEND;
Lauriann King, MA, Albuquerque, NM, United States, NM - Center for Development & Disability, UCEDD/LEND;
Lisa Kalberg, MA, Albuquerque, NM, United States, NM - Center for Development & Disability, UCEDD/LEND;

This presentation will describe our reformation of the Advisory Committee of New Mexico�s Center for Development & Disability. New members recruited demonstrate leadership potential with regional and cultural representation in an effort to develop and support an inclusive, diverse group of advocates statewide. In addition to their traditional role of advising the Center�s work, serving on the CAC will provide members with increased leadership opportunities

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