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AUCD - Poster Symposium 11: Systems Change

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Tuesday, November 13, 2018 10:30 AM - 11:45 AM

Location: Congressional B

Session Description

All posters for the AUCD Conference will be presented throughout Monday and Tuesday (this is new in 2018) in a series of Poster Symposia that run at the same time as concurrent sessions. During these 75 minute poster symposia, 12-15 posters on a similar theme will be grouped together in a room. Posters will be displayed on large boards and have a table underneath for accompanying materials. The session will be introduced by a moderator, poster authors will be asked to provide a very brief introduction of their poster, and then attendees will be free to move about the room to speak with poster presenters directly for the remainder of the session. Attendees are also welcome to move between symposia rooms and view posters on other topics. Conference posters submitted ahead of time are also avilable electronically in the conference app and linked below.

 


 

 




Presenters

Improvement in Mental Health Outcomes and Caregiver Service Experiences Associated with the START Program
Joan Beasley, Ph.D., Director, Center for START Services, Institute on Disability, UCEDD
^, NH;

Outcomes from the START program, a community-based tertiary care model for individuals with IDD and mental health needs were examined. Significant 1 year pre-post improvement in 111 family caregiver experiences and service user outcomes were found. Findings suggest that START methods may help to improve service experiences and reduce the need for acute care services.


Acting Early: Eliminating the Wait and See Approach
Stephanie Weber, PsyD, LEND Training Director, University of Cincinnati UCE, UCEDD/LEND
Stephanie Weber, PsyD, CCHMC, Cincinnati, OH, United States, OH - University of Cincinnati UCE, UCEDD/LEND;
Pam Williams-Arya, MD, CCHMC, Cincinnati, OH, United States, OH - University of Cincinnati UCE, UCEDD/LEND;
Anne Tapia, MSW, CCHMC, Cincinnati, OH, United States, OH - University of Cincinnati UCE, UCEDD/LEND;
Carolina Cuba Bustinza, MD, CCHMC, Cincinnati, OH, United States, OH - University of Cincinnati UCE, UCEDD/LEND;
Kaitlyn Eichinger, PsyM, CCHMC, Cincinnati, OH, United States, OH - University of Cincinnati UCE, UCEDD/LEND;
Sarah Kasper, BA, CCHMC, Cincinnati, OH, United States, OH - University of Cincinnati UCE, UCEDD/LEND;
Kayla Whitaker, BA, CCHMC, Cincinnati, OH, United States, OH - University of Cincinnati UCE, UCEDD/LEND;

This presentation outlines a research project conducted by Cincinnati LEND trainees and faculty that provided education to healthcare providers to improve awareness of available resources, facilitate communication between provider and families, educate on appropriate referral processes, and identify potential barriers providers face when referring children under age three to services. CDC's "Learn the Signs. Act Early" materials were incorporated and screening and monitoring practices of providers were measured.


Web-based Grants Management: Using Apricot for Funders in Partnership with the Maryland Department of Health's Office for Genetics and People with Special Health Care Needs
Megan Reed, M.S.- Health Science, Project Coordinator , Kennedy Krieger Institute, UCEDD/LEND
Dr. Jed Miller, MD, MPH, OGPSHCN (Title V), Baltimore, MD, United States;
Monika Piccardi, RN, OGPSHCN (Title V), Baltimore, MD, United States;
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This presentation describes the data system developed by the Maryland Center for Developmental Disabilities (MCDD) andthe Maryland Department of Health�s office for children and youth with special health care needs. Participants will learn how Apricot for Funders, a web-based grants management system, has streamlined capacity for grantees to apply for funding opportunities, submit reports, and receive grant-related communications, and has provided a dynamic platform for funder needs as well.

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Focus on Workforce Development: NH�s Training and Coaching System to Implement the RENEW Transition Intervention
JoAnne Malloy, , Institute on Disability, UCEDD
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This session will outline how the developers of a research-based transition intervention for youth with emotional and behavioral challenges used Implementation Science to create more effective workforce training, coaching, and implementation support systems.

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Creating Connections for Children and their families, self-advocates, and providers through Telehealth: Lessons Learned from the 2018 SPHARC Peer-to-Peer Exchange
Shanel Tage, MPH, Program Analyst, AMCHP
Sara Miller, MPH, AMCHP, Washington, DC, United States;

This poster presents the lessons learned from the State Public Health Autism Resource Center (SPHARC) 2018 Peer-to-Peer Exchange on �Telehealth and ASD/DD�. Four current and six former HRSA autism grantees participated in the exchange, which included peer-learning activities and structured discussion. The poster provides a snap shot of a variety of challenges, strategies, partnerships, and future directions for addressing service gaps through Telehealth for individuals with ASD/DD and their families.

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Disrupting the Institutional Bias Embedded in Prenatal Screening to Reach Broad�Populations of Families and Professionals
Stephanie Meredith, MA, Medical Outreach Director, Interdisciplinary Human Development Institute, UCEDD
Elaine Eisenbaum, PhD, Lexington, KY, United States, KY - Interdisciplinary Human Development Institute, UCEDD;
Mark Leach, MA, Lexington, KY, United States, KY - Interdisciplinary Human Development Institute, UCEDD;
Mitchell Levitz, Valhalla, NY, United States, NY - Westchester Institute for Human Development, UCEDD/LEND;
Kruti Acharya, PhD, Chicago, IL, IL - Institute on Disability & Human Development, UCEDD/LEND;

Prenatal screening does not exist in a cultural vacuum. People with genetic conditions have been historically stigmatized and an institutional bias is embedded in prenatal screening�influenced by a medical model of disability, a history of eugenics, a funding power imbalance, and culture wars about reproductive and disability rights. This bias must be addressed in order to give families balanced and accurate information upon initial diagnosis.


Evaluating the impact of a medical-legal partnership on children with disabilities
Da-Yea Song, MHS, , Kennedy Krieger Institute, UCEDD/LEND
Maureen van Stone, Esq., MS., Baltimore, MD, United States, MD - Kennedy Krieger Institute, UCEDD/LEND;
Mallory Finn, Esq. , Baltimore, MD, United States, MD - Kennedy Krieger Institute, UCEDD/LEND;

As a medical-legal partnership, Project HEAL (Health, Education, Advocacy, and Law) helps families and children with intellectual and developmental disabilities address civil legal issues that they face in their everyday lives. Project HEAL's successful advocacy and legal services have created ripple effects to the faculty, staff, and trainees at the Kennedy Krieger Institute. To demonstrate this impact, an online survey was conducted by clinical professionals throughout the different departments.

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Designing a Curriculum for ASD/IDD Education of Adult-Trained Providers within a LEND Framework
JaMis Jackson, MD MS, LEND Transition Fellow, LoneStar, LEND
PAULINE A. FILIPEK, MD, HOUSTON, TX, United States, TX - LoneStar, LEND;

Significant barriers to appropriate health care transition of children and youth with special health care needs [CYSHCN] include the comfort level of adult-trained providers with ?pediatric? medical diagnoses, particularly autism spectrum/ intellectual-developmental disorders [ASD/IDDs]. We present a curriculum model for adult providers to deliver the necessary training to promote effective care for adult patients with ASD/IDDs within the framework of the LoneStar LEND Program.

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New York State's Transition to a Managed Care Model for Individuals with Intellectual and Developmental Disabilities
Joanne Siegel, LCSW, Co-Director RFK UCEDD, Rose F. Kennedy Center, UCEDD/LEND
Kathleen McGrath, MSW, Bronx, NY, United States, NY - Rose F. Kennedy Center, UCEDD/LEND;

A panel discussion was convened at Albert Einstein College of Medicine to help address concerns regarding New York State's transition from a fee-for-service to a managed care model. A description of the event and feedback from event attendees are discussed.

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Improving Family Centeredness in Early Intervention: A 3 UCEDD Collaboration
Jenna Lequia, Ph.D., , Westchester Institute for Human Development, UCEDD/LEND
Valerie Smith, MS, Rochester, NY, NY - Strong Center for Developmental Disabilities, UCEDD/LEND;
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This presentation describes a collaboration across three New York State UCEDDs and the NYS Department of Health to improve family centeredness in early intervention. The UCEDDs are supporting teams of early intervention officials, service coordinators, providers, and parents/family members on a series of improvement projects as part of New York�s Part C State Systemic Improvement Plan. Project structure and findings from the first year will be shared.


Social Marketing Interventions to Primary Care Physicians to Decrease Health Disparities for Patients with a Disability. A Scoping Review.
Angela Makris, MiM, Ms, Florida Center for Inclusive Communities, UCEDD
Mahmooda Khaliq, PhD, University of South Florida, Tampa, FL, United States;
Elizabeth Perkins, PhD, University of South Florida, Tampa, FL, United States, FL - Florida Center for Inclusive Communities, UCEDD;

Social Marketing which draws from behavioral theory, persuasion psychology, and marketing science, can play a significant role in changing attitudes of primary care providers towards people with disabilities. Because the attitudes of providers remain a significant deterrent to good quality care, social marketing can identify causal factors and create tailored behavior change interventions to primary care providers, to increase health equity for patients with a disability.

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Engaging families as a key strategy to address disparities in access to autism diagnosis and services
Gail Chodron, PhD, , Waisman Center, UCEDD/LEND
Lynn Hrabik, MPH, RD, CD, Madison, WI, WI - Waisman Center, UCEDD/LEND;
Sara Jeglum, BA, Madison, WI, WI - Waisman Center, UCEDD/LEND;
Anne Bradford Harris, PhD, MPH, RD, Madison, WI, WI - Waisman Center, UCEDD/LEND;
Maureen Durkin, PhD, DrPH, Madison, WI, WI - Waisman Center - IDDRC;

Disparities in access to autism spectrum disorder (ASD) diagnosis and services are well documented. In order to impact disparities, it is essential to have accurate knowledge of barriers and enablers to access faced by families. This poster describes methods used to engage diverse families in informing systems change in Wisconsin. Original data is reported from family surveys, listening sessions, and key stakeholder input collected through a quality improvement project.

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