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AUCD - Poster Symposium 5: Health & Wellness

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Monday, November 12, 2018 2:00 PM - 3:15 PM

Location: Congressional B

Session Description

All posters for the AUCD Conference will be presented throughout Monday and Tuesday (this is new in 2018) in a series of Poster Symposia that run at the same time as concurrent sessions. During these 75 minute poster symposia, 12-15 posters on a similar theme will be grouped together in a room. Posters will be displayed on large boards and have a table underneath for accompanying materials. The session will be introduced by a moderator, poster authors will be asked to provide a very brief introduction of their poster, and then attendees will be free to move about the room to speak with poster presenters directly for the remainder of the session. Attendees are also welcome to move between symposia rooms and view posters on other topics. Conference posters submitted ahead of time are also avilable electronically in the conference app and linked below.

 


 

 




Presenters

Adolescents with Disabilities Involved in Child Welfare Services: Promoting Sexual Health and Sexual Safety
Ann Carrellas, MSW, ABD, Associate Director of Research, Developmental Disabilities Institute, UCEDD/LEND
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Protective factors of older adolescents with intellectual disabilities involved in child welfare systems in terms of sexual health and sexual safety are explored. This study is a secondary analysis of data from the National Survey on Child and Adolescent Well-Being using a moderated regression analysis.

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Disability and Sexuality Resources: My LEND Leadership Project
Devon Bacso, EdS, Mx, The University of Arizona, LEND
Devon Bacso, EdS, Flagstaff, AZ, United States, AZ - The University of Arizona, LEND;

This LEND Leadership Project addresses the need for sexual education resources for those with disabilities. The project investigated existing resources on identity, relationships, and sexual intimacy for those with physical or motor disabilities. The project utilized and expanded existing information, culminating in the creation of a website. The website is divided into sections for middle schoolers, high school students, and young adults.

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Nutritional Deficiencies Secondary to Avoidant/Restrictive Food Intake Disorder in Autism Spectrum Conditions: A Systematic Review of Case Reports
Summer Yule, M.S. (Health Promotion Sciences), former trainee, A. J. Pappanikou Center for Developmental Disabilities, UCEDD/LEND
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The objective of this poster presentation is to build awareness in the health and parenting communities that avoidant/restrictive food intake disorder (ARFID) can lead to serious nutrient deficiencies and is not just picky eating. Health professionals need to be able to distinguish ARFID from typical picky eating in order to provide the correct information regarding appropriate interventions, and to help families make informed choices regarding the care of their child.

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The 21st Century Training Program: Discussing challenges and opportunities of utilizing tele-presence robots and video conferencing technology in LEND
Elizabeth Weintraub, Policy Advocacy Specialist/GaLEND Graduate, Center for Leadership in Disability at Georgia State University, UCEDD/LEND
Mark Crenshaw, MTS, Atlanta, GA, United States, GA - Center for Leadership in Disability at Georgia State University, UCEDD/LEND;
Teal Benevides, PhD, MS, OTR/L, Augusta University, Augusta, GA, United States;

The world is getting smaller every day, and because of technology, LEND can be accessible to anyone, anywhere. You can be a trainee within the state or out of state, and through technology, you can be in the classroom. In this session, two trainees from different cohorts and the training director will share stories including successes and challenges of using technology in LEND.


The Vermont Continence Project: Supporting Dignity, Inclusion, Health, and Self-Determination
Deborah Sharpe, MOT, Project Coordinator - Vermont Continence Project, Center on Disability & Community Inclusion, UCEDD
Chayah Lichtig, MSOT, Middlesex, VT, United States, VT - Center on Disability & Community Inclusion, UCEDD;

Delays in achieving continence represent a significant barrier to inclusion, social acceptance, and dignity for individuals with disabilities. The Vermont Continence Project provides capacity-building consultation and training to families and teams supporting children and young adults as they develop these skills. The Continence Project presenters will share our Training and Technical Assistance model, resources, and vision for the future, as well as common barriers and challenges in continence support work.

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The effects of hippotherapy on repetitive behaviors and verbalization in children with Autism Spectrum Disorder.
Elizabeth Knocke, DPT, PT student, Center for Disabilities Studies, UCEDD/LEND
Deanna Longo, BS, Dept. of Physical Therapy, University of Delaware, Newark, DE, United States, DE - Center for Disabilities Studies, UCEDD/LEND;
Brooke Gillespie, BC, Brandywine OT Clinic, Wilmington, DE, Wilmington, DE, United States, DE - Center for Disabilities Studies, UCEDD/LEND;
Lauren Janusz, MOT, Brandywine OT clinic, Wilmington, DE, Wilmington, DE, United States;
Anjana Bhat, PT, PhD, Dept. of Physical Therapy, University of Delaware, Newark, DE, United States, DE - Center for Disabilities Studies, UCEDD/LEND;

We are examining the effects of an 8-week hippotherapy intervention program on the repetitive behaviors and verbalization skills of children with Autism Spectrum Disorder. We will be reporting our first round of results in a small sample of children with ASD. The study is still ongoing. Please include this work in a session discussing autism interventions.

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Predicting Re-Hospital Use Among People with Intellectual Disabilities
Matt Mason, PhD, Project Director, DDA Health Initiative, Georgetown University Center for Child & Human Development, UCEDD
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We conducted an 18-month study of why people with Intellectual Disabilities use hospital services in the District of Columbia. This study reveals important factors that predict not only whether a person will be hospitalized, but also the person's risk for re-hospitalization.


Addressing Health and Healthcare Access Disparities through Disability Health Needs Assessments: Review and Comparison with Recommendations for Implementation
Katherine Straka, Master of Public Health , , A. J. Pappanikou Center for Developmental Disabilities, UCEDD/LEND
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This poster looks at the methodologies of four different state level disability health needs assessments and compares them for methodological strengths and weakness for addressing the health and healthcare access disparities people with disabilities experience. From this analysis recommendations were developed for the creatation and implementation of a disability health needs assessment to address this issue.

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The Family Experience for Medical and Dental Residents-Improving the Quality of Care through Experiential Learning
Carrie Burkin, , Strong Center for Developmental Disabilities, UCEDD/LEND
Stephen Sulkes, MD, Rochester, NY, United States, NY - Strong Center for Developmental Disabilities, UCEDD/LEND;
Abigail Kroening, MD, Rochester, NY, United States;
Jeiri Flores, Rochester, NY, United States;

The power of community individual and family experiences to help health providers understand the real lives of people with disabilities is substantial. We describe our experience in the first year of a program providing such experiences to a broad range of primary care medical and dental residents and students at University of Rochester.

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Evaluating Impact of a Community Educational Program on Dementia and Intellectual and Developmental Disabilities: Adapted NTG Curriculum in Arizona
Yumi Shirai, PhD, Assistant Professor, Sonoran UCEDD
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Sonoran UCEDD initiated the I-AADAPT project in the fall of 2016 to bring to Arizona the Dementia Capable Care Training developed by the National Task Group on Intellectual Disabilities and Dementia Practices. The I-AADAPT project team adapted the national curriculum to meet the needs of specific audiences and implemented the curriculum across Arizona. This study provides the preliminary results of pre-/post-workshop evaluations (N=152) of the I-AADAPT family/community provider curriculum.

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We Belong in the Kitchen! Supporting people with disabilities to cook healthy meals at home
Erica Thomas, MS, Health Educator , Georgetown University Center for Child & Human Development, UCEDD
Erica Thomas, MS, Washington, DC, United States, DC - Georgetown University Center for Child & Human Development, UCEDD;
Advocates and one student, respectively , Washington, DC, United States, DC - Georgetown University Center for Child & Human Development, UCEDD;

Just like ALL of us, people with disabilities are often faced with answering the question - What on earth will I eat today? Working with Georgetown University medical students and local advocates, a cooking show was developed to help people with disabilities to prepare easy, budget-friendly meals in their own kitchens - where they belong.

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Disabled Parenting Project (DPP): Leveraging Research to Inform Social Policy
Kara Ayers, PhD, Associate Director, University of Cincinnati UCE, UCEDD/LEND
Diane Burns, Cincinnati, OH, United States, OH - University of Cincinnati UCE, UCEDD/LEND;
Felicia Foci, MSOT, Cincinnati, OH, United States, OH - University of Cincinnati UCE, UCEDD/LEND;
Emily Jones, Ms EEd, Cincinnati, OH, United States, OH - University of Cincinnati UCE, UCEDD/LEND;
Tiffany Moody, BS, Cincinnati, OH, United States, OH - University of Cincinnati UCE, UCEDD/LEND;
Ilka Riddle, PhD, Cincinnati, OH, United States, OH - University of Cincinnati UCE, UCEDD/LEND;

The Disabled Parenting Project is both an online community for disabled parents and a participatory action research project to learn more about parents with disabilities and their families. LEND trainees worked in collaboration with DPP and the National Research Center for Parents with Disabilities to develop evidenced-based fact sheets for women considering pregnancy and healthcare providers.

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Connect, Support, Empower: A Framework for Inclusive Community-Based Physical Activity
Bridgette Schram, , Oregon State University
Bridgette Schram, MS, Oregon State University, Corvallis, OR, United States;
Samantha Ross, MS, MPH, Oregon State University, Corvallis, OR, United States;
Kathy McCarty, MS, Oregon State University, Corvallis, OR, United States;

Disability is the largest minority group experiencing disparities in physical activity and health. Impact for life is an advocacy and service program promoting the engagement of adults with disabilities in self-empowered lifelong physical activity within the community. This poster describes Impact for Life's approach to connect, support, and empower its key stakeholders to adopt inclusive practices, serving as a framework for future health promotion programs.

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An ecological systems examination of midlife parents' experiences in arranging social and recreational activities in children with and without ASD
Jen Wong, Ph.D., Assistant Professor, The Nisonger Center, UCEDD/LEND
Brooke Norman, The Ohio State University, Department of Human Sciences, Columbus, OH, United States;
Barbara T. Hodgdon, M.S., The Ohio State University, Department of Human Sciences, Columbus, OH, United States;
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This qualitative study examined 40 midlife parents' experiences in arranging the social and recreational activities of their children with and without ASD. Findings showed that parents of children with ASD were more likely to report barriers related to the child's behavior as well as finding ability-appropriate activities than the comparison parents. Implications on ways to best engage and support families of children with ASD with community organizations will be discussed.