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AUCD - Concurrent Sessions

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Monday, November 12, 2018 10:15 AM - 11:30 AM

Session Description

AUCD Concurrent sessions are small group discussions, presentations, or panels. They last 75 minutes and are hosted in small meeting rooms throughout the event space.




Presenters

Model Approaches to Enhancing Home and Community-Based Services for Adults with IDD

Presenter(s)

Carol Laws, PhD, Clinical Professor, Institute on Human Development and Disability, UCEDD
Linda Bimbo, MS, Durham, NH, NH - Institute on Disability, UCEDD;
Donna Gilles, Ed.D, Richmond, VA, VA - Partnership for People with Disabilities, UCEDD/LEND;

In Fall 2017, the Administration on Community Living awarded 3 five year grants to develop and test model approaches for enhancing the quality, effectiveness, and monitoring of HCBS supports for people with IDD. All three recipients of these awards will provide an overview, and progress/learning to date of each of their projects. A representative from ACL will discuss cross site evaluation and expected outcomes.


From Everybody Welcome to Everyone Belongs: Lessons about Belonging from Theory, Theology, Research and Practice in Faith Communities.

Presenter(s)

Bill Gaventa, M.Div, Consultant, Educator, Author, Collaborative on Faith and Disability
Erik Carter, Ph.D., Nashville, TN, United States, TN - Vanderbilt Kennedy Center for Research on Human Development - IDDRC;
Karen Jackson, Masters, Faith Inclusion Network, Norfolk, VA, United States;
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Belonging has been a core tenet of faith communities for centuries. This session will include cutting edge research by Erik Carter and colleagues on inclusion and belonging as defined by families, trends in theology, theory and pastoral practice by Bill Gaventa, and the ten year work of the Faith Inclusion Network promoting inclusion and belonging by Karen Jackson.


Mobile Technology for Audio Description

Presenter(s)

Megan Conway, PhD, Director of Instruction and Training, Hawaii Center on Disability Studies UCEDD/JABSOM LEND Program
Thomas Conway, PhD, Honololu, HI, United States, HI - Center on Disability Studies, UCEDD/LEND;
Brett Oppegaard, PhD, Department of Communications, University of Hawaii at Manoa, Honolulu, HI, United States;

Create guided audio description using an Open Source web tool and mobile application. Participants will learn (a) why audio description is an essential component of inclusive communities, (b) how mobile technology opens doors for easy creation and access to audio description, (c) how to apply research-based best practices in creating audio described materials, and (d) how to use a web tool and mobile application to create and access audio description.

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International Connections: Next Steps for the ADA Outbound Fellowship

Presenter(s)

Lori Garnes, PhD, Dr, North Dakota Center for Persons with Disabilities, UCEDD
Evan Borisinkoff, PhD, Minot, ND, United States, ND - North Dakota Center for Persons with Disabilities, UCEDD;
Martin Blair , PhD, Missoula , MT, United States, MT - University of Montana Rural Institute, UCEDD;

Add your voice to the conversation about strengthening inclusive practices across the world. Join ADA International Fellowship Program participants from UCEDDs in Montana, South Dakota, North Dakota and New York to learn about their evolving partnerships with colleagues in Africa. Add to the discussion regarding potential next steps for how UCEDDs and international partners can work together to develop inclusive disability-service models.


How LEND Training Develops Family Leaders: Advocating For Inclusion in Community Life

Presenter(s)

Fran Goldfarb, MA, MCHES, CPSP, Director, Community Education, USC, Childrens Hospital, UCEDD/LEND
Dori Ortman , Pittsburgh, PA, United States, PA - UCLID Center, LEND;
Barbara Levitz, MS.Ed., Vahalla, NY, United States, NY - Westchester Institute for Human Development, UCEDD/LEND;
Linda Russo, MA. Ed, Birmingham, AL, United States, AL - Civitan International Research Center, UCEDD/LEND;
Stephanie Coleman, Kansas City, KS, United States, KS - Schiefelbusch Institute for Life Span Studies, UCEDD/LEND;
Marc Smith, MS, Omaha, NE, United States, NE - Munroe-Meyer Institute of Genetics & Rehabilitation, UCEDD/LEND;

Families have historically been a driving force in systems transformation.. Both family faculty and graduates have assumed leadership roles at all levels resulting in more inclusive policies and practices. The goal of this interactive session will be to examine how curriculum may include specific components that enhance the leadership development of Family Discipline trainees. The session is sponsored and presented by the AUCD/LEND Family Discipline Network.

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Raising Expectations Earlier: Developing a National, Cross-Lifespan Movement to Improve Employment Outcomes

Presenter(s)

Derek Nord, PhD, Executive Director, Indiana Institute on Disability and Community, UCEDD
Judith Gross, PhD, Bloomington, IN, United States, IN - Indiana Institute on Disability and Community, UCEDD;
Ann Deschamps , EdD, TransCen, Inc., Rockville, MD, United States;
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The purpose of this interactive session is to engage the AUCD network to begin formulating a plan to change the national conversation related to employment expectations, from early childhood to adulthood. The session will include a brief presentation of current research on these topics; followed by a facilitated discussion and planning process to inform a framework from which the network can lead in the future.


Are you WITH me? Working toward inclusive healthcare for all communities.

Presenter(s)

Elaine Eisenbaum, PhD, Disability Training Director, Interdisciplinary Human Development Institute, UCEDD/LEND
Laura Butler, Lexington, KY, United States, KY - Interdisciplinary Human Development Institute, UCEDD;
Richard Parent-Johnson, PhD, Sioux Falls, SD, United States, SD - Center for Disabilities, UCEDD/LEND;
LynnAnn Tew, Anchorage, AK, United States, AK - Center for Human Development, UCEDD/LEND;
Priya Chandan, MD, MPH, University of Louisville School of Medicine, Louisville, KY;
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Access to quality healthcare is a vital part of every community. Many barriers to healthcare exist for people with disabilities; medical facilities need to be not only physically accessible, but also cognitively and culturally accessible. In this session, a panel representing three of the projects funded by the WITH Foundation will discuss expanding inclusive healthcare. The panelists will discuss their project teams and the tools/resources that each project developed.


Variations on a �Mini-fellowship� Theme: Workplace-based learning for primary pediatric health care professionals embedded in developmental-behavioral and neurodevelopmental disabilities clinics

Presenter(s)

Tyler Reimschisel, MD, MPHE, Director, Vanderbilt Consortium LEND, Vanderbilt University, UCEDD/LEND
Carol L Hubbard, MD, MPH,PhD, Portland, ME, United States, ME - The Maine LEND Program;
Tara J Minor, MAT, MA, Nashville, TN, United States, TN - Vanderbilt Kennedy Center for Research on Human Development - IDDRC;
Toni Whitaker, MD, Memphis, TN, United States, TN - Boling Center for Developmental Disabilities, UCEDD/LEND;

Three LEND programs (Boling Center, Maine, and Vanderbilt Consortium) implemented mini-fellowship programs in developmental-behavioral and neurodevelopmental disabilities (NDD) clinics for primary pediatric health care professionals. The panelists will describe a) their rationales for implementing the programs b) the similarities and unique elements of their mini-fellowship curricula, and c) insights and lessons learned from the experience. The presentation will demonstrate how similar programs can be tailored to individual program�s capacities.

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The SHEIDD Project: Tools for Building Community Capacity to Support the Sexual Health of Youth with I/DD

Presenter(s)

Lindsay Sauve, MPH, Program and Evaluation Manager, Oregon Institute on Development & Disability, UCEDD/LEND
Kiersi Coleman, Portland, OR, United States, OR - Oregon Institute on Development & Disability, UCEDD/LEND;
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The Sexual Health Equity for Individuals with Intellectual and Developmental Disabilities (SHEIDD) Project, led by Multnomah County Health Department in Portland, Oregon, uses human-centered design and popular education methods to develop resources to improve the sexual health of people with I/DD. This interactive presentation will explore participatory learning activities used to engage the community in a county-wide effort to address the needs of youth with I/DD.

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Inclusion Through Visibility: Sharing Our Stories

Presenter(s)

Clark Matthews, BA in Film and Media Arts, , Rooted in Rights
Emily Ladau, BA in English, Rooted in Rights, West Babylon, NY, United States;

Creative professionals from the award-winning Rooted in Rights share their secrets for how you can take control of the disability narrative - and empower those around you to do the same. HINT: If you have a story and access to a smartphone, you�re almost there!

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How Self-Advocates, Parents, and DD Network Partners are Working Together to Change Disability Policy for the Better

Presenter(s)

Tom Sannicandro, JD, PhD, Director, Institute for Community Inclusion/Boston Children's Hospital, UCEDD/LEND
Shawn Latham, Center on Human Development & Disability, UCEDD/LEND
Wanda Felty, Community Leadership and Advocacy Coordnator, Center for Learning and Leadership, UCEDD/LEND
Wanda Felty[1],Oklahoma City[4],OK[5],United States[6],OK - Center for Learning and Leadership, UCEDD/LEND[7]
Changing disability policy and people's attitudes takes a lot of time and commitment from all parties that are impacted by it. In this session, you will learn how advocates from Massachusetts, Oklahoma, and Washington are changing their states for the better for people with developmental disabilities and their families.

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Inclusive Emergency Preparedness, Response, and Long term Recovery

Presenter(s)

Carol Salas, Dr. , Institute on Developmental Disabilities, UCEDD
Susan Wolf-Fordham, JD, Eunice Kennedy Shriver Center, UCEDD/LEND
Laura Stough, Ph.D., Associate Professor, Center on Disability and Development, UCEDD
Ilia Torres[1],MS[2],San Juan[4],PR[5],PR - Institute on Developmental Disabilities, UCEDD[7]
Amy Sharp, PhD; Kayla Sharp, PhD[1],College Station[4],TX[5],TX - Center on Disability and Development, UCEDD[7]
This session will share key components of Inclusive Emergency Preparedness, Response, and Long-term Recovery efforts for people with IDD. Best practices in response and research-based effective resources and services post-disaster will be shared along with a LEND trainee curriculum.

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