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AUCD - Concurrent Sessions

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Tuesday, November 7, 2017 1:30 PM - 2:45 PM


Lifting Voices of Self-Advocacy on the Prairie


Brent Askvig, Ph.D., Director, North Dakota Center for Persons with Disabilities, UCEDD
Steven Beard, Advocates Leading their Lives, Williston, ND, United States;
Alan Becker, Advocates Leading their Lives, Minot, ND, United States;
Teresa Larsen, M.S., ND Protection and Advocacy, Bismarck, ND, United States;
Julie Horntvedt, MS, ND State DD Council, Bismarck, ND, United States;

Speakers will address the challenges and successes of establishing and maintaining a statewide network of self-advocates and self-advocacy organizations in a rural state. Partnerships for success will be described.

Read and download presentation materials >

Advocacy is Stressful: Self-Care Strategies for Maintaining your Mental Health, Productivity, and Passion


MATTHEW WAPPETT, Ph.D., Executive Director, Institute for Disability Research, Policy & Practice, UCEDD/LEND
Liz Weintraub, AUCD , Silver Spring , MD, United States;

This interactive session will introduce participants to the most recent science on work-related stress and will teach participants some short, simple self-care strategies that they can use to manage stress and promote mental health in their personal lives and workplace.

Bringing the Family Voice to a Quality Improvement Project: Family Perceptions and Experiences within a UCEDD Clinic


Amy Whitehead, MPA, , Waisman Center, UCEDD/LEND
Sandy Tierney, PhD, Madison, WI, United States;
Emily Hickey, MS, Madison, WI, United States;

This presentation describes a UCEDD Quality Improvement project to solicit family feedback around communication before, during, and after clinic visits. Results and recommendations, progress toward implementation of recommendations, lessons learned, and LEND trainee involvement will be shared. Audience members will be invited to discuss strategies and ways to work together to provide high quality, family-centered, training oriented clinical care within the context of a rapidly changing healthcare landscape.

UCEDD Partnership Planning Grants with Minority Serving Institutions


Bruce Keisling, PhD, Executive Director, Center on Developmental Disabilities, UCEDD/LEND
Leslie Cohen, JD, Tucson, AZ, United States, AZ - Sonoran UCEDD;
Chanda Dunn, MSW, Memphis, TN, United States, TN - Boling Center for Developmental Disabilities, UCEDD/LEND;
Katherine Mahosky, Flagstaff, AZ, United States, AZ - Institute for Human Development, UCEDD;
Jin Joo Crosby, MBA, Hattiesburg, MS, United States, MS - Institute for Disability Studies, UCEDD;
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The panel will describe the process and outcomes of a year-long planning grant for three University Center for Excellence in Developmental Disability (UCEDD) programs with three regionally distinct minority serving institutions from their respective communities.

Creating Accessible Presentations: Make Your Voice Heard by Everyone


Jessica Wright, Program Manager, WVATS, Center for Excellence in Disabilities, UCEDD/LEND
Courtney Lanham, Morgantown, WV, United States, WV - Center for Excellence in Disabilities, UCEDD/LEND;

As individuals, professionals, and advocates, we often lift our voices through presentations. Presenting is an impactful way to spread a message and we need to ensure we reach everyone in our audience when we present. This interactive presentation walks participants through the steps of creating accessible presentations, beyond font size and simplified slides. Bring your laptop with Microsoft PowerPoint installed and learn how to ensure all participants hear your voice.

Updates on the Home and Community Based Services (HCBS) Settings Rule: Strategies to Drive Change in Your State


Alison Barkoff, J.D., Director of Advocacy, Center for Pubic Representation
Nicole Jorwic, J.D., Washington, DC, United States;
Elizabeth Priaulx, J.D., Washington, DC, United States;
David Machledt, Washington, DC, United States;
Christine, Grosso, Silver Spring, DC, United States, MD - The Association of University Centers on Disabilities -;
States are in the process of implementing the HCBS Settings Rules that define "community" for HCBS programs. These rules create an opportunity to transform state systems to support real integration and move away from congregate models that limit autonomy, choice, and community interaction. This presentation will provide updates on recent federal guidance and on state implementation and describe how to advocate for change in your state.

Lifting Our Voices Through Arts and Media: Reflecting on Concepts /Methods to Achieve Cultural Equity and Implications in Advocacy Efforts


Kathryn Fialkowski, MTS, EdD Student, Director of Academic Programs, Institute on Disabilities, UCEDD
Kate Fialkowski, MTS, Bioethics, Philadelphia, PA, United States, PA - Institute on Disabilities, UCEDD;
Aaron Spector, MSEd, Special Ed, Disability Resources and Services, Temple University, Philadelphia, PA, United States;
Steven Williams, Philadelphia, PA, United States;
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Arts and Media perpetuate harmful stereotypes and tropes of disability (charity, affliction, inspiration) portrayed and perpetuated by people without a disability. This presentation emphasizes self-representation as cultural equity. Specifically, this panel will present lessons from the Disability&Change Symposium: Self Representation in the Arts&Media. The panel will share: methods of Universal Design used by panelists, the pop-up audience-interactive art experience lead by students, and diverse panels inclusive of persons with disabilities.

Swimming Upstream Together: How UCEDDs are partnering with State Leaders using the NCI to Create Systems Change


Audrey Rossi, M.S., Program Coordinator, Center for Disabilities Studies, UCEDD/LEND
Audrey Rossi, M.S., Newark, DE, United States, DE - Center for Disabilities Studies, UCEDD/LEND;
Celia Feinstein, M.A., Philadelphia, PA, United States, PA - Institute on Disabilities, UCEDD;
June Malachowski, LLMSW, Detroit, MI, United States, MI - Developmental Disabilities Institute, UCEDD/LEND;
Parthy Dinora, Ph.D., Richmond, VA, United States, VA - Partnership for People with Disabilities, UCEDD/LEND;
Rachel Ray, M.A., Omaha, NE, United States, NE - Munroe-Meyer Institute of Genetics & Rehabilitation, UCEDD/LEND;

The National Core Indicators (NCI) measure outcomes of services provided to adults with IDD and their families. In this panel, six UCEDDs will describe how NCI results are being used as part of their collaborative effort with state DD agencies to inform state policy and service delivery, promote advocacy and drive change. Audience members will discuss how they can use NCI data to build similar relationships in their states.

Implementing the Teaching Pyramid Model for Social Competence in Part B/619 Classrooms: A Demonstration Model


Elizabeth Howe, MA, Research Assistant, A. J. Pappanikou Center for Developmental Disabilities, UCEDD/LEND
elizabeth howe, MA, Farmington , CT, CT - A. J. Pappanikou Center for Developmental Disabilities, UCEDD/LEND;
Mary Beth Bruder, PhD, Farmington , CT, CT - A. J. Pappanikou Center for Developmental Disabilities, UCEDD/LEND;

In this presentation participants will learn how the UCONN UCEDD, in collaboration with the CT State Department of Education, used the Teaching Pyramid Model to train three school districts to successfully implement model strategies in inclusive preschool classrooms. District coaches were identified to support the sustainability of implementation, and help shift teacher practice. Videos, and guided discussion will provide an interactive format to learn about this demonstration project.

Zika Virus: Updates, Lessons Learned, and Implications for Long-Term Outcomes


Margaret Honein, PhD, MPH, Chief, Birth Defects Branch, Centers for Disease Control and Prevention
Kara Polen, MPH, Centers for Disease Control and Prevention, Atlanta, GA;
Nicole Fehrenbach, MPP, Centers for Disease Control and Prevention, Atlanta, GA;
Georgina Peacock, MD, MPH, FAAP, Centers for Disease Control and Prevention, Atlanta, GA;
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In January 2016, CDC activated its Emergency Operations Center to respond to outbreaks of Zika occurring in the Americas and increased reports of congenital microcephaly. While we have learned much, questions remain about the full spectrum of and long-term outcomes associated with Zika virus-including the needs of affected children and families. CDC will provide an update on Zika virus activities, lessons learned, and potential implications for long-term health outcomes.

Nothing About Us, Without Us: Opportunities for Self-Advocates as Co-Teachers, Leaders, and Trainees in LEND Programs


Kruti Acharya, MD, Institute on Disability & Human Development, UCEDD/LEND
Sally Stuart, PhD, UW LEND Associate Director/Training Director, Center on Human Development & Disability, UCEDD/LEND
Skye Peebles, MPH, Public Health Faculty, Vermont Leadership Education in Neurodevelopmental Disabilities, LEND
Green Mountain Self-Advocates[1],Bellows Falls[2],VT[3],United States[4],VT - Vermont Leadership Education in Neurodevelopmental Disabilities, LEND[5]
Presentation teams will discuss opportunities for meaningful inclusion of self-advocates as co-teachers, leaders, and trainees in LEND. Topics include: UW LEND Purposeful Inclusion Leadership Mini-Curriculum for self-advocate trainees in leadership roles on Board of Directors and advisory councils; successful strategies that the VT LEND and Green Mountain Self-Advocates used to co-design and co-teach a seminar about the Self-Advocacy Movement; and results of the 2ndnational survey of LEND programs about self-advocacy.

Engaging Adults with Intellectual and Developmental Disabilities and their Supports for Better Health


Rain Van Den Berg, Masters of Public Health, LEND Training Coordinator, Center for Human Development, UCEDD/LEND
Karen Heath, MS Vocational Rehabilitation, Associate Director, Center for Human Development, UCEDD/LEND
Melissa Pennise, MPH, Strong Center for Developmental Disabilities, UCEDD/LEND
Steve Sulkes[1],MD[2],Rochester[4],NY[5],NY - Strong Center for Developmental Disabilities, UCEDD/LEND[7]
Come learn about three community-based efforts to promote health and wellness for adults with IDD. All three projects engage both adults with IDD, and people who work with them, including direct service providers, Special Olympics coaches, and current and future healthcare providers. Learn how to connect your Special Olympics and AADMD chapters, how to set up your own wellness program, and get access to a picture-based health toolkit.

New Perspectives on Identifying and Supporting Children with ASD


Peter Doehring, PhD, Director, ASD Roadmap
Becky Shafer, M.Ed., BCBA, Educational Consultant, TRIAD
Jeffrey Hine, PhD, Assistant Professor of Pediatrics, Vanderbilt University, UCEDD/LEND
A series of talks explores how programs can pilot new ways to close gaps in ASD services. We illustrate how to re-analyze CDC prevalence data to target often overlooked gaps in ASD identification. We propose to increase access to services by embedding ASD diagnosis within the medical home. We describe an inclusive model to support children with ASD in rural and low resource areas using coaching in early childhood classrooms.

Read and download presentation materials >

Utilizing a Variety of Assistive Technology (AT) Methods to Create Collaboration and Community: AAC, Cardboard Adaptive Design, and Mobile Telecommunication


Kathryn Helland, M.S., CCC-SLP, AAC Specialist, Institute on Disabilities, UCEDD
Catherine Kanter, MS, CF-SLP, Speech Language Pathology Clinical Fellow, Waisman Center, UCEDD/LEND
Sally Gould-Taylor, PhD, Executive Director, Institute on Disabilities, UCEDD
Russell Goldstein[1],Temple University[3],Philadelphia[4],PA[5],United States[6]
Kim Singleton[1],Temple Univeristy[3],Philadelphia[4],PA[5],United States[6]
Join this session to learn about three different Assistive Technology driven projects that are designed to support authentic, sustainable, and meaningful community participation for people with disabilities. The programs highlight: the incorporation of AAC into existing autism therapy programs; the training of professionals to utilize cardboard to fabricate customized adaptations for young children; and the incorporation of generic devices with AAC apps to provide access to accessible mobile communication.

Utilizing Cultural Brokering in Diverse Communities to Support Families with Children with Disabilities


Yali Pang, PhD candidate, Diversity Fellow (current trainee), Partnership for People with Disabilities, UCEDD/LEND
Elizabeth Morgan, Ed.M. , Program Coordinator/Faculty, UC Davis at the MIND Institute, UCEDD/LEND
Joshuaa Allison-Burbank[1],MA, CCC-SLP[2],Kansas City[4],KS[5],United States[6],KS - Schiefelbusch Institute for Life Span Studies, UCEDD/LEND[7]
Maribel Hernandez[1],Sacramento[4],CA[5],United States[6],CA - UC Davis at the MIND Institute, UCEDD/LEND[7]
Yali Pang[1],MA[2],Richmond[4],VA[5],United States[6],VA - Partnership for People with Disabilities, UCEDD/LEND[7]
This presentation will discuss the challenges that families of color with children with disabilities face during diagnosis, early intervention, and in critical transitions during school. Specifically, the presenters will discuss how the use of "cultural brokers" within these communities has proven to be effective in supporting and empowering families. Strategies for using cultural brokers in research will also be discussed.