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AUCD - Concurrent Sessions

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Tuesday, November 7, 2017 10:30 AM - 11:45 AM


Strategies for Successful Partnerships: Engaging State Policymakers in UCEDD Program Development
Matthew Wappett, Ph.D., Executive Director, Center for Persons with Disabilities, UCEDD/LEND
Sachin Pavithran, Ph.D., Logan, UT, United States, UT - Center for Persons with Disabilities, UCEDD/LEND;
Marcia Moriarta, Psy.D., Albuquerque, NM, United States, NM - Center for Development & Disability, UCEDD/LEND;
Julie Christensen, Ph.D., Iowa City, IA, United States, IA - Center for Disabilities and Development, UCEDD/LEND;
Wendy Parent-Johnson, Ph.D., Sioux Falls, SD, United States, SD - Center for Disabilities, UCEDD/LEND;
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This session provides an overview of successful strategies being used by UCEDDs in several states to engage with their state legislatures, governor's offices, and agency heads. Presenters will share case studies from their respective states and then session participants will then have an opportunity to share strategies that have worked for them through a facilitated discussion.

Why and How to Engage Families as Presenters in Training for Health, Education, and Law Enforcement Community Partners
Fran Goldfarb, MA, Director, Community Education, USC, Childrens Hospital, UCEDD/LEND
Barbara Levitz, MS Ed, Vahalla, NY, United States, NY - Westchester Institute for Human Development, UCEDD/LEND;
Mitchell Levitz, Vahalla, NY, United States, NY - Westchester Institute for Human Development, UCEDD/LEND;
Dori Ortman, CC, Pittsburgh, PA, United States, PA - UCLID Center, LEND;
Mark Smith, MS, Omaha, NE, United States, NE - Munroe-Meyer Institute of Genetics & Rehabilitation, UCEDD/LEND;
Linda Russo, MA Ed, Birmingham, AL, United States, AL - Civitan International Research Center, UCEDD/LEND;

Knowledge about disability issues is gained best through first hand, real-life experiences as provided by individuals with intellectual/developmental disabilities and their families. This session highlights models using families as trainers for medical students/ physicians; educators / administrators; and law enforcement community agencies. Participants will share their own examples and discuss benefits, ideas and strategies for incorporating ?family voice? into a broad array of training.

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Emergency Preparedness for People with Disabilities
Howard Zlamal, M.Ed., LEND Faculty, The University of Arizona, LEND
This presentation is to promote inclusion of people with disabilities in community emergency preparedness and planning. It will go over various emergencies faced by individuals with disabilities and their families.

Advocating for Health and Wellness: Helping People with Intellectual and Developmental Disabilities to Find Their Voice
Erica Thomas, MS, Health Educator , Georgetown University Center for Child & Human Development, UCEDD
Diva Marshall, Washington, DC;
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This is the story of a person with an intellectual disability who is navigating her path to wellness. Through person-centered planning, team support and self-advocacy, she has become an active participant in her community and is engaging in a healthier lifestyle. Participants will appreciate the importance of encouraging and empowering people with IDD to participate in their communities and support them in making important lifestyle decisions.

Lifting Your Voice Through Leadership and Advocacy: Building Community Capacity Through Training and Education.
Mark Smith, MS, Assistant Professor, Munroe-Meyer Institute of Genetics & Rehabilitation, UCEDD/LEND
Jerry Alliston, PhD, Hattiesburg, MS, United States, MS - Institute for Disability Studies, UCEDD;
Jack Brandt, MS, Richmond, VA, United States, VA - Partnership for People with Disabilities, UCEDD/LEND;
The presentation will provide current perspectives on leadership and advocacy efforts by people with disabilities in the AUCD network. Findings from the recently completed Council on Community Advocacy"s national environmental scan on leadership and advocacy will be presented in the context of community education and dissemination. Specific recommendations for practice will be explored along with featured AUCD Network projects in conjunction with the Community Education and Dissemination Council..

Needs and Self-Identification of Latinxs with Disabilities in the U.S.
Katherine Perez, JD, , Institute on Disability & Human Development, UCEDD/LEND
Conchita Hernandez Legorreta, MAT, Washington , DC, United States, DC - Georgetown University Center for Child & Human Development, UCEDD;
Kristin Salkas, MS, Chicago, IL, United States, IL - Institute on Disability & Human Development, UCEDD/LEND;
Leonor Vanik, Washington, DC;
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Researchers discuss their findings on a national survey of Latinxs with Disabilities as part of a baseline study to inform the work of the National Coalition for Latinxs with Disabilities. The study provided a comprehensive needs assessment as well as inquired about the self-identification of Latinxs with Disabilities as members of the Disability community and Rights Movement. The findings will build on an intersectional approach to disability justice.

Addressing Service Gaps for Families and Providers of Individuals with Autism Spectrum Disorders in Rural Communities: Is Telehealth the Solution?
Alacia Stainbrook, Ph.D., Director of Early Learning, TRIAD
Canyon Hardesty, MS, Laramie, WY, United States, WY - Wyoming Institute for Disabilities, UCEDD;
Gwen Mitchell, PhD, Moscow, ID, ID - Center on Disabilities and Human Development, UCEDD;
This session will to address service gaps for families of children with ASD in rural communities, and provide evidence of researched methods to increase service capacity. Three different models of service delivery will describe how to expedite diagnostic and early intervention services via tele-practice and smart phone technology.

How AUCD and the National Managed LTSS Health Plan Association can Partner to Implement Model LTSS Performance Measurement Standards.
Larry Atkins, PhD, Executive Director, National MLTSS Health Plan Association
Sarah Triano, Centene Corporation, Sacramento, CA, United States;
Patricia Nobbie, PhD, Anthem, Washington, DC, United States;
John Tschida, MPP, Silver Spring, MD, United States, MD - The Association of University Centers on Disabilities -;
The 2016 Medicaid final rule required that states develop performance measures for MLTSS health plans, effective on or after July 2017. Recognizing the challenge faced by states, members of the National MLTSS Health Plan Association identified 37 measures that all member organizations will voluntarily report on. Join representatives from the Association to discuss ways AUCD and the Association can partner to foster greater cross-state consistency in the measures states select.

Using Data to Develop and Evaluate Universal School Climate Initiatives
Jodie Soracco, M. Ed, BCBA, Research & Development Director, Nevada Center for Excellence in Disabilities, UCEDD/LEND
Ashley Greenwald, Ph. D, BCBA-D, Nevada PBIS Technical Assistance Center, Reno, NV, United States, NV - Nevada Center for Excellence in Disabilities, UCEDD/LEND;
Kaci Fleetwood, M. Ed, BCBA, Nevada PBIS Technical Assistance Center, Reno, NV, United States, NV - Nevada Center for Excellence in Disabilities, UCEDD/LEND;
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Although there has been documentation of inequality and disparate student outcomes, rates of discipline disproportionality continue to increase. Students with disabilities are also over-represented in school discipline and often overlooked universally. Disaggregating data is critical to ensure school climate initiatives are benefiting students receiving special education services. This presentation is designed to walk participants through using data to develop and evaluate universal school climate initiatives.

Making Our Own Media Revolution, One Video At a Time
Emily Ladau, , Rooted in Rights
Cuquis Robledo, Rooted in Rights, Houston, TX, United States;
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Panelists from the award-winning Rooted in Rights share their secrets for how you can take control of the disability narrative - and empower those around you to do the same. HINT: If you have a story and access to a smartphone, you're almost there!

Lifting up the Trainee Voice: LEND Approaches to Make a Lasting Difference
Sharon Milberger, ScD, Director, Developmental Disabilities Institute, UCEDD/LEND
Akilah Heggs, MA, Doctoral Candidate, Atlanta, GA, United States, GA - Center for Leadership in Disability at Georgia State University, UCEDD/LEND|Stephanie Weber, PsyD, Dr., Cincinnati, OH, United States, OH - University of Cincinnati UCE, UCEDD/LEND|
In this session, the audience will hear from three LEND programs on various strategies aimed to increase LEND trainees' leadership competencies and skills for having their voices heard. Methodology on Michigan's L.I.F.E. approach, Georgia's self-reflection journaling activities, and Cincinnati's conflict-resolution and negotiation curriculum will be discussed in the context of building LEND trainees' competence and confidence in working collaboratively to bring about change that benefits individuals with developmental disabilities.

From the Goat Rocks to the Symphony Halls: Building an Inclusive Society by Promoting Self-actualization and Self-determination for All
Verity Rodrigues, PhD, Psychologist, Vanderbilt University, UCEDD/LEND
Daniel Wells, MS, University of Vermont, Lexington, MA, United States;
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Join educational consultant Verity Rodrigues, and self-advocate, long-distance backpacker and photographer Dan Wells for an exploration of what's possible when we break down the barriers of disability. Dan will tell the story of 430miles on the Pacific Crest Trail with Cerebral Palsy; Verity will describe an innovative partnership bringing kids with Autism to the Nashville Symphony; they will then lead a discussion of what a truly inclusive community could mean.

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Employment, Empowerment & Entrepreneurship Education
Erin Leveton, JD, Project Director, DC Department on Disability Services
Kate Caldwell, PhD, Chicago, IL, United States, IL - Institute on Disability & Human Development, UCEDD/LEND;
Joan Christopher, JD, Washington, DC, United States, DC - Georgetown University Center for Child & Human Development, UCEDD;
Kevin Wright, BA, Washington, DC, United States, DC - Georgetown University Center for Child & Human Development, UCEDD;
Rebecca Salon, PhD, Washington, DC, United States, DC - Georgetown University Center for Child & Human Development, UCEDD;
Sarah Parker Harris, PhD, Chicago, IL, United States, IL - Institute on Disability & Human Development, UCEDD/LEND;
Learn about two cities' approaches to increasing employment opportunities for people with intellectual and developmental disabilities. In DC, self-advocates, families, UCEDD, DD Council, and government and community partners have joined together to raise expectations and improve outcomes for employment of people with IDD. The Chicagoland Entrepreneurship Education for People with Disabilities Project is an evidence-based training program for people with IDD and their providers.