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ANCOR's COVID-19 Vaccine Toolkit

As a DSP, It's Up to Me! Protect yourself and the people you support

Developed by ANCOR with funding from the Association of University Centers on Disabilities (AUCD), "As a DSP It's Up to Me" recognizes that people with I/DD should be able to live and thrive in their communities. We want them to live where they want to live, with whom they want to live. We want them to have jobs that are fulfilling to them. And we recognize achieving these goals requires isolating people with I/DD from the dangers of COVID-19. With a goal of keeping people with I/DD and the people around them safe and healthy, The COVID-19 Vaccine Toolkit was designed with ANCOR members and other community providers in mind. You are an essential partner for this initiative, and these tools were designed for you-to make it as easy as possible for you to engage with your colleagues on the frontlines to get vaccinated.



Community Supports in Crisis: No Staff, No Services

All the progress toward community living that has been made in services for people with IDD over decades is now in jeopardy because of catastrophic labor shortages and pervasive high turnover rates in the direct support workforce. This white paper from ICI and its partners at HSRI and NASDDDS explores the depth of the crisis in the workforce and the impact on people with IDD and sounds the alarm about the nature and scope of the workforce crisis in the IDD service system.



2022 AUCD Board Elections: Nominations Requested

Deadline: September 9, 2022

AUCD is currently seeking nominations to the AUCD Board of Directors for a three-year term beginning in November 2022.



Columbia University Seeks Participants for Focus Group

Columbia University is seeking participants for a study that explores issues of trust in a type of medical research called "precision medicine research." The study looks at a person's genetics, environment, and lifestyle. It can help physicians improve prevention and diagnosis of diseases and develop new treatments.



IDRPP Research Offers Skills List for College-bound Students with Intellectual Disabilities

Are you wondering what non-academic skills a college-bound student with intellectual disabilities should have before entering an inclusive program? AUCD's IDDRC, the Institute for Disability Research, Policy & Practice in has research on that.



CDC-AUCD Leadership Opportunity: Act Early Ambassadors-State or Territorial Liaisons to CDC's "Learn the Signs. Act Early." Program

The Centers for Disease Control and Prevention's (CDC) National Center on Birth Defects and Developmental Disabilities and the Association of University Centers on Disabilities (AUCD) announce a funding opportunity for Act Early Ambassadors to work with CDC's "Learn the Signs. Act Early."



MI-DDI Co-hosts Vaccination, Health Clinic for People with Disabilities and their Families

The Michigan Developmental Disabilities Institute (MI-DDI) co-sponsored a health and resource fair with Disability Rights Michigan, as a part of the Michigan Vaccination Partners. Here, a new ADA-compliant Wayne Health Mobile Unit offered vaccinations and boosters, as well as diabetes, cholesterol and kidney function screenings; blood pressure screenings; COVID-19 testing; HIV testing; mental health screenings; and referrals to health and care resources in the community.



UCEDD Success Stories - Sonoron UCEDD at University of Arizona

Tucson, AZ

The Transition AHEAD Roundtable is a day-long, one-on-one set of activities. It is designed to purposefully engage both the young adult and their family in collaborative activities with Sonoran UCEDD staff and staff from outside agencies and organizations. In a holistic manner, the Roundtable addresses five key areas: Employment, Healthcare, Education & Training, Relationships and Community, and Independent Living. Importantly, this busy day culminates in a brief Roundtable presentation led by the young adult about what they have identified as their strengths, as well as key goals and meaningful supports they want in order to achieve their desired level of independence.



Call for Participation: Understanding Parent or Guardian Perspectives on COVID-19 Testing in Schools

We invite you to participate in a research study being conducted by investigators from Washington University in St. Louis and Kennedy Krieger Institute in Baltimore.

The purpose of this study is to identify the issues most critical to student COVID-19 testing in schools. Questions are asked about family's well-being and child's school experience during the era of COVID-19.



Translational Research in Hereditary Spastic Paraplegia

New research out of Boston Children's Hospital-one of AUCD's Intellectual and Developmental Disabilities Research Centers (IDDRCs)-provides new insight into a group of genetic diseases called hereditary spastic paraplegias (HSPs). Features of HSPs include progressive motor impairment and moderate to severe intellectual disability.



2022 Emerging Leaders Map: Supporting Resiliency and Self-Determination for All

This interactive map highlights Emerging Leaders from across the country. Check out what emerging leaders across the country are doing to support resilience and self-determination.



Get featured on the 2022 Emerging Leaders Map. Nominate Yourself Today!

AUCD is excited to announce that recruitment is now open for the 2022 AUCD Emerging Leaders Map! This year's theme is "Supporting Resiliency and Self-Determination for All."



When it comes to the rarest of diseases, the diagnosis isn't the answer - it's just the starting point

Medical geneticist Melissa Wasserstein, MD, and neuroscientist Steven Walkley, DVM, PhD, explain how they established Gene Teams, in which parents, physicians, and interested scientists gather to share knowledge and experiences of Rare Disease.



May 2022: Children's Mental Health Awareness Week

Follow AUCD and search #ChildrensMentalHealthAwareness and #PHis4Everyone to follow the conversation on social media. See the full list of projects from AUCD/CDC's Children's Mental Health Champions in observance of May 2022 Children's Mental Health Awareness Week.



Understanding Social Behavior in Autism: A Diverse World of Unique People

Julia Parish-Morris, PhD

People use language to tell others what they want and need. In autism, some kinds of social communication (like language, eye contact, and hand movements) can be challenging. The goal of my lab at the Center for Autism Research is to understand and support social success for autistic people, especially in the areas of speech and language.

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