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4/15/2024

Vanderbilt Kennedy Center (TN IDDRC, UCEDD, LEND) Researchers Awarded $2.48M in Special Education Training Grants

Two Vanderbilt Kennedy Center (TN IDDRC, UCEDD, LEND) researchers have received two training grants totaling $2.48 million in funding from the Office of Special Education Programs at the U.S. Department of Education. The new grants address the need to train culturally conscientious special education teachers of students with high intensity needs. One of the grants will support training for teachers of students with limited or no functional speech. The other grant will support training for teachers of students with visual impairments. Both grants seek to recruit candidates from historically underrepresented groups or with a unique interest in supporting students from culturally and linguistic diverse backgrounds.

 
 
A family is in a backyard with green grass and a picnic table. Older family members are less clear in the background of the photo, while younger family members are holding up a young child and smiling. Credit: Adobe Stock

4/11/2024

Special Issue Explores the Complex Genetic Landscape Around Diverse IDDs

The IDDRC network has completed their 2023 publication section in the Journal of Neurodevelopmental Disorders focused on "Etiological heterogeneity, pleiotropy, and polygenicity in Intellectual and Developmental Disabilities (IDDs)". The issue includes seven new publications from IDDRC investigators across the country.

 
 

4/10/2024

Consensus Statement on Healthcare for Youth With Neurodevelopmental Disabilities Published in Pediatrics

An interprofessional and community-engaged panel of experts has published the first peer-reviewed consensus statement establishing healthcare standards for youth with neurodevelopmental disabilities in the journal Pediatrics.

 
 

3/25/2024

IDDRC Research Brief: Providing Support for Families Affected by Rare Genetic Diseases

The RFK IDDRC unveils its groundbreaking "Operation IDD Gene Team" program developed by Dr. Steven Walkley. This multidisciplinary initiative supports families affected by rare genetic diseases causing intellectual & developmental disability (IDD).Operation IDD Gene Team brings together families, physicians, and scientists to foster understanding and empowerment. Through collaborative meetings, families share their experiences, physicians discuss clinical implications, and scientists provide insights into gene biology. Published in the Journal of Neurodevelopmental Disorders, this innovative program offers hope and guidance to families while advancing research into rare genetic diseases.

 
 

3/18/2024

AUCD Joins University of Kansas as Co-Host for Gatlinburg Conference on Intellectual and Developmental Disabilities

The Gatlinburg Conference, a premier research event focused on Intellectual and Developmental Disabilities (IDD) in its 56th year, is proud to announce that the Association of University Centers on Disabilities (AUCD) will be joining the University of Kansas as co-host for this year's conference. The event is scheduled to take place from April 17th to 19th in Kansas City, MO, with the theme "Early Life Identification of Intellectual and Developmental Disabilities."

 
 

2/1/2024

Medical and Dental Curricula on IDD: Training Inclusive Providers

A Study on How Medical and Dental Schools Teach Students about IDD

Past research has shown that many medical and dental students do not learn about IDD in school. The WITH Foundation, AUCD, and UC-LEND, led by Dr. Kashia Rosenau, collaborated to learn more about how medical and dental schools are teaching students about intellectual and developmental disabilities (IDD). The study found that most of the schools had self-advocates to help them teach their medical and dental students about caring for patients with IDD. The study also found that medical and dental students want to learn more about caring for their patients with disabilities. Overall, the study highlights the importance of teaching medical and dental students about caring for patients with IDD and including more self-advocates in this training.

 
 
Jamie Junior, an advocacy and community education coordinator for the Disability Network of Wayne County, reaches down to pet a service dog. Jamie is wheelchair bound and is being watched by the dog's owner. The dog's owner is standing to the right o

1/30/2024

Michigan Developmental Disabilities Institute and Michigan Vaccination Partners accomplishments Highlighted in APHA's Thought Leadership Film Series

The American Public Health Association (APHA) selected the Michigan Developmental Disabilities Institute (MI-DDI) at Wayne State University and the Michigan Vaccination Partners project to be featured in the APHA 2023 Thought Leadership Film Series. The series profiles cutting-edge efforts to address public health issues being led by researchers, advocates and organizations across the country.

 
 

1/26/2024

Apply Today: AUCD Leadership Academy

The deadline to apply is March 1st at 5:00 PM EST

The AUCD Leadership Academy is a week-long intensive experience, paired with a year of pre and post interactions designed to enhance the skills of current and emerging leaders from disability networks to build coalitions to improve systems of supports and services. The Leadership Academy engages participants from UCEDDs, LENDs, and the wider community of disability partners to come together to immerse themselves for a week of study, shared experiences, self-evaluation, and skill development.

 
 

1/23/2024

A National Partnership to Advance Peer-Support Models for People Who Need Augmentative and Alternative Communication (AAC)

The Association of University Centers on Disabilities (AUCD) is pleased to announce that the University Center of Excellence in Development Disabilities Education, Research, and Service (UCEDD) at Oregon Health & Science University (OHSU), in partnership with CommunicationFIRST, has been selected as the recipient of a subaward to create a national partnership to develop an approach and plan to advance peer-support models for augmentative and alternative communication (AAC) users.

 
 
Two photos showing a 4-H banner at a community event. The photo on the left shows people at the event with the banner over their heads. The photo on the right is a close-up of the banner.

1/18/2024

ICI, UM Extension Partner For 4-H Youth

The MN UCEDD has created accommodation kits containing tools to better accommodate Minnesota 4-H members with and without disabilities. The training also shared tips about more fully including youth with disabilities.

 
 

1/17/2024

Student Spotlight - Blake Jackson

Meet Blake Jackson, a resilient second-year student in the Direct Support Professional - General (DSP-G) track. As a proud member of the PATHS class 2024 in the fightin' Texas Aggie community, Blake is enrolled in the Postsecondary Access and Training in Human Services (PATHS) Program, where he finds inspiration in Andrey Hepburn's timeless words: "Nothing is impossible, the Word itself says "I'm possible'!".

 
 

1/16/2024

Missouri's UCEDD Develops "After Abuse: Resources for Missourians with Disabilities"

The University of Missouri-Kansas City's Institute for Human Development, the University Center for Excellence in Developmental Disabilities for the state of Missouri, in cooperation with the Missouri Developmental Disabilities Council, has published a new online resource called After Abuse: Resources for Missourians with Disabilities to help people with disabilities learn about abuse and what happens when it is reported.

 
 
Three African women stand in front of three African men, all holding blue certificates from the US Department of State.

1/10/2024

University of Massachusetts Boston Institute for Community Inclusion Partners with the International Disability Alliance and the African Disability Forum on International Fellowship Program

The Institute for Community Inclusion (ICI) at the University of Massachusetts (UMass) Boston, in collaboration with the International Disability Alliance (IDA) and the African Disability Forum (ADF), has been awarded a grant from the US Department of State to launch the third round (FY 2023) of the Professional Fellows Program on Inclusive Civic Engagement. This program, designed for emerging leaders in East Africa, aims to facilitate exchange and implementation of best practices for disability-inclusive civic engagement.

 
 

1/9/2024

Researchers Find Possible Neuromarker for 'Juvenile-onset' Batten Disease

New research from the University of Rochester Medical Center, an AUCD IDDRC Network site, suggests an easy-to-measure brain process may be a target or biomarker in measuring treatment outcomes in clinical trials for patients with Batten disease.

 
 

11/2/2023

UCEDD Resource Center ExceLens Series: AUCD Emerging Leader: Blake Warner

Honoring the theme of the AUCD Annual Conference, this edition of ExceLens is excited to feature AUCD Emerging Leader Blake Warner. Blake has previously completed two years of SD LEND and is currently serving as a UCEDD trainee and completing a predoctoral internship at the UCLA Tarjan Center. Blake is passionate about advocacy and policy reform efforts, particularly for LGBTQ+ individuals in the disability community. The AUCD Community Inclusion Team was able to sit down with Blake and learn more about his interests, goals, and experience so far as an AUCD Emerging Leader. Please read on to see the highlights from Blake's interview!

 
 

10/26/2023

Announcing the 2023-2024 Emerging Leaders Community Interns

The Emerging Leaders Community is excited to announce 3 Interns for the 2023-2024 training year! These trainees will serve as visible ambassadors to the broader AUCD network, interacting with AUCD staff at all levels and the AUCD Board of Directors' Emerging Leaders Representative.

 
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