News / Document Search Results
4/7/2017
Pittsburgh LEND and ATN Collaboration
Dr. Paradiz is the director of a consultancy that provides technical assistance, training and strategic development to organizations and institutions that support individuals with Autism Spectrum Disorders and other disabilities. Dr. Paradiz is the founder of the ASPIE School for middle and high school students with autism. She met with the Pittsburgh LEND leadership, Family and Self-Advocate Trainees. Dr. Paradiz also gave a community presentation about her involvement in research for individuals with ASD co-sponsored by the Merck Family Advisory Committee and the Pittsburgh LEND. She provided a unique perspective about how families play a vital role in research in autism and examples of evidence-based and multidisciplinary approaches to supporting and treating autism.
4/5/2017
AUCD 2017: Lift Your Voice
You're Invited!
The power of our collective voices working together to sustain vital supports and services for people with disabilities and their families cannot be denied. The AUCD Conference brings us together to discuss the strategies, innovations, and systems that will allow us to continue to move the needle forward. Join us at the 2017 AUCD Conference as we celebrate successes, learn from past efforts, seek opportunities in the present, and innovate for the future.
3/31/2017
Family and Individual Needs for Disability Supports (FINDS) Survey
from From The Arc
The 2017 FINDS survey aims is to learn more about the experiences of parents and family members who provide support to a family member with an intellectual or developmental disability. To participate, the caregiver must be 18 years or older and provide primary paid/unpaid and frequent support to a family member or friend with an intellectual or developmental disability living in the United States (and U.S. territories). This survey is not for direct support professionals�we need the perspective of family caregivers, paid or unpaid.
3/3/2017
2016-17 MNLEND Fellow Publishes!
Jack Reagan, current 2016-17 MNLEND Fellow recently co-published a brief based on the FINDS 2010 data surveying family caregivers. The data he analyzed within the FINDS survey focused on the emotional and physical markers affecting family caregivers. These markers have both positive and negative association to their related outcomes for family caregivers.
3/3/2017
MNLEND Alumna Publishes!
Last year, I was very fortunate to be a LEND Fellow at the University of Minnesota. I applied because I was embarking on my PhD dissertation in nursing and wanted to explore the experience of families of children who lived with severe autism. The LEND experience not only provided an in-depth education in neurodevelopmental disorders, but also the LEND staff helped me access families who would ultimately participate in my research. This research ultimately changed the way I understand families who live with a severe chronic condition such as severe autism.
2/14/2017
AUCD 2017 T-Shirts Now Available!
Order Deadline: March 1
Shirts are just $10.07 each when you preorder by March 1 and pick them up at the 2017 Disability Policy Seminar. Hand-designed by Jessica Irwin, a Psychology Fellow at the University of Rochester Strong Center for Developmental Disabilities, this shirt is one you'll be proud to wear again and again.
2/6/2017
Talk with Pediatric Dental Students (NY UCEDD/LEND)
Lisa Latten, Family Advocacy Fellow at SCDD/LEND in Rochester NY recently spoke to Pediatric Dental students at University of Rochester Eastman Dental Center about the importance of including families in treatment plans. Lisa is the parent of a child with autism, and a Family Navigator at the Kirch Developmental Center at SCDD.
1/27/2017
2017 Trainee Liaisons
AUCD Trainee liaisons are volunteer trainees at LENDs, UCEDDs, and DBP programs who identify strategies to improve trainee networking and linkage within the AUCD network, and improve the exchange of information among trainees across the network using available technologies. Meet the 2016-2017 AUCD Trainee Liaisons!
1/26/2017
AUCD Welcomes Sheida Khamsi (KS UCEDD) as the 2017 Assistant Virtual Trainee
Sheida Khamsi is the Spring 2017 Assistant Virtual Trainee. She is also a UCEDD trainee at the Kansas University Center on Developmental Disabilities at the University of Kansas. Within AUCD, Sheida's role is to work with the Virtual Trainee to enhance diversity within the AUCD network and generate and implement new ideas for effective communication and connection between all Centers and Programs.
