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10/3/2016

Family Behind "When Sean Speaks" Gives Back to the Center on Disability and Development (TX UCEDD)

Sean Carter has become an important Texas voice in the fight against drunk driving. When Sean was attending school at North Texas, he climbed into the passenger seat of a car being driven by a drunk driver. On the drive home, the car spun out of control and slammed into a tree. He was rushed to the hospital and declared paralyzed. Sean's mother was told that he had Traumatic Brain Injury (TBI) and to "hope for the best." Over the years, Sean slowly began to make progress and can now communicate through assitive technology. Presently, he uses his computer to speak to other young people across Texas about the dangers and consequences of drunk driving.Sean's message has reached tens of thousands of young Texans and he and his family continue to spread his message and raise money for TBI research through his nonprofit organization "When Sean Speaks."

 
 

10/3/2016

Kennedy Krieger Institute's Maureen van Stone Receives Academies Appointment (MD UCDD/LEND)

The Health and Medicine Division of the National Academies of Sciences, Engineering, and Medicine (the Academies) has appointed Maureen van Stone of Kennedy Krieger Institute to its Committee on Improving Health Outcomes in Children with Disabilities. Ms. van Stone joins a diverse group of experts who will produce a comprehensive report on federal, state, and local programs, services and supports available to school-age children with disabilities and their families. Maureen van Stone is the associate director of the Maryland Center for Developmental Disabilities (MCDD) at Kennedy Krieger Institute and the director of Project HEAL (Health, Education, Advocacy, and Law), a MCDD community-based program. Project HEAL is Maryland's only medical-legal partnership, which provides advocacy and legal services to low- and-moderate income families and children with disabilities who receive services at Kennedy Krieger.

 
 

10/3/2016

New Iowa LEND Trainees have a Capital Time at the Iowa State Capitol

The Center for Disabilities and Development, Iowa's University Center for Excellence on Disabilities, welcomed the Iowa LEND (ILEND) trainees for 2016-2017. Orientation began with a brief welcome by Lenore Holte, ILEND Program Director, followed by faculty, staff and trainee introductions. The group of trainees and staff members then traveled to Des Moines to tour the state capitol building and to learn about state and federal legislation related to individuals with disabilities.

 
 

10/3/2016

Tuesdays with Liz: Disability Policy for All - Jennifer Mathis - Part 1

During this week's edition, Tuesdays with Liz, Liz interviews Jennifer Mathis in a two part series about mental health and the connection to people with disabilities. In case you missed last week's edition, Liz interviewed Michelle Bishop about the importance of voting.

 
 

10/3/2016

WIHD Welcomes New LEND Class (NY UCEDD/LEND)

WIHD is pleased to welcome the new 2016-2017 LEND class. The new LEND class represents a numbers of disciplines: Advocacy, Audiology, Family Specialist, Genetics, Occupational Therapy, Nursing, Public Administration, Public Health, Psychology, Social Work, Special Education and Speech Language Pathology. The trainees represent 9 affiliated universities: Fordham University, Mercy College, New York Medical College, New York University, Sarah Lawrence College, University of Iowa, University of Puerto Rico and University of the Virgin Islands.

 
 

9/30/2016

Access Press Honors MN UCEDD Staffer Cliff Poetz Organization: Institute on Community Integration (MN UCEDD)

Access Press Honors MN UCEDD Staffer Cliff Poetz Access Press, Minnesota's disability newspaper, has named Cliff Poetz as the Charlie Smith Award recipient for 2016. Poetz, a community liaison at the Institute on Community Integration (MN UCEDD) Research and Training Center on Community Living, will be the guest of honor at the annual banquet on November 4, when the award will be presented. "I'm humbled and grateful," says Poetz, who knew Smith (see below).

 
 

9/30/2016

AUCD Applauds the Passage of Legislation to Fight the ZIKA Virus

AUCD is thrilled to report that President Obama signed into law a continuing resolution (CR) that includes $1.1 billion emergency funding to address Zika.

 
 

9/30/2016

Oregon Health & Science University Join the Nation's Largest Autism Study (OR UCEDD)

The Simons Foundation recently launched a landmark autism research project in the U.S with the goal of creating a new research cohort of 50,000 individuals with autism and their families. The project is called SPARK, which stands for 'Simons Foundation Powering Autism Research for Knowledge.' Oregon Health & Science University (OHSU) is one of the 21 project sites selected to be involved in this effort. Specifically, over the next three years, OHSU will recruit 2,600 individuals with a professional diagnosis of Autism Spectrum Disorder (ASD), and when possible, their biological parents.

 
 

9/29/2016

Trinity Centre for People with Intellectual Disabilities

Newly Accredited Higher Education Certificate in Arts, Science and Inclusive Applied Practice

The Trinity Centre for People with Intellectual Disabilities (TCPID) is delighted to announce that our new 2 year certificate course in Arts, Science and Inclusive Applied Practice has recently been accredited by the University Council of Trinity College Dublin. The TCPID, in the School of Education, Trinity College Dublin aims to promote true inclusion for people with intellectual disabilities and encourage students to realize their full potential through higher education. The newly accredited programs means that students will now, for the first time, receive a formal qualification upon graduation from university.

 
 

9/28/2016

The Bazelon Center Releases Updated Voting Rights Guide

The guide, "VOTE. It's Your Right: A Guide to the Voting Rights of People with Mental Disabilities" lists key legal principles and focuses on four areas of concern: 1) voter-competence requirements, 2) state photo-ID laws, 3) voter challenges and 4) providing help to voters with disabilities. The guide also includes an updated chart listing each state's laws affecting the voting rights of people with mental disabilities.

 
 

9/27/2016

Tuesdays with Liz - Michelle Bishop

During this week's edition of Tuesdays with Liz: Disability Policy for All, Liz interviews Michelle Bishop about the importance of voting. In case you missed last week's edition, Liz interviewed Joe Caldwell about the Money Follows the Person (MFP) program.

 
 

9/26/2016

Disability Policy News In Brief

AUCD, Disability Policy News In Brief, every MondayNegotiations continue on a continuing resolution; Medicare Post-Acute Care Value-Based Purchasing; Affirmatively Furthering Fair Housing; and more

 
 

9/26/2016

Home Accessibility May Impact Community Participation (MT UCEDD)

New research from the Research and Training Center on Disability in Rural Communities (RTC:Rural) at UM Rural Institute for Inclusive Communities, in collaboration with the Rehabilitation Research Training Center on Community Living, presents the state of inaccessible housing for people with mobility disabilities. The data reveal most homes lack critical accessibility features, not meeting individual needs, and potentially impacting broader community engagement and participation.

 
 

9/26/2016

WV UCEDD Diversity & Disability Fellow Tackles Stigma

Louma Sebaihi is a Diversity & Disability Fellow at the West Virginia University Center for Excellence in Disabilities (WVU CED). Louma's upbringing in the Arab/American culture led her to be interested in reaching out to that community to help reduce the stigma associated with disabilities. As a part of her capstone project, Louma presented two sessions (one in English and one in Arabic) at the Islamic Center of Morgantown on the "Learn the Signs, Act Early" initiative to introduce the participants to developmental milestones that children should be achieving.

 
 

9/25/2016

Advances in Patient Safety through Simulation Research (R18)

 
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