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The OHSU UCEDD Hosted Five Youth with Disabilities in Salem for a Leadership Training (OR UCEDD)

The University Center for Excellence in Developmental Disabilities (UCEDD) successfully piloted their Empowered Youth Leaders (EYL) Program on June 20 and 21 in Salem, Oregon. Five youth with disabilities and special health needs from around Oregon joined five peer mentors and four staff for a two-day training on leadership, self-advocacy, disability history, and how to get involved in their communities.



Graham-Cassidy Proposal: Gigantic Block Grants and Huge Health Care Cuts

Families USA

What�s in the Graham-Cassidy proposal?



The Latest Issue of #RDSJ is Out

Volume 13 Issue 2

The latest issue of the Review of Disability Studies is out! Dive into this issues' topics ranging for Disability Studies in Physical Recreation, Social Participation of Children, Immigrants in Australia, Anxiety as a Tool for Critical Disability Studies, Film Genre and Mental Illness and much more.



Dr. Elizabeth Lewis Elected to the SDS Board of Directors (TX UCEDD)

The Texas Center for Disability Studies is pleased to announce that Dr. Elizabeth Lewis has been elected to the Board of Directors for the Society of Disability Studies (SDS). Dr. Lewis will serve a three-year term. The SDS Board Members understand and represent diverse experience in all its complexity, and have fundraising and development experience, strong leadership qualifications and experience, and creative ideas for the future of SDS.



Drs. Tomlin and Sturm Promoted (IN LEND)

Angela Tomlin, PhD, Director of the Riley Child Development Center (Indiana LEND) has been promoted to Professor of Clinical Pediatrics at Indiana University School of Medicine, Department of Pediatrics. Lynne Sturm, PhD, a psychologist at RCDC, has been promoted to Associate Professor of Clinical Pediatrics. Please join us in congratulating them on their well-deserved promotions!



Georgetown UCEDD Annual Conference a Success!

The Georgetown University Center for Excellence in Developmental Disabilities along with their partners the DC Developmental Disabilities Council, University Legal Services Protection and Advocacy Services of DC, the Quality Trust for Individuals with Disabilities, Strong Start DC Early Intervention Program, the Georgetown University School of Continuing Studies and the DC Developmental Disabilities Administration Health Initiative held their annual GUCEDD conference on transition through the life span. Opening for the program was Shileta Gorham of the Independent Center for Living and our 2015 Geraldine P Waldorf Making A Difference Award winner talking about her lived experience and support for others.



Nutrition Efforts Reaching Disability Community with Support from Walmart Foundation to Association of University Centers on Disabilities

Association of University Centers on Disabilities (AUCD) expands its health efforts with the launch of "Nutrition is for Everyone," made possible by a $420,000 grant from the Walmart Foundation. Five AUCD-member centers will implement a one-year project providing nutrition education for an estimated 25,000 people with disabilities living in Arkansas, Louisiana, Mississippi, Oklahoma and Tennessee. Based on available public health data, these states are areas where people with disabilities are least likely to be consuming fruits and vegetables and, therefore, in the most need for nutrition education and support.



Standards for Systems of Care for CYSHCN Streamlined and Updated

The Association of Maternal & Child Health Programs just released an updated version of the National Standards for Systems of Care that strive to serve the nation's 11 million children and youth with special health care needs. Version 2.0 of the National Standards for Systems of Care for Children and Youth with Special Health Care Needs, produced in partnership with the National Academy for State Health Policy with support from the Lucile Packard Foundation for Children's Health, sets the core components for the structure and process of effective systems of care while streamlining content for easier use by states and stakeholders.



Susanna Miller-Raines wins the 2017 Tools for Life Assistive Technology Innovation Award at the Institute Designed for Educating All Students (IDEAS) Conference (GA UCEDD)

St. Simon's, Georgia | June 2017 - Susanna Miller-Raines, with the Center for Leadership in Disability was presented with the prestigious 2017 Tools for Life Assistive Technology Innovation Award on June 9, 2017. Susanna won the hotly contested prize over other nominees throughout Georgia.



Disability Policy News In Brief

AUCD, Disability Policy News In Brief, every MondayHealth Care vote Postponed; Recess Action Items; Defense spending; Subcommittee on Early Childhood, Elementary, and Secondary Education hearing; House Committee on Education and the Workforce markup; and more



Vanderbilt Kennedy Center (TN UCEDD, LEND, IDDRC) TRIAD pilot works to provide ASD Diagnostic Services in Primary Care Setting

Team members within the Vanderbilt Kennedy Center (TN UCEDD, LEND, IDDRC) Treatment & Research Institute for Autism Spectrum Disorders (TRIAD) are piloting a project to see if embedding a trained behavioral health provider within the traditional primary care setting such as a pediatrician's practice, would improve the likelihood of earlier diagnosis for children who show signs of an autism spectrum disorder and would streamline the intervention process.



Congressional Budget Office Estimate on the Better Care Reconciliation Act

An updated report from the Congressional Budget Office (CBO) verifies what we already knew - that the cuts to Medicaid proposed by the U.S. Senate are going to get much worse after the first decade.



Analysis of Senate Bill BCRA

with consideration of HCBS

The Better Care Reconciliation Act (AHCA) proposes to cap Federal Medicaid reimbursements to the states on a per-enrollee basis, effectively limiting growth to a rate only modestly exceeding the rate of inflation. The cap would be set according to each state�s 2016 perenrollee spending, inflation-adjusted for each subsequent year. Caps would take effect in 2020. The inflation adjustment for 2016 to 2019 is the consumer price index for medical care (CPIMC) for all types of enrollees, including people with disabilities and seniors who receive HCBS. Between 2020 and 2024, adjustments depend on enrollment category: the adjustment for people with disabilities and seniors is set at CPI-MC plus 1 percentage point, and the adjustment for other enrollment categories is CPI-MC. Beginning in 2025, the inflation adjustment is greatly reduced to the Consumer Price Index for all items, which does not take into account the higher growth rate of healthcare costs.1 Over the past ten years, the growth in the Consumer Price Index for all items averaged 1.8 percent per year, and the CPI-MC increased by an average of 3.3 percent per year. For most people who receive HCBS, it is by far the largest component of their Medicaid spending. If the AHCA were to be enacted, it is reasonable to assume that most states would limit HCBS spending to the per-enrollee cap amount; otherwise, any excess comes entirely out of the state budget.



AUCD Summary of Better Care Reconciliation Act

People with disabilities, especially those with severe disabilities, often rely on a complex array of supports across many areas of public policy to lead successful and productive lives in the community. They often rely on the Medicaid program to address these needs. Under the Senate proposal, funding cuts would, over time, exceed the $800 billion (over 10 years) approved by the House, and overall spending would be capped. Specifically, it proposes:



Impact of Medicaid Caps in Alaska

Executive Summary Medicaid caps would severely impact spending on home and community-based services in Alaska, where more than 7,000 people rely on these services to remain in their homes, avoid institutionalization, and participate in their communities.

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