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5/31/2016

10 Things Employers Need to Know About the ADA

 
 

5/9/2016

Growing Threat of a Constitutional Convention and Balanced Budget Amendment

28 state legislatures have passed resolutions in support of a Constitutional Convention to rewrite the U.S. Constitution to pass a balanced budget amendment. Such a move would restrict federal spending by $8 trillion in the first decade of its implementation and would require devastating cuts to Social Security, education, and healthcare, among other policy areas.

 
 

5/9/2016

Senate Proposal for Balanced Budget Amendment Would Require Extreme Cuts

An analysis issued by the Center on Budget and Policy Priorities finds that the constitutional balanced budget amendment that the Senate may consider this year would compel policymakers to make devastating cuts to vital programs, including those in education, law enforcement, and medical research.

 
 

5/20/2015

National Society of Genetic Counselors

http://nsgc.org/

The National Society of Genetic Counselors (NSGC) promotes the professional interests of genetic counselors and provides a network for professional communication. Local and national continuing education opportunities and the discussion of all issues relevant to human genetics and the genetic counseling profession are an integral part of membership in NSGC.

 
 

3/26/2015

Dear Colleague Letter was sent to Chairman and Ranking Members

of the Senate Appropriations Subcommittee on Labor, Health and Human Services, Education and Related Agencies

Senators Chris Murphy, Richard Blumenthal and Sherrod Brown signed on to a Dear Colleague letter to Chairman Roy Blunt and Ranking Member Patty Murray of the Senate Appropriations Subcommittee on Labor, Health and Human Services, Education and Related Agencies in support of the funding level requests of the Protections and Advocacy Systems, DD Councils and University Centers for Excellence in Developmental Disabilities (UCEDD)

pdf File FY16 Disabilities Council Sign On Letter.pdf [download]
 
 

3/25/2015

Representative Chris Smith (R-NJ 4th District) sent a letter to the Chair and Ranking Member of the House Committee on Appropriations

Subcommittee on Labor, HHS, Education, and Related Agenceis

Representative Chris Smith, Cochairman of the Coalition for Autism Research and Education (CARE) wrote a letter requesting a $2million increase for the Leadership Education in Neurodevelopmental and Related Disabilities (LEND) program.

pdf File FY16 LEND.UCEDD Approps.pdf [download]
 
 

8/9/2014

Building a National Agenda for Supporting Families with an Individual with Developmental or Intellectual Disabilities

The Wingspread Report
 
 

1/31/2014

Insure Kids Now

Connecting Kids to Coverage
 
 

1/31/2014

Putting Patients First

A resource for estimating costs and understanding options
 
 

11/12/2013

Website: American Academy of Pediatrics (AAP), Genetics in Primary Care Institute

www.aap.org

In 2011, the Health Resources & Services Administration Maternal & Child Health Bureau and the AAP established a cooperative agreement to establish the Genetics in Primary Care Institute. The mission of the Genetics in Primary Care Institute (GPCI) is to increase primary care provider (PCP) knowledge and skills in providing genetic-based services. - See more at: http://www.aap.org/en-us/advocacy-and-policy/aap-health-initiatives/Pages/Genetics-in-Primary-Care-Institute.aspx#sthash.erdcf2Kz.dpuf

 
 

11/12/2013

Website: Genetics Home Reference

Submitted by:Joann Bodurtha, MD, MPH, FAAP, FACMG, McKusick-Nathans Institute of Genetic Medicine

Physicians and families can now turn to Genetics Home Reference, a new online resource from the National Institutes of Health, to explain and understand over 500 topics on genetic conditions and related genes. The site features an illustrated tutorial that explains the basics of genetics and includes a glossary of genetics terms. The lay-friendly site is particularly helpful to parents whose newborns have been detected with a genetic condition, and are looking for easy-to-read information on specific conditions.

 
 

11/12/2013

Website: Online Genetics Education Resources

Source: Genome.gov

This site, organized by the National Institutes of Health (NIH), contains numerouse links to educational resources.

 
 

11/12/2013

Website: Online Mendelian Inheritance in Man (OMIM)

Submitted by:Joann Bodurtha, MD, MPH, FAAP, FACMG, McKusick-Nathans Institute of Genetic Medicine

OMIM is a comprehensive, authoritative compendium of human genes and genetic phenotypes that is freely available and updated daily. The full-text, referenced overviews in OMIM contain information on all known mendelian disorders and over 12,000 genes. OMIM focuses on the relationship between phenotype and genotype. It is updated daily, and the entries contain copious links to other genetics resources.

 
 

11/10/2013

Website: Genetic Alliance

Genetic Alliance is the world�s leading nonprofit health advocacy organization committed to transforming health through genetics and promoting an environment of openness centered on the health of individuals, families, and communities. Genetic Alliance�s network includes more than 1,200 disease-specific advocacy organizations, as well as thousands of universities, private companies, government agencies, and public policy organizations.

 
 

10/8/2013

ACMG Newborn Screening ACT Sheets

www.acmg.net

This resource describes the interrelationships between the conditions screened in newborn screening laboratories and the markers (analytes) used for screening. For each marker(s), there is 1) an ACTion (ACT) sheet that describes the short term actions a health professional should follow in communicating with the family and determining the appropriate steps in the follow-up of the infant that has screened positive, and 2) an algorithm that presents an overview of the basic steps involved in determining the final diagnosis in the infant.

 
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