News

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12/22/2016

AIR-P Network Activities

The Autism Intervention Research Network on Physical Health (AIR-P), led by Karen Kuhlthau, PhD, conducts research on evidence-based interventions to improve the physical health and well-being of children and adolescents with autism spectrum disorders (ASD) and other developmental disabilities, with an emphasis on underserved communities. Two key goals of the AIR-P network are to provide opportunities to develop collaborations and partnerships with clinicians and researchers and to support junior investigators in developing their research efforts to improve medical care of children with autism.

 
 

12/22/2016

Autism CARES Grantees Share Resources, Best Practices for Transition

ITAC, in collaboration with SPHARC and HRSA-MCHB, hosted the Autism CARES (Collaboration, Accountability, Research, Education, and Support) Grantee Virtual Meeting on July 21, 2016. This bi-annual meeting was an opportunity for over 200 MCHB-funded Autism CARES legislation grantees - representing research, training, and state implementation stakeholders - to share information about activities within their respective network, discuss emerging trends, and facilitate meaningful collaboration. This year's theme was "Integrated, Person-Centered Approaches to Transition."

 
 
CT LEND students and faculty are excited to start a year of interdisciplinary training.

12/22/2016

CT LEND: An authentic interdisciplinary experience

The CT LEND has had an exciting new start this fall. Nine UCONN graduate students from various disciplines, two Yale Developmental-Behavioral Pediatric fellows, four community trainees, and four Human Services/Family Studies students from Goodwin College fill our conference room at UCONN Health each Friday. We welcome family faculty and several UCEDD staff members to each weekly seminar as well. Our true interdisciplinary cohort includes participants from an AUCD Auditory supplement and also a Diversity grant, several of whom are first generation college students.

 
 

12/22/2016

Developmental-Behavioral Pediatrics Research Network Update

The Developmental-Behavioral Pediatrics Research Network (DBPNet) is a 14 site Network whose mission is "to conduct collaborative, interdisciplinary research in developmental and behavioral pediatrics that advances clinical practice, supports research training, and optimizes the health and functional status of children with developmental and behavioral concerns and disorders, including children with autism spectrum disorders and other developmental disabilities". The Network had a successful competitive renewal in the past year and is now funded from 9/16 through 8/21.

 
 

12/22/2016

Health Care Transitions Research Network (HCT-RN) Updates

The Health Care Transitions Research Network (HCT-RN) for Autism Spectrum Disorder (ASD) and Other Developmental Disabilities was funded to support the creation of an interdisciplinary, multicenter research forum for scientific collaboration and infrastructure-building with a focus on research designed to improve health care transitions and promote an optimal transition to adulthood (including physical, psychosocial, educational, and vocational outcomes) among youth and young adults with autism spectrum disorder (ASD). Since April 2016, our network has been actively engaged in the following research and practice improvement efforts related to the transition to adulthood of youth with ASD.

 
 

12/22/2016

MCHB Update DMCHWD

As we near the end of 2016, I want to acknowledge the ongoing accomplishments of the Autism CARES grantees. Your dedication to supporting children and youth with autism spectrum disorder (ASD) and developmental disabilities (DD) and their families is making an impact. Collectively, you are improving access to screening and diagnostic services for children with ASD, training the pipeline of future leaders in neurodevelopmental disabilities, advancing the evidence base around the effectiveness of autism interventions, reducing barriers to care for underserved populations, and pursuing new, innovative models of care and training to extend your reach.

 
 

12/22/2016

News from the Healthy Weight Research Network (HWRN)

The Healthy Weight Research Network (HWRN), coordinated by the E.K. Shriver Center at UMass Medical School and Tufts University School of Medicine, was refunded for the next 5 years from the Maternal Child Health Bureau. The mission of the HWRN is to advance the understanding of obesity risk factors in children with ASD and other developmental disabilities, to promote the development of evidence-based solutions to achieve healthy weight in this population, and to disseminate research findings to broad and diverse audiences.

 
 

12/22/2016

UC Davis CEDD awarded LTSAE grant

The Center for Excellence in Developmental Disabilities (CEDD) at the UC Davis MIND Institute was awarded a Learn the Signs / Act Early (LTSAE) grant from the Association of Maternal and Child Health Programs (AMCHP) for 2016-2018 to support the dissemination of LTSAE resources designed to increase parent-engaged developmental monitoring. CEDD is partnering with the California Autism Professional Training and Information Network (CAPTAIN), the State LTSAE Ambassadors, the LEND at UC Davis and the LEND at USC in this effort.

 
 

12/22/2016

Updates from the State Public Health Autism Resource Center

AMCHP's State Public Health Autism Resource Center (SPHARC) has released several new resources and technical assistance opportunities designed to aid and assist ASD/DD grantees.

 
 

12/22/2016

What's New in AIR-B3?

The AIR-B3 network consists of 5 sites--- UCLA, UC Davis, University of Pennsylvania, Drexel University and University of Rochester. We have been actively preparing for the intervention studies we proposed, Mind the Gap and Building Better Bridges. Both of these intervention teams have been collecting pilot data, and refining the interventions which focus on the gap between diagnosis and services for many low-resourced families (Mind the Gap), and in maintaining continuity between major schooling transitions, such as between preschool and Kindergarten, elementary to secondary school (Building Better Bridges).

 
 

12/12/2016

Linking Latino Parents to Autism Resources (IL UCEDD/LEND)

For parents who have a child with autism, navigating the service system to find ways to help their child can be overwhelming. Within the Latino community, promotoras - community health workers who are indigenous to the community - help educate parents on autism and appropriate services. Two UIC researchers are going global by expanding a parent educational intervention designed for Latino parents in the U.S. to Colombia.

 
 

4/1/2016

April 2016: Autism Awareness & Acceptance

During the month of April, AUCD joins people with autism, their families, and those who serve and support them to increase public acceptance and appreciation of the needs of individuals with autism and their families, and recognition of the diverse range of abilities and talents people with autism possess.

 
 

4/21/2015

Autism NOW Employer Toolkit

Autism NOW created a toolkit and designed it for employers to hire, train, and retain employees with an ASD as well as other disabilities.

 
 

4/20/2015

2015 DBP Annual Meeting Overview

The annual meeting of the MCHB-funded Leadership Education in Developmental Behavioral Pediatrics (DBP) Training Programs was hosted by the Children's Hospital of Philadelphia DBP program on March 18-20, 2015. Approximately 35 faculty and 40 fellows from the 10 funded DBP training programs were in attendance at the meeting.

 
 

4/13/2015

It Takes a Village to Raise the Bar on Early Autism Identification and Referral

The Utah Regional LEND program is tackling the problem of low identification rates for autism in children under 3 years. Within our five-state LEND, one state, Utah, has been part of the CDC/ADDM autism prevalence studies for several years. Although Utah's prevalence rate is always one of the highest, only 33% of children with autism are identified in medical or educational records before age 3. To change this statistic, URLEND trainees worked across organizational and agency boundaries to create a statewide Network for Early Autism Response.

 
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