News / Document Search Results
4/17/2024
Alzheimer's Disease Progresses Faster in People with Down Syndrome
Nearly all adults with Down syndrome will develop evidence of Alzheimer's disease by late middle age. A new study by researchers at Washington University School of Medicine in St. Louis shows that the disease both starts earlier and moves faster in people with Down syndrome, a finding that may have important implications for the treatment and care of this vulnerable group of patients.
4/17/2024
Epilepsy Drug Prevents Brain Tumors in Mice with NF1
A drug used to treat children with epilepsy prevents brain tumor formation and growth in two mouse models of neurofibromatosis type 1 (NF1), according to a study by researchers at Washington University School of Medicine in St. Louis. NF1 is a genetic condition that causes tumors to grow on nerves throughout the body, including the optic nerves, which connect the eyes to the brain.
4/15/2024
Vanderbilt Kennedy Center (TN IDDRC, UCEDD, LEND) Researchers Awarded $2.48M in Special Education Training Grants
Two Vanderbilt Kennedy Center (TN IDDRC, UCEDD, LEND) researchers have received two training grants totaling $2.48 million in funding from the Office of Special Education Programs at the U.S. Department of Education. The new grants address the need to train culturally conscientious special education teachers of students with high intensity needs. One of the grants will support training for teachers of students with limited or no functional speech. The other grant will support training for teachers of students with visual impairments. Both grants seek to recruit candidates from historically underrepresented groups or with a unique interest in supporting students from culturally and linguistic diverse backgrounds.
4/11/2024
Special Issue Explores the Complex Genetic Landscape Around Diverse IDDs
The IDDRC network has completed their 2023 publication section in the Journal of Neurodevelopmental Disorders focused on "Etiological heterogeneity, pleiotropy, and polygenicity in Intellectual and Developmental Disabilities (IDDs)". The issue includes seven new publications from IDDRC investigators across the country.
4/10/2024
Consensus Statement on Healthcare for Youth With Neurodevelopmental Disabilities Published in Pediatrics
An interprofessional and community-engaged panel of experts has published the first peer-reviewed consensus statement establishing healthcare standards for youth with neurodevelopmental disabilities in the journal Pediatrics.
4/2/2024
Missouri UCEDD Launches Third Season of Accessible: The Podcast
It's BAAAAACK! The University of Missouri-Kansas City's Institute for Human Development, the University Center for Excellence in Developmental Disabilities for the state of Missouri (UCEDD), has just launched a new season of Accessible: The Podcast. Accessible is the podcast that opens the door to disability leaders and their ideas. Featuring UMKC-IHD Director George Gotto and Senior Research Assistant Amelia Reighard. The podcast hosts leaders in the disability field with new insights and developments that you can channel into your own career and development. Or you can share these ideas to help others learn from you. Listen to the Accessible Podcast.
4/1/2024
April 2024: Autism Acceptance Month
4/1/2024
Disability Policy News | April 1, 2024 | Vol. MMXXIII | Issue 88
Budget and Appropriations; Administration for Community Living Releases Toolkit on Independent Living and Rehabilitation Research;Food and Drug Administration Announces Proposed Rule to Ban Electrical Stimulation Devices and more.
3/29/2024
AUCD 360 - March 2024
3/29/2024
Highlights From the 39th Pacific Rim International Conference on Disability and Diversity in Honolulu, Hawaiʻi
On February 27th, the Center on Disability Studies (HI-UCEDD) welcomed over 750 attendees representing 12 countries from across the globe to Honolulu, Hawaiʻi to the 39th Annual Pacific Rim International Conference on Disability and Diversity both online and in-person. In celebration of the conference theme, Beyond Access: Building a Culture of Belonging we aimed to explore how we all live to belong, to be part of something greater than ourselves.
3/25/2024
IDDRC Research Brief: Providing Support for Families Affected by Rare Genetic Diseases
The RFK IDDRC unveils its groundbreaking "Operation IDD Gene Team" program developed by Dr. Steven Walkley. This multidisciplinary initiative supports families affected by rare genetic diseases causing intellectual & developmental disability (IDD).Operation IDD Gene Team brings together families, physicians, and scientists to foster understanding and empowerment. Through collaborative meetings, families share their experiences, physicians discuss clinical implications, and scientists provide insights into gene biology. Published in the Journal of Neurodevelopmental Disorders, this innovative program offers hope and guidance to families while advancing research into rare genetic diseases.
3/25/2024
ME UCEDD Goes to White House to Highlight Impact of Federal Initiatives on Maine's Disability Community
On March 14, 2024, Alan Cobo-Lewis, associate professor of psychology and director of the University of Maine Center for Community Inclusion and Disability Studies (ME UCEDD), was invited to attend Communities in Action: Building a Better Maine, New Hampshire, and Vermont, in person at the White House complex. This meeting brought together federal figures with over three dozen local elected officials and community leaders working on behalf of their communities to create opportunities and improve people's everyday lives. Discussions highlighted federal initiatives, especially those funded by the American Recovery Plan Act (ARPA), Inflation Reduction Act, and Bipartisan Infrastructure Investment and Jobs Act.
3/25/2024
NH-ME LEND Spring Kickoff: Organizing to Influence Your State's Policy
In late January, NH-ME LEND gathered for the annual spring kick-off event: Organizing to Influence Your State's Policy. An inspiring keynote speaker, Ansley Peacock, followed by an informative panel discussion set the stage for the upcoming policy module, and the trainees' participation in the upcoming Disability Policy Seminar (DPS) in Washington, D.C.
3/22/2024
2024 Developmental Disabilities Day at the Legislature Reflection
Each year, the Maryland Developmental Disabilities (MDD) Coalition sponsors Developmental Disabilities Day at the Legislature (DD Day), an opportunity for participants to educate state legislators in the capital on crucial issues affecting individuals with intellectual and developmental disabilities (IDD), their caregivers and their families. On February 21, 2024, we had the pleasure of attending this year's DD Day as Maryland Center for Developmental Disabilities trainees, alongside Kennedy Krieger Institute staff members, other trainees and self-advocates.
3/21/2024
AUCD International Special Interest Group
An International Collaborative on Disability Rights and Inclusion
The International Collaborative on Disability is comprised of network members who have a strong interest in or whose work are related to international activities. This include, but is not limited to, research and evaluation, education, training, practice, technical assistance, and information dissemination.
3/21/2024
Missouri UCEDD Launches New Training on Traumatic Brain Injuries
Brain injury is more common than you might think. Every brain injury is different in terms of symptoms, affected areas of the brain and the outcome. The University of Missouri-Kansas City's Institute for Human Development, the University Center for Excellence in Developmental Disabilities for the state of Missouri, has just launched a new free training to raise awareness of traumatic brain injuries - or TBIs. It highlights symptoms, treatments and provides prevention strategies.
