Greetings from MCHB

December 10, 2013

Congratulations on an outstanding AUCD Conference.  It was inspiring, thought provoking and truly provided innovative ideas for inclusion in a diverse world.  We also want to welcome Andrew Imparato, JD, as the new Executive Director, and thank George Jesien for his years of working with us and leading AUCD to making a difference for individuals with developmental disabilities and their families.

We would like to highlight recently awarded activities funded through the CAAI Act.

New State Autism Implementation Grants

  • Virginia: Virginia Commonwealth University
  • Oregon: Oregon Health &Science University
  • Maryland: Parents Place of Maryland
  • North Carolina: University of North Carolina at Chapel Hill

New State Autism Planning Grants

  • New Hampshire: Health and Human Services Dept.
  • Massachusetts: University of Massachusetts
  • Arkansas: University of Arkansas System
  • Texas: University of Texas Health Science Center at Houston

Competing Renewal Research awarded in 2013

Developmental Behavioral Pediatrics Research Network (DBPNet)
Children's Hospital of Philadelphia
http://www.mchb.hrsa.gov/research/project_info.asp?ID=165

The Developmental Behavioral Pediatrics Research Network is a national scientific and clinical research network that promotes and coordinates research activities in behavioral, psychosocial, and developmental aspects of pediatric care to improve clinical services and health outcomes for, but not limited to, children with autism spectrum disorder (ASD) and other developmental disabilities. The network infrastructure supports the design and implementation of multi-site, interdisciplinary research that focuses on the translation of research to practice; provides the mentoring environment in which to train a new generation of developmental behavioral pediatric researchers; and implements critical research studies.

New CAAI Research Projects awarded in 2013

MCH Research Network on Promoting Healthy Weight (HW-RN)
University of Massachusetts Medical School
http://www.mchb.hrsa.gov/research/project_info.asp?ID=221

The MCH Research Network on Promoting Healthy Weight (HW-RN) will improve our understanding of factors contributing to the possible increased risk of overweight and obesity among children with Autism Spectrum Disorders (ASD) and other special health care needs. This network will develop a research agenda, conduct research using existing datasets and/or health records and disseminate research findings to increase prevention efforts, improve health care delivery services, and improve the health and wellbeing of children and adolescents with ASD and other special health care needs. The MCH HW-RN will also identify surveillance opportunities, and develop approaches to test the initial efficacy, feasibility and acceptability of an intervention program designed to reduce excessive weight among children and youth with ASD and other special health care needs.

 

The R40 MCH Autism Intervention Research and R40 MCH Autism Secondary Data Analysis Studies Programs support research to advance the evidence base on the effectiveness of interventions to improve the health and wellbeing of children and adolescents with autism spectrum disorders (ASD) and other developmental disabilities (DD).  The following new projects were awarded September 1, 2013:

R40 MCH Autism Intervention Multiyear Research Projects: 09/01/2013 - 08/31/2016

Addressing Health Disparities in ASD Diagnosis, Services, and School Engagement
University of Massachusetts. Boston, MA
http://www.mchb.hrsa.gov/research/project_info.asp?ID=224

Toddlers and Families Together: Addressing Early Core Features of Autism
University of North Carolina - Chapel Hill. Chapel Hill, NC
http://www.mchb.hrsa.gov/research/project_info.asp?ID=223

Improving Part C Services and Outcomes for Underserved Children with ASD
Hugo W. Moser Research Institute at Kennedy Krieger, Inc. Baltimore, MD
http://www.mchb.hrsa.gov/research/project_info.asp?ID=222

R40 MCH Autism Secondary Data Analysis Studies: 09/01/2013 - 08/31/2014

Access to Therapy for Children with Autism: A Population-Based Analysis
Thomas Jefferson University, Philadelphia, PA
http://www.mchb.hrsa.gov/research/project_info.asp?ID=225

Adequate Health Insurance for Children with Autism: Evidence and Implications for Defining Essential Benefits
University of North Carolina - Chapel Hill, Chapel Hill, NC
http://www.mchb.hrsa.gov/research/project_info.asp?ID=228

Dental Homes for Medicaid-Enrolled Children with Autism Spectrum Disorders in the Iowa I-Smile Program
University of Washington, Seattle, WA
http://www.mchb.hrsa.gov/research/project_info.asp?ID=227

Trends in Racial and Ethnic Health Care Disparities for Children with Autism and Other Developmental Disabilities
Brandeis University, Waltham, MA
http://www.mchb.hrsa.gov/research/project_info.asp?ID=226

 

For any questions, please contact Laura Kavanagh at lkavanagh@hrsa.gov.

We wish you a Happy Holiday Season from all of us,

MCHB Autism Team