AUCDigest September 2013

September 6, 2013

AUCD National Network News
 
September 2013 Vol. XIII, Issue 9
  
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AUCD Central Office News

AUCD Announces Next Executive Director

AUCD Announces Next Executive Director

The Board of Directors of the Association of University Centers on Disabilities (AUCD) is pleased to announce the selection of Andrew J. Imparato as the next Executive Director of the Association. Mr. Imparato succeeds George Jesien who will be retiring after successfully leading the organization for the past fourteen years. Read more....

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AUCD Welcomes 2013-2014 Virtual Trainee Elaine Eisenbaum, MSW

AUCD Welcomes 2013-2014 Virtual Trainee Elaine Eisenbaum, MSW

Elaine is eager to foster communication and collaboration among trainees throughout the AUCD network both virtually and in-person. She has a number of exciting efforts already underway and AUCD is excited for this year's trainees to form a supportive and interactive network. Trainees and Directors are encouraged to contact Elaine to find out more! Read more....

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In Memoriam: Morris Green, MD

In Memoriam: Morris Green, MD

Dr. Morris Green, MD, passed away Tuesday, August 6, 2013 at the age of 91. Dr. Green was a nationally renowned pediatrician, inspiring educator, and prolific author. He dedicated himself to a lifelong commitment to the health and well-being of Indiana's children through his extraordinary service of almost 50 years to Riley Hospital for Children, serving as its Physician-in-Chief from 1967-1988 and Chairman of the Indiana University School of Medicine Department of Pediatrics. Dr. Green was the Founding Director (1970) of the Indiana LEND, then University Affiliated Facility or UAF, and a pioneer in Behavioral Pediatrics and family centered care."  Read more....

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New DSM-5/ASD Resource Page

New DSM-5/ASD Resource Page

AUCD has recently added a new resource page on the DSM-5 and the changes made to Autism Spectrum Disorder classifications. Select resources that network members have found to be helpful in understanding the changes to the criteria have been included. If you would like to suggest a resource to add to this list, please contact tchristensen@aucd.org. Read more....

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Emily Johnson, MA, is AUCD's Early Career Professionals' September Guest Blogger

Emily Johnson, MA, is AUCD's Early Career Professionals' September Guest Blogger

AUCD is happy to announce the Early Career Professionals’ September guest blogger – Emily Johnson. Emily is a Research and Training Coordinator at Global Autism Project. She is also a former LEND trainee. Please take a moment and read “You Went to India? In July?” Read more....

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Network News - Awards & Honors

Iowa LEND Director Recognized for Newborn Hearing Screening Research

Iowa LEND Director Recognized for Newborn Hearing Screening Research

The 2012 Editor's Award for the American Journal of Audiology will go to a team of researchers led by Lenore Holte, Ph.D, CCC-A, Iowa LEND Director and Clinical Professor in the Department of Communication Sciences and Disorders and the Department of Pedsiatrics, The University of Iowa. Read more....

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CAST and ME UCEDD Research Study Selected for Remedial and Special Education Editors Choice Collection

Iowa LEND Director Recognized for Newborn Hearing Screening Research

"Literacy by Design: A Universal Design for Learning Approach for Students With Significant Intellectual Disabilities," co-authored by Peggy Coyne, Bart Pisha, Bridget Dalton, Lucille Zeph and Nancy Cook Smith, has been selected for the Editor's Choice Collection as one of Remedial and Special Education's most noteworthy manuscripts (May/June 2012 Vol. 33 No. 3 162-172). Read more....

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National Disability Employment Expert (MT UCEDD)

National Disability Employment Expert (MT UCEDD)

Dr. Catherine Ipsen was among a select few recently invited to present her research findings at the National Institute on Disability and Rehabilitation Research. The presentation and subsequent meeting with national leaders in disability and employment was focused on the translation of research findings to practice. According to Ipsen it was "an incredible experience to spend a day with leading researchers in the field -- the people I reference in my own work and look to for guidance in an evolving field." Read more....

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Network News - People on the Move

Center for Leadership in Disability Welcomes Andrew Roach, PhD as Associate Director

Center for Leadership in Disability Welcomes Andrew Roach, PhD as Associate DirectorThe Center for Leadership in Disability (CLD), a University Center for Excellence in Disability at Georgia State University (GSU) is pleased to announce that Andy Roach, PhD, has joined the faculty staff as Associate Director. In addition to his position at CLD, Dr. Roach is an associate professor with joint appointments in the School of Public Health and the Department of Counseling and Psychological Services in the College of Education.  Read more...

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Virginia LEND Welcomes New Faculty Members

Virginia LEND Welcomes New Faculty MembersThe Va-LEND program is pleased to announce the addition of two new faculty members. Beth Bader is joining the Va-LEND core faculty from the School of Education, Department of Special Education and Disability Policy at Virginia Commonwealth University (VCU). In the School of Education, Dr. Bader is an Assistant Professor and coordinates the M.Ed. in Severe Disabilities program. Matthew (Matt) Bogenschutz is joining the Va-LEND core faculty from the VCU School of Social Work. Dr. Bogenschutz comes to VCU with over 8 years of practice experience in IDD and five years of experience at the Institute on Community Integration, Minnesota's UCEDD, including one year as a Minnesota LEND post-doctoral fellow.  Read more...

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Network News - Activities & Resources

The President's Committee for People with Intellectual Disabilities (PCPID) Report Now Available in Spanish

The President's Committee for People with Intellectual Disabilities (PCPID) Report Now Available in Spanish

This report provides recommendations regarding Managed Long-Term Services and Supports for individuals with intellectual and developmental disabilities. Translation of this document is courtesy of the Puerto Rico UCEDD. Read more....

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Parents Perspectives' Video Series from the OK UCEDD

'Parents Perspectives' Video Series from the OK UCEDD

The Center for Learning and Leadership, Oklahoma's University Center for Excellence in Developmental Disabilities (Oklahoma UCEDD) recently developed a short video series featuring parents of children with intellectual and developmental disabilities, or special health care needs. In the videos parents share their perspectives on getting a disability diagnosis, supporting their children through transitions in the school system, and dealing with emergency personnel. Learn more about the parent's perspective of disability diagnosis, educational transition, and emergency medical services in the short video series, "Parents' Perspectives."   Read more....

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The two Ohio UCEDDs Collaborate with Susan G. Komen Affiliates to Improve the Mammography Experience for Women with Disabilities

The two Ohio UCEDDs Collaborate with Susan G. Komen Affiliates to Improve the Mammography Experience for Women with DisabilitiesThe Ohio Disability and Health Program (ODHP) is a CDC-funded, statewide program with goals to promote health and increase access to care for Ohioans with disabilities. ODHP is a close collaboration of the two Ohio UCEDDs, the University of Cincinnati (UC) UCEDD and The Ohio State University Nisonger Center, with Susan Havercamp at Nisonger Center as the Principal Investigator of the project. Other collaborators include the Ohio Colleges of Medicine Government Resource Center (GRC) and the Ohio Department of Health. ODHP is also guided by its advisory panel, the Disability Community Planning Group (DCPG).  Read more...

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Nebraska DD Network Eyes Possible Affordable Care Impact (NE UCEDD)

Nebraska DD Network Eyes Possible Affordable Care Impact (NE UCEDD)Medicaid is a core program for people with intellectual and developmental disabilities. That's why the implications of the Affordable Care Act (ACA) were the focus of an early summer meeting between members of the advisory boards for Munroe-Meyer Institute's (MMI) Center for Excellence in Disabilities, the Nebraska Planning Council for Developmental Disabilities and the Disability Rights Nebraska Advisory Council. The entities represent the three federal Developmental Disabilities (DD) programs in Nebraska.  The meeting helped facilitate discussion among the groups as to what needs to be done to help protect services that are already in place and to advocate for expansion of certain limited services, said Wayne Stuberg, Ph.D., associate director of MMI."  Read more...

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Outdoors for Everyone! (MT UCEDD)

Outdoors for Everyone! (MT UCEDD)Access to outdoor recreation is the goal of the UM MonTECH Recreation program. For the past several years, MonTECH director Kathy Laurin and her staff have been compiling accessibility information for Montana public recreation lands. During the summer of 2013, Lee Bastian, who recently retired as a Regional Park Manager for the Montana Department of Fish, Wildlife and Parks, evaluated recreation sites in western Montana to see how accessible they are... or aren't, for people with disabilities. Read more...

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Updates from UT UCEDD

CPD Researchers Publish PICCOLO Tool (UT UCEDD)

CPD Researchers Publish PICCOLO Tool (UT UCEDD)A new observational tool, developed by researchers at Utah State University's Center for Persons with Disabilities, has been published by Brookes Publishing and will be available in mid-October. Parenting Interactions with Children: Checklist of Observations Linked to Outcomes (PICCOLOTM), which was designed to assess and monitor the quality of parent-child interactions, provides home visiting, parent education, and early childhood programs with valuable information for strengthening parenting practices.  Read more...

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Autism Training Model Reaches Across State (UT UCEDD)

Autism Training Model Reaches Across State (UT UCEDD)A unique method of teaching preschool children on the autism spectrum to communicate their needs is spreading to 14 Utah school districts this fall, including Logan, Park City and Granite school districts. Based at Utah State University's Center for Persons with Disabilities, the ASSERT (Autism Support Services: Education, Research and Training) model utilizes applied behavior analysis (ABA) to change the challenging negative behaviors associated with autism.  Read more...

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3 Islands Host First-ever Self-Advocacy Summer Camps (NMC UCEDD)

3 Islands Host First-ever Self-Advocacy Summer Camps (NMC UCEDD)The Self-Advocacy Summer Camp was first brought up by Frank Cabrera of Autism Society of the Commonwealth of the Northern Marianas Islands as part of the Administration on Developmental Disabilities' call to establish a self-advocacy group here in the CNMI back in 2012 at the Self-Advocacy Summit in Honolulu, Hawaii. On July 22, 2013, they concluded the effort that has taken almost two years to fulfill and announced that all three islands have had their own Self-Advocacy Summer Camp and they all have been a success! Read more...

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Nisonger Center (OH UCEDD/LEND) Hosts Autism Institute: Autism Across the Lifespan

Nisonger Center (OH UCEDD/LEND) Hosts Autism Institute: Autism Across the LifespanOn June 25, 2013, Nisonger Center hosted an Autism Institute at The Ohio State University in Columbus, Ohio. This annual event focuses on translational research in the area of autism spectrum disorders. Speakers at this year's Institute included Dr. Marsha Mailick (Waisman Center, UCEDD/LEND), Dr. Tamar Heller (University of Illinois, UCEDD/LEND) and Drs. Thomas Fish and Jessica Hellings from Nisonger Center. More than 150 attendees included professionals, trainees, people with ASD and family members or caregivers. Read more...

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Vanderbilt Kennedy Center (TN UCEDD) collects stories from parents of children with disabilities with diverse cultural backgrounds

Vanderbilt Kennedy Center (TN UCEDD) collects stories from parents of children with disabilities with diverse cultural backgroundThe Vanderbilt Kennedy Center (TN UCEDD) has compiled a booklet of stories from families of children with disabilities with diverse cultural backgrounds now living in Tennessee. The stories were collected as a collaborative effort of Tennessee Kindred Stories of Disability and the Tennessee Multicultural Alliance on Disability to raise awareness about the unique barriers and challenges immigrants and refugees face as they navigate an unfamiliar service system and culture.  Read more...

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In This Issue
AUCD Central Office News
Network News - Awards & Honors
Network News - People on the Move
Network News - Activities & Resources
AUCD 2013
Member Spotlight
Events
Employment Opportunities
AUCD 2013

Awards Nominations

2013 AUCD Awards Nominations

Who do you know that deserves recognition? Nominate an outstanding individual, group, or program today for an AUCD award. Deadline: September 9. Read More...

Register Today!

AUCD 2013 Conference

November 17-20, 2013
Washington,  DC

This year's AUCD Conference theme promotes our network values of inclusion of all persons with developmental and other disabilities in community life and engages the network in conversation and practices to ensure our work reflects the changing cultural and linguistic landscape in our Centers and States. Early Bird: by Oct 18; Final Deadline: Nov 1st. Read more....

Member Spotlight

AHEAD, in Collaboration with the University of Arizona (Sonoran UCEDD), Partners with U.S. Department of State to Bolster Disability Rights in Ukraine 


In September 2013, AHEAD will send Carol Funckes, Associate Director of Disability Resources and Sue Kroeger, Director of Disability Resources from the University of Arizona, to Ukraine for a preliminary exchange visit to gain an understanding of disability and inclusion in Ukrainian communities and to lay the foundation for an effective ongoing international relationship. Read more...

Events

Upcoming AUCD Webinars

AUCD and the Multicultural Council Present: Organizations and Developing Culturally Competent Parent Support Groups
September 16 | 3pm - 4pm EST     

This webinar will present best practices on developing culturally and linguistically competent support groups and utilizing support groups in research.

AUCD's Council on Research and Evaluation Presents: Overcoming Challenges to Conducting Research with Individuals with Intellectual Disabilities
September 23 | 2pm - 3:30pm EST     

The intent of this webinar is to provide participants with an overview of ways to address and overcome some of the challenges faced when conducting research with individuals with intellectual disabilities.

AUCD Network: Learn the Benefits of Your Membership
October 8 | 4pm - 5pm EST     

What is the AUCD network? How will AUCD help me this year and into my career? How can I get involved in the Network? Join this webinar to learn the answers to these questions and more as you begin at a LEND or UCEDD.

A Collaborative Interagency, Interdisciplinary Approach to Transition from Adolescence to Adulthood
October 30 | 12pm - 1:30pm EST     

This Webinar will provide an overview of a paper written by AUCD members who seek to engage in conversations about improving interdisciplinary and interagency collaboration in supporting self-determined transition of youth with intellectual and developmental disabilities to adulthood and to community life.

Read more about our webinars and register.


Society for Developmental and Behavioral Pediatrics 2013 Annual Meeting 

September 27-30, 2013
Baltimore, MD

The Society for Developmental and Behavioral Pediatrics (SDBP) is an international organization dedicated to improving the health of infants, children, and adolescents by promoting research, teaching and clinical practice in developmental and behavioral pediatrics.  Read more...


14th Chronic Illness and Disability Conference: Transition from Pediatric to Adult-based Care 

October 17-19, 2013
Houston, TX & Live Broadcast

This conference provides a state-of-the-art update on issues involved in healthcare transition for youth and young adults with chronic illness and disability and their families from pediatric to adult-based services. Read more...


TASH 2013: A United Movement 

December 11-14, 2014
Chicago, IL

Join professors and researchers, Each year, the TASH Conference is the one place where stakeholders from every aspect of the disability community come together to learn, share and grow in our collective effort to advance inclusion and human rights for people with significant disabilities.  Read more...


2014 Gatlinburg Conference on Research and Theory in Intellectual and Developmental Disabilities

 

March 5-7, 2014
Chicago, IL

The purpose of this conference is to share insights, experiences, and strategies on literacy and lifelong learning for adults with intellectual and developmental disabilities. Read more...

Employment Opportunities

Employment page on our website for opportunities within the AUCD network. 

Stay Connected...
Our Network Members

University Centers for Excellence in Developmental Disabilities Education, Research, and Service (UCEDD)

Leadership Education in Neurodevelopmental and Related Disabilities (LEND) programs

Intellectual and Developmental Disabilities Research Centers (IDDRCs)

This newsletter is in part supported by the Association, Administration on Developmental Disabilities (AIDD) through a technical assistance contract for the URC, Maternal and Child Health Bureau (MCHB) through a technical assistance contract for the ITAC, and Centers for Disease Control and Prevention (CDC) for a National Professional Organization for Persons with Developmental Disabilities. The content of this material does not necessarily reflect the views and policies of any federal agency. No official support or endorsement by federal agencies is intended nor should be inferred.
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