New Registry to Accelerate Research on Fragile X Syndrome, Collaboration between the Waisman Center and the Carolina Institute on Developmental Disabilities

October 7, 2010

Website Link  http://www.news.wisc.edu/18483

A new research registry, growing from a collaboration between the Waisman Center at the University of Wisconsin-Madison and the Carolina Institute on Developmental Disabilities at the University of North Carolina-Chapel Hill, is an attempt to "to streamline the process of connecting scientists with a large number of families affected by fragile X syndrome and its associated conditions," says Susan Vial, Waisman's coordinator for the registry.