Tool Kit of Pre-service Curricular Materials
January 5, 2010
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| - Medical Students/Residents | - Dental Students | - Nursing Students | - Interdisciplinary | - Foundational or Historical | ||||||||||
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| Curriculum | Curriculum Description | Target Audience/ Adaptable Audience | Evidence- Based | Link to Website | Contact Name |
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| Tool Kit Target Audience: Medical Students (First or Second Year) and Residents | ||||||
| 1 | Preservice Health Training Modules UK HDI |
This training tool is both web-based and available on CD-ROM. It is based on "virtual patient" case studies. The first medical virtual patient case study revolves around a 35 year-old man with severe cerebral palsy who visits an urgent treatment center complaining of adominal pain. An individual with a significant disability participated in development of all aspects of the case. The script was modeled after his real-life experiences. The second medical virtual patient case study involves a nine year-old child with autism with flu-like symptoms who visits his pediatrician with his mother. Again, the mother participated in all aspects of the script development. For additional information, see Additional Resources. | Medical Students (First or Second Year) Adaptable for more advanced medical students and practicing physicians |
Unpublished effectiveness data for adult module showing both changes in knowledge and attitudes. | http://medic... |
Harold L. Kleinert, Ed.D. |
| 2 | Serving Persons Who Have Developmental Disabilities in the Healthcare Setting Produced by Matheny Institute for Research in Developmental Disability with funding from the U.S. Dept. of Education | Volume 1: A self-running presentation, suitable for individual or group viewing, exploring attitudes with a focus on including the patient as a partner in the healthcare process. The presentation also provides an overview of alternative modes of communication and strategies for conducting effective clinical interviews; Volume 2: A user-paced narrated presentation of information about muscular dystrophy, CP, spina bifida, Down syndrome, and autism. The presentation provides information about concomitant medical conditions and contains printable handouts to supplement training. | Medical students |
Matheny Institute for Research in Developmental Disabilities |
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| 3a | Brighter Tomorrows UK HDI |
Brighter Tomorrows is a web-based tool that addresses the needs of families for balanced, accurate information when receiving a diagnosis of Down syndrome. Brighter Tomorrows provides interactive "virtual patient" training that closely simulates the demands of physicians in informing actual patients and families about such a diagnosis. Originally, a collaborative team of physicians, parents, and education specialists worked together to produce an interactive CD that included a module on in utero diagnosis and one on a newborn diagnosis . The tool can be used by both physicians-in-training and current practitioners to assist them in supporting families at this critical juncture of their lives. The Physicians Version contains the full 60 minute tutorial as well as a Refresher Tool for a quick review of the content. For additional information, see Additional Resources. | Resident Physicians, Members of American College of Obstretics and Gynecology, American Academy of Pediatrics Adaptable for medical students and families receiving a diagnosis of Down Syndrome, |
Published effectiveness study (Ferguson et al., Obstetrics and Gynecology, 2006;Kleinert et al., AJOG, 2009). |
www.brig... |
Harold L. Kleinert, Ed.D. |
| 3b | Brighter Tomorrows for Families UK HDI |
The Family Version of Brighter Tomorrows includes many of the key elements of the Physicians version, but is specifically created for families who have just received a diagnosis of Down syndrome, either in utero or after birth. It is available in both English and Spanish. Please note that the web address is slightly different from the Physician version. | Families who have just received a diagnosis of Down syndrome, either in utero or after birth | Evidence of satisfaction from World Wide Surveys |
www.brigh... | Harold L. Kleinert, Ed.D. Executive Director, Human Development Institute, University of Kentucky 127 Mineral Industries Bldg. Lexington, KY 40506 (859) 257-3045 |
| 4. | University of Connecticut A.J. Pappanikou Center for Excellence in Developmental Disabilities Education, Research, and Service | This training tool includes six CD-ROM instructional modules which are distributed within the pediatric rotation of residents. Modules cover family-centered care, early intervention, special education, team-based service models, interagency collaboration, service integration, resource allocation, and advocacy and the legislative process. Each module contains some or all of the following components: introduction to the topic, description of the organization of the components within the module, objectives, background information, history, guiding principles, and theory, a family study with discussion questions, answers, and resolution, practicum experiences, evaluative materials, and references and further readings. For additional information, see Additional Resources. | Pediatric residents (three year training curriculum) | Yes | Mary Beth Bruder, Ph.D. 860-679-1500 |
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| 5. | The Continuum of Quality Care: Medicine American Academy of Developmental Medicine and Dentistry and Special Olympics International |
The Continuum of Quality Care series is a DVD series that has the goal of improving health outcomes and employement opportunities for individuals with neurodevelopmental disorders and intellectual disabilities. The medical version consists of three main components: an introduction that covers basic concepts and two cases. The first case involves an adolescent and addresses sports physicals, along with risk assessment. The second case involves a nonverbal adult and address working within a more complex medical appointment. The cases walk the participant step by step through care and treatment for individuals with intellectual disabilities. This series also contains tests at the end which allow the physician to log on to the AADMD website and enter a code to receive credit for completion of the training. For additional information, see Additional Resources. | Physicians Adaptable for medical school students |
Not able to ascertain at this point. | Matt Holder, MD, MBA Global Medical Advisor, International Special Olympics PO Box 5035, Louisville KY 40255 602-625-3805 |
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| back to top ^ | Tool Kit Target Audience: Dental Students | |||||
| 6. | Preservice Health Training : Student Dentists UK HDI |
This training tool is both web-based and available on CD-ROM. It is based on "virtual patient" case studies. The first dental module involves a 10 year old child with Down syndrome accompanied to his dental check-up by his father and the second module portrays a young adult with deaf-blindness who visits the dentist complaining of a tooth ache. He is accompanied by his personal care assistant. Families and individuals with developmental disabilities both participated in the development of the scripts for the virtual patient cases and acted the roles of patients/family member in each of the scripts. For additional information, see Additional Resources. | Student Dentists, Dentists |
Published effectiveness data (Kleinert et al., 2007, Journal of Dental Education; Sanders et al., Special Care in Dentistry,2008) ** | Available to members on the American Dental Association website. Also available at
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Harold L. Kleinert, Ed.D. |
| 7. | Practical Oral Care for People with Developmental Disabilties National Institute on Dental and Craniofacial Research |
The series of publications presents an overview of the physical, mental, and behavioral challenges common in patients with autism, Down syndrome, cerebral palsy, and intellectual disabilities and offers strategies for providing oral care. A two-credit-hour continuing education test for dentists and dental hygienists completes the series. For additional information, see Additional Resources. | Dental professionals | No | http://www.nidcr... | |
| 8. | University of Washington College of Dentistry DECOD program | The didactic part of the DECOD training is composed of a home-based, self-study Distance Learning Unit consisting of workbook modules, accompanying videotapes and pre/post tests. Participants can select from topics such as: medically compromised conditions, developmental disabilities, sensory impairments, special needs of geriatric patients and patients with chronic mental illness, drug therapy, psycho-social issues and sedation and anesthesia for patients with disabilities. For additional information, see Additional Resources | Dental students and professionals in practice | No | http://www.dental... | |
| 9. | The Continuum of Quality Care: Dentistry American Academy of Developmental Medicine and Dentistry and Special Olympics International |
The Continuum of Quality Care series is a DVD series that has the goal of improving health outcomes and employment opportunities for individuals with neurodevelopmental disorders and intellectual disabilities. The dental version consists of three main components: an introduction that covers basic concepts and two cases, one involving an adolescent and the other a more complex case of a nonverbal adult. The cases walk the participant step by step through treatment of individuals with intellectual disabilities. This series also contains tests at the end which allow the dentist to log on to the AADMD website and enter a code to receive credit for completion of the training. For additional information, see Additional Resources. | Dentists Adaptable for dental students |
Matt Holder, MD, MBA Global Medical Advisor International Special Olympics PO Box 5035 Louisville KY 40255 602-625-3805 |
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| 10. | University of the Pacific, Arthur A. Dugoni School of Dentistry Oral Health for Patients with Disabilities Curriculum | This resource consists of approximately 120 hours of curriculum materials related to the oral health of people with various disabilities. The materials are designed to be complete on-line replacements for in-class lectures, and feature instructor presentations with audio narration and transcribed text of the audio narration. Viewers can control the pace of the presentation. Materials include handouts, on-line quizzes, and case studies as well. | Dental and dental hygiene students, as well as dentists and dental hygenists in practice | Student performance and evaluation data | Paul Glassman, DDS, MA, MBA Professor of Dental Practice University of the Pacific Arthur A. Dugoni School of Dentistry 415-929-6490 |
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| back to top ^ | Tool Kit Target Audience: Nursing Students | |||||
| 11. | Developmental Disabilities Nursing Association online CE trainings | HealthSoft Inc. provides on-line CE trainings, including courses with overviews of the history of developmental disabilities nursing, case studies with specific disabilities (e.g., spina bifida, Down syndrome), and specific topic areas that span infancy through late-life. For additional information, see Additional Resources. | Nurses who are members of the Developmental Disabilities Nursing Association, though the HealthSoft website provides CE trainings for healthcare educators and healthcare faculty | Can purchase access at http://heal... | ||
| 12. | Preservice Health Training Modules: UK HDI |
This training tool is both web-based and available on CD-ROM. It is based on "virtual patient" case studies. Case studies include a well-adolescent visit for a young girl with Down syndrome and a follow-up visit for a child born with extreme prematurity. Families and individuals with developmental disabilities both participated in the development of the scripts for the virtual patient cases and acted the roles of patients/family member in each of the scripts. For additional information, see Additional Resources. | Student Nurses, Nurse Practitioners |
Sanders et al., 2008, J Nursing Education; Sanders et al., 2007, J Pediatric Nursing |
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Harold L. Kleinert, Ed.D. |
| back to top ^ | Tool Kit Target Audience: Interdisciplinary | |||||
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13.
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Preservice Health Training Modules: UK HDI |
This training tool is both web-based and available on CD-ROM. It is based on "virtual patient" case studies. Case studies include a well-adolescent visit for a young girl with Down syndrome and a follow-up visit for a child born with extreme prematurity. Families and individuals with developmental disabilities both participated in the development of the scripts for the virtual patient cases and acted the roles of patients/family member in each of the scripts. For additional information, see Additional Resources. |
Physician Assistants |
Effectiveness studies: Kleinert et al., 2007 J Physician Assistant Education; |
http://pa.phtmod...a> Also available for PA continuing education at the American Academy of Physicians Assistants, www.aapa.../a> |
Harold L. Kleinert, Ed.D. Executive Director, Human Development Institute, University of Kentucky 126 Mineral Industries Bldg. Lexington, KY 40506 (859) 257-3045 |
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Preservice Health Training: Primary Care Providers Women's Healthcare UK HDI |
This training tool is both web-based and available on CD-ROM. It is based on "virtual patient" case studies. The Women's Health Module is an interdisciplinary module, designed to present student practitioners with the concerns of a young woman with an intellectual disability who visits her primary care provider for gynecological care. This module touches upon such issues as strategies to reduce anxiety about the physical exam, breast self-examinations, awareness of potential sexual activity and contraception, and the issues of sexual abuse. Families and individuals with developmental disabilities participated in the development of the script, and acted in the accompanying Social Story of a gynecological visit. |
Student Nurses, Nurse Practitioners, Physician Assistant Students, & medical students |
Published effectiveness study (Boyd et al., 2008, Journal of Midwifery and Women's Health) |
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Harold L. Kleinert, Ed.D. Executive Director, Human Development Institute, University of Kentucky 126 Mineral Industries Bldg. Lexington, KY 40506 (859) 257-3045 |
| 15. | Gillette Children's Specialty Healthcare Online Continuing Medical Education | This website features online articles with post-tests and evaluations that can serve as CME credit. Topics include Mood Disorders in Children and Teens, Managing Spasticity in Children with Cerebral Palsy, Concerns about Childhood Intoeing and Outtoeing, Craniosynostosis and Deformational Plagiocephaly, Developmental Dysplasia of the Hip, Obstructive Sleep Apnea in Children with Abnormal Muscle Tone, First Seizures in Children and Adolescents, Neurocutaneous Syndromes, Managing Neurotrauma Injuries in Children and Teens, Practical Aspects of New Therapies for Children with Juvenile Rheumatoid Arthritis, and a Nonsurgical Approach to Treating Clubfoot. For additional information, see Additional Resources. | Senior Pediatric Residents Senior Internal Medicine/Pediatric Residents Pediatric Dentist Graduate Students Medical Students Other Health Professionals |
No | http://www.gill... | Raymond Tervo 651-229-3818 |
| 16. | American Academy of Developmental Medicine and Dentistry reports/trainings for CE credit | Topics include: children in rural areas, dental evaluation and treatment, the role of environmental toxins, differential diagnosis of GI disorder, role of the gynecological exam, causes, complications, and consequences of neurodevelopmental disorders, and the role of research. While not interactive as a teaching tools, this site does provide instructional resources for CE credit. For additional information, see Additional Resources. | Medical and Dental professionals and students | No | http://www.aad... | |
| 17. | Pacific West Maternal and Child Health Distance Learning Curricula USC UCEDD LEND/U Washington UCEDD LEND |
This web-based curriculum offers two self studies and one group study examining the topics of nutrition and oral health for children, nutrition for children with special healthcare needs, and nutrition for children with special healthcare needs. The interactive curriculum allows the users to navigate through different areas of interest within the topics and to futher examine any unfamilar areas or terminology. For additional information, see Additional Resources. | Health Professionals, Dietitians, Nurses, Dentists, Dental Hygienists, Early Intervention Providers, Physicians, Public Health Educators, Health professional training programs | No | http://www.pacif... | Beth Ogata |
| 18. | California Dept of Developmental Services, in collaboration with the University of CA, San Diego School of Medicine CE/CME trainings online | The Medical Condition section of this site has been developed to assist primary care physicians and other healthcare providers in caring for persons with developmental disabilities. Specific learning objectives for each topic are listed at the beginning of each activity. For additional information, see Additional Resources | Nurse, Physicians, Mental Health Professionals | No | http://www.ddheal... | |
| 19. | University of Pennsylvania School of Medicine | Description of physical and cognitive impairments that appear after birth. For additional information, see Additional Resources. | Physicians, registered nurses, nurse practitioners | No | http://www.medd... | |
| 20. | Rehabilitation Research and Training Center on Aging with Developmental Disabilities (University of Illinois at Chicago UCEDD) Health Promotion | Beth Marks and Jasmina Sisirak have developed a health promotion training CD-ROM entitled, "Exercise and Nutrition Health Education Curriculum for Adults with Developmental Disabilities," also available in print. | No | Brookes is publishing the product in the fall so the website information is not yet available. | Alan Factor, Ph.D. |
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| 21. | Rehabilitation Research and Training Center on Aging with Developmental Disabilities (University of Illinois at Chicago UCEDD) Health Advocacy Curriculum | Also developed by Marks and Sisirak, this is a two hour workshop with corresponding self-study articles and resources. Plans are for this project to be converted to an electronic format, but no timeline has been set for this. It includes the following four modules: 1) Health Care Interactions: Charity to Advocacy; 2) Health Promotion: Beyond Illness Care; 3) Universal Design: More Than Ramps; and 4) Health Advocacy: Culturally Relevant Care. | Pediatric residents and other healthcare professionals | No | Alan Factor, Ph.D. | |
| 22. | Shriver Center Distance Learning | Over ten courses have been created for a variety of professionals as well as families. These distance learning modules address topics such as Positive Behavioral Support in Autism, newborn hearing and screening, genetics, and disability law. The courses are regularly revised to ensure current content. | Diverse professionals, paraprofessionals and parents | Products developed through needs analyses, consultation with experts, and evaluations of consumer satisfaction | http://www.medd... | |
| 23. | University of Pennsylvania School of Medicine | Description of efficacy of antipsychotic drugs for ameliorating aggression in individuals with intellectual disability. For additional information, see Additional Resources. | Physicians, nurses, and nurse practitioners | No | http://www.medd... | |
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24.
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Mountain AHEC mini-fellowship | 1) Primary health tool kit: emphasizes the importance of access to primary care; e-materials available 2) AccessDental video--brief DVD providing instruction on assisting people with developmental disabilities in dental hygiene. | Medical students, case managers, dental professionals, direct service professionals | No |
Bill Milner |
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25. |
Direct Support Professionals: |
This cost-free training module was created for Direct Service Professionals (DSP's) who work with people with developmental disabilities. It walks the DSP through issues related to their role in medical appointments for individuals with developmental disabilities, such as cerebral palsy, vision impairment, and cognitive limits. With virtual patient training, it provides the DSP with a model for supporting self-advocacy of the patient, ensuring adequate understanding of the healthcare professional, and use of Assistive Technology. |
Direct support Professionals, DSP Trainers | Course # 1022818 | http://Ky.tra... |
Harold L. Kleinert, Ed.D. Executive Director, Human Development Institute, University of Kentucky, 126 Mineral Industries Bldg. Lexington, KY 40506, (859) 257-3045 |
| back to top ^ | Tool Kit Target Audience: Foundational or Historical | |||||
| 26 | Interdisciplinary Leadership Training Seminars UT Boiling Center for Developmental Disabilities |
Interdisciplinary Leadership Training Seminars containing taped training seminars with attached powerpoint slides covering topics such as: planning for healthy living, ethics of care for health care professionals, children and psychotropic medications, neural tube defects, mental health interventions for people with dual diagnosis, and diabetes, juvenile rheumatoid arthritis, and intellectual disabilities as chronic health care conditions: research and related ethical issues. For additional information, see Additional Resources. | LEND trainees Community health providers |
Yes | Elizabeth Bishop 901-448-3127 |
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| 27 | Fundamentals of Interdisciplinary Teaming: Providing Care to Children with Special Needs and Their Families Univ of Miami Mailman Center for Child Development |
Three training modules incorporating interactive family scenarios with decision points. Topics include interdisciplinary teaming, family-centered care, and self-determination. Participants learn about a family who has a member with a developmental disability. The participant actively engages in making decisions that address the family's needs. This interactive case-based approach allows the participant to immediately see the relevancy of the content to families and to their everyday challenges. For additional information, see Additional Resources. | Graduate and post-graduate across 16 different disciplines (e.g., medical, education, psychology) | Yes | Michelle Schladant 305-243-4466 |
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| 28 | The Modular Long Term Care Project Univ or Maine Center for Community Inclusion & Disability Studies |
Modular Long Term Care Projectis an interactive CD-ROM and web-based curriculum that chronicles the history of long-term care, categorizes the current system, & provides an axiological critique. For additional information, see Additional Resources. | Health professional students | Yes | http://www.cci... | Elizabeth DePoy 207-581-1469 |
| 29 | Virginia Commonwealth University | Instructional modules (genetic awareness, family history, newborn screening). Should be available July, 2008. For additional information, see Additional Resources. | Preprofessional students and postprofessional students in LEND disciplines | Yes | ||
| 30 | Parallels in Time Minnesota Governor's Council on Developmental Disabilities |
Parallels in Time is a two-part web-based series that offers an historical view of developmental disabilities. The series incorporates self-nagivation through text, still images, and video clips. The first section examines developmental disabilities from 1500 B.C. to the present. Examples of included topics are: The Rise of Institutions, Independent Living, and Self-Advocacy. For additional information, see Additional Resources. | Anyone seeking knowledge on the historical perspective of developmental disabilities | http://www.mnc... | The Minnesota Governor's Council on Developmental Disabilities, 370 Centennial Office Building, 658 Cedar Street, St. Paul, Minnesota 55155 651-296-4018 |
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| 31 | Parallels in Time II Minnesota Governor's Council on Developmental Disabilities |
Parallels in Time II is the second part of a two-part web-based series that offers a historical view of developmental disabilities. The series incorporates self-nagivation through text, still images, and video clips. The second section examines developmental disabilities from the 1950's to the present in depth. Examples of included topics are: The development of free and appropriate public education for all children, the development of real jobs in typical work settings, and the development of supports for having a home in the community. For additional information, see Additional Resources. | Anyone seeking knowledge on the historical perspective of developmental disabilities - provide valuable context and historical perspective for health care providers | http://www.mndd... | The Minnesota Governor's Council on Developmental Disabilities, 370 Centennial Office Building, 658 Cedar Street, St. Paul, Minnesota 55155 651-296-4018 |
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| 32 | Planning for Life Elizabeth M. Boggs Center on Developmental Disabilities |
Planning for Life is designed for those professionals responsible for designing and implementing self-directed supports. It is also for people with disabilities and families to help them visualize what supports can look like when they are the ones in control of those supports. Planning for life can help professionals know how extremely important they are in the lives of people with disabilities. For additional information, see Additional Resources. | Staff and professionals working in support of individuals with disabilities - provides valuable "context" information for health care providers. | No | http://www.disab... | Michael Knox, Ph.D. 732-235-9301 |
| 33 | Philadelphia Coordinated Health Care | This is a web-based training with topics including Communicating with the Psychiatrist, Oral Hygiene, Symptom Management Guidelines, Team Review Form, Wheelchair Durable Medical Equipment. | Provider agency staff | No |
Denise Brown LaTonya Thomas |
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