2008 Poster Session

November 1, 2008

The presenters at the 2008 AUCD Poster session described how their projects, research, and initiatives are "paving the way" in the field of disabilities.  The poster "neighborhood" were organized by topical "streets" (below) to help you find posters in similar areas of interest. 

 


Advocacy Highway

PhotoVoice - Using photos in research to communicate and influence constituents and policymakers

This session describes the results of a participatory action research project using PhotoVoice. The purpose was: 1) to assess the use of Photovoice as a tool for conducting a community needs assessment and; 2) to increase NDCPD?s Consumer Advisory Council (CAC) member experience with participatory action research to develop leadership skills.

  • Cathy Haarstad; Consumer Affairs, ND - North Dakota Center for Persons with Disabilities
  • Dawn Olson, BS, Consumer Liaison, ND - North Dakota Center for Persons with Disabilities
  • Cynthia Salazar, BS, Dissemination Coordinator, ND - North Dakota Center for Persons with Disabilities
  • Shannon Simonson, Associate Degree, Chairperson Consumer Advisory Council, ND - North Dakota Center for Persons with Disabilities

Taking Charge of Your Health & Safety: Activating Senior Networks in Rural Appalachia
View Handout > [ppt]

Choosing to age-in-place or live independently are increasingly popular alternatives to traditional senior care. Innovative in its service delivery, 'Taking Charge' disseminates health education materials by incorporating culturally sensitive chronic health messages with a community based approach and flexible program design that can be customized to individual needs.

  • Tammy Hare, MS; Community Medicine, Rural Outreach Coordinator/ Clinical Associate, WV - Center for Excellence in Disabilities
  • Mary Slabinski, MSW; WV - Center for Excellence in Disabilities

Creating Community Leaders with Leadership and Advocacy Training: Texas YLF-A New and Improved YLF Model

This presentation provides an overview of a new leadership training model. Under this new model three regional Youth Leadership Forum (YLF) projects and one statewide YLF project have been funded to provide progressive leadership training to youth with disabilities. Participants also receive extended information on the statewide YLF implementation structure.

  • Cheryl Grenwelge, MEd, Research Associate, TX - Center on Disability and Development
  • Jackie Pacha, Texas A&M University, TX - Center on Disability and Development
  • Leena Landmark, MEd, Texas A&M University, TX - Center on Disability and Development

An Innovative LEND Curriculum Module on Advocacy and Policy

MCH leaders "must possess the knowledge and skills required to defend and advocate for resources in competitive economic and political environments." The LEND Program at WIHD has expanded its advocacy and policy curriculum module to provide hands-on, active learning and teaching experiences for trainees. Feedback has been positive.

  • Karen Edwards, MD MPH; LEND Program Director, NY - Westchester Institute for Human Development
  • Ansley Bacon, PhD, NY - Westchester Institute for Human Development
  • Barbara Levitz, MS, NY - Westchester Institute for Human Development
  • KimLori Devine, MSEd, NY - Westchester Institute for Human Development

Communication Access Bulletin: Establishing Policy, Reaffirming Rights

This session will describe the multi-year process resulting in a policy reaffirming the right to communication and communication supports and services for people served by PA's Office of Developmental Programs. Need, partners, barriers, and parameters, and implementation of the policy will be addressed.

  • Amy Goldman, MS; Associate Director, PA - Institute on Disabilities/UCEDD

Strengthening Family Partnerships: Building The Capacity of Family Organizations

This presentation will focus on three ways to build capacity in state and local family organizations through technical assistance and support. These include strategic planning and organizational development, grant writing and reviewing, and mentoring/leadership development.

  • Molly Cole; Associate Director, CT - Connecticut UCEDD

OurSABE.org: An Online Self-Advocacy Community

Through a grant from the NEC Foundation, SABE and the UMKC Institute for Human Development are developing a fully accessible online learning community to connect self-advocates and inform professionals and the general public about self-advocacy in the U.S. This poster session will introduce a pilot version of the site www.ourSABE.org.

  • Laura Walker, Research Associate; MO - UMKC Institute for Human Development (UCE)
  • Ronda Jenson, MO - UMKC Institute for Human Development (UCEDD)
  • Tia Nelis, IL - University of Illinois UCEDD

Disabilities and Law Enforcement

Brian Sterner is a 32 year-old Tampa man who was dumped out of his wheel chair by a Hillsborough County Sherriff Office's (HCSO) Deputy. The Deputy dumped Mr. Sterner out of his wheel chair to search his pockets and clothing. This poster presents the results from a Needs Assessment and the results from Focus Groups of HCSO deputies.

  • Marc J. Tasse, PhD; Associate Director, FL - Florida Center for Inclusive Communities
    Disabilities and Law Enforcement
  • Nila Benito, University of South Florida, FL - Florida Center for Inclusive Communities
  • Bobbie Vaughn, Ph.D., University of South Florida, FL - Florida Center for Inclusive Communities

 


Autism Avenue

New Hampshire's Commission on Autism Spectrum Disorders: A Public Policy Report

In 2007, the governor appointed the NH Commission on ASD to study gaps in services for individulas and their families. The final report adresses six areas of need: Intrastructure; Early Identification and Intevention; Transition to Adulthood; Saftey; Professional Development; and Funding. Progress on impementation of the recommendations will be discussed.

  • Amy H. Frechette, AS; Board Member, New Hampshire Autism Society, NH - Institute on Disability / UCEDD
  • Rae M. Sonnenmeier, Ph.D., NH - New Hampshire LEND Program

Follow-up of Young Children with Autism Spectrum Disorders: Continuity of Diagnosis

This study investigated the retention of an ASD diagnosis from preschool to 7-12 years of age. In addition, the outcome variables of educational setting and parent-rated autism symptoms were examined, in conjunction with the role of early intervention and the use of alternative and private therapies.

  • Patricia Towle, PhD; Director of Psychology Training, NY - Westchester Institute for Human Development
  • Lisa DeDomenico, PhD; NY - Westchester Institute for Human Development
  • Elizabeth Gonsalves, MS; Mercy College, NY - Westchester Institute for Human Development
  • Marie Pennacchio, RN, MBA; NY - Westchester Institute for Human Development
  • Julie Reichling, MS; Sarah Lawrence College, NY - Westchester Institute for Human Development
  • Karyn Vacanti, MS, Fordham University, NY - Westchester Institute for Human Development

A Social/Vocational Program for Transition Age Youth with High Funtioning Autism

This presentation will describe a social vocational support program for young adults with high functioning autism and their families. In existence for six years, Aspirations has served over 100 individuals. Information will be provided regarding treatment interventions, curriculum, and research outcomes.

  • Tom Fish, PhD, Director of Social Work, OH - Nisonger Center UCEDD
  • Angela Suell Denny, PhD, Nisonger Center

Feeding Behaviors of Children and Adolescents with Autism Spectrum Disorders

We performed a retrospective chart review of 20 children with prior diagnosis of Autism Spectrum Disorder who had formal nutrition assessment. We examined the feeding behaviors of subjects on antipsychotic medication at time of the evaluation with those who were not on medication and compared the findings.

  • Keith Ayoob, EdD, RD, FADA, AECOM, NY - Rose F. Kennedy University Center for Excellence
  • Maria Valicenti-McDermott, MD MS, AECOM, NY - Rose F. Kennedy University Center for Excellence
  • Colleen Lennon, SW trainee; New York University, NY - Rose F. Kennedy University Center for Excellence

Medical Home Service System Guidelines for Autism Spectrum Disorders Review

ASD Service System Guidelines that have been developed and how they can be utilized to promote development of state plans to address ASD.

  • Daniel Bier, MPA, MSW; Associate Director, WI - Waisman Center on Mental Retardation and Human Development
  • Linda Tuchman, PhD, WI - Waisman Center on Mental Retardation and Human Development
  • Christine Breunig, MS, Children's Hospital of Wisconsin-Fox Valley

Autism Outcome Data in Nevada

This project presents survey data collected in Nevada across 14 months from parents and caregivers of children with autism. The data include analyses of the youth's year of birth, location in Nevada, health complications during pregnancy, child's behavior, professional consultation, and an analysis of where the parent received the child's diagnosis.

  • Scott Harrington, PhD; Youth Transition Director, NV - Nevada UCEDD, Univeristy of Nevada, Reno
  • Debra Vigil, PhD, Univeristy of Nevada, Reno
  • George McKinlay, MS, Univeristy of Nevada, Reno
  • Kate Green, BA, Univeristy of Nevada, Reno
  • Christal Salazar, Univeristy of Nevada, Reno

Training in Autism Spectrum Disorders: Impact and Implications Classroom Practice

The focus of this session is an autism training program that provides best practice information about strategies, techniques, and theories related to autism interventions. Training in a classroom and on-line format will be highlighted. General competency areas, specific course components, and examples of the training materials will be discussed.

  • Ann Mastergeorge, PhD; Developmental Psychologist, CA - Center for Excellence in Developmental Disabilities at the UC Davis MIND Institute
  • Lisa Sullivan, MS, UC Davis School of Education
  • Patty Schetter, MA, CA - Center for Excellence in Developmental Disabilities at the UC Davis MIND Ins
  • Robin Hansen, MD, CA - Center for Excellence in Developmental Disabilities at the UC Davis MIND Ins

Mile markers, signposts, and intersections: the "Act Early" initiative of the "Learn the Signs. Act Early." Campaign

CDC's 'Learn the Signs. Act Early.' campaign seeks to increase the awareness of parents about the importance of early identification and intervention for children with signs of autism and related disabilities. This presentation provides an overview of the 'Act Early' initiatives, including activities to build partnerships among early intervention systems.

  • Tracy Mann, AUCD CDC Fellow; CDC

The New Jersey Autism and Faith Task Force: Collaboration on Resources, Training, and Technical Assistance

A New Jersey Autism and Faith Task Force, a collaboration between The Boggs Center and COSAC, the statewide autism network, and a number of faith networks has developed resources for training and technical assistance for families, and congregations.

  • William Gaventa, MDiv; Director, Community and Congregational Supports, NJ - The
  • Elizabeth M. Boggs Center on Developmental Disabilities
  • Robyn Carroll, MSW, NJ - The Elizabeth M. Boggs Center on Developmental Disabilities

 


Bus Stop

Public vs. Private Transportation: What is Being Utilized by People with Disabilities in the Greater Richmond Metropolitan Area

As a trainee funded under the 2008 ESPA-AUCD Sponsored Project, I examined the transportation options of people with in the Greater Richmond Metropolitan Area. Findings include reasons why a person with a disability chooses certain modes of transportation, and what barriers they face in using that mode. The most common reported by consumers were the time constraints, the cost, and the primary locations accessible.

  • Michelle Battle, trainee, Partnership for People with Disabilities, Richmond, VA
  • Ken Thompson, Easter Seals

 


Caregiver Circle

Meeting the Needs of Parents of Children with Severe Disabilities

This presentation will critically examine what has been discovered about parents of children with severe disabilities; how is severe disability defined; what factors influence parents' ability to adequately care for their disabled child; and how severly disabled children are viewed in education, political, and cultural systems.

  • Rita Walters, MSW, PhD Candidate; Michigan State University

Family Centered Care in Practice - Experiences of LEND Graduates

LEND graduates receive specialized training in the importance and practice of family centered care for children with special healthcare needs (CSHCN), yet they still experience barriers to FCC in the field. Issues related to Institutional Culture, Absence of Care Coordination, Insufficient Training, Policy Factors, and Family Factors are shared.

  • Geri M. Lotze, MS, MT; Doctoral Candidate, VA - Partnership for People with Disabilities
  • Mel Bellin, PhD, MSW, LCSW; University of Maryland

Problem Solving and Maternal Distress at the Time of Child's Cancer Diagnosis: English Versus Spanish-Speaking Mothers

This proposal is an ongoing research project and the data originates from a larger data set of a randomized clinical trial funded by the NCI.I completed this portion of the project while serving as a LEND Fellow at the University of Pittsburgh over the past year. Although I have just started a Fellowship with the NCI, I continue to collaborate with the research team in Pittsburgh as I work towards publication.

  • Alison Pilsner; Former Trainee, NIH Fellow; PA - The UCLID Center at the; currently at NIH (NCI)

Giving Parents a Voice: A Qualitative Study on the Stress and Challenges Parents of Children with Disabilities Experience

Parent caregivers of children with disabilities have a significant amount of responsibility placed upon them. As a result of these responsibilities the parent caregiver is likely to experience substantial stress and burden. The purpose of this presentation is to highlight the specific sources of caregiver stress as expressed by caregivers.

  • Aaron Resch, BA; Research Assistant, TX - Center on Disability and Development
  • Gerardo Mireles, MA, TX - Center on Disability and Development
  • Michael Benz, PhD, TX - Center on Disability and Development

Conversations about Cultural Competence and Family-Centered Care - Beginning the Journey

Participants will engage in a dialog about cultural awareness and culturally responsive family-centered care

  • Barbara Leach; Family Advocate, NC - Center for Development and Learning

Oklahoma Families Caring for Children with Special Health Care Needs

An interdisciplinary research based investigation into the relationships between characteristics of Oklahoma families caring for children with special health care needs and the impact the care process has on the family.

  • Rob C. Wild, MS; OK - Center for Interdisciplinary Learning and Leadership, Oklahoma LEND Program

 


Data Alley

Emerging trends in the AUCD network: A multi-year analysis of NIRS data system

This poster presents multi-year analysis of national data elements in the NIRS data system.

View Poster > [pdf]

  • Margaret Nygren, EdD; Assoc Ex Dir Prog Dev, AUCD
  • Elizabeth Bishop, MSSW, TN - Boling Center for Developmental Disabilities

Beyond Race and Ethnicity: Measuring Diversity in Vermont LEND

The Vermont LEND program developed a Diversity Survey to measure the range of diversity among their faculty, staff, trainees and fellows. Diversity elements include SES, religion, sexual orientation, disability, in addition to others.

  • Jean Beatson, EdD, RN; Clinical Director, VT - VT Interdisciplinary Leadership Education for Health Professionals
  • Stephen Contompasis, MD, VT - VT Interdisciplinary Leadership Education for Health Professionals

Behavioral Risk Factor Surveillance System A Flexible Tool for Monitoring Health Status among People with Disabilities

The Behavioral Risk Factor Surveillance System (BRFSS) is an on-going telephone health survey system, tracking health conditions and risk behaviors in the United States since 1984. Data from the BRFSS can be used to monitor the health status of people with disabilities at national, state and local levels.

  • Ilka K. Riddle, PhD; Project Director, DE - Center for Disabilities Studies
  • Eileen Sparling, Ed.M., DE - Center for Disabilities Studies
  • Monika Mitra, Ph.D., Massachusetts Department of Health, Office of Statistics and Evaluation;
  • Pialee Roy, M.A., Massachusetts Department of Health, Office on Health and Disability

Oklahoma's Self-Directed Services Pilot Program Evaluation 2008

The Center for Learning and Leadership (Oklahoma UCEDD) conducted an evaluation of Oklahoma's Self-Directed Services Pilot Program. The program was mandated by the Oklahoma Legislature and implemented by the Oklahoma Department of Human Services. This presentation will provide information about the program and results of the evaluation.

  • Angela Harnden, PhD; Director, Data and Outcome Measures, OK - Center for Interdisciplinary Learning and Leadership
  • Valerie N. Williams, MPA, PhD, Director, OK - Center for Interdisciplinary Learning and Leadership
  • Vyonda G. Martin, MA, Associate Director and Community Services Director, OK - Center for Interdisciplinary Learning and Leadership

Kicking it up a Notch: Using the LAQI to Guide Systematic Team Training, TA, and Program Evaluation

HDC developed a program evaluation tool to guide training, technical assistance, and continuous improvement efforts for schools serving students with autism and related disabilities. A description of the protocol used for training and TA as well video samples of school implementation will be shared. Outcome data will be used to discuss successes and challenges of the model.

  • Maria Blanco, MEd, ABD; Autism Initiatives Coordinator, LA - Louisiana UCEDD

 


Employment Autobahn

Louisiana's Supported Employment Continuous Improvement Project (LA SECIP) - Building trust and commitment.

Building trust, shifting attitudes and practices, and influencing policy are all outcomes of this project. Instead of focusing on a standard's driven approach to technical assistance, this project looks at "what will it take" to achieve the provider's desired employment outcome and builds its technical assistance around that effort.

  • Patricia Ghiossi; Program Coordinator, LA - Louisiana UCEDDERS
  • Philip Wilson, LA - Louisiana UCEDDERS

Cultural Adaptation of the Maine Employment Curriculum for Employment Support Personnel in Puerto Rico

Job Coaching services are useful to promote the employment of people with disabilities. This study aimed to validate job coach competencies across cultures through a partnership between the Maine and Puerto Rico UCEDDs.

  • Annie Alonso, PsyD, MSW; Director, PR - Puerto Rico University Center for Excellence on Developmental Disabilities/IDD
  • Lucille A. Zeph, EdD, ME - University Center for Excellence in Developmental Disabilities Education
  • Ilia Torres, MS, PR - Puerto Rico University Center for Excellence on Developmental Disabilities/IDD
  • Mario Rodriguez, PhD, Graduate School of Public Health, UPR
  • Carmen Landrón, MA, Medical Sciences Campus, UPR

Achieving successful employment for young adults with disabilities by bridging the gap between schools and adult service providers.

This session will present a pilot program developed to provide job coach training and information about supported and customized employment to school related personnel and their local adult service provider to achieve competitive employment for young adults with disabilities.

  • Emily Obremski, MEd; Doctoral Research Assistant, KS - Kansas University Center on Developmental Disabilities
  • Wendy Parent, PhD, KUCEDD

US Neoliberal Workfare Policies and the UN Convention on the Rights of Persons with Disabilities

This paper examines the extent to which neoliberal workfare policies and programs in the US facilitate full and equal participation for disabled people. It will assess the effectiveness of these policies (e.g. PRWORA and TWWII) against the right-based framework of the UN Convention on the Rights of Persons with Disabilities.

  • Vladimir Cuk, MS; PR and Advocacy Coordinator, IL - University of Illinois UCEDD

 


Friendship Freeway

Evidence-Based Strategies to Promote Social Interactions and Peer Relationships Across the Gradespan

We will present a critical analysis of interventions aimed at promoting peer interaction among elementary, middle, and high school students with and without developmental disabilities (e.g., autism, intellectual disabilities, multiple disabilities). In addition, we will outline critical gaps in the research literature, as well as offer recommendations for practitioners interested in promoting social relationships among students.

  • Erik Carter, PhD; Assistant Professor, WI - Waisman Center on Mental Retardation and Human Development
  • Colleen Kurkowski, UCEDD at UW-Madison, WI - Waisman Center on Mental Retardation and Human Development

Increasing disability awareness and effective communication in agencies

This presentation will describe the development and implementation of a statewide training project on disability awareness, effective communication, assistive technology and resources targeted to agencies, including senior centers, libraries, volunteers, Medicaid employees, extension agents and city offices at twelve locations.

  • Marilyn Hammond, PhD; Associate IDT Division Director, UT - Center for Persons with Disabilities
  • Sachin Pavithran, MS, UT - Center for Persons with Disabilities

Positive Behavioral Interventions and Supports: A Promising High School Reform Strategy

This presentation will describe New Hampshire's dropout prevention initiative, Achievement in Prevention and Excellence (APEX), and its impact on school wide discipline and individual student outcomes for youth with the most significant challenges. The APEX model uses Positive Behavioral Interventions and Supports (PBIS)nd an individualized model for student-led, school-to-career services.

  • JoAnne Malloy, MSW; Project Director, NH - Institute on Disability / UCEDD
  • Maria Agorastou, MSW, NH - Institute on Disability / UCEDD
  • Jonathan Drake, MSW, Alliance for Community Supports

Development and Evaluation of a Disability Awareness Workshop for College Students

A Family Studies & Community Development major worked with a faculty member and a university committee to develop and evaluate a workshop for students to: (1) increase knowledge about ableism (2) provide exposure to classroom learning and fieldwork challenges (3) increase students? knowledge of professional human service worker skills.
Diane Hall, PhD; Assistant Professor, Towson University Department of Family Studies and Community Development

  • Lisa Martinelli, ATR-BC, CCLS, Towson University Department of Family Studies and Community Development
  • Cheryl Gottlieb, Towson University Department of Family Studies and Community Development
  • Cynthia Vejar, PhD, Towson University Department of Family Studies and Community Development

 


Health Professions Terrace

Implementing Follow-Up Programs: A Necessity for Effective Interdisciplinary Practice

This presentation will examine two UCEDD patient follow-up programs. Both the University of Tennessee Boling Center for Developmental Disabilities and the Vanderbilt Kennedy Center implemented qualitative follow-up programs for individuals receiving diagnostic evaluations within a designated 6 month period, using a structured follow-up form developed collaboratively by the UCEDDs.

  • Carol Rabideau, MSSW; Licensed Clinical Social Worker, TN - Vanderbilt Kennedy Center for Excellence in Developmental Disabilities
  • Belinda Tate Hardy, MPA, LCSW, TN - Boling Center for Developmental Disabilities

A Call to Action An Electronic Tool Kit for Medical, Dental, and Nursing Schools in Caring for Patients with Disabilities

The creation of an Electronic Tool Kit of validated curricular tools for medical, dental, and nursing students will be described. The purpose of this tool kit is to provide medical, dental, and nursing schools with evidence-based examples for training their students to care for their future patients with disabilities.

  • Harold Kleinert, EdD; Director, KY - University of Kentucky UCE
  • Lann E. Thompson, EdD, Associate Director, IN - Riley Child Development Center
  • Diane N. Bryen, PhD, Director Emeritus, PA - Institute on Disabilities/UCEDD
  • Keysha Hammons, MA, UCEDD trainee, KY - University of Kentucky UCEDD
  • Sara Boyd, M.A., UCEDD trainne, KY - University of Kentucky UCEDD

The Impact of Medicaid Drug Policies on People with Intellectual and Developmental Disabilities

Increases in Medicaid enrollment and medication spending, notably psychotropic medication, have led states to enact prescription medication cost-saving legislation. As people with I/DD have a higher prevalence of mental illness as compared to their non-disabled peers, they use a disproportionate share of psychotropic medications. This study sought to determine the effects of such legislation on people with I/DD.

  • Amie Lulinski Norris, MS in Disability & Human Development - pending; Visiting Project Coordinator; IL - University of Illinois UCEDD

Rethinking Disability: Designing a Half-Day Interprofessional Seminar for Medical, Nursing, Pharmacy, Public Health, Social Work and Law Students
View Handout > [ppt]

The poster explains the implementation and evaluation of a half-day class activity for medical, nursing, pharmacy, public health, social work and law students. The goal of the activity was to teach students how to collaborate respectfully with other professionals as an interdisciplinary team to address the often-complex needs of individuals with disabilities.

  • Lynne Tomasa, PhD; Assistant Professor, Clinical, AZ - Sonoran UCEDD
  • Leslie Cohen, JD, AZ - Sonoran UCEDD
  • Jim Kerwin, MD, AZ - Sonoran UCEDD

 


Health Promotion Boulevard

Assessment of Consumer Awareness and Understanding of Newborn Screening

Every state screens newborns for certain harmful or potentially fatal disorders at birth; however, the public possesses limited awareness and understanding of the newborn screening process. Improved educational programs are needed to increase knowledge of newborn screening among healthcare professionals and consumers.

  • Caroline Lieber, MS; CGC, NY - Westchester Institute for Human Development, Sarah Lawrence College
  • Patricia Patrick, MPH;
  • Aieya Jean-Francois, Occupational Therapy
  • Ejiro Agboro-Idahosa, MD; Child Psychiatry
  • Jessica Hutter, MS; Speech and Language Pathology
  • Rosetta Malvese, MSEd; Family Specialist

Relationship between the number of foster homes placements and the mental and physical wellbeing of foster children with developmental disabilities

The study provides information about the relationship between the number of foster home placements of a sample of foster children with developmental disabilities and psychiatric, and health related disorders of these children.

  • Ethel Teichberg, LCSW; Child Development Specialist, NY - Rose F. Kennedy University Center for Excellence
  • Howard Demb, MD; Child Psychiatric, NY - Rose F. Kennedy University Center for Excellence
  • Rosario Maria Valicenti, MD; Developmental Pediatrician, NY - Rose F. Kennedy University Center for Excellence

Implementing healthy nutrition choices for obesity prevention in persons with intellectual disabilities

We asked adults with mild intellectual disabilities and support staff about facilitators and barriers regarding healthy nutrition. Respondents understood established guidelines for wholesome diets, but significant obstacles remained in translating the guidelines into behavior. Our data analysis provides a decision-making framework for developing programs to accomplish this important health goal.

  • Mary Segal, PhD; Research Director, PA - Institute on Disabilities/UCEDD
  • Beverly Frantz, EdD; PA - Institute on Disabilities/UCEDD

Emergency Preparedness for All Utahns: Preparing Yourself, Your Family, or Your Agency

This poster highlights the "Emergency Preparedness for All Utahns" project and the train-the-trainer and participant materials that were developed utilizing existing materials from around the country. Training materials were produced for three specific groups: Individuals with Developmental Disabilities, Families of Children with Special Health Care Needs, and State/Community Service Providers.

  • Jefferson Sheen, MSW; Project Director, UT - Center for Persons with Disabilities

Patterns of Mental Health Service Utilization in Children and Adolescents with Chronic Health Conditions or Physical Disabilities

Results from a larger mixed-method study exploring the psychosocial functioning of youth with special health care needs and their need for and use of mental health services are presented. Findings on patterns of service use as well as barriers to receiving needed mental health services are discussed.

  • Sara Hunt; graduate student; UT - Center for Persons with Disabilities

ND Disability Health Project

The ND Disability Health Project promotes the health and wellness of ND citizens with disabilities. The project has developed a strategic plan, based upon state data sources and focus group sessions, that includes health promotion strategies, technical assistance, and other techniques to promote awareness of health disparities and to address health related issues for people with disabilities.

  • Kari Arrayan, MS; Program Director; ND - North Dakota Center for Persons with Disabilities
  • Kylene Kraft, BS; ND - North Dakota Center for Persons with Disabilities
  • Brent Askvig, PhD; ND - North Dakota Center for Persons with Disabilities

Nutrition Health Promotion Program for Adults with Intellectual or Developmental Disabilities Residing in Group Homes: MENU-AIDDs

This poster will: 1. Describe the MENU-AIDDs nutrition intervention for adults with IDD and display the materials; 2. Report on the Montana dissemination and training of MENU-AIDDs; 3. Show results of the evaluation of the trainings and outcomes to implementation in community group homes for dietary intake, weight, and gastrointestinal health.

  • Kathleen Humphries, PhD; Nutrition Projects Director, MT - The University of Montana Rural Institute
  • Alison C. Pepper, MA, University of Montana
  • Meg A. Traci, PhD, MT - The University of Montana Rural Institute
  • Julianna Olsen, University of Montana
  • Tom Seekins, PhD, MT - The University of Montana Rural Institute

Developmental Disabilities in Foster Care: Meeting Children's Needs in Out of Home Care

Recent research suggests that youth in foster care have developmental disabilities at significantly higher rates than the general population. However, the child welfare system does not always respond well to meet these children's needs. This presentation will look at ways that providers can better meet these needs.

  • Robert Basler, MSW; Program Director Theraputic Foster Care, MD - Kennedy Krieger Institute

Small Changes Make Big Impacts: An Inclusive Fitness and Nutrition Program

This poster session shares information about fitness and nutrition programming for youth with developmental disabilities in inclusive settings. By writing an inclusion guide to an existing curriculum, Jump into Foods and Fitness promotes health and exercise by providing teachers and staff at youth organizations with training, lesson plans and resources.

  • Alexis Petri, MA; Research Associate, MO - UMKC Institute for Human Development (UCEDD)
  • Terri Glenn, graduate student, MO - UMKC Institute for Human Development (UCEDD)

LEND Community Project: The Homeless Health Initiative Developmental Screening Training

An interdisciplinary team partnered with the Homeless Health Initiative to train shelter staff to perform developmental screenings for children living in the shelter. The team modified the Ages & Stages curriculum to create activities that stimulate mother-child interaction and healthy development within the limits of a homeless shelter environment.

  • Melissa Berrios, MSW; Homeless Health Initiative Social Work Trainer, PA - Children's Seashore House of The Children's Hospital of Philadelphia

 


Leadership Lane

Under Construction: Leaders for Tomorrow

Since its inception over 35 years ago, the Center for Persons with Disabilities has helped pave the way in the disability field. Currently operating over 65 cutting-edge projects, the CPD works to impact policy and practice. An important part of this work includes innovative projects that build leaders for tomorrow.

  • Kelleen Smith, BS; UT - Center for Persons with Disabilities
  • Bryce Fifield, PhD; UT - Center for Persons with Disabilities

The Leadership Puzzle Piece Program: Encouraging Leadership in Employees and Trainees in Everyday Experiences

This poster describes one strategy used to promote leadership behaviors in employees and trainees at the Kansas LEND program. Individuals complete puzzle pieces describing first-hand observations of leadership in peers. Monthly Center meetings provide a forum to acknowledge contributions by reading puzzle pieces and drawing one to win a prize

  • Matt Reese, PhD; LEND Director; KS - Center for Child Health and Development
  • Louann Rinner, MSED; LEND Training Director, KS - Center for Child Health and Development
  • Matt Braun, MA; LEND Training Coordinator, KS - Center for Child Health and Development
  • Norb Belz, MHSA, RHIA; LEND Faculty, KS - Center for Child Health and Development

Using Electronic Portfolios to Showcase MCH/LEND Trainee Leadership Skills

This poster will describe the development and use of electronic leadership portfolios by MCH/LEND trainees. It will include the purpose of creating the portfolios, the portfolio template, how current and former trainees have used their portfolios and how they have benefited from them.

  • Lori Risk, MOT; Assistant Director, WV - Center for Excellence in Disabilities (UCEDD)

Contributions to community change for people with disability made by graduates of The Leadership in Disability Studies Program

This poster session features the contributions of graduates of the Institute for Human Development's Leadership in Disability Studies certificate program. Graduates describe how participation in the disability studies program influenced their career and how they are currently making contributions which have positive impact on the lives of people with disability.

  • Terri Glenn, Trainee; MO - UMKC Institute for Human Development (UCEDD)
  • Michael McCarthy, MAEd; MO - UMKC Institute for Human Development (UCEDD)

 


Low Incidence Street

Communication/Educational Programs for Children with Angelman Syndrome in Inclusive Classrooms: A Look at Best Practices

This presentation reports the development and results of a survey of evidence-based AAC best practices for students with significant disabilities, all of which were validated by an expert panel and then socially validated by the parents of 36 children with Angelman Syndrome. Results were compared for students in self-contained and partial-full inclusion programs. Factors fostering and impeding best practices are identified and discussed.

  • Tibbany Black, MS; Graduate Student, NH - New Hampshire LEND Program

An Ethnographic Study of Professional Care Approaches and Roles When Dealing with Severe and Profound Disorders

This project focuses on the relationships and roles of professionals as they strive to work in interdisciplinary teams. The nature and definition of interdiciplinary service and collaboration is explored.

  • Gaetano Lotrecchiano, PhD; Assistant Professor of Pediatrics; DC - Children's National Medical Center
  • Sheela Stuart, PhD, DC - Children's National Medical Center

Current treatment practices of pediatric oncologists management of depression and anxiety disorders in 9 institutions across the United States

While many children/adolescents receive treatment with antidepressant medication, specifically selective serotonin reuptake inhibitors known as SSRI's, this practice has been questioned in the pediatric population due to lack of data on safety and efficacy issues. Although it seems feasible that children receiving treatment for cancer experience more depression, especially during intensive phases of care, numerous studies examining this find a low prevalence of depression in comparison to the general population.

  • Robert Noll, PhD; Director, PA - The UCLID Center
  • Lalymar Fernandez, MS, PA - The UCLID Center

Parental Report on Coordination of Care with the Education and Medical System of Children with Cornelia de Lange Syndrome

The Cornelia de Lange Syndrome (CdLS) population has different educational and medical needs. Results from a research study to increase the amount of knowledge on children affected by CdLS, their development, and their experience with the educational and medical system will be presented.

  • Mary Beth Bruder, PhD; Professor & Director, CT - Connecticut UCEDD
  • Cristina Mogro-Wilson, PhD, CT - Connecticut UCEDD

What is Happening at the National Spina Bifida Program?

This poster will outline the National Spina Bifida Program as a model which could be replicated with other conditions of childhood, or disability in general, which result in life long challenges to health, quality of life, and participation.

  • Ann Alriksson-Schmidt, PhD, MSPH; AUCD CDC Fellow, CDC/NCBDDD
  • Judy Thibadeau, RN, MN
  • Caresse Campbell, MPH
  • Mark Swanson, MD, MPH
  • Vince Campbell, PhD

 


Neighborhood Entrance

AUCD

AUCD is a network of interdisciplinary centers advancing policy and practice for and with individuals with developmental and other disabilities, their families, and communities.

 


PAR Parkway

My Voice, My Choice

My Voice, My choice is a Youth Information and Training Center funded by the Administration on Developmental Disabilities created to train and mentor youth and emerging leaders in self advocacy, employment, and educational opportunities.

  • Nathan Say, BA; Project Coordinator; HI - Center on Disability Studies
  • Jean Johnson, DrPH; HI - Center on Disability Studies

PicPlan - A Journey in Research & Development

This poster session describes the journey a research associate takes in bringing a project from design to full development. Content describes how to find and work with a for-profit business as a UCEDD and how to navigate the landscape of business models, intellectual property rights and grant development

  • Cathy Haarstad; Consumer Affairs, ND - North Dakota Center for Persons with Disabilities

Norwegian and Midwestern US Citizens' Perspectives on Institutional and Community Living

As part of an international collaboration, participatory research has been conducted with citizens in rural Norwegian communities and in rural North Dakota communities. Individual and focus group perceptions of various living environments are described and compared with the Norwegian and US disability service systems.

  • Brent Askvig, PhD; Associate Director, ND - North Dakota Center for Persons with Disabilities
  • Jan Meyer, Harstad University College

Participatory Research in Obesity Prevention: The Disability Community Partners with the Academy

We present a new participatory model funded by the NIH Partners in Research program, to test methods to address practical questions in development of true academic/disability community partnerships. We use a wellness/prevention framework to work through issues of research design, methodology, and ownership of protocol development and analysis of results.

  • Mary Segal, PhD; Director, Research and Evaluaton, PA - Institute on Disabilities/UCEDD
  • Jeffrey Cooper, MBA, United Cerebral Palsy of Central Pennsylvania
  • Bre Metoxen, MS, United Cerebral Palsy of Central Pannsylvania

Disability Culture: Global & Diverse

A multi-medial exploration of historical contexts of disability culture, from US & international perspectives.

View Poster > [pdf]

  • Steven Brown, PhD; Assistant Professor, HI - Center on Disability Studies, University of Hawaii

Using a Participatory Action Research Model to Develop Program Evaluation Measures

Our LEND Program Evaluation Committee has used participatory research to design three measures to evaluate fellows? perception of their knowledge/skills related to the core competency domains of LEND. Analyses from six cohorts of fellows (n=90) will be presented to illustrate the validity and usefulness of these new measures.

  • Stephen Leff, PhD; Psychologist, PA - Children's Seashore House of The Children's Hospital of Philadelphia
  • Michael Cassano, MA, LEND Fellow, PA - Children's Seashore House of The Children's Hospital of Philadelphia

Get Better Results for Family Involvement: Evidence-Based Practices

This presentation provides an overview of the Parent Involvement Indicator (B-8) of the state performance plan required by OSEP and IDEA. Participants will become familiar with concrete strategies and interventions that will improve their performance on this Indicator, and recognize methods to evaluate the effectiveness of these techniques.

  • Lizette Flammer-Rivera, MEd, Technical Assistance Consultant, LA - Louisiana UCEDDERS
  • Holly Paczak, EdS, Louisiana State University Human Development Center
  • Lauren Giovingo, Louisiana State University Human Development Center

Parent Perceptions and Needs - A Telephone Survey of 300 Parents Actively Participating in Mississippi's Title V CYSHCN Program

The Institute for Disability Studies - University of Southern Mississippi, received 2006 HRSA funding to implement a Family to Family Health Education and Information Center (F2FC). This session will present data collected through telephone survey of 300 parents receiving Title V services and contrast findings with 2005-2006 National Survey of CYSHCN.

  • Alma Ellis, MS - Institute for Disability Studies: Mississippi's UCEDD

 


Teaching Way

Mississippi's Postsecondary Education Training and Technical Assistance Initiative: Yesterday, Today, and Tomorrow

This poster session will present a description of how Mississippi's UCEDD has provided over 20 years of training and technical assistance to administrators, faculty, staff, and students at the state's universities and community colleges. Sample surveys/results, materials, and products will be displayed.

  • Charles Hughes; Project Coordinator; MS - Institute for Disability Studies: Mississippi's UCEDD

Should Part C Early Intervention Services be extended to children ages 3-5?

A statewide survey in Hawai?i asked for family assessment of the transition process from IDEA Part C early intervention services to Part B preschool special education services. The results of this study provide a basis for assessing transition policies serving children ages 3 to 5 years.

  • Jean Johnson, DPH; Doctor, HI - Center on Disability Studies
  • Beppie Shapiro, PhD, HI - Center on Disability Studies
  • Lily Matsubara, MS, HI - Center on Disability Studies

Is Inclusion Still Relevant?: Changes in Discourse and Direction Since NCLB

Since 2004 students with disabilities have participated in schoolwide accountability measures, but anecdotal evidence seems to indicate that they are, once again, being excluded from the regular education classroom because regular education teachers don't feel like they can teach students with disabilities the requisite content they need to perform satisfactorily on high stakes assessments. Thus, although advocates achieved the goal of inclusion in accountability measures it seems that they have, unwittingly, compromised the goal of inclusion for students with disabilities in the regular education classroom and curriculum.

  • Matthew Wappett, PhD; Training Director, ID - Center on Disabilities and Human Development
  • Jen Magelky-Seiler, MS; ID - Center on Disabilities and Human Development

Student Assistance Response [STAR] team- an individualized and consultative process approach to facilitating inclusion in K-12 envronments

STAR was designed and implemented to increase the time students with significant disabilities spent in general education settings. One hundred fifty-five students, their families, and school personnel participated in this collaborative consultation process with action plans for implementation. Lessons learned and results of outcomes by time, type of disability, and referral will be presented.

  • Bonnie Lynch, EdD; Associate Director, CT - Connecticut UCEDD

The Missouri Integrated Model: A Framework for Teaching ALL Students

This session will introduce the Missouri Integrated Model(MIM) as a framework for supporting the academic success of students with and without disabilities. The MIM is a framework that integrates the evidence-based practices and qualities of effective schools, responsive intervention, and successful systems change into a process for supporting all learners.

  • Ronda Jenson, PhD; Director of Research, MO - UMKC Institute for Human Development (UCEDD)

 


Transition Hill

Transition Assessment and Youth with Intellectual and Developmental Disabilities: Educator, Parent, and Youth Perspectives

Meaningful assessment is considered central to effective transition planning efforts. We will present findings from a research study utilizing the Transition Planning Inventory and AIR Self-Determination Scale with youth with intellectual and developmental disabilities. Similarities and differences in the perceptions of teachers, parents, and youth themselves will be shared, along with recommendations for incorporating assessment findings into transition plans.

  • Erik Carter, PhD; Assistant Professor, WI - Waisman Center on Mental Retardation and Human Development
  • Beth Swedeen, UCEDD at UW-Madison (parent), WI - Waisman Center on Mental Retardation and Human Development

Web-based Resources for Inclusive Career and Technical Education Programs that support Transition to Employment

Delaware' Center for Disabilities Studies has created a website which has compiled resources for students, teachers, and families regarding career exploration, strategies for creating inclusive career and technical education courses, and the transition of students with special needs into post-secondary opportunities and to work. This website will be demonstrated.

  • Deborah Amsden, MS; Project Leader, DE - Center for Disabilities Studies
  • Debby Boyer, MA, DE - Center for Disabilities Studies
  • Megan Pell, MA, DE - Center for Disabilities Studies

The experience of university students with disabilities: issues related to the transition and adaptation process

Transitions from high school to university represent a personal and academic threat to students. This transition requires personal and organizational adjustments to deal with the changes. This project aims to examine the personal and organizational needs related to the transition process of university students with disabilities.

  • Annie Alonso, PsyD, MSW; Director, PR - Puerto Rico University Center for Excellence on Developmental Disabilities/IDD
  • Mario Rodríguez, PhD; Graduate School of Public Health UPR
  • Ilia Torres, MS; PR - Puerto Rico University Center for Excellence on Developmental Disabilities/IDD
  • Aimar Cajigas, MS; PR - Puerto Rico University Center for Excellence on Developmental Disabilities/IDD
  • Maria Reyes, MSW; PR - Puerto Rico University Center for Excellence on Developmental Disabilities/IDD

One Community's Commitment to Improving Adolescent Transition

This poster focuses on how our UCEDD, School of Education, and a local foundation, launched the Institute for Innovative Transition. Attendees will discover the unique way in which the Institute was developed and the programs that are offered to address transition for youth with developmental disabilities and their families.

  • Martha Mock, PhD; Assistant Professor, NY - Strong Center for Developmental Disabilities
  • Susan Hetherington, MS, NY - Strong Center for Developmental Disabilities

Arthrogyposis Multiplex Congenita: Occupational and Physical Therapy Making Changes from Limited Movement to Functional Participation

Children affected by arthrogryposis show delays in achieving developmental milestones of rolling, crawling, sitting, walking, prehension, and reaching. These limitations affect performance of activities of daily living including feeding, dressing, and development of play skills. Physical therapy (PT) and occupational therapy (OT) interventions can have an immense impact on age appropriate function.

  • Timothy Conly. MSOT; Rose F. Kennedy Center; Bronx, NY
  • Carol Terilli, DPT; Rose F. Kennedy Center; Bronx, NY

 


Visual Vista

Responding to Diversity: A Technological Pathway to Inclusive Health Promotion

In concert with the conference theme, "Paving the Way,"the purpose of this poster is to illustrate and critically evaluate an innovative web-based portal designed to expand full access to health education, knowledge, and communication globally, with particular attention to the elimination of literacy and access barriers.

  • Stephen Gilson, PhD; Professor, ME - University Center for Excellence in Developmental Disabilities Education
  • Elizabeth DePoy, PhD; ME - University Center for Excellence in Developmental Disabilities Education
  • Robert Kitchin, MSW; ME - University Center for Excellence in Developmental Disabilities Education

ArtReach: An Inclusive Program Providing the Opportunity for Self-Expression and Communication Through the Visual Arts

ArtReach, a unique collaborative effort offers a series of art-making workshops for children with and without disabilities. Faculty and LEND trainees from KU?s Center for Child Health and Development prepared Kemper Museum volunteers on how to support people with disabilities and were an integral support at the ArtReach workshops.

  • Matthew Braun, MA, SLP; LEND Training Coordinator, KS - Kansas University Center on Developmental Disabilities
  • Phyllis Young, MSEd, Family Faculty, KS - Kansas University Center on Developmental Disabilities
  • Louann Rinner, MSEd, OT; LEND Training Director, KS - Kansas University Center on Developmental Disabilities

Reactions of adults with disabilities to the Nintendo® Wii gaming system.

This presentation discusses the reactions and challenges faced by six adults with varying disabilities as they played Wii games.

  • Linda Madsen; Research Associate, ND - North Dakota Center for Persons with Disabilities

Implementing Innovative Uses of Assistive Technologies in the Classroom

During the 2007-2008 school year, the West Virginia Assistive Technology System awarded mini-grants to West Virginia public schools, educators and Regional Education Service Agency (RESA) staff to implement projects using assistive technology to improve outcomes for students with IEPs or 504 plans. Grants were awarded for new projects using assistive technology to: support inclusion in educational environments, improve social and other recreational outcomes, and support students in transitions through school.

  • Jamie Hayhurst-Marshall; Assistant Program Manager, WV - Center for Excellence in Disabilities (UCEDD)

 

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