AUCD Network Members and Central Office Staff Present at Spina Bifida Association Conference
July 8, 2007
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Members of the AUCD Network along with Central Office staff Sue Lin (Project Director, AUCD-NCBDDD Cooperative Agreement) and David Morrissey (2007 AUCD Policy Fellow) attended the Spina Bifida Association (SBA) 34th Annual Conference, June 24-27, 2007, in Louisville, KY. The conference brought together youth and adults with spina bifida (SB), family members, researchers, clinicians, and professionals to learn and share knowledge in topical areas of medicine, education, service and volunteerism, employment, transition, independent living, and health promotion. Research Topics of Interest (RTOI) Researchers, who were also members of the SBA's Professional Advisory Committee (PAC), informed conference attendees on groundbreaking new projects to reduce variability of clinical care and create patient registry to foster research and improve medical approaches. Among the topics presented throughout the conference by the AUCD Network were the following.
- A Call to Service: Engaging and Mobilizing Youth and Adults with Spina Bifida in Volunteerism - Paula Sotnik, Lanny Taulbee, David Morrissey, and Sue Lin
- Multidisciplinary Approach to Transition for Adolescents with Spina Bifida and their families - Thomas Webb, MD, MSc
- Plenary Session: Challenges of Spina Bifida Care in the Next 20 Years - Panelist included Timothy Brei, MD and Thomas Webb, MD, MSc
- The Need for Transition Support for Youth with Spina Bifida - Andrea Hart, PhD and David Morrissey, MPS
- Maximizing Your Health - Thomas Webb, MD, MSc
- Getting Ready with Assistive Technology: For School, Job, and Living Independently - Sue Lin, MS
- Using Youthhood.org as Transition Planning Tool - Julia Washenberger
