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  5. November 2003

November 2003

November 9, 2003

LEND Directors Meeting

 

November 9, 2003, 1:30 - 5:30 pm
Hyatt Regency Hotel, Bethesda, MD
Cabinet/Judiciary Suite

 

  • Welcome & Introductions: Bob Bacon & George Jesien
  • MCHB Q&A: Ann Drum & Denise Sofka
  • Leadership Measurement Effort: Virginia Reed
    • Overview
    • Focus Groups
    • Proposed Next Steps
  • NIRS Update: George Jesien & Lisa Lister
    • Current Data Reports
    • Trainee Follow-up Survey
    • Upcoming Reports
  • Trainee Activities-Lisa Lister
    • Introduction of Virtual Trainee - Daniel Davies
    • Trainee Reception/Job Fair
    • Trainee Sessions
    • Listserv and Website
  • Champions for Progress Center - Merle McPherson & Richard Roberts
    • Overview and upcoming activities
  • MCHB efforts in Autism
  • Discussion of Possible Future Activities:
    • Genetics Discipline - Survey
    • Involving Discipline of Health Administration, Social Work?
    • Collaboration with LEAHs & PPCs
    • Newsletter feedback and ideas for next issue
    • Needs Assessment
  • Upcoming Events-George Jesien
    • At Conference: Coaching Workshop, MCHB Federal Panel, MCHB Breakout session - Performance Measures & other
    • AUCD- CDC, CMS, SSA Opportunities
    • AMCHP - ideas for meeting
    • Governmental Affairs Conference
    • Other Ideas?

 

 

Notes:
  • Interest was expressed in the possibility of holding a half-day LEND Directors meeting/discussion during the Feb 28-March 4, 2004 AMCHP Conference. Potential topics suggested:
    • Transitions
    • Cultural diversity
    • Evidence-based practice
    • Health literacy (on a world level)
    • Family
    • Public health and disability
    • Syndromes as an individual grows/ages
  • Volunteers to plan this half-day meeting:
  1. Rita Hohlstein (WI)
  2. Bruce Shapiro (MD)
  3. Steve Sulkes (NY)
  4. John McLaughlin (WA) (unable to attend conference but will help plan)
  5. Corry Robinson (CO)
  6. Marion Taylor-Baer (CA)
  7. Cate McClain (NM)
  8. Ken Jaros (PA)
  • What (if any) involvement do LEND programs have with Genetic Counseling programs?  Should we include more genetic counseling programs into LEND?  How can we expand genetic counseling training through our current LEND programs? Interested volunteers:
    1. Rita Hohlstein (WI)
    2. Danny Armstrong (FL)
    3. Karen Edwards (NY)
    4. Jim Coplan (PA)
    5. Joann Bodurtha (VA)
    6. John McLaughlin (WA)