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AUCDigest

October 24, 2006 • Volume 6, Number 66

 

Forging New Partnerships for New Challenges Through Research, Education and Service

October 29-November 1, 2006


RESOURCES

Network Related Resources

Obesity and Obesity Related Secondary Conditions in Youth with Disabilities.  Through the Department/Institute on Disability and Human Development's (IL UCEDD) Center on Health Promotion for Persons with Disabilities, the University of Illinois Chicago will develop a Disability Rehabilitation Research Program (DRRP) on Reducing Obesity and Obesity-Related Secondary Conditions in Adolescents with Disabilities.  For more information on the project, contact Dr. Jim Rimmer.

Maine Center for Community Inclusion and Disability Studies (UCEDD) Literacy Tipsheet.  CCIDS has developed a new Tipsheet, Word Play All Day-Early Literacy in Action. These latest materials join twelve other early childhood education tipsheets and resource pages, covering developmentally appropriate practice, inclusive early childhood education, laws that support early childhood education, universal design in early childhood care and education, and more.

Vanderbilt Kennedy Center (TN UCEDD) Disabilities and Arts Program.  The UCEDD sponsors art exhibits by people with disabilities in order to demonstrate the diverse talents of individuals with disabilities.  Each year the Center hosts four exhibits which typically are organized in partnership with local, state, national, or international disability organizations.  Art is exhibited at community sites (e.g., Tennessee Performing Arts Center, Nashville Public Library) as well as at the UCEDD.  The Creative Expressions XII (October -January) exhibit features artwork in a variety of mediums by artists with a wide range of abilities and ages.  It is co-sponsored with the Nashville Mayor's Advisory Committee for People with Disabilities. For information on the UCEDD's Recreation and Arts program, contact Gretchen Herbert at (615) 322-8147.

CaCSHCNews Brought to You by University of Southern California UCEDD.   CaCSHCNews is produced quarterly by a consortium whose members work toward the common goal of improving systems of care for children with special health care needs (CSHCN) in California.  To download your copy of the current issue, please visit USC UCEDD Website.  To receive a copy via email and for subscription, send an email to [email protected] with CaCSHCNews in the subject line.  For more information about this newsletter and associated projects, please contact Kathryn Smith, RN, MN.  If you would like to contribute news items, please contact Nikki Garro.

Cultural Competency: Moving the Agenda Forward.  At the fifth National Conference on Quality Health Care for Culturally Diverse Populations, held in Seattle from October 17-20, the Commonwealth Fund released a series of reports exploring the role of cultural competency in improving quality and outcomes for patients, reducing disparities, and helping patients become more active and engaged in their care.  Some of the authors are from the National Center for Cultural Competence, in association with the Georgetown University Center for Child & Human Development (DC UCEDD).  The reports include:

New Products and Resources from Wyoming Institute for Disabilities (UCEDD)'s Victims of Crime with Disabilities Resource Guide. 

  • Coming soon: "Victims with Disabilities: The Forensic Interview" Video and Training Guide Package.  This resource will be available for only the cost of shipping from the Office of Victims of Crime, U.S. Department of Justice. Developed under the direction of Dr. Nora Baladerian by the CAN DO (Child Abuse & Neglect Disability Outreach) project, the video provides critical guidelines and recommendations when interviewing victims and witnesses of crime. To receive updates on the final release of the resource, please join the CAN DO listserv. Additionally, the book upon which the package was based is available through the CAN DO office: 310-754-2388.
  • Emergency Responders and the Deaf & Hard of Hearing Community Course.  The Community Emergency Preparedness Information Network (CEPIN) recently announced that the "Emergency Responders and the Deaf and Hard of Hearing Community: Taking the First Steps to Disaster Preparedness" curriculum was approved by the Department of Homeland Security's Office of Grants and Training.  The training is designed to encourage networking, preparation and communication between emergency responders and deaf and hard of hearing people prior to disaster situations. 
  • Article Explores Issues Related to Studying Bullying of Deaf Children.  U.S. schools are currently addressing bullying and its effects on children.  Little is known about bullying and its impact on deaf children.  Measures to describe and quantify bullying factors in this population should be developed and validated that address characteristics of deaf victims and bullies, various types of school settings deaf children attend, bully dynamics that may be unique to this population and its peers, and other environmental factors.  This discussion highlights issues and precautions concerning future directions for studying bullying with deaf children.  Full Citation:  Weiner, Mary T. and Margery Miller. "Deaf Children and Bullying: Directions for Future Research." American Annals of the Deaf, 151 (2006): 61-70.
  • Cases from the Headlines.  To bear witness and most importantly to bring attention to the serious issue of crimes against people with disabilities, the Resource Guide has begun developing an online collection of news stories involving victims with disabilities.  Selected from newspaper and news channel web sites, articles have been abstracted and posted in the Online Discussion section of the Resource Guide website.
  • Recent Products Added
    • Child Abuse Victims with Disabilities - Instructor, Participants, & PowerPoint
    • Internet-based Training on Preventing Abuse and Neglect to People with Developmental Disabilities
    • "Two Paths- One Journey" DVSA Disability Manual
    • Partner Abuse in Physically Disabled Women: A Proposed Model for Understanding Intimate Partner Violence
    • Prevalence of Maltreatment of People with Intellectual Disabilities: A Review of Recently Published Research

Resources from the Institute on Community Integration (MN UCEDD)

Resources:  National Center on Physical Activity and Disability (NCPAD) is associated with the Institute on Disability and Human Development (IL UCEDD)

  • Spina Bifida Video/DVD.  Enjoy viewing our monthly video clip on exercise for teens with spina bifida by clicking on the hyperlinked text.  Video clips are free and require Real Player for viewing. You may also purchase the "Teens on the Move" exercise video or DVD for teens with spina bifida by going to the NCPAD Webshop or calling 800-900-8086.

Research to Know

NIH Launches National Consortium to Transform Clinical Research.  A new consortium, funded through Clinical and Translational Science Awards (CTSAs), will transform how clinical and translational research is conducted, ultimately enabling researchers to provide new treatments more efficiently and quickly to patients. Beginning with 12 academic health centers located throughout the nation, the consortium will ultimately link 60 institutions together to energize the discipline of clinical and translational science. An additional 52 Academic Health Centers (AHC) are receiving planning grants to help them prepare applications to join the consortium.

Gene Linked to Autism in Families with More Than One Affected Child.  A version of a gene has been linked to autism in families that have more than one child with the disorder.  Inheriting two copies of this version more than doubled a child's risk of developing an autism spectrum disorder, scientists supported by the NIH's National Institute of Mental Health (NIMH) National Institute on Child Health and Human Development (NICHD) have discovered.  People with autism spectrum disorders were more likely than others to have inherited this version, which cuts gene expression by half, likely impairing development of parts of the brain implicated in the disorder, report Drs. Daniel Campbell and Pat Levitt of the Vanderbilt Kennedy Center (TN UCEDD).

Preschoolers with ADHD Improve with Low Doses of Medication.  The first long-term, large-scale study designed to determine the safety and effectiveness of treating preschoolers who have attention deficit/hyperactivity disorder (ADHD) with methylphenidate (Ritalin) has found that overall, low doses of this medication are effective and safe. However, the study found that children this age are more sensitive than older children to the medication's side effects and therefore should be closely monitored. The 70-week, six-site study was funded by the NIH's National Institute of Mental Health (NIMH) and was described in several articles in the November 2006 issue of the Journal of the American Academy of Child and Adolescent Psychiatry.

Disability, Psychosocial, and Demographic Characteristics of Abused Women with Physical Disabilities.  A study examined experiences of physical, sexual, and disability-related abuse within the past year and its associations with demographic, disability, and psychosocial characteristics.  Logistic regression analyses identified 27% of the variance and indicated that women with disabilities who were younger, more educated, less mobile, more socially isolated, and who had higher levels of depression may have a higher likelihood of having experienced abuse in the past year.  This model correctly identified 84% of the abused women with disabilities.  Full Citation: Nosek, Maragaret, et al.  "Disability, Psychosocial, and Demographic Characteristics of Abused Women with Physical Disabilities".  Violence Against Women, 12 (2006): 838 - 850. 

Other Resources

A Disability System for the 21st Century - September 2006 (Report).  After 3 years of intensive study, the Social Security Advisory Board has issued a report outlining its vision of a disability system for the 21st century that is in alignment with the Americans With Disabilities Act, which proclaimed, "the Nation's proper goals regarding individuals with disabilities are to assure equality of opportunity, full participation, independent living, and economic self-sufficiency for such individuals..."

CMS Home & Community Based Services (HCBS) Promising Practices Reports.  These reports highlight promising practices in home and community-based services offered by states to enable persons of any age who have a long-term illness or disability to live in the most integrated community setting appropriate to their individual support requirements and preferences.

News From NIDRR Newsletter.  News From NIDRR will be distributed four times a year to consumer and business organizations, researchers, practitioners, educators and individuals who have an interest in disability and rehabilitation research and services as well as disability policy. Subscribe at [email protected]. 

Job Accommodation Network (JAN) Practical Accommodation and Compliance Series Guides

Reports, Guides, Briefs, & Handbooks


Various Resources

New Websites

Recognition and Response.  The National Center for Learning Disabilities, in collaboration with the Frank Porter Graham Child Development Institute, the National Association for the Education of Young Children and other key partners, recently launched this new website that focuses on a research-based approach to helping teachers and parents respond to signs of learning difficulty in young children as early as ages 3 or 4, before they experience school failure.

Center for Implementing Technology in Education (CITEd).  Bring educational technology into your classroom, school, district, and state.  CITEd's goal is to foster the collaboration of assistive technology and instructional technology services at the state and local level to enhance learning for all students, particularly those with disabilities.

Universal Design for Learning (UDL) Lesson Builder.  The UDL Lesson Builder from CAST provides educators with models and tools to create and adapt lessons that increase access and participation in the general education curriculum for all students.

deafCensus.org.   This site is intended to change the way deaf and hard of hearing related organizations operate by providing them with a more efficient and productive way to improve their visibility and expand their marketability.  The site offers one centralized stop on the Internet containing a vast collection of carefully edited and compiled national database directories of organizations and their profiles, and an exciting event calendar displaying national or regional events.

Assistive Tech Wiki. Welcome to The ATWiki, an encyclopedia on assistive technology.

Challenged Athletes Foundation (CAF).  It is the mission of CAF to provide opportunities and support to people with physical disabilities so they can pursue active lifestyles through physical fitness and competitive athletics.

FedSpending.org.   This search tool was built by the advocacy group, OMB Watch, and it includes many of the functionalities that Congress ordered the federal government to develop under the Federal Funding Accountability and Transparency Act, which President Bush signed into law last month.

 

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