ITAC: Developmental Disabilities News
HHS Releases Blueprint to Advance Culturally and Linguistically Appropriate Services in Health and Health Care
The enhanced National CLAS standards are a blueprint to help organizations improve health care quality in serving our nation's diverse communities. They are grounded in a broad definition of culture, in which health is recognized as being influenced by factors ranging from race and ethnicity to language, spirituality, disability status, sexual orientation, gender identity, and geography.
Applications currently being accepted through June 30
Due to the announced retirement of the current Executive Director, George Jesien, PhD, later this year, the Association of University Centers on Disabilities (AUCD), a national not-for-profit organization located in Silver Spring, MD, seeks an executive director to lead and guide activities that fulfill its mission to advance policies and practices that improve the health, education, social, and economic well-being of people with developmental and other disabilities, their families, and their communities. The Association supports its member university-based centers and programs in interdisciplinary research, education, health, and service activities. The next Executive Director will inherit an organization that is respected by peers, is financially sound, has a highly motivated and engaged staff, and has a solid governing Board.
2012-2013 AUCD Trainees were asked, "What are you most passionate about?" The responses were wide-ranging and truly reflect the enthusiasm of Trainees to make a difference in not only their disciplines or areas of interest, but in many issues that impact the disability community as a whole. Ambition, dedication, and passion shine through these disability leaders of tomorrow.
As an ongoing activity of the 2011 Maryland MCHB Diversity Learning Collaborative, the Kennedy Krieger Institute LEND program co-sponsored a day-long conference and faculty workshop on December 11, Room to Grow: Journey to Cultural Competency with the Maryland Center for Developmental Disabilities and the Hopkins Center for Health Disparities Solutions.
Applications open through Feb 1
This year-long leadership development program is designed to significantly expand self-awareness and quickly build practical skills for effectively leading, managing people, and building partnerships, to advocate for and create the MCH systems of tomorrow. This unique program improves leadership capacity, teaching tools for creating the kind of culture that engages and motivates others.
This video, posted by TED, describes the unlimited potential of children who are deaf or hard of hearing. The talk is given by Karl White, who is the director of the National Center for Hearing Assessment and Management, (NCHAM). NCHAM serves as the National Resource Center for the implementation and improvement of EHDI Systems in the United States. NCHAM's goal is to ensure that all infants and toddlers with hearing loss are identified as early as possible and provided with timely and appropriate audiological, educational, and medical services.
National Center for Prenatal and Postnatal Down Syndrome Resources Launched by University of Kentucky's Human Development Institute
The new National Center at DownSyndromeDiagnosis.org provides a portal for medical professionals and new and expectant parents to find out about several free and well-established resources about Down Syndrome.
Evaluation of a Parent Led Curriculum in Developmental Disabilities for Pediatric and Medicine/Pediatric Residents
Families of children with special health care needs want to partner with their physicians to provide family-centered care and a medical home for their children. A parent group independently developed a parent led curriculum to assist in the training of residents for this purpose. The objective of this study from the Boling Center LEND/UCEDD was to evaluate pediatric residents? satisfaction with and perceived relevance of this parent-led curriculum demonstrating the effects a disability has on the child and family.
Early Bird Deadline: October 14
Reserve your space now for AUCD 2012. This highly anticipated conference is a unique forum to share innovations and promising practices across a broad array of topics that ultimately impact the quality life for people with disabilities and their families in their communities.
During the last week of July 2012, 18 leaders from several MCHB funded training programs (including LENDs, LEAHs, PPCs, Nutrition and the Pipeline programs) engaged in the first stage of a learning collaborative to build interprofessional leadership skills for MCH trainees in their programs. The overall goal of this learning collaborative is for participants to incorporate and evaluate this intentional type of leadership training as a component of their MCHB-funded leadership training programs.
Registration to attend the forum is now live. To attend in person, follow the instructions to secure one of the only 500 seats available on a first-come, first-serve basis. To attend via live free webcast, follow separate registration instructions.
Timothy Followell, DMD, MS, is the new program director for the dental program at The Ohio State University's Nisonger Center.
"What's Disability to Me?" New Disability-Themed Video Story Produced by The Centers for Disease Control and Prevention
Hear the personal story of Mr. Bernard Baker, a person with disabilities who fully participates in life through his abilities. Mr. Baker provides a first-person account of how people with disabilities can live happy, healthy lives and contribute to society in meaningful ways. This story is part of a series of short films in support of WHO's World Report on Disability.
Stephanie is a post-doctoral fellow in Psychology and a second-year LEND trainee at Cincinnati Children's Hospital Medical Center.
Dr. Robert Marion and Sheryl Dicker of the Rose F. Kennedy Center (NY UCEDD) Publish Article on ASD and the Juvenile System
Robert Marion, PhD, director of the Rose F. Kennedy UCEDD in the Bronx, NY, and his colleague, Sheryl Dicker, JD, a longstanding advocate for children with disabilities, authored the "Judicial Spectrum Primer: What Judges Need to Know About Children with Autism Spectrum Disorders." This article was published in the National Council of Juvenile and Family Court Judge's (NCJFCJ) Juvenile & Family Court Journal.