"Transition to Adulthood" is a complex and ongoing process that starts as soon as a child is born and continues as the child becomes an adolescent, to early adult life and then through the stages of adulthood. Transition to Adulthood are guides and will assist the individual with ASD and his or her team in reviewing the issues of adulthood related to employment, postsecondary education and adult living.
Resources found in this online library include a health equity quiz, case studies from multiple disciplines, a slide and webinar library and links to additional training materials that focus on using the life course model.
The MCH Navigator is a learning portal that links individuals to existing open-access training, organized in areas consistent with nationally endorsed public health and MCH leadership competencies.
Autism Speaks, North America's largest autism science and advocacy organization released the Visual Supports and Autism Spectrum Disorder tool kit providing valuable guidance to parents, families and providers about how to utilize pictures, photographs and other visual supports to improve communication for children, adolescents and adults who struggle with understanding or using language.
Collaboration and Action to Improve Child Health Systems: Toolkit for State Leaders provides an approach to mapping the child health system in a state so state leaders can better envision the flow of services and funding that support access to care for children and families and identify opportunities for improvement. The toolkit, published by the Health Resources and Services Administration's Maternal and Child Health Bureau, contains system diagrams and discussion questions on the following topics: the Title V agency role in ensuring child health; Early and Periodic Screening, Diagnosis, and Treatment Program mandates on collaboration and outreach to families; medical and dental homes; EPSDT screening visits; linkages, case management, and care coordination; care for children with special needs; Medicaid managed care; and public-private and interagency collaboration. Sample scenarios are provided to guide discussion, as well as tips on designing and facilitating a state leadership workshop.
Updated Chartbook Addresses Coverage and Financing of Care for Children and Youth with Special Health Care Needs
The Catalyst Center State-at-a-Glance Chartbook on Coverage and Financing for Children and Youth with Special Health Care Needs provides demographic, economic, health care services, and coverage information for CYSHCN residing in states, the District of Columbia, and Puerto Rico. The updated chartbook, produced by the Catalyst Center with support from the Health Resources and Services Administration's Maternal and Child Health Bureau, combines data from more than 15 sources, including the National Survey of Children with Special Health Care Needs, the National Survey of Children's Health, the U.S. Census Bureau, the U.S. Department of Education, the Kaiser Family Foundation, and the American Board of Medical Specialties. The chartbook also presents several new indicators, including states' progress toward achieving the six core performance outcomes for CYSHCN. Users can get data by state or compare data from two states and the nation in a printable table. Tips for interpreting and using the data accurately and information on data sources and methods are included.
A Radio Novela
The Waisman Center's Family Support 360 project produced a radio novela designed to increase awareness and understanding about people with disabilities in the Latino community. The novela includes the story scripts in both English and Spanish and a compact disc of the story performed in Spanish.
by Dr. Peter van Dyck
Before retiring as Associate Administrator for Maternal and Child Health at the Health Resources and Services Administration on July 29, 2011, Dr. Peter van Dyck offered three gifts to the MCH Community: three videotaped presentations that we call the "Legacy of a Leader" series. In each presentation he reflects on his life and his experiences as an MCH leader.
"Supporting the Health Care Transition from Adolescence to Adulthood in the Medical Home," a clinical report by the AAP, the American Academy of Family Physicians and the American College of Physicians, appears in the July issue of Pediatrics. An algorithm walks physicians through the transition process for all youth in their practice, including those with chronic conditions, to the care of an adult medical home.
The "Autism Case Training: A Developmental-Behavioral Pediatrics Curriculum" is designed to educate future healthcare providers on fundamental components of identifying, diagnosing, and managing autism spectrum disorders through real life scenarios.
This fact sheet from the Centers for Medicare and Medicaid Division of Community Systems Transformation provides an overview of Money Follows the Person Rebalancing Demonstration Project. The MFP Rebalancing Demonstration Program is designed to assist States with balancing their long-term care systems and help Medicaid enrollees transition from institutions to the community. The MFP Demonstration Program reflects a growing consensus that long-term supports must be transformed from being institutionally based and provider-driven to "person-centered" consumer directed and community-based.
A new resource page has been added to the AHRQ Health Care Innovations Exchange: Honing Cultural and Linguistic Competence. This page features innovative programs and quality tools for improving cultural and linguistic competence as well as reducing health care disparities for vulnerable populations, including racial and ethnic minorities.
This chapter, in the book entitled Evidence-Based Practices and Treatment for Children with Autism, considers treatments that aim to enhance the ability of children with ASD to communicate and use language. Communication is vital for learning, and establishing connections with others.
The Autism Internet Modules were developed with one aim in mind: to make comprehensive, up-to-date, and usable information on autism accessible and applicable to educators, other professionals, and families who support individuals with autism spectrum disorders (ASD). Written by experts from across the U.S., all online modules are free, and are designed to promote understanding of, respect for, and equality of persons with ASD.
The National Professional Development Center on Autism Spectrum Disorder (NPDC on ASD) has identified 24 evidence-based practices for working effectively with individuals with autism spectrum disorder and is in the process of developing free online modules for each of these practices. Evidence-based practice (EBP) briefs for these 24 practices have also been developed. These include an overview of the practice, directions for implementation, an implementation checklist, the evidence base for the practice, and supplemental materials.