COUNCIL ON LEADERSHIP IN ADVOCACY (COLA)
6/13/2023
Michelle Fong (NH-ME LEND 2023) White Paper: Data Equity is Key to Health Equity for PWD
Equitable health data represents all populations and can be linked to their common characteristics. When researchers from the University of Maine Center for Community Inclusion and Disability Studies (ME UCEDD), sought to examine the health equity of Maine's population with intellectual and neurodevelopmental disabilities regarding COVID-19, they encountered a data gap. Maine's COVID-19 data could be disaggregated by gender, race, ethnicity, and age, but not by disability status or type.
9/14/2022
MN LEND fellow co-founds Minnesota Autistic Alliance
Milena Bates (MN LEND 2021-22), co-founder of the Minnesota Autistic Alliance, is recruiting self-advocates for new projects supported by a grant from the Minnesota Department of Human Services. Cultivate, a 10-hour online self-advocacy course covering how to identify needs, navigate barriers, and understand intersectionality (among other topics), begins August 23. It is designed for and by neurodivergent self-advocates. Lattice is a partnering program that will connect a team of three partners best suited to the support needs of a self-advocate. The group also is recruiting writers for an accessible, digital resource database.
4/15/2014
Senator Harkin Introduces 'Six By '15 Campaign'
During an evening reception at the Disability Policy Seminar, Senator Harkin officially announced the start of the "6 By '15" campaign - an national effort to work on six national goals by the end of 2015, the year that marks the 25th anniversary of the Americans with Disabilities Act (ADA) and 40th anniversary of the Individuals with Disabilities Education Act (IDEA).
3/23/2013
The ACA Turns 3!
We're wishing a happy birthday to ending discrimination against people with disabilities in health plans, ending yearly and lifetime caps on benefits and ending the exclusion of people with pre-existing conditions!
8/30/2012
Utah UCEDD's Consumer Advisory Council Funds A Day at the Museum for Families of Children with ASD
449 people came together at Discovery Gateway in Salt Lake City for something many of them couldn't ordinarily enjoy: a day at the museum with their families. They all had at least one family member with autism spectrum disorder.
8/15/2012
AUCD 2012: Registration is Open!
Early Bird Deadline: October 14
Reserve your space now for AUCD 2012. This highly anticipated conference is a unique forum to share innovations and promising practices across a broad array of topics that ultimately impact the quality life for people with disabilities and their families in their communities.
8/13/2012
National Forum on Disability Issues 2012: Registration Open
Registration to attend the forum is now live. To attend in person, follow the instructions to secure one of the only 500 seats available on a first-come, first-serve basis. To attend via live free webcast, follow separate registration instructions.
8/1/2012
"What's Disability to Me?" New Disability-Themed Video Story Produced by The Centers for Disease Control and Prevention
Hear the personal story of Mr. Bernard Baker, a person with disabilities who fully participates in life through his abilities. Mr. Baker provides a first-person account of how people with disabilities can live happy, healthy lives and contribute to society in meaningful ways. This story is part of a series of short films in support of WHO's World Report on Disability.
6/28/2012
Health Care Ruling a Victory for All Americans
The Association of University Centers on Disabilities (AUCD) applauds today's United States Supreme Court decision to uphold the Affordable Care Act (ACA). "The Affordable Care Act is a landmark law and a victory for all Americans, but especially for people with disabilities and chronic health conditions who often struggle to find quality health coverage," said AUCD President Anthony Antosh, EdD.
6/6/2012
AUCD Statement on the Proposed DSM-5 Diagnostic Criteria for Autism Spectrum Disorder
AUCD strongly supports the development of diagnostic criteria that accurately and reliably identify individuals with autism spectrum disorders (ASD) and provide a foundation for effective intervention and supports.
The comment period for the proposed changes to the DSM is open until June 15. These changes include revisions to criteria for diagnosis of Autism Spectrum Disorders. AUCD strongly supports the development of diagnostic criteria that accurately and reliably identify individuals with ASD and provide a foundation for effective intervention and supports. AUCD submitted comments that includes principles for redefining the criteria and recommendations for the workgroup.
5/21/2012
In Memoriam: Katie Beckett
Katie Beckett, whose disability rights case led to kids with disabilities being allowed to live at home, dies at age 34
Katie Beckett passed away on May 18, 2012. Her struggle and that of her parents led to the Katie Beckett Waiver Program that allowed literally hundreds of thousands children with disabilities and fragile medical conditions to be supported at home rather than in hospitals or nursing homes. Katie grew to be a youth leader in the world of children with special health care needs who, by her example, courage, energy, and spunk, provided a model and was a standard bearer for all those working for full participation and individualized supports for individuals with disabilities and special health care needs and their families. Julie, Katie's mother, has been an unwavering ally and support in Katie's journey to change the health care system in this country. The thoughts and prayers of the entire AUCD network go out to Katie's parents Julie and Mark, as well as all of Katie's family and friends. Katie proved that one person can indeed change an entire system and help countless others. Read more for a statement from HHS Secretary Kathleen Sebelius and links to select national articles and tributes to Katie.
4/17/2012
The Institute on Disability (NH LEND) Collaborated with Key Stakeholder Groups to Support Community-Based and Technical Assistance Activities
The Institute on Disability (NH LEND) collaborates with Special Medical Services, Center for Medical Home Improvement, Wentworth-Douglass Hospital, Easter Seals, and Act Early Ambassador program to offer partnership activities to their LEND trainees.
4/1/2012
AUCD Celebrates April as Autism Awareness Month
AUCD joins the autism community in celebrating this month focused on raising awareness of the needs of families and individuals affected by autism and the research and training that is underway to address those needs. The Centers for Disease Control and Prevention estimates that 1 in 88 children in the United States has been identified as having an autism spectrum disorder.
3/26/2012
AUCD 2012 Conference: Invitation to Participate
You are invited to the AUCD 2012 Conference! The conference will feature new types of sessions, allowing attendees to learn more during their time at the conference. Use the "presentation details" information to begin preparing your proposal for one of the new session types; the online submission form will be available in a few weeks.
2/28/2012
Disability and Health Data System from CDC
The Centers for Disease Control and Prevention (CDC) introduces Disability and Health Data System (DHDS). Disability and Health Data System is an online interactive system that helps quickly translate state-level, disability-specific data into information that can be used by state health departments, national disability and health organizations, policymakers, researchers, educators, and others. For the first time, state-level disability data are housed in a central, online location and include timely, consistent ways to compare data by state or region.