FAMILY FOCUSED RESOURCES
8/15/2013
'Parents Perspectives' Video Series from the OK UCEDD
This short video series features parents of children with intellectual and developmental disabilities or special health care needs. In the videos, parents share their perspectives on getting a disability diagnosis, supporting their children through transitions in the school system, and dealing with emergency personnel.
11/30/2012
National Center for Prenatal and Postnatal Down Syndrome Resources Launched by University of Kentucky's Human Development Institute
The new National Center at DownSyndromeDiagnosis.org provides a portal for medical professionals and new and expectant parents to find out about several free and well-established resources about Down Syndrome.
11/14/2012
Evaluation of a Parent Led Curriculum in Developmental Disabilities for Pediatric and Medicine/Pediatric Residents
from Families of children with special health care needs want to partner with their physicians to provide family-centered care and a medical home for their children. A parent group independently developed a parent led curriculum to assist in the training of residents for this purpose. The objective of this study from the Boling Center LEND/UCEDD was to evaluate pediatric residents? satisfaction with and perceived relevance of this parent-led curriculum demonstrating the effects a disability has on the child and family.
8/15/2012
AUCD 2012: Registration is Open!
Early Bird Deadline: October 14
Reserve your space now for AUCD 2012. This highly anticipated conference is a unique forum to share innovations and promising practices across a broad array of topics that ultimately impact the quality life for people with disabilities and their families in their communities.
7/13/2012
In Memoriam: Ruth J. Roberts, EdD
Dr. Ruth Roberts, the Boling Center Training Coordinator for the last nine years, passed away on July 12, 2012 after a year-long fight with cancer.
6/28/2012
Health Care Ruling a Victory for All Americans
The Association of University Centers on Disabilities (AUCD) applauds today's United States Supreme Court decision to uphold the Affordable Care Act (ACA). "The Affordable Care Act is a landmark law and a victory for all Americans, but especially for people with disabilities and chronic health conditions who often struggle to find quality health coverage," said AUCD President Anthony Antosh, EdD.
6/10/2012
Call for Submissions: Families and Disabilities: Implications for Policy and Practice
Deadline: December 15, 2012
To promote contemporary understanding of the relationship of disability with the development and well-being of children, adults, and families over the life span, Family Relations is planning a "Special Edition" focusing on families and disabilities from interdisciplinary perspectives. This special edition will be guest edited by Anne Farrell and Gloria Krahn.
5/21/2012
In Memoriam: Katie Beckett
Katie Beckett, whose disability rights case led to kids with disabilities being allowed to live at home, dies at age 34
Katie Beckett passed away on May 18, 2012. Her struggle and that of her parents led to the Katie Beckett Waiver Program that allowed literally hundreds of thousands children with disabilities and fragile medical conditions to be supported at home rather than in hospitals or nursing homes. Katie grew to be a youth leader in the world of children with special health care needs who, by her example, courage, energy, and spunk, provided a model and was a standard bearer for all those working for full participation and individualized supports for individuals with disabilities and special health care needs and their families. Julie, Katie's mother, has been an unwavering ally and support in Katie's journey to change the health care system in this country. The thoughts and prayers of the entire AUCD network go out to Katie's parents Julie and Mark, as well as all of Katie's family and friends. Katie proved that one person can indeed change an entire system and help countless others. Read more for a statement from HHS Secretary Kathleen Sebelius and links to select national articles and tributes to Katie.
1/31/2012
"CERC-ling" the Wagons: How Bronx Moms Helped Shape Needed Services
For any parent, finding out your child has disabilities changes your world forever. For a pioneering group of five women in the Bronx, Mary Bonsignore, Mary St. Mark, Dorothy Stone, Nellie Velez and Anna Mae Vener, the children who changed their worlds led them to the herculean undertaking of altering the world around them, so they could make a place for their children and others like them to live, learn, love and laugh - instead of being locked away in an institution.
1/31/2012
Rylin Rodgers, Training Director at Riley Child Development Center (IN LEND) Invited to the White House
It seems that politics has been anything but usual lately and one wonders if there are meaningful ways to affect national policy regarding issues so important to our patients and their families. Riley Child Development Center Family Leadership Coordinator and Training Director Rylin Rodgers, however, encourages each of us to engage our elected leaders to inform them about the value of policies and programs that support healthy Hoosiers.
10/3/2011
Combating Autism Reauthorization: A Father Celebrates
Written by Michael Strautmanis, Deputy Assistant to the President, this article from The White House Blog describes one father's feelings on the President's signing of the Combating Autism Reauthorization Act.
4/18/2011
'Mom Advocates for Child' - Cincinnati LEND Highlighted
One mom is learning how to be a more effective advocate for all children with disabilities through a training program at Cincinnati Children's Hospital Medical Center and the University of Cincinnati.
4/4/2011
Autism Treatment Network
The ATN is the nation's first network of hospitals and physicians dedicated to developing a model of comprehensive medical care for children and adolescents with autism. The ATN offers families care from doctors highly experienced in helping individuals with autism and providing treatment for associated conditions such as gastrointestinal and sleep disorders. ATN doctors are dedicated to finding better ways to manage the health of children with autism and sharing their increasing knowledge across the wider medical community.
3/8/2011
2011 AUCD Call for Proposals Now Open
The Journey Continues... 40 Years Advancing Equity and Excellence through Research, Education, and Service
Proposals will be accepted through June 10, 2011. The 2011 AUCD Conference provides an opportunity to celebrate the great strengths and capacity of our network... and to share those strategies in research, education, and service that continue the journey towards equity and excellence.
11/16/2010
Autism Center Launches New Programs
With the number of children diagnosed with autism spectrum disorder (ASD) continuing to rise in Washington and the rest of the United Statess a 2009 federal study indicates that one in 91 children will be diagnosed with the disorder the University of Washington's Autism Center is increasing the variety of clinical services offered to families and service providers.