AUCD LOGO 2007 AUCD Network Report Front Cover/Page1: The Association of University Centers on Disabilities (AUCD) is a membership organization comprised of three national networks of interdisciplinary, university-based Centers dedicated to research, education, leadership training, policy development, and direct service for people with disabilities. Established in 1971 as a national, 501(c)3 nonprofit organization, AUCD represents and supports the collective interests of these national networks. This report provides data and information on work performed in FY2007 and the impact of that work on the lives of people with disabilities by AUCD and the three national networks it supports and represents. 67 University Centers for Excellence in Developmental Disabilities (UCEDDs). The network of UCEDDs receive core funding administered by the Administration on Developmental Disabilities (ADD) within the Administration for Children and Families (ACF). This network of 67 UCEDDs—at least 1 in every US state and territory—provides preservice preparation, performs services (including technical assistance, community education, and direct services), engages in research, and disseminates information. 34 Leadership Education in Neurodevelopmental and Related Disabilities (LEND) Programs. The network of LEND programs is administered by the Division of Research, Training, and Education, Maternal and Child Health Bureau (MCHB) within the Health Resources and Services Administration (HRSA). Currently, 34 LENDs operate in 28 states to ensure that health professionals have the necessary knowledge and skills to address the unique needs of children and adolescents with special health care needs and their families. Thirty of the LEND programs are co-located in universities with UCEDDs. 21 Developmental Disabilities Research Centers (DDRCs). The network of 21 DDRCs with AUCD membership consists of 14 Centers with P30 Center core grant funding from National Institute for Child Health and Human Development (NICHD) and 7 Centers that use alternative funding mechanisms within the National Institutes of Health (NIH) to support projects relevant to intellectual disabilities. DDRCs represent the nation’s first and foremost sustained effort to prevent and treat disabilities through biomedical and behavioral research. Fourteen of these research centers are co-located in universities with UCEDDs or LENDs. Front Cover/ Page 1 Images: AUCD logo, photo of 3 children, map of AUCD network Page 2: Dear Friends, Colleagues, Partners and Collaborators, The membership of the Association of University Centers on Disabilities (AUCD) has had a good year, even given the challenges that we face nationally and in our own respective states. The AUCD network has been very productive in conducting research, training our next generation of professionals, collaborating with sister organizations, and directly working with children, adults and families to improve the quality of lives of persons with disabilities. We have been active with policy makers—at both national and state levels—in identifying ways to serve our constituents better and seeking the resources necessary to address their needs. We have continued to learn to work more effectively as a network of collaborators and to manage to do more available resources. The following pages highlight some of our collective accomplishments and efforts. They point to the number of individuals and their families we have collectively touched over the past year; the impact of the network’s activities—providing direct services, training new professionals, and conducting research to create new knowledge—is borne out in the improved lives of people with disabilities, both now and in the years to come. Thank all those who have played a role in making these efforts and accomplishments possible. Thanks also to our funding partners at national and state agencies, our collaborators, staff and trainees, and most importantly the children and adults with whom we work on a daily basis. Without the combined effort of so many varied and valued stakeholders, the achievements summarized in this report would not have been possible. Whether an individual with a disability, family member, director, researcher, or student trainee—we have all played our part in this effort and the cumulative success of the network. Each of the centers and programs throughout the network undertakes to meet the needs of its own state and contribute to the national dialogue. Our network we encompasses the diversity that is the ever evolving reality of our country. Yet, we have our common mission to improve the lives of persons with disabilities and a common interest to engage others in this pursuit. We hope you find this brief summary and overview of the network’s efforts instructive and helpful. We welcome your comments and suggestions for the future and extend our best wishes for an even more productive year in the months to come as we continue to extend “the power of the network.” Sincerely, Royal P. Walker, Jr., JD, President, Board of Directors George S. Jesien, PhD, Executive Director Page 2 Images: AUCD logo, photo of Royal P. Walker, Jr., photo of George S. Jesien Page 3: Contents Leadership Letter 2 2007 National Data on the Impact of the UCEDD and LEND Networks 4 2007 National Impact of the DDRC Network 7 AUCD Special Projects in Support of the Network 8 2007 Financial Position 9 AUCD Return to Membership 9 Relevant 2007 Federal Legislation 10 2007 AUCD Legislative Efforts 11 Additional 2007 Collaborations 11 2007 Partners 12 Board and Staff 13 AUCD Member Centers and Programs 2007 14 Acronyms 16 Suggested citation: Nygren, M. A. (2007, November). 2007 AUCD network report. Silver Spring, MD: Association of University Centers on Disabilities. Page 3 Images: photo of 2006 AUCD Star Award recipient, photo of a family, photo of a large meeting of professionals Page 4: 2007 National Data on the Impact of the UCEDD and LEND Networks AUCD network-wide data collection dates back to 1987. A fully web-based National Information and Reporting System (NIRS) was introduced on August 1, 2002 for the FY2003 data year. Since then, NIRS has undergone a number of iterations to increase its utility to the networks it serves and their federal partners. Although NIRS currently supports data collection for four networks: UCEDDs, LENDs, Leadership Education in Adolescent Health (LEAHs), and Pediatric Pulmonary Centers (PPCs); only UCEDD and LEND data is presented here. NIRS is operated by AUCD with financial support from the ADD, MCHB, and the Association itself. Research, Education, and Service Following are data from NIRS on the research, education, and service activities of the UCEDD and LEND networks. In 2007, there were 67 UCEDDs (at least 1 in every US state and territory) and 34 LENDs. Because 30 LENDs are co-located with UCEDDs, the data from these two networks are presented jointly. Research Each UCEDD and LEND has its own particular research agenda; however, their research typically includes basic or applied research, evaluation, and the analysis of public policy in areas that affect or could affect individuals with developmental disabilities and their families. In FY2007, UCEDDs and LENDs operated 1,064 projects with a research component, which included: Program evaluation Investigations into the efficacy of educational, behavioral, health, and technological interventions Policy analysis Clinical trials UCEDDs and LENDs translate research into practice through the development and dissemination of informative products. The network produced 6,020 products in FY2007, which consisted of: 1,295 refereed journal articles 863 non-refereed publications (monographs, technical reports, guides, handbooks, whitepapers, etc.) 91 books 295 book chapters 503 technology-based materials (AV materials, software, web portals/websites, etc.) 56 doctoral dissertations and master’s theses 455 periodicals (newsletters, issue briefs, etc.) 1,986 public awareness materials (brochures, pamphlets, radio/television interviews, etc.) Page 4 Images: pie chart indicating relative sources of research funding for FY2007 UCEDD/LEND network, photo of child making funny face Page 5: Education Each UCEDD and LEND provides interdisciplinary pre-service preparation and continuing education that serves to expand an individual’s professional or academic credentials. Such education usually takes place in an academic setting or program that may (a) lead to the award of an initial academic degree or certificate; (b) include internship, practicum, fellowship, or residency activities; or (c) represent advancement in academic credentials through a course of study. Trainees are categorized within NIRS by the number of contact hours required to complete their training program. In FY2007, the network provided training to a total of 3,556 students and fellows, which included 1,909 intermediate (40–299 contact hours) and 1,647 long-term trainees (300+ contact hours). FY2007 UCEDD/LEND Trainee Personal Relationship with Disabilities FY2007 trainees in the network reported they were: 11% Family members of a person with a disability or special health care need 6% Parents of a person with a disability or special health care need 5% Person with a disability or special health care need themselves AUCD gratefully acknowledges the funding and continued support of ADD (Contract #HHSP23320062922YC), MCHB (Contract #240200435010C), and the membership of AUCD, without which these data would not be available. However, the structure and contents of the NIRS database does not necessarily reflect the position or the policy of ADD or MCHB, and no official federal endorsements should be inferred. Page 5 Images: graph describing the relative percentages of FY2007 UCEDD/LEND trainees by discipline, a pie chart indicating FY2007 UCEDD/LEND trainee academic levels, photo of woman teaching Page 6: Service Each UCEDD or LEND serves the community with a variety of projects within 4 overarching categories: Technical Assistance Problem-solving to assist individuals, programs, and agencies in improving their services, management, policies, and/or outcomes. The network provided technical assistance to 642,983 individuals in FY2007. Training Enhancing the knowledge of community members and/or maintaining the professional credentials of those who directly serve the community. The network provided training to 532,350 individuals in FY2007. Clinical Services Providing supports or clinical care directly to individuals with developmental disabilities and/or their family members. The network provided clinical services to 11,294 individuals in FY2007. Demonstration Services Developing, implementing, and documenting promising practices and supports for individuals with disabilities or special health care needs and their families. The network made 144,697 consults in FY2007. The graphs below provide a 2007 snapshot of how many people received training and technical assistance, the populations reached in those activities, the topics addressed, and the demographics of direct service recipients. Page 6 Images: graph describing the number of people who received training and technical assistance in FY2007, pie chart illustrating the populations who received technical assistance and training in FY2007, chart illustrating the race and ethnicity of clinical and demonstration service recipients of the network in FY2007 along with comparative US census data Page 7: 2007 National Impact of the DDRC Network For more than 40 years, NICHD (within NIH) has provided support through the Mental Retardation Branch to facilitate program coordination and support central research facilities, administration, and development of a limited number of research programs. The network of 21 DDRCs with AUCD membership consists of 14 Centers with current P30 Center core grant funding from NICHD and 7 Centers that use alternative funding mechanisms within NIH to support developmental disability-relevant projects. Fourteen of these research centers are co-located in universities with UCEDDs or LENDs. The primary objectives of the DDRCs are to advance the diagnosis, prevention, treatment, and amelioration of developmental disabilities through cohesive, interdisciplinary research and the training of new scientists in developmental disability-related research. Research Although Centers differ in many respects, each DDRC supports 40–100 research projects and 20–70 principal investigators on an annual basis. DDRCs engage in research to advance the understanding of Chromosomal conditions that cause developmental disabilities, such as Prader-Willi, Angelman, Williams, and Down syndromes. X chromosome disorders that result in developmental disabilities, such as Rett and Fragile X syndromes. Biochemical processes and metabolic issues that are related to brain functioning, brain injury, or long-term consequences to the brain, such as hypoxia, very low birth weight, PKU and other metabolic disorders, and prenatal malnutrition. Biological or biochemical mechanisms that cause behavioral characteristics, such as those found in Autism Spectrum Disorders, self-injurious behavior, and impairments in language development. Characteristics of the behavioral phenotypes of developmental disorders. Effective approaches to behavioral and biological intervention. Research Training DDRCs provide invaluable research training, mentoring, and support through mechanisms such as: Pre- and Post-Doctoral Fellowships Mentored Clinical Scientist Development Awards Mentored Research Career Development Awards Institute Specific Training Programs Service DDRCs contribute to the development and implementation of evidence-based practices by evaluating developing assistive technologies, advancing prenatal diagnosis and newborn screening, and other related activities. Page 7 Image: photo of a woman doing research Page 8: AUCD Special Projects in Support of the Network Pediatric Medical Unit (PMU) Initiative Funded by the Social Security Administration (SSA), AUCD is helping to develop PMUs to provide specialized expertise for adjudicators who determine eligibility for childhood disability benefits. Under this contract, AUCD has awarded 8 sub-contracts to network Centers to operate prototypes for PMUs. Six sites are working with Disability Determination Services (DDS) in their states or regions to support initial childhood disability determinations and two sites are working with federal Hearing Offices to support decisions for cases on appeal. This initiative furthers SSA’s goal to help adjudicators make the best disability decisions as efficiently and as early as possible in the process. (The actual disability determination remains the legal responsibility of adjudicators.) A PMU brings together a team of interdisciplinary clinicians with specialized developmental and assessment expertise to provide important support for DDS and Hearing Offices. Depending on their location, a PMU will conduct comprehensive record reviews, provide clinical evaluations or offer medical opinions about the severity of children’s limitations. Since Fall 2006, sites have provided assistance on approximately 1,200 cases. The volume of referrals has varied by location, reflecting different stages of implementation and the capacity of referring state agencies. At all locations, participating Centers provide interdisciplinary clinical teams of experts, convene meetings to review policies and procedures, and maintain ongoing communication with stakeholders. Research Topics Of Interest (RTOI) within the AUCD-NCBDDD Cooperative Agreement Funded by the National Center on Birth Defects and Developmental Disabilities (NCBDDD) at the Centers for Disease Control and Prevention (CDC), AUCD is helping to strengthen the nation’s capacity to carry out public health activities in the areas of developmental disabilities, prevention of secondary conditions, and health promotion for people with disabilities. Since 2002, AUCD has managed 18 RTOIs in areas of significance identified by scientists at NCBDDD. AUCD leverages the expertise and capabilities of the network in conducting research, education, and service activities to achieve four major goals: Facilitate state-based surveillance and research of birth defects and developmental disabilities. Develop educational resources and curricula for health care practitioners, researchers, and trainees to enhance the health services and other supports for people with disabilities and their families Disseminate materials and information designed to increase access to social participation by children and adults with disabilities. Strengthen expertise of professionals in public health and related fields in birth defects and developmental disabilities. AUCD administers the AUCD-NCBDDD Fellowship Program for promising graduate, post-doctoral, and mid-career professionals enrolled or employed at AUCD member Centers to further their professional development in the fields of epidemiologic research, health promotion, and child health and development at NCBDDD. In FY 2007, three fellows were recruited—one each to work within the NCBDDD National Spina Bifida Program, on the Developmental Disabilities Team, and on the Learn the Signs, Act Early! Campaign. Page 8 Images: photo of three children, pie chart describing the various FY07 RTOI topic areas Page 9: 2007 AUCD Financial Position AUCD returns funds to its membership through subcontracts, sub-awards, consultant fees, and reimbursement for travel expenses; the amount of that return, both in actual dollars and in the percentage of AUCD’s annual expenses has steadily increased over the past 7 years. Page 9 Images: pie chart describing AUCD’s sources of support and revenue in FY2007; pie chart describing AUCD’s expenses in FY2007, a summary table of selected FY2007 and FY2007 data, a graph describing the dollar amounts and relative budget percentage of funds AUCD paid to member Centers in FY2007 Page 10: Relevant 2007 Federal Legislation AUCD advocates for legislative issues that are critical to individuals with disabilities and their families. Priority issues are developed bi-annually by the AUCD Legislative Affairs Committee and Board of Directors. Priority issues are based on the Association's vision and mission as well as input from the entire network, including individuals with disabilities and their families. For all the notable federal legislation and associated appropriations in FY07 listed below, AUCD engaged in policy analysis and educated network members, policy makers, and others on the potential impact of such Congressional activities on the lives of people with disabilities and their families. Legislation Signed Into Law Deficit Reduction Act (PL 109-171) was signed into law on February 8, 2006. The DRA contained several legislative initiatives that began implementation in FY07, including the Money Follows the Person Act, the Family Opportunity Act, Family to Family Health Information Centers, and other provisions to provide states more flexibility to provide community based services and supports. Post-Katrina Emergency Management Reform Act (PL 109-295) was signed into law October 4, 2006. The law amends the Stafford Act to better address the needs of people with disabilities in emergencies, including the establishment of a disability coordinator for disaster preparedness housed in HHS. Older Americans Act (PL 109-365) was reauthorized on October 17, 2006. In The reauthorization included modifications to the National Family Caregiver Support Program that expand eligibility to caregivers of adults with disabilities and authorized the expansion of the number of Aging and Disability Resource Centers. Lifespan Respite Care Act (PL 109-442) was signed into law on December 6, 2006. The Act authorizes $40 million in FY08 for competitive grants to states and territories to develop or coordinate lifespan respite care program for families providing care for an adult or child with a special need. Combating Autism Act (PL 109-416) was signed into law on December 19, 2006. The Act provides almost $1 billion over 5 years for autism spectrum disorders and related developmental disabilities research, screening, education, and treatment. The legislation significantly expands research activities at NIH, surveillance programs run by CDC, and HRSA grants for interdisciplinary training to expand existing or establish new LEND programs. Reauthorization of Established Laws Developmental Disabilities Assistance and Bill of Rights Act Rehabilitation Act (Title IV of Workforce Investment Act) No Child Left Behind Act State Children’s Health Insurance Program Higher Education Act New Legislative Initiatives Community Living Community Choice Act (HR 162/S 799) provides individuals with disabilities and older Americans with equal access to community-based attendant services and supports. Community Living Assistance Services and Supports Act (HR 3001/S 1758) helps individuals with functional impairments and their families pay for supports to maximize their functionality and independence. Direct Support Professionals Fairness and Security Act (HR 1279) provides funds to states to enable them to increase the wages paid to direct support professionals that provide Medicaid-reimbursable services to individuals with disabilities. Health Expanding the Promise for Individuals with Autism Act (HR 1881/S 934) improves access to comprehensive treatments, interventions, and services for individuals with autism spectrum disorders and their families. Promoting Wellness for Individuals with Disabilities Act (HR 3294/S 1050) sets standards for medical diagnostic equipment and establishes a program for promoting health and the prevention of secondary conditions for individuals with disabilities. Genetic Information Nondiscrimination Act (HR 493/S 358) prohibits discrimination on the basis of genetic information with respect to health insurance and employment. Children’s Dental Health Improvement Act (HR 1781) provides low income children with access to primary dental care services through SCHIP and Medicaid. Civil Rights ADA Restoration Act (HR 3195/S 1881) amends the Americans with Disabilities Act of 1990 to restore the intent and protections of the law. Local Law Enforcement Hate Crimes Prevention Act (HR 1592/S 1105) assists states to enforce hate crimes; adds people with disabilities to the list of protected classes. No Images on Page 10 Page 11: 2007 Legislative Efforts of AUCD AUCD works to advance legislation and appropriations beneficial to people with disabilities and their families in collaboration with other disability organizations such as the Consortium for Citizens with Disabilities (CCD), Friends of NICHD, External Partners Group, Coalition for Health Funding, and the Friends of Title V. In 2007, AUCD: Supported representatives of its member Centers in visiting their legislators. Provided introductory comments in the Congressional Press Conference on the introduction of the Expanding the Promise for Individuals with Autism bill. Developed joint legislative goals for the 110th Congress with The Arc, UCP, ANCOR, and AAIDD. Cosponsored the annual Disability Policy Seminar, along with The Arc, UCP, AAIDD, and NACDD. Cosponsored the Ability and Health Congressional Briefing with External Partners Group of NCBDDD and collaborated with the Campaign for Public Health’s efforts to support higher funding levels for CDC.  Provided leadership on the CCD board and participated on CCD Task Forces. Participated in the executive committee of the External Partners Group of NCBDDD. Other 2007 Collaborations Fellowship in Disability Policy Leadership Open to UCEDD/LEND/DDRC faculty, staff, or trainees, the overall purpose of the fellowship is to offer a significant experience in national level activities related to policy and legislative development, advocacy, program development, technical assistance, and association administration. The fellowship is envisioned as a mutually beneficial arrangement whereby the participating individual, the home UCEDD/LEND/DDRC program, and the AUCD central office benefits. The 2007 fellow represented Partners for Inclusive Communities (Arkansas UCEDD). AUCD-MCHB LEND Genetic Counseling Grants This grant activity is intended to enhance interdisciplinary training, leadership and health care for people with developmental disabilities and their families by supporting currently funded LEND programs in their development of innovative means to increase the number and diversity of genetic counselors serving children with special health care needs and their families. In 2007, awards were made to the Partnership for People with Disabilities (Virginia LEND), the Waisman Center (Wisconsin LEND), and the Rose F. Kennedy Center (NY LEND). ESPA-AUCD Sponsored Projects: Transportation for People with Disabilities Through this program, Easter Seals Project ACTION (Accessible Community Transportation in Our Nation, or ESPA) annually competitively selects LEND or UCEDD trainees for project awards to expand upon current transit-related research from a disability community perspective. In 2007, awards were made to trainees from the A.J. Pappanikou Center for Developmental Disabilities (Connecticut UCEDD) and the University of Montana Rural Institute (Montana UCEDD). Conferences & Meetings AUCD is proud to collaborate with its membership, federal agencies, and national and regional organizations to host numerous conferences and meetings to advance policy and practice for and with people with developmental and other disabilities, their families, and their communities. Page 11 Images: photo of self-advocate in front the US capitol, photo of woman Page 12: 2007 Partners Administration on Developmental Disabilities Technical Assistance to the UCEDDs ADD contracts with AUCD to enhance and improve the operations and conduct of the national network of UCEDDs that benefit individuals with developmental disabilities and their families. Maternal and Child Health Bureau Technical Assistance for the LEND and Other Interdisciplinary Training Projects MCHB contracts with AUCD to provide technical assistance to the LEND (and other) training projects supported by MCHB and to provide leadership in identifying and addressing national issues related to children with neurodevelopmental disabilities and other related disabilities and their families. National Center on Birth Defects and Developmental Disabilities National Professional Organization for Persons with Developmental Disabilities NCBDDD is engaged in a cooperative agreement with AUCD to strengthen the nation’s capacity to carry out public health activities in the areas of birth defects, developmental disabilities, and health promotion for people living with disabilities. Social Security Administration Pediatric Medical Units SSA contracts with AUCD to develop and test a prototype for PMUs . This initiative furthers SSA’s goal to help adjudicators make the best decisions as efficiently and as early as possible. Corporation for National and Community Service National Service Inclusion Project CNCS works with the Institute for Community Inclusion and AUCD to provide a comprehensive program of training, technical assistance, and dissemination designed to increase the participation of individuals with disabilities in national service. National Institute for Child Health and Human Development Mental Retardation/Developmental Disabilities Research Centers Web Portal AUCD maintains a web portal for the network of DDRCs under a subcontract with Woodbourne Solutions, Inc. a contractor of NICHD. US Department of Education Multiple Award Task Order AUCD is an approved vendor for providing technical and analytical support in policy analyses, statistical analyses, and evaluations. This contract is for use by all principal offices within ED and independent organizations affiliated with ED. Independent Living Research Utilization The National State-to-State Technical Assistance Program for Community Living ILRU contracts with AUCD to provide technical assistance and disseminate information relevant to the work of the Centers for Medicare & Medicaid Services Real Choice Systems Change grantees. Page 12 Image: photo of service dog at rest Page 13: 2006-2007 Board of Directors Royal P. Walker, Jr., JD—President Associate Director, Institute for Disability Studies, University of Southern Mississippi M. Bryce Fifield, PhD—Treasurer Director, North Dakota Center for Persons with Disabilities, Minot State University Michael Gamel-McCormick, PhD— Secretary Director, Center for Disabilities Studies, University of Delaware William E. Kiernan, PhD—President-Elect Director, Institute for Community Inclusion, University of Massachusetts Boston Lucille A Zeph, EdD—Past President Director, The University of Maine Center for Community Inclusion and Disability Studies Frederick B. Palmer, MD—Past Past President Director, Boling Center for Developmental Disabilities, University of Tennessee Health Science Center A. Anthony Antosh, EdD UCEDD Director, Paul V. Sherlock Center on Disabilities, Rhode Island College Arnold Birenbaum, PhD Associate UCEDD Director, Rose F. Kennedy Center, Albert Einstein College of Medicine Kathleen Braden, MD LEND Director, Eunice Kennedy Shriver Center, University of Massachusetts Medical School Daniel B. Crimmins, PhD Associate Director, The Marcus Institute Tamar Heller, PhD UCEDD Director, Institute on Disability and Human Development, University of Illinois at Chicago Marion Taylor Baer, PhD, RD LEND Director, The Center for Child/Family Health Initiatives and Leadership Development (CHILD) Center, University of Southern California Elizabeth A. Bishop, MSSW (Chair, National Community Education Directors Council), Boling Center for Developmental Disabilities, University of Tennessee Health Science Center Lann E. Thompson, EdD (Chair, Council for Interdisciplinary Service), Associate UCEDD/LEND Director, Riley Child Development Center, Indiana University Steven M. Koch, PhD (Chair, National Training Directors Council), Training Director, Riley Child Development Center, Indiana University Gordon G. Richins, BS (Co-Chair, Council on Community Advocacy), Center for Persons with Disabilities, Utah State University Tokesha L. Warner, BA (Chair, Multicultural Council), Program Coordinator, Center for Child Development, Vanderbilt Children's Hospital Susan Yuan, PhD (Co-Chair, Council on Community Advocacy), Associate Director, Center on Disability and Community Inclusion, University of Vermont AUCD Staff George S. Jesien, PhD—Executive Director Paula A. Hirt, MS—Deputy Director Margaret A. Nygren, EdD—Associate Executive Director for Program Development Kim E. Musheno—Director of Legislative Affairs Crystal K. Pariseau, MSSW—MCH Technical Assistance and Materials Development Coordinator Rhoda Schulzinger, JD—Director, Children's Disability Determination Initiative Sue C. Lin, MS—Project Director, CDC Cooperative Agreement Joe Caldwell, PhD—Policy Analyst Ylla Nikola-Lisa Bishop, MPA —Project Coordinator, Children's Disability Determination Initiative David Morrissey, MPS—Program Manager Mathew McCollough, MPA—Program Specialist and Grant Manager Danielle Onunkwo—Technical Assistance Specialist Gwendolyn E. Clark—Administrative Specialist Ryan M. Jesien—Program Assistant Page 13 Images: photo of past president of the board passing the gavel to the new president of the board, group photo of AUCD staff Page 14 2007 AUCD Member Centers Center for Human Development, University of Alaska Anchorage Institute for Human Development, Northern Arizona University (Flagstaff) Sonoran UCEDD, University of Arizona (Tucson) Partners for Inclusive Communities, University of Arkansas for Medical Sciences (Little Rock) University of Southern California UCEDD & Center for Child/Family Health Initiatives and Leadership Development, University of Southern California (Los Angeles) Tarjan Center for Developmental Disabilities & UCLA Mental Retardation Research Center, University of California at Los Angeles UC Davis UCEDD at the M.I.N.D. Institute, University of California Davis JFK Partners & UCDHSC Mental Retardation and Developmental Disabilities Research Center, University of Colorado Health Sciences Center (Denver) A.J. Pappanikou Center for Developmental Disabilities, University of Connecticut Health Center (Farmington) Yale Child Study Center, Yale University (New Haven) Center for Disabilities Studies, University of Delaware (Newark) Children’s National Medical Center (Consortium of Universities) Georgetown University Center for Child and Human Development, Georgetown University Florida Center for Inclusive Communities, University of South Florida (Tampa) Mailman Center for Child Development, University of Miami Miller School of Medicine Institute on Human Development and Disability, The University of Georgia (Athens) The Marcus Institute, Emory University (Atlanta) Emery University School of Medicine, Emory University (Atlanta) Guam CEDDERS, University of Guam (Mangilao) Center on Disability Studies, University of Hawaii at Manoa (Honolulu) Center on Disabilities and Human Development, University of Idaho (Moscow) Institute on Disability and Human Development, University of Illinois at Chicago The Joseph P. Kennedy MRDDRC, University of Chicago Indiana Institute on Disability and Community, Indiana University (Bloomington) Riley Child Development Center, Indiana University (Indianapolis) Center for Disabilities and Development, University of Iowa (Iowa City) Kansas University Center on Developmental Disabilities, Developmental Disabilities Center, & Kansas MRDD Research Center, The University of Kansas (Lawrence and Kansas City) Interdisciplinary Human Development Institute, University of Kentucky (Lexington) Human Development Center, Louisiana State University Health Sciences Center (New Orleans) Center for Community Inclusion & Disability Studies, The University of Maine (Orono) Maryland Center for Developmental Disabilities at Kennedy Krieger Institute, The Johns Hopkins University (Baltimore) Eunice Kennedy Shriver Center, University of Massachusetts Medical School (Waltham) Institute for Community Inclusion, University of Massachusetts Boston Children’s Hospital Boston MRDDRC, Harvard Medical School (Boston) Developmental Disabilities Institute, Wayne State University (Detroit) Institute on Community Integration, University of Minnesota (Minneapolis) Institute for Disability Studies, The University of Southern Mississippi (Hattiesburg) Institute for Human Development & TIPS for Kids, University of Missouri-Kansas City The University of Montana Rural Institute, The University of Montana (Missoula) Munroe-Meyer Institute for Genetics & Rehabilitation, University of Nebraska Medical Center (Omaha) Research and Educational Planning Center, University of Nevada, Reno Institute on Disability & Children’s Hospital at Dartmouth, University of New Hampshire (Durham) The Elizabeth M. Boggs Center on Developmental Disabilities, UMDNJ-Robert Wood Johnson Medical School (New Brunswick) Center for Development and Disability, The University of New Mexico (Albuquerque) No Images on Page 14 Page 15: Rose F. Kennedy Center, Albert Einstein University College of Medicine (Bronx) Strong Center for Developmental Disabilities, University of Rochester Medical Center Westchester Institute for Human Development, New York Medical College (Valhalla) Institute for Basic Research in Developmental Disabilities, New York State Office of Mental Retardation and Developmental Disabilities Clinical Center for the Study of Development and Learning & UNC Neurodevelopmental Disorders Research Center, University of North Carolina—Chapel Hill North Dakota Center for Persons with Disabilities, Minot State University (Minot) Cincinnati Children’s Division of Developmental and Behavioral Pediatrics, University of Cincinnati Nisonger Center, The Ohio State University (Columbus) Center for Interdisciplinary Learning and Leadership, University of Oklahoma Health Sciences Center (Oklahoma City) Oregon Institute on Disability & Development, Oregon Health & Science University (Portland) University of Oregon Center for Excellence in Developmental Disabilities, The University of Oregon (Eugene) Pacific Basin UCEDD: American Samoa site, American Samoa Community College (Pago Pago) & Commonwealth of the Northern Mariana Islands site, Northern Marianas College (Saipan) Children’s Seashore House of the Children’s Hospital of Philadelphia & Children’s Hospital of Philadelphia Mental Retardation and Developmental Disabilities Research Center, University of Pennsylvania School of Medicine (Philadelphia) Institute on Disabilities, Temple University (Philadelphia) The UCLID Center, University of Pittsburgh Institute on Developmental Disabilities, University of Puerto Rico (San Juan) Paul V. Sherlock Center on Disabilities, Rhode Island College (Providence) Center for Disability Resources, University of South Carolina School of Medicine (Columbia) Center for Disabilities, University of South Dakota School of Medicine (Sioux Falls) Boling Center for Developmental Disabilities, The University of Tennessee (Memphis) Vanderbilt Kennedy Center for Excellence in Developmental Disabilities, Mid-TN Interdisciplinary Instruction in Neurodevelopmental Disorders, & Vanderbilt Kennedy Center for Research on Human Development, Vanderbilt University (Nashville) Texas Center for Disability Studies, The University of Texas at Austin Center on Disability and Development, Texas A & M University (College Station) Mental Retardation and Developmental Disabilities Research Center, Baylor College of Medicine (Houston) University of Texas Health Science Center at Houston, University of Texas at Houston Center for Persons with Disabilities, Utah State University (Logan) Utah Regional Leadership Education in Neurodevelopmental Disabilities Program, University of Utah (Salt Lake) Center on Disability & Community Inclusion& Vermont Interdisciplinary Leadership Education for Health Professionals, The University of Vermont (Burlington) Partnership for People with Disabilities, Virginia Commonwealth University (Richmond) Virgin Islands University Center for Excellence in Developmental Disabilities, University of the Virgin Islands (St. Thomas) Center on Human Development & Disability, University of Washington (Seattle) Center for Excellence in Disabilities, West Virginia University (Morgantown) Waisman Center, University of Wisconsin—Madison Wyoming Institute for Disabilities, University of Wyoming (Laramie) AUCD International Affiliates Unit for Development in Intellectual Disabilities, University of Glamorgan (Pontypridd, Wales, UK) MISHAL– University Center on Disabilities for Education, Empowerment, and Research, University of Haifa (Mount Carmel, Haifa, Israel) Centre for Augmentative and Alternative Communication, University of Pretoria (Pretoria, South Africa) No Images on Page 15 Rear Cover/Page 16: AUCD 1010 Wayne Avenue, Suite 920 Silver Spring MD 20910 Phone: 301-588-8252 Fax: 301-588-2842 E-mail: aucdinfo@aucd.org www.aucd.org George S. Jesien, PhD Executive Director Acronyms AAIDD American Association on Intellectual and Developmental Disabilities ACF Administration for Children and Families ADA Americans with Disabilities Act ADD Administration on Developmental Disabilities AUCD Association of University Centers on Disabilities CCD Consortium for Citizens with Disabilities CDC Centers for Disease Control and Prevention CNCS Corporation for National Community Service DD Act The Developmental Disabilities Assistance and Bill of Rights Act of 2000 DDRC Developmental Disabilities Research Centers DDS Disability Determination Services ED US Department of Education ESPA Easter Seals Project ACTION FY2007 Fiscal Year 2007 (7/1/2006–6/30/2007) HHS US Department of Health and Human Services LEAH Leadership Education in Adolescent Health LEND Leadership Education in Neurodevelopmental and Related Disabilities MCHB Material and Child Health Bureau NCBDDD National Center on Birth Defects and Developmental Disabilities NICHD National Institute for Child Health and Human Development NIH National Institutes of Health NIRS National Information Reporting System NSIP National Service Inclusion Project PKU Phenylketonuria PMU Pediatric Medical Units PPC Pediatric Pulmonary Centers RTOI Research Topic of Interest SHCN Special Health Care Need SSA Social Security Administration UCEDD University Center for Excellence in Developmental Disabilities UCP United Cerebral Palsy US United States of America Rear Cover/ Page 16 Images: AUCD logo, photo of 2 adults in a meeting