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| Leadership Administrative Staff: | LEND Core Faculty, Family Discipline
Family Partners, Title V Contract Manager, Child Study Center, OUHSC |
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| Primary Activity Coordinators: |
Parent/Consumer |
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| Discipline Coordinators: |
Family Parent/Family Resources |
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| Specialty Resource Contacts: | Health Transition,
Family Support Family/Professional Partnerships |
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| Project/Program/Clinic Contacts: | Community Leadership
Family Leadership Consumer Advisory Council University Affiliated Developmental Disabilities Network (UADDN) |
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| Discipline(s): | Family Discipline | ||||||||||||||||
| AUCD Council Membership: |
Council on Community Advocacy |
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| Research: | Community Capacity Building for Children, Youth and Individuals with Disabilities and their Families; Family Supportive Health Care, Comprehensive, Coordinated Services for families; National Family Faculty Programs; Personal Preference Indicators Research Project
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Vita/Bio
Position; Director of Community Leadership and Advocacy
Professional Experience and Appointments Summary
1. University Center for Excellence: Core Family Faculty, OK LEND, Co-Teach OU College of Nursing Course, "Human Experience of Disability"; Contract Mgr. OUHCS/DDHS/MCH Title V Family Partners Project
2. Keynote Speaker, Presenter: Summary * Estimated 90 Keynotes/Presentations in 22 states and Canada from to 2010: Humor As a Coping Mechanism, Preference Indicators, Health Transition, Employment Support Indicators, Working with Families, Caregiver Supports, Inclusion, Early Intervention, Families as Leaders, Families as Advocates
3. Chair, Oklahoma Family Leadership Council, Family Supportive Health Care Network
4. Senate Finance Committee witness, testimony on behalf of "Lifespan Respite Care Act" 2004
5. Parent Training and Information Project: Parent Training and Counseling, Education
6. Parent and Family Support Group Organizer - Volunteer and Speakers Board Organizer
Publications: Promising Practices in Family Mentorship, Introduction-Family Centered Health Care, Journal of Family Social Work (Co-author w/LEND Family Discipline Workgroup), Primary Author: Child/Personal Preference Indicators, Employment Support Indicators, 3 articles Blood and Thunder, Medicine and Literature. Anthology, 2004 Senate Finance Committee Testimony, Congressional Record, "Family Expertise" UCE 2000; "Learning the Ability Words," beyond diagnosis, Exceptional Parent Magazine, June 1995, National Education Award letter.
