Position:

Director, Leadership Education in Neurodevelopmental and Related Disabilities (LEND)

Director of Interdisciplinary Training, Institute for Community Inclusion (UCEDD), Children's Hospital Boston, and University of Massachusetts Boston

Professional Employment

1979-1983 Senior Research Fellow, Boston Univ., National Institute of Mental Health, Community-Based Training Prog., Boston, MA

1983-1985 Research Coordinator, Rehab. & Family Adjustment for Handicapped Children, Weston, MA

1986-1990 Director, Center for Occupational Awareness & Placement (COAP), Merrimack Special Ed.Collaborative, Chelmsford, MA

1990- Present Director of Interdisciplinary Training, Institute for Community Inclusion, UCEDD, Children's Hospital Boston Univ. Massachusetts Boston

Professional Affiliations

1991- Present Adjunct Associate Professor in Behavioral Sciences, Bentley College, Waltham, MA

1995- Present Adjunct Lecturer in Maternal & Child Health, Harvard School of Public Health, Boston, MA

Selected Funding:

1990- Present LEND Program, US Dept HHS, Maternal & Child Health Bureau,                           Director (since 2009)

1990-present ADD/UCEDD core, US DHHS, Administration on Developmental Disabilities, Interdisciplinary Training Director

1991-1992 Center for Disease Control/Association for Retarded Citizens of the United States Co-PI Stopping AIDS Through Functional Education

1992-1993 Maternal & Child Health Bureau, SPRANS Co-PI Curriculum Guide: Primary Health Care to Early Intervention

1996-1997 The Deborah Munroe Noonan Memorial Fund Co-PI, Learning Together: A Parent/Professional Training Project

1999-2003 US Dept. of Education, OSERS, Leadership Personnel Prep., Project Coordinator

Selected Teaching:

1990- Present MCH-LEND Interdisciplinary CORE Curriculum:accredited at: Boston College, Boston Univ., Brandeis Univ., Emerson College, Harvard Sch of Public Health, Simmons College

1991 - 2010 Bentley University, Department of Sociology, Waltham, MA

1991- 2001  Harvard Medical School - Patient-Doctor I (preceptor)

1991- 2007  Harvard School of Public Health, Dept. of Maternal & Child Health Services for Children with Disabilities (co-teach)

Selective Publications

Hagner DC, Helm DT. Qualitative methods for rehabilitation research. Rehabilitation Counseling Bulletin 1994;37(4):290-303.

Hagner DC, Helm DT, Butterworth J. This is your meeting: A qualitative study of person-centered planning. Mental Retardation 1996;34(3):159-171.

Helm DT, Shishmanian E. Information physicians need about early intervention. Children's Health Care 1997; 26(4):255-264.

Helm DT, Kiernan WE, Miranda S. Employment opportunities: Creative approaches. In: Pueschel, SM., ed. Adolescents with Down syndrome. Baltimore, MD: Paul H. Brookes Publishing Co. 1997:267-283.

Helm DT, Miranda S, Chedd NA. Prenatal diagnosis of Down syndrome: Mothers' reflections on supports needed from diagnosis to birth. Mental Retardation 1998;36(1):55-61.

Friedman S, Helm DT, Marrone J. Caring, control & clinicians' influence: Ethical dilemmas in developmental disabilities. Ethics & Behavior 1999;9(4):349-364.

Butterworth J, Hagner DC, Helm DT, Whelley TA. Workplace culture, social interactions, and supports for transition-age young adults. Mental Retardation, 2000; 38 (4): 342-353.

Helm, DT. The measurement of happiness. American Journal on Mental Retardation, 2000; 105 (5): 32-335

Friedman S, Helm DT, Marrone J. Ethical dilemmas in developmental disabilities. Directions in Rehabilitation Counseling, 2003: 14 (6): 57-69.

Berman L, Freeman L, Helm DT. People and programs. In: Rubin IL & Crocker AC (Eds). Developmental Disabilities: Delivery of Medical Care for Children and Adults (2nd ed.). Baltimore, MD: Paul H. Brookes Publishing Co, 2006.

Friedman SL & Helm DT. End-of-Life Care for Children and Adults with Intellectual and Developmental Disabilities. Washington, DC: AAIDD. 2010.