Conference Header
addthis
Conference Header

AUCD: Welcome Reception and Poster Session: Cross-System Engagement to Improve Newborn Screening in Wisconsin Plain Communities

Download

pdf File aucd 2014 Asm.pdf [download]

Presenter

Anne B Harris, PhD, WI LEND Director
Waisman Center, UCEDD/LEND

Other Presenter(s)

Meghan Grow, WI LEND, Genetics Counseling Program, Madison, WI, United States, WI - Waisman Center, UCEDD/LEND;
Shelby Sieren, WI LEND, Genetics Counseling Program, Madison, WI, United States, WI - Waisman Center, UCEDD/LEND;
Christine Seroogy, MD, UW-Madison, Pediatrics, Madison, WI, United States;
Greg Rice, MD, UW-Madision, Pediatrics, Madison, WI, United States, WI - Waisman Center, UCEDD/LEND;
Sharon Fleischfresser, MD, Wisconsin State Dept of Heatlh Services, CYSHCN Program, Madison, WI, United States;
Gretchen Spicer, UW-Madison, State Lab of Hygiene, Madison, WI, United States;
Kristi Jones, MPH, Genetics Systems Integration Hub, Madison, WI, United States, WI - Waisman Center, UCEDD/LEND;


Description

Demonstrating a high level of cross-system collaboration between a community advisory board, state public health programs, LEND trainees, faculty and clinician/researchers, the "Amish Project" and a Genetic Alliance "Impact Award" are working together to increase the number of children who receive newborn screening in rural Plain communities in Wisconsin. Cross-system strategies related to providing education and outreach, and research utilizing community surveys, will be presented.

Back to Session: Welcome Reception and Poster Session