AUCD: Welcome Reception and Poster Session: Empowering Individuals and Their Families as Advocates
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AdvocacyATLAS EmpoweringAdvocates.pptx [download] |
Presenter
Sharon Romelczyk, MPA, Program ManagerGenetic Alliance
Other Presenter(s)
James O'Leary, MBA, Genetic Alliance, Washington, DC, United States;Kathy Brill, MEd, MPS, Parent to Parent USA, Washington, DC, United States;
Beverly Baker, National Center for Family Professional Partnerships (NCFPP) Family Voices, Inc., Albuquerque, NM, United States;
Description
Every day individuals advocate on behalf of themselves or others to communicate needs, share experiences, and take steps to get what they want and need. The online Advocacy Toolkit created by Genetic Alliance, Parent to Parent USA, and Family Voices provides individuals with genetic conditions and their families tools and strategies to advocate to get what they need. Personal stories are included to illustrate positive examples of successful advocacy.Back to Session: Welcome Reception and Poster Session