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AUCD - Poster Symposium: Emerging Strategies in Developmental Disabilities Services and Supports

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Monday, December 5, 2016 4:40 pm - 5:40 pm

Location: Grand Ballroom North Salon

Session Description

 

AUCD poster symposia seek to deepen levels of engagement and connection between those interested in common topics. Posters have been hand-selected by a review committee and grouped by room around common themes. Facilitators will open each poster symposia with broad thoughts about the room's theme followed by a brief 2-3 minute presentation by each poster presenter, approximately 15 per room. Attendees will then have time for more in-depth exploration of the information presented and make connections with others in the room. Attendees are attend to select one symposia to attend during each time slot as space allows; pre-registration is not required.




Presenters

Parent Autism Support Service (PASS): Answering Questions, Providing Support
Amy Carlsen, RN, LEND Family Discipline Faculty, Center on Human Development & Disability, UCEDD/LEND
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The Parent Autism Support Service (PASS) at the University of Washington LEND supports parents in the early months after a diagnosis of autism. Trained parents provide phone and/or email follow-up after the diagnosis to ensure parents can access supports and services necessary to promote optimal family functioning. The PASS Program is a unique model of care coordination bridging medical professionals, school systems, and community supports.


Mentoring Future Leaders: Can We Do Better?
Sandy Heimerl, DPT, NM LEND Director, Center for Development & Disability, UCEDD/LEND
Judith Holt, PhD, Logan, UT, United States, UT - Center for Persons with Disabilities, UCEDD/LEND;
Eileen McGrath, PhD, Tucson, AZ, United States, AZ - The University of Arizona, LEND;
Debra Vigil, PhD, Reno, NV, United States, NV - Nevada Center for Excellence in Disabilities, UCEDD/LEND;

Mentoring is a developmental partnership through which one person shares knowledge, skills, information and perspectives to foster the personal and professional growth of someone else. Mentoring is a MCH Leadership Competency and a means of developing leadership. The PacWest LEND programs have identified key features of the mentoring relationship, challenges of implementing a mentorship program, and promising strategies to strengthen the structure and implementation of the process.

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Building Leaders: What do the Data and Experience say about Leadership Development for Self-Advocates and Families?
Celia Feinstein, MA, Executive Director, Institute on Disabilities, UCEDD
Kathy Miller, MSW, Philadelphia, PA, United States, PA - Institute on Disabilities, UCEDD;
Sally Gould-Taylor, PhD, Philadelphia, PA, United States, PR - Institute on Developmental Disabilities, UCEDD;
Sara Wolff, Reading , PA;

Quantitative and qualitative data will be presented about the transformation of self-advocate and family member graduates from the Competence and Confidence: Partners in Policymaking (C2P2) program. Data will highlight the development of single issue advocates to informed leaders who advocate on behalf of a broad array of disability issues in the local,state and national arena.

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Parent and Family Mentoring: Tailoring Supports to Empower Diverse Families Colorado, Wyoming and Connecticut
Eric Moody, PhD, Asst Prof, JFK Partners/University of Colorado Health Sciences Center, UCEDD/LEND
Canyon Hardesty, MA, Laramie, WY, United States, WY - Wyoming Institute for Disabilities, UCEDD;
Jeanette Cordova, BA, El Grupo VIDA, Denver, CO, United States;
Mary Beth Bruder, PhD, Farmington, CT, United States, SC - Center for Disability Resources, UCEDD/LEND;

Within a historical context of family support in the nation, this session will provide specific information about the evolution of Parent to Parent support models with the UCEDD network, how technology can be used to leverage resources to provide family support, how several states are adapting a contemporary parent to parent support model in three different geographically and culturally diverse groups of families and communities.


An Innovative Approach to Interprofessional Training Through a Medical-Legal Partnership
Maureen vanStone, JD, MS, Associate Director, Kennedy Krieger Institute, UCEDD/LEND
Yu-Hsuan Lai, B.A., MS, Baltimore, MD, United States, MD - Kennedy Krieger Institute, UCEDD/LEND;
Jacqueline Stone, PhD, PT, Baltimore, MD, United States, MD - Kennedy Krieger Institute, UCEDD/LEND;
Christopher L. Smith, PhD, Director, MCDD, MD, United States, MD - Kennedy Krieger Institute, UCEDD/LEND;

The Project HEAL (Health, Education, Advocacy, and Law) pre-service training program at the Maryland Center for Developmental Disabilities provides an experiential and instructional program aimed at fostering future interdisciplinary professionals to integrate disability-related services and special education advocacy, law, and policy into their future practice. This poster highlights our unique curriculum and the diversity of trainees that have participated in our pre-service training program and the work they have accomplished.

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Siblings of People with Disabilities: Developing Leaders and Ambassadors
Katie Arnold, MS, Executive Director, Sibling Leadership Network, Institute on Disability & Human Development, UCEDD/LEND
Celia Feinstein, MA, Philadelphia, PA, United States, PA - Institute on Disabilities, UCEDD;
Kathy Miller, Philadelphia, PA, United States, PA - Children's Hospital of Philadelphia, University of Pennsylvania - IDDRC;
Meghan Burke, PhD, University of Illinois-Urbana Champaign, Champaign, IL, United States;

The Sibling Ambassadors Program is a new leadership training program developed for adult siblings of people with disabilities to build the sibling network in states and become SibAmbassadors in their region. This is a program model that has been piloted in Pennsylvania and can be implemented in other states to increase sibling engagement, advocacy and leadership.

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Overcoming Educational and Health Disparities for African American Children with Autism: How Parent Resource Coordinators Connect Families to Services
Rachel Ray, M.A., Parent Resource Coordinator/ UCEDD Associate, Munroe-Meyer Institute of Genetics & Rehabilitation, UCEDD/LEND
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African American children diagnosed with autism often have lower educational and health outcomes than white children. A Parent Resource Coordinator outlines her efforts to help decrease the suspension and out-of-home placement rates for African American children with autism and increase their access to state and local resources and supports for improved educational and health outcomes.

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Creating Advocates for Livable Communities: Across Ages, Across Abilities
Jennie Todd, Research Associate, Indiana Institute on Disability and Community, UCEDD
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Age-friendly community advocacy is moving toward a lifespan perspective, yet there are few examples of how to effectively engage residents of other ages and abilities as livability advocates. This session reports on a five-day training program for older adults and persons with disabilities, designed to produce a corps of effective advocates for lifelong/livable communities. A training overview with results from trainees in six communities will be shared.

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Building Our Future Together Through Family Navigation: A Pilot Program
Elizabeth Trenkamp, Family Navigator, University of Cincinnati UCE, UCEDD/LEND
Steph Weber, PsyD, Cincinnati, OH, United States;
Jen Smith, PsyD, Cincinnati, OH, United States;
Janet Seide, MS, Cincinnati, OH, United States;
Lisa Knapp, DNP, Cincinnati, OH, United States;

The Family Navigation pilot program at Cincinnati Children's Hospital Medical Center has been developed to provide families of children recently diagnosed with a developmental concern with support and guidance on the various (and often challenging) systems and services recommended for the child. Former LEND trainees in the family discipline serve as Family Navigators. Information on program development and outcome data from participating caregivers will be available.

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Launching Tomorrow's Leaders: Developing a Summer Internship to Prepare the Next Generation of Disability Professionals
Lindsay Sauve, MPH, , Oregon Institute on Development & Disability, UCEDD/LEND
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Every summer for over a decade, the UCEDD at Oregon Health & Science University in Portland, OR has been providing opportunities for high school and early college students with and without disabilities to learn about career opportunities in the health and disability fields and build new skills. This presentation will discuss our experience reinvigorating the program and our methods for developing outcomes and measures for this unique educational program.

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Snack Time Intervention for Preschoolers with Autism Spectrum Disorder: Fun and Function
Karen Harpster, PhD, OTR/L, Occupational Therapist, University of Cincinnati UCE, UCEDD/LEND
Kara Brown, PsyM, Cincinnati, OH, United States, OH - University of Cincinnati UCE, UCEDD/LEND;
Karen Burkett, PhD, RN, PPCNP, -BC, Cincinnati, OH, United States, OH - University of Cincinnati UCE, UCEDD/LEND;
Lindsey Stanek, DPT,, Cincinnati, OH, United States, OH - University of Cincinnati UCE, UCEDD/LEND;
Dawn Van Rafelghem, RN,FNP-C, Cincinnati, OH, United States, OH - University of Cincinnati UCE, UCEDD/LEND;
Anthony Foster, Cincinnati, OH, United States, OH - University of Cincinnati UCE, UCEDD/LEND;

Children with Autism Spectrum Disorder (ASD) are often selective eaters. This study describes a group-based, snack time intervention implemented with children with ASD aged 3-6 years and their caregivers. Overall, there was an increase in the food accepted both at snack time and at home. Parents reported shared concern for their child's health and nutrition, fear of not eating enough, with anxiousness and hope for change.


LEND Never Ends: Strategies for Ongoing Engagement of LEND Graduates in a Statewide Leadership Network
Erika Ryst, MD, Medical Director, Nevada Center for Excellence in Disabilities, UCEDD/LEND
Stephen Rock, PhD, Reno, NV, United States, NV - Nevada Center for Excellence in Disabilities, UCEDD/LEND;

Graduates of LEND programs represent a powerful leadership resource for maternal and child health. To maximize the multiplicative force of networks of LEND graduates, the Nevada LEND has implemented strategies to engage graduates in an ongoing relationship with LEND. This presentation will review the results of a survey of recent NvLEND graduates which inspired the NvLEND UnConference, an innovative format for enhancing the networking of LEND graduates.

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Text 2 B Ready: A Novel Way for People with Disabilities to Create an Emergency Preparedness Plan and Go-kit
Phyllis Guinivan, Ph.D., Program Manager, Center for Disabilities Studies, UCEDD/LEND
Rochelle Brittingham, Ph.D., Newark, DE, United States;
Eileen Sparling, Ed.M., Newark, DE, United States;

Text 2 B Ready is designed to help people with disabilities and chronic conditions prepare for emergencies with text messages. Information about developing a personal emergency preparedness plan and go-kit is broken down into manageable segments which are shared with participants via weekly text messages. Participants who follow the prompts will successfully complete a basic emergency preparedness plan and go-kit over an eight-week period.

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