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AUCD - Concurrent Sessions

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Tuesday, December 6, 2016 1:30 PM - 2:45 PM

Session Description

The AUCD Conference features over 55 concurrent sessions over four time slots for attendees to learn, share, and network on a variety of topics around disability. Concurrent sessions all last 75 minutes; a session might be one or more presenters leading an interactive discussion or exertise or a panel of several thematically linked presentations with a moderator. Concurrent session presentations will be listed below once the lineup has been determined.




Presenters

Building Clinical Capacity about ASD and other Neurodevelopmental Disabilities among Rural Providers
Ben Test1, MSW, Sr. Manager, MCH Technical Assistance, Carolina Institute for Developmental Disabilities, UCEDD/LEND
Kruti Acharya, MD, Chicago, IL, United States, IL - Institute on Disability & Human Development, UCEDD/LEND;
Ann Cutler, MD, FAAP, Chicago, IL, United States, IL - Institute on Disability & Human Development, UCEDD/LEND;
Sandra Friedman, MD, MPH, Aurora, CO, United States, CO - JFK Partners/University of Colorado Health Sciences Center, UCEDD/LEND;
Susan Hepburn, PhD, Fort Collins, CO, United States, CO - University of Colorado/Children's Hospital Colorado, DBP;

Two interdisciplinary training programs will share how they leveraged minimal funding and targeted technical assistance to develop and/or to improve models for training medical professionals in rural and underserved communities about neurodevelopmental and related disabilities, including Autism Spectrum Disorder (ASD). Program faculty will outline the goals of their projects; share details regarding their processes, including barriers encountered, promising practices and, lessons learned; and report on early outcomes.

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Opportunities for UCEDDs/LENDs in Health Care Transformation
Theodore Kastner, MD, MS, Director, Rose F. Kennedy Center, UCEDD/LEND
Bob Bacon, MA, Iowa City, IA, United States, IA - Center for Disabilities and Development, UCEDD/LEND;
Daniel Armstrong, PhD, Miami, FL, United States, FL - Mailman Center for Child Development, UCEDD/LEND;

Health care transformation will create a new health and long-term care delivery model which will focus on care management, primary care, the integration of acute and long-term services/supports, and value-based contracting. This panel will discuss opportunities for UCEDDs and LENDs to identify service, training, research and system change/advocacy opportunities associated with this process.

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The role of Developmental Disabilities Network Partners to support employment systems change in the Partnerships in Employment Project
Karen Flippo, MRA, Rehabilitation Administration, Program Director, Institute for Community Inclusion/Boston Children's Hospital, UCEDD/LEND
John Butterworth, PhD, Boston, MA, United States, MA - Institute for Community Inclusion/Boston Children's Hospital, UCEDD/LEND;
Olivia Raynor, PhD, Los Angles, CA, United States, CA - Tarjan Center UCLA, UCEDD;
Elise McMillan, JD, Nashville, TN, United States, TN - Vanderbilt University, UCEDD/LEND;

The Institute for Community Inclusion (ICI)-University of Massachusetts, Boston and Developmental Disabilities (DD) Networks in California and Tennessee will discuss outcomes of the Partnerships in Employment Systems Change projects. The session will focus on three elements from the Higher Performing States model: values, leadership, and interagency collaboration; and highlight the role of the DD Networks in California and Tennessee to create backbone consortia to scale up these elements.


Reaching People with Disabilities through Promoting Inclusive Healthy Communities
Shannon Griffin Blake, PhD, MA, Branch Chief, Disability and Health, CDC
Karma Edwards, MSPH, National Association of Chronic Disease Directors (NACDD) , Jacksonville, FL, United States;
Jennie Hefelfinger, MS, National Association of Chronic Disease Directors (NACDD) , Tallahassee, FL;
Amy Rauworth, MS, National Center on Health, Physical Activity, and Disability (NCHPAD), Birmingham, AL;
Kerri Vanderbom, PhD, National Center on Health, Physical Activity, and Disability (NCHPAD), Birmingham, AL;
Yochai Eisenberg, MUPP, University of Illinois at Chicago, Chicago, IL;

Collaborators from the Centers for Disease Control and Prevention, National Association of Chronic Disease Directors, and National Center on Health, Physical Activity, and Disability will describe their efforts in five states and 10 communities to achieve disability inclusion policy, systems, and environmental improvements. This will involve sharing examples of ways to increase access to healthier eating and physical activity and prevent tobacco use/exposure for people living with disabilities.


Family Support: Research, Policy and Practice
Katie Arnold, MS, Director of Community Education, Institute on Disability & Human Development, UCEDD/LEND
Sandy Magana, PhD, Chicago, IL, United States, IL - Institute on Disability & Human Development, UCEDD/LEND;
Tamar Heller, PhD, Chicago, IL, United States, IL - Institute on Disability & Human Development, UCEDD/LEND;
Randall Owen, PhD, Chicago, IL, United States, IL - Institute on Disability & Human Development, UCEDD/LEND;
Robin Shaffert & Jenny Sladen, JD, The Arc, Washington, DC, United States;
Susan Parish & Rajan Sonik, PhD & JD, Lurie Institute for Disability Policy at Brandeis University, Boston, MA, United States;

This panel presentation represents work from the NIDDILRR funded Family Support Research and Training Center aimed at research, policy and practice on family support. The FSRTC is national in scope and involves collaborators from multiple sites. We will present four projects of FSRTC that range from information gathering to empirical research that will inform researchers, policy makers and providers about the needs of family members.


Teaching Disability Studies: Innovative Pedagogical Approaches
Laura Eisenman, , Center for Disabilities Studies, UCEDD/LEND
Elaine Eisenbaum, PhD, Newark, DE, United States, DE - Center for Disabilities Studies, UCEDD/LEND;
Matthew Wangeman, Flagstaff, AZ, United States, AZ - Institute for Human Development, UCEDD;
Stephen Gilson, Orono, ME, United States, ME - The University of Maine, Center for Community Inclusion, UCEDD;
Elizabeth Depoy, Orono, ME, United States, ME - The University of Maine, Center for Community Inclusion, UCEDD;

This panel presentation highlights innovative teaching strategies occurring within disability studies programs and courses across the AUCD network. Topics include: co-teachers with intellectual disabilities serving as mentors to undergraduates, learning experiences afforded students by having an instructor who uses a letter board with a re-voicer, 3D printing to stimulate innovative design of adaptive devices, fully accessible distance education, and collaborative projects with community members.


Respite: An upstream approach to keeping individuals in their homes and supporting family caregivers
sarah Swanson, BS Ed., CPH, , Munroe-Meyer Institute of Genetics & Rehabilitation, UCEDD/LEND
Sharon Johnson, BS Social Work and Criminal Justice, NE Department of Health and Human Services Respite Program, Lincoln, NE, United States;
Jolene Johnson, ED. D., Omaha, NE, United States, NE - Munroe-Meyer Institute of Genetics & Rehabilitation, UCEDD/LEND;
Kim Falk, BA , Omaha, NE, United States, NE - Munroe-Meyer Institute of Genetics & Rehabilitation, UCEDD/LEND;

Family caregivers are the backbone of our long-term services and supports system (LTSS). In this session, you will learn how the state of Nebraska has multiple projects collaborating to transform the Respite systems in the state. This includes evaluating Respite within multiple programs and engaging with the business community to bring attention to their role in supporting family caregivers and keeping them in the workplace.


Changing How We Think About Transition
Tony Antosh, Ed.D., Director, The Paul V. Sherlock Center on Disabilities, UCEDD
^
Stimulated by a Consent Decree to increase access to employment and integrated community activity, the RI UCEDD is leading thirty school districts through a process of changing how they implement transition. Districts are focused on helping families develop long term vision, teaching self-determination and increasing district capacity to provide career development experiences. First year data documents the efficacy of the model and changing approaches to transition.


Including People with Disabilities (PWD) in LEND Training
Emily Graybill, PhD, Clinical Assistant Professor, Center for Leadership in Disability at Georgia State University, UCEDD/LEND
Mark Crenshaw, MTS, Atlanta, GA, GA - Center for Leadership in Disability at Georgia State University, UCEDD/LEND;
Prisca Franklin, BA, Houston, TX, United States, TX - LoneStar, LEND;
Beth Ellen Davis, MD, Seattle, WA, United States, WA - Center on Human Development & Disability, UCEDD/LEND;
Ivanova Smith, BA, Seattle, WA, United States, WA - Center on Human Development & Disability, UCEDD/LEND;
Sarah, DeMaio, Silver Spring, MD, MD - The Association of University Centers on Disabilities -;
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It is critically important to include self-advocates (i.e., PWD committed to disability advocacy) in training to ensure issues important to advocates are being addressed, to provide interdisciplinary training to advocates, and to offer post-secondary educational options to advocate leaders. In this session, LEND programs will share strategies for recruiting, supporting and educating PWD and describe the process of aligning a LEND curriculum with universal design for learning (UDL) for optimal outcomes.

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Employment First, WIOA, & Entrepeneurship: Ways Disability Employment Works
David Hoff, M.S.W., Project Director
^|Leanne Giordono, MPA, Corvallis, OR;
Kate Caldwell, PhD, Chicago, IL, IL - Institute on Disability & Human Development, UCEDD/LEND
People with disabilities want and deserve employment that is satisfying, respectful, and equally-paid. In this presentation, hear about (1) the new transition opportunities and restructions on the use of sub-minimum wage under the Workforce Innovation and Opportunity Act (WIOA); (2) a systematic exploration of state-level Employment First policy design using the Institutional Grammar Tool developed by Crawford and Ostrom (1995); and (3) the intersection of entrepreneurship and disability policy, particularly looking at how individuals are navigating service systems.

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Improving Health Access for People with Disabilities
Melissa Pennise, MPH, , Strong Center for Developmental Disabilities, UCEDD/LEND
Laura VanPuymbrouck &Jerret Wolske, Chicago, IL, United States, IL - Institute on Disability & Human Development, UCEDD/LEND;
Sharon Lamp &Susan Magasi, Chicago, IL, IL - Institute on Disability & Human Development, UCEDD/LEND;
Erica Coleman, MS, Cincinnati, OH, United States, OH - University of Cincinnati UCE, UCEDD/LEND;
Julie Christensen, Iowa City, IA, United States, IA - Center for Disabilities and Development, UCEDD/LEND;

Significant barriers exist accessing quality health services for people with disabilities, placing them at risk for disparities in health outcomes. This session describes two efforts to remediate these barriers: a novel peer-provider intervention that promotes capacity of people with newly acquired physical disabilities to navigate barriers to healthcare access, and a collaboration of health and employment programs at two UCEDDs to deliver and evaluate an existing 12-week health curriculum.


How Data Improves Quality: Using the National Core Indicators
Celia Feinstein, MA, Executive Director, Institute on Disabilities, UCEDD
^|Dorothy Hiersteiner, MPP, Human Services Research Institute, Cambridge, MA
Data analysis is core to the evaluation of an issue or intervention, and the National Core Indicators provides a wealth of data to examine. This presentation shares the results of two such analyses: results from the 2015 National Core Indicators Staff Stability Survey, designed to assist states to collect data on the DSP workforce such as turnover, wages and benefits, and results of looking at over 90,000 individuals with intellectual disabilities and 30,000 families in the areas of employment and life sharing.


The Role and Benefits of Using Cultural Brokers
Paula Sotnik, BA, Senior Research Associate , Institute for Community Inclusion/Boston Children's Hospital, UCEDD/LEND
^|Oanh Bui, MA, Federation for Children with Special Needs, Boston, MA, MA - Institute for Community Inclusion/Boston Children's Hospital, UCEDD/LEND;
Maria Avila, PhD, Burlington, VT, VT - Vermont Leadership Education in Neurodevelopmental Disabilities, LEND
Although parents and families from diverse communities serve in the role of "culture broker," learning about mainstream supports and serving as intermediaries between their cultures and that of our systems, there has been little accomplished to assist families in this area. In this session, participants will learn about the parent and family cultural brokering model, how it might benefit their respective constituents, and ways to effectively implement the program with diverse communities. Vermont's adaptation of the Screening Brief Intervention and Referral to Treatment (SBIRT) program will be described as an example of how the cultural brokering model can successfully serve former refugee and immigrant populations.


Inclusive Evaluation and Population Health: Two data models
Stephen Sulkes, MD, UCEDD/LEND Director, Strong Center for Developmental Disabilities, UCEDD/LEND
^|Sally Gould-Taylor, PhD, Philadelphia, PA, PA - Institute on Disabilities, UCEDD
This session will discuss and demonstrate innovative approaches to accessing population health data for individuals with Intellectual and Developmental Disabilities. The process of developing an evaluation protocol to carry out the Comprehensive Statewide Needs Assessment on behalf of the Pennsylvania Office of Vocational Rehabilitation will be described, and attendees will hear how we used a mixed methods data collection strategies that include and highlight the employment experiences of individuals with disabilities, employers, workforce professionals and other stakeholders.


From Adversaries to Partners: Bridging Divides within the Disability Community
Kara Ayers, PhD, Associate Director, University of Cincinnati UCE, UCEDD/LEND
Ann Cameron Williams, ao Strategies, Palatine, IL, United States;
Liz Weintraub, AUCD, Washington, DC, United States;
Bill Gaventa, MDiv, National Collaborative on Faith and Disability, Woodway, TX;
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In recent years, there has been a crescendo of criticism of the disability community by the disability community. An 'us-versus-them' mentality divides parents, advocates, professionals, and individuals with varying levels of disability. This session will explore difficult but essential conversations to promote a paradigm of collaboration. How do we develop models for listening and dialogue in which all voices are heard and respected on core issues of individual and family needs, professional and family roles, the meaning of community, and long term supports? How can those conversations may become easier for parents, professionals and self-advocates alike? Evidenced-based strategies to negotiate will be paired with case studies of successfully bridging divides.