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AUCD - Poster Symposium: Diagnostic and Clinical Services

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Monday, December 5, 2016 3:20 PM - 4:20 PM

Location: Grand Ballroom North Salon

Session Description

 

AUCD poster symposia seek to deepen levels of engagement and connection between those interested in common topics. Posters have been hand-selected by a review committee and grouped by room around common themes. Facilitators will open each poster symposia with broad thoughts about the room's theme followed by a brief 2-3 minute presentation by each poster presenter, approximately 15 per room. Attendees will then have time for more in-depth exploration of the information presented and make connections with others in the room. Attendees are attend to select one symposia to attend during each time slot as space allows; pre-registration is not required.




Presenters

Evaluation of Pragmatics in Interdisciplinary Diagnostics Clinics
Paula Rabidoux, PhD/CCC-SLP, LEND CO Director, The Nisonger Center, UCEDD/LEND
Karen Ratliff-Schaub, MD, Columbus, OH, United States, OH - The Nisonger Center, UCEDD/LEND;
Andrea Witwer, PhD, Columbus, OH, United States, OH - The Nisonger Center, UCEDD/LEND;

This poster will present a system for collecting and interpreting socially valid data on language pragmatics in interdisciplinary diagnostic clinics for children age 1 - 22.

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Age of diagnosis of Autism in an ethnically diverse population before and after the 2007 AAP recommendation for universal screening
Maria Valicenti-McDermott, MD MS, Assistant Professor Pediatrics/CERC, Rose F. Kennedy Center, UCEDD/LEND
Maria Valicenti-McDermott, MD MS, Bronx, NY, United States, NY - Rose F. Kennedy Center, UCEDD/LEND;
Rosa Seijo, MD, Bronx, NY, United States, NY - Rose F. Kennedy Center, UCEDD/LEND;
Lisa Shulman, MD, Bronx, NY, United States, NY - Rose F. Kennedy Center, UCEDD/LEND;

Children with Autism Spectrum Disorder (ASD) benefit from early diagnosis and intervention services. We examined the age at diagnosis of ASD in all children diagnosed from 2003 to 2012 at a University Affiliated inner-city Center (N=512). Results showed that the age of ASD diagnosis has decreased in all ethnic groups. The effect of the 2007 American Academy of Pediatrics recommendation for universal screening for ASD was examined


Readiness to Serve: The feasibility of a survey of health care providers who seek to serve clients/patients with Autism/ASD.
Deborah A. Pearson, PhD, Professor, Division of CHild and Adolescent Psychi, The University of Texas Health Science Center at Houston
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Healthcare organizations provide a range of services to individuals with Autism/Autism Spectrum Disorder (ASD) but these clinical settings may be lacking guidelines and training to provide care to clients/patients with Autism/ASD. The service providers may?not aware of the unique behavioral needs of this population. This project determines the feasibility of conducting a "readiness to serve" survey on our campus and the willingness of service providers to pursue training.


Diagnostic Disparities and Functional Challenges of African American Preschoolers with Autism Spectrum Disorder
Douglene Jackson, PhD, OTR/L, LMT, Occupational Therapist , Mailman Center for Child Development, UCEDD/LEND
Douglene Jackson, PhD, Miami, FL, United States;

Children of minority backgrounds receive their diagnoses of Autism Spectrum Disorder (ASD) late. Mixed methodology was used to study diagnostic and functional challenges of African American preschoolers with ASD. In addressing the intersection of minority status and disabilities, results of the study are presented along with considerations for advocacy, assessment, intervention, and professional practice to promote social change.

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The Effect of Music-Based Intervention on Social Skills in Children with Autism
Holly Timberline, MSOT (Dec 2016), Ms., Partnership for People with Disabilities, UCEDD/LEND
Tracy White, MA, BSN, RN , Richmond, VA, United States, VA - Partnership for People with Disabilities, UCEDD/LEND;

Music activities have been shown to support prosocial behaviors, such as empathy, altruism and group participation, in typically-developing children. Those same social skills are often weak in children with Autism Spectrum Disorder (ASD). Emerging evidence supports the use of music-based intervention to help children with ASD develop these and other key social skills.

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Child Welfare Caseworkers' Understanding of Children with Developmental Disabilities
Trupti Rao, Psy.D., , Westchester Institute for Human Development, UCEDD/LEND
Beth Reiman, Ph.D., Valhalla, NY, United States, NY - Westchester Institute for Human Development, UCEDD/LEND;
Caitlin Reynolds, Ph.D., Valhalla, NY, United States, NY - Westchester Institute for Human Development, UCEDD/LEND;
Alexis Short, BS, Valhalla, NY, United States, NY - Westchester Institute for Human Development, UCEDD/LEND;
Shruti Tiwari, MPH, Valhalla, NY, United States, NY - Westchester Institute for Human Development, UCEDD/LEND;
Dadgrain Taylor, Valhalla, NY, United States, NY - Westchester Institute for Human Development, UCEDD/LEND;
Suvina To, BS, Valhalla, NY, United States, NY - Westchester Institute for Human Development, UCEDD/LEND;

A significant percentage of children with developmental disabilities are in foster care, yet caseworkers receive minimal formal training and support around understanding their needs. An electronic survey was utilized to assess the knowledge, experience, and comfort level between Westchester County foster care and therapeutic foster care caseworkers in working with these children. Information will be used to identify training and resources caseworkers need to adequately serve children with developmental disabilities.


Improving Developmental Screening & Surveillance: Arizona LEND Models for Technical Assistance
Jennifer Andrews, PhD, Research Coordinator, The University of Arizona, LEND
Sydney Rice, MD, Tucson, AZ, United States, AZ - The University of Arizona, LEND;
Eileen R. McGrath, PhD, Tucson, AZ, United States, AZ - The University of Arizona, LEND;

The Arizona LEND (ArizonaLEND) Developmental Screening Technical Assistance Program has developed several training models to assist physicians and staff providing healthcare to pediatric populations in rural, border and underserved communities throughout Arizona in the implementation of the AAP (2006) developmental surveillance and screening guidelines in early childhood. Methods of providing developmental screening and surveillance technical assistance to community health centers and pediatric in Arizona communities will be described.


Lend Me Your Ears, the Deafness Continuum � Navigating Access to Genetics Education and Services
Janice Palumbos, MS, Genetic Counselor, Center for Persons with Disabilities, UCEDD/LEND
Judith Holt, PhD, Logan, UT, United States, UT - Center for Persons with Disabilities, UCEDD/LEND;
Karl White, PhD, Director, National Center for Hearing Assessment and Management, Logan, UT, United States;
Joann Bodurtha, MD, MPH, McKusick-Nathans Institute of Genetic Medicine, Baltimore, MD, United States;
Michelle Koplitz, MHS, DSCSHN-MCHB-HRSA, Washington, DC, United States;

Panel members will discuss integration of genetics education and services with Hearing Loss (HL) services and education for children with HL and their families. Objectives: Attendees will be able to: --Describe LEND-AUCD initiatives on hearing loss and genetics education. --Identify unmet needs of families, professionals, and trainees related to genetics services and education for children with various types and degrees of HL. --Discuss strategies to improve education/understanding about HL genetics.

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Cognitive planning in children with Fetal Alcohol Spectrum Disorders (FASD): A process analysis
Cerros Cassandra, Psychology Fellow, Center for Development & Disability, UCEDD/LEND
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Children with FASD exhibit deficits in cognitive planning, a core executive function. Yet, little is known about the underlying processes that contribute to this ability. This study compared the performance of children with FASD to a control group on the Progressive Planning Test. This test comprises items grouped into three levels of difficulty, with each level distinguished by the processes needed for successful completion of the task.


Enhancing the Knowledge and Tools Available to Mental Health Professionals Related to the Special Education Needs of Pediatric Patients
Emily Hoppe, BSN, RN, Psychiatric Nurse Practioner, Kennedy Krieger Institute, UCEDD/LEND
Meera Rothman, Baltimore, MD, United States, MD - Kennedy Krieger Institute, UCEDD/LEND;
Mallory Finn, Esq., Baltimore, MD, United States, MD - Kennedy Krieger Institute, UCEDD/LEND;
Maureen van Stone, Esq., MS, Baltimore, MD, United States, MD - Kennedy Krieger Institute, UCEDD/LEND;

Children requiring psychiatric assessment and treatment have a complex set of needs, requiring counseling and care coordination. Some of these needs include school-based evaluations and special education and related services associated with childhood psychiatric diagnoses and other disabilities. This project assessed school-related topics that mental health professionals discussed most frequently with patients, the resources most frequently requested by mental health professionals, and development of targeted materials for patients and families.

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Computerized adaptive assessment of infant-toddler language development: demonstration and validation of an app for screening
Alan Cobo-Lewis, PhD, Director, The University of Maine, Center for Community Inclusion, UCEDD
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We have developed a computerized adaptive test (an app), based on the MacArthur-Bates Communicative Development Inventories (CDI), that can rapidly gauge infant and toddler language development based on parent report. The app can be very useful in screening for developmental disabilities in IDEA Part C or Section 619. We will demonstrate the app and present validation data for toddlers.

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Therapeutic interventions to promote independence for children/adolescents with developmental disabilities
Tammy Fried, Master's of Social Work, Social Worker
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Providing therapy to children/adolescents with developmental disabilities is challenging. In a population that displays poor social awareness, low cognitive skills and poor adaptive and emotional development, I have looked outside traditional psycho-therapeutic modalities. This presentation will demonstrate the use of approaches which have been successful in working with children/adolescents with developmental disabilities specifically to increase independence and social awareness while also decreasing anxiety, depression, anger and other behavior issues.

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Development in the Context of Adversity: Models/practices addressing the intersections of development, disability and toxic stress in early childhood
Marcia Moriarta, PsyD, Executive Director, Center for Development & Disability, UCEDD/LEND
Peggy MacLean, PhD, Albuquerque, NM, United States, NM - Center for Development & Disability, UCEDD/LEND;
Dara Zafran, PsyD, Albuquerque, NM, United States, NM - Center for Development & Disability, UCEDD/LEND;
Seema Jacob, PsyD, Albuquerque, NM, United States, NM - Center for Development & Disability, UCEDD/LEND;
Marybeth Graham, PhD, Albuquerque, NM, United States, NM - Center for Development & Disability, UCEDD/LEND;
Cassandra Cerros, MA, Albuquerque, NM, United States, NM - Center for Development & Disability, UCEDD/LEND;

This presentation will provide descriptions of model programs/practices at the UNM Center for Development and Disability addressing the intersection of adversity and toxic/traumatic stress on early childhood development and children with developmental disabilities. CDD faculty and a trainee will provide an overview of current model programs and initiatives highlighting these intersections, as well as collaborations with state, university, and local partners supporting these efforts.

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Addressing Gaps in ASD/DD Diagnosis: Lessons Learned from the 2016 SPHARC Peer-to-Peer Exchange
Kate Taft, MPH, Sr. Program Manager, Association of Maternal & Child Health Programs
Cori Floyd, BA, Association of Maternal & Child Health Programs, Washington, DC, United States;
Deana Buck, Richmond, VA, United States, VA - Partnership for People with Disabilities, UCEDD/LEND;

This poster presents the results from the SPHARC June 2016 Peer-to-Peer Exchange on �Addressing Gaps in ASD/DD Diagnosis.� Six HRSA autism grantees participated in the exchange (Virginia - host; Georgia, Iowa, Maryland, Michigan, and Minnesota), which included training to bridge language differences between clinicians and educators. The poster provides a snap shot of a variety of challenges, strategies, partnerships and future directions for addressing gaps in ASD/DD diagnosis.

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Promoting health literacy and healthcare decision-making by changing the way we write reports
Courtney Burnette, PhD, Director of Clinical Evaluation Services, Center for Development & Disability, UCEDD/LEND
Sylvia Acosta, PhD, Albuquerque, NM, United States, NM - Center for Development & Disability, UCEDD/LEND;
Mary Boehm, MA, CCC-SLP, Albuquerque, NM, United States, NM - Center for Development & Disability, UCEDD/LEND;
Cristina CdeBaca, University of New Mexico Medical Group, Albuquerque, NM, United States;
Natalie Clayshulte, LMFT, Albuquerque, NM, United States, NM - Center for Development & Disability, UCEDD/LEND;
Sonya Roman Lopez, PT, DPT, Albuquerque, NM, United States, NM - Center for Development & Disability, UCEDD/LEND;
Peggy MacLean, PhD, Albuquerque, NM, United States, NM - Center for Development & Disability, UCEDD/LEND;
Alyx Medlock, MS, CCC-SLP, Albuquerque, NM, United States, NM - Center for Development & Disability, UCEDD/LEND;
Mareth Williams, MD, Albuquerque, NM, United States, NM - Center for Development & Disability, UCEDD/LEND;

Diagnostic evaluation reports are lengthy and technical and are often written to communicate results with other providers. These reports convey critical information about a child�s functioning, justification for diagnoses, and recommendations for care. Unfortunately, this information is often not accessible for families. In an effort to improve families� health literacy and healthcare decision-making, clinicians from two interdisciplinary diagnostic clinics completed a quality improvement process to create a new report format.