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AUCD - Poster Symposium: Community Living

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Monday, December 5, 2016 3:20 PM - 4:20 PM

Location: Congressional Hall C

Session Description

 

AUCD poster symposia seek to deepen levels of engagement and connection between those interested in common topics. Posters have been hand-selected by a review committee and grouped by room around common themes. Facilitators will open each poster symposia with broad thoughts about the room's theme followed by a brief 2-3 minute presentation by each poster presenter, approximately 15 per room. Attendees will then have time for more in-depth exploration of the information presented and make connections with others in the room. Attendees are attend to select one symposia to attend during each time slot as space allows; pre-registration is not required.




Presenters

Starting Our Adventure Right: Helping Individuals with Developmental Disabilities SOAR at the Duke Energy Children's Museum
Caitlin Beck, Doctor of Physical Therapy (DPT), Physical Therapist (PT), University of Cincinnati UCE, UCEDD/LEND
Caroline Reed, BSN, Cincinnati, OH, United States, OH - University of Cincinnati UCE, UCEDD/LEND;
Laura Sheldon, MD, Cincinnati, OH, United States, OH - University of Cincinnati UCE, UCEDD/LEND;
Allison Barnard, PhD, Cincinnati, OH, United States, OH - University of Cincinnati UCE, UCEDD/LEND;
Janet Seide, BS, Cincinnati, OH, United States, OH - University of Cincinnati UCE, UCEDD/LEND;
Brady Sellet, Cincinnati, OH, United States, OH - University of Cincinnati UCE, UCEDD/LEND;
Jennifer (Bass) Smith, PsyD, BCBA-D, Cincinnati, OH, United States, OH - University of Cincinnati UCE, UCEDD/LEND;
Meghan Stahlhut, MS, CCC-SLP, Cincinnati, OH, United States, OH - University of Cincinnati UCE, UCEDD/LEND;

Families of individuals with developmental disabilities are often hesitant to participate in community activities, especially when there is a lack of essential supports. Few studies have examined the effectiveness of increasing community venue accessibility for these families. The proposed study uses a model that develops staff trainings, family trainings, visual supports, and a simulation/sensory-friendly event for families and staff to practice their new knowledge and skills.


Creating Resources for Navigating Change: Partnering with Self-Advocates in the Development of Informational Materials
Susan Ellien, MSW, Policy & Dissemination Coordinator, The Boggs Center on Developmental Disabilities, UCEDD/LEND
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Informational materials for people with developmental disabilities and their families are vital to successfully navigating change in federal policies and state service systems. This presentation will focus on the importance of partnering with self-advocates to ensure accessibility in the development and design of reader-friendly publications. Strategies for determining the need for materials, seeking input, and implementing changes to increase accessibility will be discussed.

Read and download presentation materials >


Maternal Infant and Early Childhood Home Visiting Evaluation.
Rachel Korb, Master of Science, Maternal Infant and Early Childhood Home Visiting , New Hampshire LEND Program
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The poster titled Maternal Infant and Early Childhood Home Visiting Program Evaluation details how distribution of surveys to area local agencies led to the development of a state-wide networking resource. This mapping resource will facilitate the integration of services in New Hampshire and will ultimately lead to improved outcomes for at-risk families throughout the state.


Use of Statistical Methods to Examine Self- and Proxy-Responses
Renee Hepperlen, Ph.D., Assistant Professor, University of St. Thomas School of Social Work
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This presentation describes previous methods used to evaluate differences between self- and proxy-responses. It also presents two additional methods, differential item functioning and measurement invariance, as two statistical methods to assess potential contrasts with how these two groups respond to individual items and scale score differences.


Who Helps? Characteristics and Correlates of Informal Supporters to Adults with Intellectual and Development Disabilities
Kelli Sanderson, M.S., Doctoral Student
Meghan M. Burke, Ph.D, Urbana-Champagne, IL, United States;
Richard Urbano, Ph.D, Nashville, TN, United States, TN - Vanderbilt Kennedy Center for Research on Human Development - IDDRC;
Katie Arnold, M.A., Chicago, IL, United States;
Robert M. Hodapp, Ph.D, Nashville, TN, United States, TN - Vanderbilt Kennedy Center for Research on Human Development - IDDRC;

Results from a national survey regarding informal supports used by individuals with IDD will be presented. Most individuals with IDD received informal supports, typically provided by family. Asked to list non-family informal supporters, respondents often mentioned paid staff and disability organizations. Correlates of total numbers of informal supporters included the individual with disability's level of functioning and parents' ability to care for their offspring with disabilities.


Analysis of Occupational Therapy services in Medicaid Home and Community Based Service (HCBS) Waiver programs across the United States
Carli Friedman, PhD, Postdoctoral Research Associate Departments of Dis, Institute on Disability & Human Development, UCEDD/LEND
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People with intellectual and developmental disabilities (IDD) are transitioning from institutional to community settings at a record pace. Medicaid Home and Community Based Services (HCBS) waivers provide long-term services and supports to achieve and maintain successful community living. Occupational therapy (OT) services promote optimal participation in community living but are not provided by all HCBS waivers. This study explored how HCBS waivers provided OT services in fiscal year 2015.

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Exploring the Impact of Fund Reductions for individuals with Traumatic Brain Injury
Angela Morales, MSSA, TBI Resource Coordinator, Center for Excellence in Disabilities, UCEDD/LEND
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In fiscal year 2016, Funds for You contributions were reduced from $3000 to $1500 due to increase in number of applicants. In this study, we explored whether this reduction had any impact for applicants in terms of their needs being met.

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Exploring the Use of Supports by Military Families of Children with Autism Spectrum Disorders.
Judith Beverly, BS, Ms., California State University Dominguez Hills
Darcy McMaughan, PhD, College Station, TX;

This session will describe the formal and informal supports that military spouses utilize and also identify the unmet support needs of military families of children with autism.


Measuring the Process of Change: Assessing and Evaluating the Shift from Congregate Services to Individualized, Community Based, Person-Directed Supports
Caitlin Bailey, PhD ABD, Director of Research and Evaluation, National Leadership Consortium on Developmental Disabilities
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Although there is evidence showing that people with IDD live better lives when they are supported to live and work in their chosen communities, there is little evaluation and documentation of the factors that lead to effective change. This presentation will demonstrate a model of change that organizations providing services and supports to people with intellectual and developmental disabilities undergo as they shift from congregate to individualized, person-directed supports.