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AUCD - Poster Session: Improving Health Systems to Drive Change

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Monday, November 16, 2015 9:00am - 10:15am

Location: Congressional Hall B

Session Description

AUCD poster symposia seek to deepen levels of engagement and connection between those interested in common topics. Posters have been hand-selected by a review committee and grouped by room according to theme. Facilitators will open each poster symposia with broad thoughts about the room's theme, and attendees will be allotted ample time for in-depth exploration of the information presented and make connections with others in the room. Attendees are free to select one symposia to attend during each time slot as space allows; pre-registration is not required.




Presenters

Exploring the Perspectives and Needs of Child Welfare Caseworkers in their Work with Children with Disabilities
Trupti Rao, PsyD, , Westchester Institute for Human Development, UCEDD/LEND
Beth Reiman, PhD, Valhalla, NY, United States, NY - Westchester Institute for Human Development, UCEDD/LEND;
Ashley Ausikaitis, PhD, Valhalla, NY, United States, NY - Westchester Institute for Human Development, UCEDD/LEND;
Brittany Blumenthal, MPH, Valhalla, NY, United States, NY - Westchester Institute for Human Development, UCEDD/LEND;
Julie Griffin, MS, Valhall, NY, United States, NY - Westchester Institute for Human Development, UCEDD/LEND;

A significant percentage of youth in foster care are diagnosed with developmental disabilities. Using an electronic survey, the first objective of this project was to assess the knowledge level, experience, and comfort level of child welfare caseworkers in working with children with developmental disabilities. The second objective was to determine what additional training and resources caseworkers need to adequately serve children with developmental disabilities within the child welfare system.


What We Know: A Systematic Review of the Literature on Health Promotion for Individuals with Disabilities
Nicholas Gelbar, PhD, Assistant Professor, A. J. Pappanikou Center for Developmental Disabilities, UCEDD/LEND
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The results of a systematic literature review on health promotion interventions for individuals with disabilities will be presented. participants will be able to: 1. Describe the current climate of health promotion programs for individuals with disabilities, 2. Identify two areas of health promotion that should be expanded on for individuals with disabilities, and 3. Explain the systematic literature review process as it relates to future research.

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Participatory Action Research: Improving Follow-Up Rates of Newborn Hearing Screening in Greater Cincinnati Area
Ryan Uy, MD, Clinical Fellow, University of Cincinnati UCE, UCEDD/LEND
Kimberly Walker, Family Advocate, Cincinnati, OH, United States, OH - University of Cincinnati UCE, UCEDD/LEND;

Universal Newborn Hearing Screening (NHS) has dramatically reduced the number of late-identified hearing loss in children however there are still barriers that prevent timely follow-up of all babies. Current national average for loss to follow-up is 32% of those babies referred on their NHS. This study hopes to determine gaps and weaknesses in the NHS system and develop projects on how to address the issues through participatory action research.

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Unleashing Women's Power in Second Life: The Development of a Virtual Weight Management Program for Women with Mobility Impairments
Susan Robinson-Whelen, PhD, Investigator, Baylor College of Medicine / TIRR-MH
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Whether beginning in childhood or in later life, mobility impairments involve persistent and complex barriers to maintaining healthy weight. This presentation introduces GoWoman, a highly innovative, online weight management group program for women with mobility impairments. Researchers and a national advisory board of women with mobility impairments partnered closely to develop GoWoman by adapting and expanding the Diabetes Prevention Program to address the unique needs of women with mobility impairments.

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Training Health Care Providers: Developing An Online Training Video in Partnership with Health Professionals, People with Disabilities, Family Members
Ilka Riddle, PhD, UCEDD Director, University of Cincinnati UCE, UCEDD/LEND
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This presentation showcases how UCEDD staff worked with health care professionals, people with disabilities and family members to develop an innovative, online training module for health care professionals on working effectively with adults with developmental disabilities. We will provide information about how the project came about, our partnerships, and how we worked with our "lay" actors on filming. Photos and video snippets will be used to illustrate our work.

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Increasing Georgia's Capacity to Identify, Diagnosis, and Serve Children with Autism Spectrum Disorder: Three Department of Public Health University Collaborations
Michael J. Morrier, PhD, BCBA-D, Assistant Professor, Emory University School of Medicine, Department of Psychiatry & Behavioral Sciences
Donna M. Johnson, Georgia Department of Public Health, Atlanta, GA, United States;
Jennifer L. Stapel-Wax, PsyD, Emory University Department of Pediatrics, Marcus Autism Center, Children's Health Care of Atlanta, Atlanta, GA, United States;
Daniel Crimmins, PhD, Georgia State University, Atlanta, GA, United States, GA - Center for Leadership in Disability at Georgia State University, UCEDD/LEND;
Lillie Huddleston, PhD, Georgia State University, Atlanta, GA, United States, GA - Center for Leadership in Disability at Georgia State University, UCEDD/LEND;
Catherine E. Rice, PhD, Emory University School of Medicine, Emory Autism Center, Atlanta, GA, United States;

This session will describe activities under Georgia Department of Public Health's Autism Initiative in order to increase the capacity for community providers to identify, diagnose, and serve young children with an autism spectrum disorder (ASD) in underserved areas of Georgia. Three public health-university collaborations will be described that increase knowledge and skill level of service providers, psychologists, and families to help young children with ASD in underserved areas of Georgia

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Addressing Cultural Barriers in Autism Screening: Lessons Learned from the 2015 SPHARC Peer-to-Peer Exchange
Sarah Beth McLellan, MPH, Sr. Program Manager, CYSHCN, AMCHP
Elaine Gabovitch, MPA, UMass Medical School/E.K. Shriver Cente, Charlestown, MA, United States, MA - Eunice Kennedy Shriver Center, UCEDD/LEND;
Julie Whyte, BA, MPH(c), Boston University School of Public Health, Boston, MA, United States;

This poster present the results from the SPHARC June 2015 Peer-to-Peer Exchange on Considering Culture in Autism Screening. Five HRSA autism grantees participated in the exchange (Massachusetts - host; Iowa, Minnesota, New Hampshire and Virginia), which included training on the Considering Culture curriculum. The poster provides a snap shot of a variety of strategies, partnerships and best practices for addressing cultural and linguistic barriers to identification and treatment for ASD/DD.

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Development and Evaluation of a Universally-Designed App to Support Self-Directed Diabetes Education and Self-Management for Individuals with Intellectual Disabilities
Patricia Patrick, PhD, Director of Research, Westchester Institute for Human Development, UCEDD/LEND
Daniel K. Davies, AbleLink Technologies, Colorado Springs, CO, United States;
Steven E. Stock, MS, AbleLink Technologies, Colorado Springs, CO, United States;
David O'Hara, PhD, Westchester Institute for Human Development, Valhalla, NY, United States, NY - Westchester Institute for Human Development, UCEDD/LEND;

This project reports on a six-month project to develop and evaluate an interactive multimedia app designed to provide opportunities for independent and self-directed education in diabetes and diabetes management. Data results showed significant improvements in diabetes knowledge using a pretest/posttest design. Implications for future research are discussed.


Interventions to Improve Access and Health Behaviors in Individuals with Intellectual/Developmental Disability: A National Resource for Oral Health
Christine Clifford, MHP, Research Coordinator, Eunice Kennedy Shriver Center, UCEDD/LEND
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The presentation will describe the process by which the systematic review, designed to uncover interventions to reduce oral health disparities in individuals with intellectual and developmental disability, was conducted, along with the search strategy, interventions and outcomes measured. The presentation will convey the evidence base and promising practices for access, behavior, and prevention to generate discussion among researchers, clinicians and policy makers, about future study topics.

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What Happens After Developmental Screening: Connecting Families to Local Resources
Caroline Coffield, PhD, Assistant Professor, The Boggs Center on Developmental Disabilities, UCEDD/LEND
Susan Ellien, MSW, The Boggs Center on Developmental Disabilities, New Brunswick, NJ, United States, NJ - The Elizabeth M. Boggs Center on Developmental Disabilities, UCEDD;
Deborah M Spitalnik, PhD, The Boggs Center on Developmental Disabilities, New Brunswick, NJ, United States, NJ - The Elizabeth M. Boggs Center on Developmental Disabilities, UCEDD;

This poster will describe the efforts of New Jersey's Act Early State Systems Grant Projects. In collaboration with the NJ Statewide Parent Advocacy Network, The Boggs Center on Developmental Disabilities has developed county-specific resources for early child care providers, healthcare providers, and families. In addition to sharing these resources with providers at in-person, parent-led training sessions, a webinar describing local resources and explaining their intended use was recorded and archived.

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