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AUCD - Poster Session: Engagement of Trainees and Community Members (Training Symposium)

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Monday, November 16, 2015 9:00am - 10:15am

Location: Grand Ballroom Central

Session Description

AUCD poster symposia seek to deepen levels of engagement and connection between those interested in common topics. Posters have been hand-selected by a review committee and grouped by room according to theme. Facilitators will open each poster symposia with broad thoughts about the room's theme, and attendees will be allotted ample time for in-depth exploration of the information presented and make connections with others in the room. Attendees are free to select one symposia to attend during each time slot as space allows; pre-registration is not required.

 




Presenters

Self-Advocates and Researchers Sharing Leadership on the Development of a Violence Prevention Program for People with Intellectual Disabilities.
Rosemary Hughes, PhD, Senior Research Scientist, University of Montana Rural Institute, UCEDD
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The presentation will describe the collaborative process of self-advocates and researchers in the development of a community-based, multi-session, accessible group abuse prevention program for adults with intellectual disabilities, a population at high risk of interpersonal violence. Presenters will share the results of their pilot test, experiences, barriers, and successes to inform others interested in developing interventions in partnership with members of the intellectual disability community.

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Trainee Exchanges: How this Impacts the Leadership Development Process
Ana Caballero, AuD/PhD , , Center for Persons with Disabilities, UCEDD/LEND
Sarah Winter, MD, Logan, UT, UT - Center for Persons with Disabilities, UCEDD/LEND;

PacWest LEND trainees from different disciplines were selected and given financial support to attend an exchange experience, to meet different leaders and touring a variety of organizations involved in the care of children and youth with special health care needs and their families. Allowing trainees to compare how programs function, to meet strong leaders in different systems, states, and cultures, that were caring for children with special health care needs.

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The Meaningful Inclusion of Self-Advocates As Mentors And Colleagues in a LEND program
Emily Graybill, PhD, Clinical Assistant Professor, Center for Leadership in Disability at Georgia State University, UCEDD/LEND
^Stephen Truscott, PsyD, Georgia State University, Atlanta, GA, United States, GA - Center for Leadership in Disability at Georgia State University, UCEDD/LEND;
Christina Martin, MPH, Georgia State University, Atlanta, GA, United States, GA - Center for Leadership in Disability at Georgia State University, UCEDD/LEND;
Kerrian Baker, BA, Georgia State University, Atlanta, GA, United States, GA - Center for Leadership in Disability at Georgia State University, UCEDD/LEND;
Erin Vinoski, MPH, Georgia State University, Atlanta, GA, United States, GA - Center for Leadership in Disability at Georgia State University, UCEDD/LEND;
Mark Crenshaw, MA, Georgia State University, Atlanta, GA, United States, GA - Center for Leadership in Disability at Georgia State University, UCEDD/LEND;
Akilah Heggs, MPH, Georgia State University, Atlanta, GA, United States, GA - Center for Leadership in Disability at Georgia State University, UCEDD/LEND;
Daniel Crimmins, PhD, Georgia State University, Atlanta, GA, United States, GA - Center for Leadership in Disability at Georgia State University, UCEDD/LEND;

This poster will discuss the importance of including self-advocates as Georgia LEND trainees. The self-advocates serve in both the role of mentor and colleague. They share their lived experience with disability and their perspective on how to improve services and supports for individuals with disabilities while also fully participating in the GaLEND curriculum. The GaLEND faculty work alongside self-advocates to identify necessary accommodations to the curriculum.

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Collaborative Quality Improvement Planning in LEND Programs: The Use of E-Portfolios in the PacWest LEND Training Programs
Virginia Miller, PhD, Associate Professor, LEND Training Director, Center for Human Development, UCEDD/LEND
Judith Holt, PhD, Logan, UT, United States, UT - Center for Persons with Disabilities, UCEDD/LEND;
Rain Van Den Berg, MPH, Anchorage, AK, United States, AK - Center for Human Development, UCEDD/LEND;
Richard Kiefer-O'Donnell, PhD, Anchorage, AK, United States, AK - Center for Human Development, UCEDD/LEND;

This poster highlights collaboration in the PacWest Regional LEND Consortium with a focus on technology. As a part of an AUCD funded project, Collaborative Quality Improvement Planning in LEND and DBP Programs: The use of technology in the PacWest LEND training programs, programs were surveyed regarding current technological uses and needs. The findings prompted the development of a webinar on E-portfolios by the Alaska LEND program.

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Caring for Children and Youth with Disabilities. Training High School and College-Age Babysitters to Work with Children with Disabilities
Ilka Riddle, PhD, UCEDD Director, University of Cincinnati UCE, UCEDD/LEND
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In this session, participants will gain knowledge about a Community Advisory Committee (CAC) members- initiated training program for high-school and college-age babysitters who want to work with children and youth with disabilities and their families. We will provide background on this project, an overview of the training curriculum and an outline of the training sessions. Information on recruitment of participants and participant feedback/learning will also be provided.

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Effective Interdisciplinary Teamwork: Integrating Team-Based Learning Methodology into the New Hampshire LEND Curriculum
Rae Sonnenmeier, PhD, Clinical Associate Professor, New Hampshire LEND Program
^Betsy Humphreys, PhD, University of New Hampshire, Durham, NH, United States, NH - New Hampshire LEND Program;
Susan Russell, MS, University of Maine, Orono, ME, United States, ME - The University of Maine, Center for Community Inclusion, UCEDD;
Alan Kurtz, MEd, University of Maine, Orono, ME, United States, ME - The University of Maine, Center for Community Inclusion, UCEDD;

This poster will describe how NH LEND faculty integrated Team-based Learning into the LEND seminar during FY2015. Positive outcomes and challenges will be presented, including perspectives of both faculty and trainees. Faculty reported increases in trainees? abilities to engage the core concepts at a deeper level and increased their overall capacity to work effectively with others, including those with diverse perspectives. Sample materials will be available.

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Technology Meets System Change: Evolution of the NYS Partners in Policymaking Program
Jackie Yingling, MS, NYS Partners in Policymaking Coordinator, Strong Center for Developmental Disabilities, UCEDD/LEND
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Challenges and successes transitioning NYS Partners in Policymaking, a long-standing, well-respected statewide training program to a web-based learning platform will be examined. Our innovative model complements diverse learning styles, addresses barriers to participation, and maintains core values of the national program. Major emphasis is on teaching individuals with disabilities and family members to work with policymakers to create positive systemic change, utilizing technology and social media.

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AIM! Advocacy and Inclusion on a Mission: Creating Natural Networks and Community Access for Students with Disabilities
Meada Hall, EdD, Principal Investigator/Program Director, Interdisciplinary Human Development Institute, UCEDD
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This presentation will describe the development and implementation of the AIM! Advocacy group. The primary objective of AIM! is to educate elementary students and staff about natural networks and community awareness for students with disabilities. Discussions and examples will focus on the planning process and curriculum activities. These activities will not only teach students and staff about disabilities but also about inclusion by working and collaborating together as a team.

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The Emerging Transformational Leadership Program (ETLP): An Innovative Leadership Curriculum for Professionals, Parents and Self-Advocates
Shelly Baer, MSW, Associate Training Director, Mailman Center for Child Development, UCEDD/LEND
Sandy Ampudia, SLP, Mailman Center, Miami, FL, United States;
Yenet Pelegrin, MSW, Mailman Center, Miami, FL, United States;
Silvia Planas Prats, Mailman Center, Miami, FL, United States;
Lydia Stoutenburg, Mailman Center, Miami, FL, United States;
Erin Kozlowksi, Mailman Center, Miami, FL, United States;

ETLP is an innovative leadership curriculum at University of Miami's Mailman Center for Child Development. We target early to mid-career professionals, parents and Self-Advocates who are identified as emerging leaders in the disability community. A key component of the curriculum is the development of a group project; cohort four will present their project idea which focuses on improving employment opportunities for individuals with IDD/DD called the Miami EmployABILITY movement.

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Taking Down the Walls: Identifying and Eliminating the Barriers to Family Participation in the Assessment Process for Children with Disabilities
Leon Kirschner, MPH, Senior Occupational Therapist, Rose F. Kennedy Center, UCEDD/LEND
Brigitte Desport, OTD, SUNY Downstate, New York, NY, United States;

This is a poster identifying the reasons that families of children with disabilities are excluded from the evaluation and planning process for their children, ways that they may become more involved and practical steps that may be followed in leadership that can allow this to occur.


Using Inbound Marketing Tools to Enhance UCEDD Work in Community Education and Information Dissemination
Michelle Rojas-Soto, MBA, MS, Director, Community Education & Information Dissem, USC, Childrens Hospital, UCEDD/LEND
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This presentation focuses on the use of Marketing Strategy and Inbound Marketing principles to drive community outreach and community education as well as increase the level of engagement of its members. We will discuss specific examples of engagement activities, marketing tools and tactics that are effective and efficient in reaching out to the DD target audience, as well as how to overcome obstacles to implementing them.

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Connecting with Young Leaders to Better Understand Disabilities
Eduardo Ortiz, PhD, Project Director, Center for Persons with Disabilities, UCEDD/LEND
Judith Holt, PhD, Logan, UT, United States, UT - Center for Persons with Disabilities, UCEDD/LEND;
Eric Packenham, PhD, Utah State University, Logan, UT, United States;

The URLEND and GEAR-UP programs have collaboratively developed joint activities focusing on introducing key disability concepts topics to students in middle/high school settings. The project has motivated students to reflect on proposed challenges and activities relating to disabilities. The adult mentors have been active listeners and learners trying to better understand new generational paradigms. This initiative provides leadership development opportunities for middle/high school students.

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Role of People with Disabilities in LEND Programs: Results of a National Survey
Kruti Acharya, , Institute on Disability & Human Development, UCEDD/LEND
Judith Holt, PhD, Logan, UT, UT - Center for Persons with Disabilities, UCEDD/LEND;
LEND Self-Advocacy Working Group, Washington DC, DC;

People with disabilities have been in involved in LEND programs in various roles. However, the type and extent of their participation varies across programs. Results of a national survey of LEND programs about the role of people with disabilities will be presented to describe the current status of people with disabilities as trainees and the interest across the network of growing Self-Advocacy as a training discipline.

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Trainees' Experiences Learning the Inclusive Impacts of Providing Wheelchair and Prosthetic Assistive Technology in a Global Health Setting
Casey Primeau, Trainee, Sonoran UCEDD
Mumina Obeid, Tucson, AZ, United States, AZ - Sonoran UCEDD;
Burris Duncan, MD, Tucson, AZ, United States, AZ - Sonoran UCEDD;
Tracy Carroll, PT, MPH, Tucson, AZ, United States, AZ - Sonoran UCEDD;
Lynne Tomasa, PhD, Tucson, AZ, United States, AZ - Sonoran UCEDD;

Sonoran UCEDD trainees found a unique setting to learn about assistive technology and global health through involvement in initiatives at ARSOBO (Arizona Sonora Border), a social business employing individuals to construct medical devices that they themselves use (wheelchairs, prosthetics, and hearing aids). Trainees learned about the impacts of the assistive technology and collaborated with a variety of professionals, gaining mentorship and exposure to a foreign culture.

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Digital Stories of Resilience for American Indian Individuals with Disabilities
Darold Joseph, MEd, University of Arizona, Sonoran UCEDD
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An explanation of the process and outcomes of a digital story workshop for American Indians with disabilities is provided. Participants received training with computer and software tools to design and publish 3-5 minute digital stories. Stories of resilience were depicted, exemplifying experiences of overcoming barriers to lead successful journeys by participants. First person narratives were crafted; still images, video, and music were collected with which to illustrate their stories.

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