Conference Header
Conference Header

AUCD - Concurrent Sessions

<< Back to Program


Tuesday, November 17, 2015 10:30 AM - 11:45 AM


Presenters

How Cultural Humility Impacts Family Decision-Making
Dana Yarbrough, MA, MS, Community Supports Specialist, Partnership for People with Disabilities, UCEDD/LEND
Melissa House, Cross Cultural Broker (parent), Arlington, VA, United States, VA - Partnership for People with Disabilities, UCEDD/LEND;
Nubia Quick, Latina Cultural Broker (parent), Chesterfield, VA, United States, VA - Partnership for People with Disabilities, UCEDD/LEND;
Angela West, M.S, Asian Cultural Broker (self-advocate), Chesapeake, VA, United States, VA - Partnership for People with Disabilities, UCEDD/LEND;

Through early research into factors impacting family decision-making, we know cultural traditions and experiences have the greatest impact. Culture provides the framework through which someone understands themselves, their environment, and experiences. This interactive session explores cultural humility- our own assumptions and beliefs embedded in our goals for a child/family and the role of cultural brokers in helping decrease poor quality-of-life outcomes for immigrants and minorities with disabilities.


From Adversary to Ally: Communication Strategies to Drive Change
Alysa Vos, LEND Trainee (2nd year), LoneStar, LEND
^
You are a passionate advocate for a cause. Whether its self-advocating to an employer for accommodations or encouraging a multidisciplinary team to work together; change is hard. Leaders face resistance, and passion alone will not get the job done. Come learn effective tools to break through the barriers you face as a change leader, form more positive and effective relationships and turn your adversaries into allies!

Read and download presentation materials >


Training, Supporting, and Engaging Family Members as Participants in LEND Programs
Benjamin Kaufman, MSW, Program Manager, MCH Technical Assistance
Beth Bader, Ph.D., Richmond, VA, VA - Partnership for People with Disabilities, UCEDD/LEND;
Kim Brossart, MPH, Tucson, AZ, AZ - The University of Arizona, LEND;

Many family members of people with disabilities are community leaders with significant experiential knowledge. In this session, two LEND programs will share how they used minimal funding to plan and provide more informed support to family trainees and implement strategies to help engage more family members in future years. Programs will discuss their processes, early outcomes, successes, challenges, and implications for the broader network of interdisciplinary training programs.


Building a Better UCEDD and LEND: Increasing Leadership Opportunities for People with Disabilities
Mark Smith, MS, Assistant Professor, Munroe-Meyer Institute of Genetics & Rehabilitation, UCEDD/LEND
Cynthia Singletary, BA, Biloxi, MS, United States, MS - Institute for Disability Studies, UCEDD;
Jack M Brandt, MS, VCU Partnership for Peple with Disabilityes, Richmond, VA, United States, VA - Partnership for People with Disabilities, UCEDD/LEND;
Liz Weintraub, AUCD, Silver Springs, MD, United States;

Leadership by people with disabilities has been increasing within the AUCD network as the result of collaborations within and outside the DD network.This session will present national data on advocacy supports from an AUCD Council on Community Advocacy survey and presentations by a panel of individuals with disabilities who work as advocates, providing their perspective on leadership within their own centers and a discussion of the survey.


HP2020 and Social Determinants of Health among People with Disabilities: Disparities, Demographics and Risk Factors
Vince Campbell, PhD, Senior Research Scientist, Centers for Disease Control and Prevention
Lisa Sinclair, MPH, Centers for Disease Control and Prevention, Atlanta, GA, United States;
Georgina Peacock, MD, MPH, Centers for Disease Control and Prevention, Atlanta, GA, United States;

Achieving goals requires identifying meaningful objectives. We will illustrate how Healthy People 2020 uses data to support health objectives for our country, and describe ways in which people with disabilities as a population at risk for health disparities are currently included either as: a demographic (similar to age, race, gender); a risk factor (similar to smoking or lack of physical activity), or, a social determinant of health.


Using National Systems Standards to Improve Leadership and Capacity of Systems that Serve CYSHCN and their Families
Sarah Beth McLellan, MPH, Sr. Program Manager, CYSHCN, AMCHP
Treeby Brown, MPA, AMCHP, Washington, DC, United States;
Meredith Pyle, AMCHP, Washington, DC, United States;

This interactive workshop session will address how states are implementing the National Standards of Care for Children and Youth with Special Health Care Needs. Participants will learn how a wide range of states are approaching the standards and have an opportunity use case examples and tools to create action plans and strategies to take home to their own states/organizations, as well as strategies to engage a range of stakeholders.


Measuring Community Inclusion: Moving Beyond Presence to Meaningful Access, Participation and Contribution
Caitlin Bailey, PhD, Director of Research and Evaluation, National Leadership Consortium on Developmental Disabilities
Julie Bershadsky, PhD, Human Services Research Institute, Cambridge, MA, United States;
Marian Saulino, MS, Values Into Action, Media, PA, United States;
Kristen Loomis, BS, National Leadership Consortium on Developmental Disabilities, Newark, DE, United States;
Steven Eidelman, MS, MBA, National Leadership Consortium on Developmental Disabilities, Newark, DE, United States;

This collaborative effort between an organization providing entirely person directed services and researchers from the National Leadership Consortium and the Human Services Research Institute will explore how organizations, researchers and states can begin to operationalize meaningful experiences of community inclusion that align with current regulations and ensure measurement of real community participation and contribution for people with intellectual and developmental disabilities.


Supporting the Growth of Inclusive Postsecondary Education: The Role of the UCED
Cate Weir, MEd, Program Director, Institute for Community Inclusion/Boston Children's Hospital, UCEDD/LEND
^
This panel presentation, moderated by staff from Think College National Coordinating Center will highlight the work that six UCEDs have done to support the growth of postsecondary education options for students with intellectual disabilities in their states. Each UCED will highlight the activities that they have engaged in to support the growth of higher education, including facilitating statewide strategic planning, coordinating a statewide alliance, providing technical assistance, and more.

Read and download presentation materials >


Bringing Employment First to scale: Integrating the evidence for a comprehensive model for change
Allison Hall, PhD, Senior Research Associate, Institute for Community Inclusion/Boston Children's Hospital, UCEDD/LEND
Max Barrows, SABE, Montpelier, VT, United States;
Kelly Nye-Lengerman , MSW, Mineapolis, MN, United States, MN - Institute on Community Integration, UCEDD/LEND;
Jonathon Lucas, MPA, National ARC , Washington, DC, United States;
Jean Winsor , PhD, Boston, MA, United States, MA - Institute for Community Inclusion/Boston Children's Hospital, UCEDD/LEND;
Cindy Thomas, MA, Boston, MA, United States, MA - Institute for Community Inclusion/Boston Children's Hospital, UCEDD/LEND;

Employment First polices in over 30 states contribute to increased expectations, outcomes, and self-sufficiency. These policies provide a vision, but do not guarantee greater access to or navigation of services and information. This session addresses: (a) individual/family engagement; (b) employment consultant practices (c) CRP organizational transformation; (d) state agency policy and strategy. Staff from the RRTC on Advancing Employment will facilitate discussion that frames a multi-level model for change.

Read and download presentation materials >


Childcare Driving Change: Implementing and Evaluating a Process for Developmental Monitoring Using "Learn the Signs. Act Early." with Childcare Professionals
Gail Chodron, PhD , , Waisman Center, UCEDD/LEND
Gail Chodron, MA, PhD (expected Aug 2015), Waisman Center, WI LEND, CDC's Act Early Ambassador to WI, Family member, Madison, WI, United States, WI - Waisman Center, UCEDD/LEND;
Kris Barnekow, PhD, OTR/L, UW-Milwaukee, Milwaukee, WI, United States;
Stephan Viehweg, MSW, Riley Child Development Center, CDC's Act Early Ambassador to IN, Indianapolis, IN, United States, IN - Riley Child Development Center - Indiana University, LEND;
Alexandra Puk, BS, doctoral student, UW-Madison Department of Educational Psychology, Madison, WI, United States, WI - Waisman Center, UCEDD/LEND;

This session reports on implementation and evaluation of a program to improve developmental monitoring in childcare settings using "Learn the Signs. Act Early." Project team members from the Waisman Center/WI LEND and the Riley Child Development Center/IN LEND present program evaluation findings from Wisconsin and Indiana, and describe implications for partnering with early care and education professionals to improve developmental monitoring in diverse childcare settings in other states.


ECHO Autism: An Innovative Model that Expands Knowledge to Increase Specialty Care for Children and Youth with Autism
Alicia Curran, Missouri LEND Family Faculty, University of Missouri, UCEDD/LEND
Micah Mazurek, PhD, Columbia, MO, United States, MO - University of Missouri, UCEDD/LEND;
Kristin Sohl, MD, Columbia, MO, United States, MO - University of Missouri, UCEDD/LEND;

ECHO Autism is a virtual learning network that increases knowledge and confidence in primary care providers, enabling them to care for patients with autism spectrum disorder and their families in their home communities. This real-time learning experience is led by a team of autism experts from the University of Missouri Thompson Center, who share their knowledge and expertise with providers to create a community of autism leaders.

Read and download presentation materials >


Supporting Youth with Intellectual/ Developmental (I/DD) and Other Disabilities in Foster Care: Examples from the Field
Jacy Farkas, MA, , Sonoran UCEDD
Dominick Schregardus, Youth, My Life Project & Better Futures Program Alum, Portland, OR, United States;
Deborah Napolitano, PhD, Rochester, NY, United States, NY - Strong Center for Developmental Disabilities, UCEDD/LEND;
Bonnie Smith, MA, Rochester, NY, United States, NY - Strong Center for Developmental Disabilities, UCEDD/LEND;
Kimberly Crosland, PhD, Tampa, FL, United States, FL - Florida Center for Inclusive Communities, UCEDD;
Summer Pommier, MSW, Potland State University - Regional Research Institute for Human Services, Portland, OR, United States;

There are over 500,000 children in the U.S. foster system; studies purport that up to 60% have some level of disability or delay. Compared with their peers, youth with disabilities are more likely to be maltreated in the system, have placement instability, stay in care longer, have poorer educational outcomes, and less likely to achieve permanency. This four-state panel provides examples of supporting this population from multiple perspectives.


Disability through the Artistic Lens
Kara Ayers, PhD, Associate Director, University of Cincinnati UCE, UCEDD/LEND
Tonya Gillchrist, MSW, Self-Advocate, Silver Spring, MD, United States;
Anna Costalas, AUCD, Silver Spring, MD, United States;
Shelly Baer, MSW, Miami, FL, FL - Mailman Center for Child Development, UCEDD/LEND;
,
This session will present "Driving Community Change Through Collaborations Between UCEDDs and Reelabilities Film Festivals," and "Bold Beauty Project: Disabled Women Redefining Beauty through Photography and Narrative Expression."


Siblings of People with Disabilities
Celia Feinstein, MA, Executive Director, Institute on Disabilities, UCEDD
^|Shea Tanis, PhD, Coleman Institute, Boulder, CO;
Emily Rubin, MA, Charlestown, MA, MA - Eunice Kennedy Shriver Center, UCEDD/LEND
This session will present "Exploring the Current Realities and Dreams for the Future of Siblings in Pennsylvania and Beyond," "Understanding the Sibling Movement: A generation of leaders and advocates," and "Supporting Siblings of Children with Mental Health Needs."


National Goals 2015: Connecting research, policy, practice and advocacy for change
Amy Hewitt, PhD, Director, Institute on Community Integration, UCEDD/LEND
Liz Weintraub, AUCD, Silver Spring, MD, United States;
Allison Barkoff, Bazelon Center for Mental Health Law, Washington DC, DC, United States;
Tamar Heller, Chicago, IL, United States, IL - Institute on Disability & Human Development, UCEDD/LEND;

This session will provide a forum in which the goals established at the National Goals 2015 can be shared and discussed. It will provide a platform for how we can grow leaders who will drive change by using these newly established goals to drive research, policy, practice and advocacy.