AUCD - Welcome Reception and Poster Session
<< Back to ProgramMonday, November 10, 2014 5:15 PM - 7:00 PM
Location: Grand Ballroom South Salon
Presenters
Enriching Undergraduate Education in Disability Studies through Engaged Service-LearningPresenter(s)
Carol Britton Laws, PhD, MSW, Assistant Clinical Professor / Training Director, Institute on Human Development and Disability, UCEDDThis presentation describes the pedagogical foundation, learning objectives, and initial results of an innovation to an undergraduate interdisciplinary pre-service disability studies certificate program to include engaged service-learning. Service-learning is defined, the courses in which community engagement were expected are described, and student and community partner reflections are shared. The identified benefits, challenges, and next steps to community engaged service-learning within the program will be discussed.
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Growing Our Own: Building Capacity with Wyoming's Professional Learning Community in Assistive Technology
Presenter(s)
Sandra Root-Elledge, M.A., Interim Director, Wyoming Institute for Disabilities, UCEDDCanyon Hardesty, MS, Laramie, WY, United States, WY - Wyoming Institute for Disabilities, UCEDD;
Wyoming's Professional Learning Community in Assistive Technology is building practitioner capacity in education. The poster describes the need for building capacity in assistive technology in Wyoming, the processes for applying a professional learning community model to address those needs, and the initial individual, district and state outcomes related to the work of the twenty-one professional community members.
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Perception of the Risk of Disability to Oneself and Others
Presenter(s)
Amanda McBean, Ph.D., Ph.D., Center for Excellence in Disabilities, UCEDD/LENDLeo Schlosnagle, Ph.D., Morgantown, WV, United States, WV - Center for Excellence in Disabilities, UCEDD/LEND;
An individual's perception of the risk of developing a disability may depend on a set of biases. This project investigates the "optimistic bias" in relation to risk of experiencing a disability. Results show that individuals tend to perceive higher risks of developing disabilities to others than to themselves, and sex and contact with people with disabilities are related to these perceptions.
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Assistive Technology Applications to Support Parents with Intellectual Disabilities
Presenter(s)
Trupti Rao, Psy.D., Director Child Welfare, Westchester Institute for Human Development, UCEDD/LENDCaitlin Cooney, Valhalla, NY, United States, NY - Westchester Institute for Human Development, UCEDD/LEND;
Alice Kenny, MS, Valhalla, NY, United States, NY - Westchester Institute for Human Development, UCEDD/LEND;
Natalia Stupak, Valhalla, NY, United States, NY - Westchester Institute for Human Development, UCEDD/LEND;
Maline Thai, MA, Valhalla, NY, United States, NY - Westchester Institute for Human Development, UCEDD/LEND;
Parents with intellectual disabilities benefit from specialized parent training that offers opportunities for modeling, practice, and repetition. The goal of this project was to explore if assistive technology resources (videos, games, smartphone applications, and handouts) are commercially available to assist in and reinforce parent skills training for parents with intellectual disabilities.
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Publishing in the AAIDD Journals
Presenter(s)
Glenn Fujiura, PhD, Professor, Institute on Disability & Human Development, UCEDD/LENDMichael Wehmeyer, PhD, University of Kansas, Lawrence, KS, United States, KS - Schiefelbusch Institute for Life Span Studies, UCEDD/LEND;
Karrie Shogren, PhD, University of Kansas, Lawrence, KS, United States, KS - Schiefelbusch Institute for Life Span Studies, UCEDD/LEND;
Len Abbeduto, PhD, University of CA-Davis, Davis, CA, United States, CA - UC Davis UCEDD at the MIND Institute, UCEDD;
Kathleen McLane, AAIDD, Washington, DC, United States;
This session addresses the scholarly publication process, from peer review to production, from the perspective of the American Association on Intellectual and Developmental Disabilities. Emphasis is on providing information to advanced graduate students and early career professionals on navigating manuscript development and submission. Session is primarily in a Q&A format. The panel includes the editors of AJIDD, IDD, and Inclusion, and the Director of the AAIDD publications program.
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Empowering Parents to Change the Mealtime Behaviors of Children with ASD
Presenter(s)
Deirdre Muldoon, MS, MSc/ABA, SLP, Program Manager, Center for Development & Disability, UCEDD/LENDJoanna Cosbey, PhD, OTR/L, Occupational Therapy Program, Assistant Professor, Department of Pediatrics, University of NewMexico, Albuquerque, NM;
This poster will present mixed-methods research study results of a family-centered intervention targeting challenging mealtime behaviors of 4 children with ASD. Results on the intervention's impact on the parents' knowledge of behavior change, changes in foods offered, and acceptability of the interventions will be presented. Data will include results of pre- and post-intervention assessment tools used for the families in the study.
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Parental Perception of the Transdisciplinary Neurodevelopmental Diagnostic Team Evaluation Process
Presenter(s)
Eric Albers, MSW, Ph.D., Associate Professor, Nevada Center for Excellence in Disabilities, UCEDD/LENDJan Marson, OTD, NvLEND, Reno, NV, United States, NV - Nevada Center for Excellence in Disabilities, UCEDD/LEND;
Carol Broersma, MSW, Rural Children's Mental Health Consortia, Gardnerville, NV, United States, NV - Nevada Center for Excellence in Disabilities, UCEDD/LEND;
This discussion will comer results from a survey and a focus group addressing parental perception of stress factors associated with the trans-disciplinary assessment process. Findings provide potential recommendations for health care providers in identifying specific parent identified target areas for providers to consider.
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Creating a Model for Systemic Change: The ASD Early STEP Project
Presenter(s)
Shannon Haworth, MA, Project Manager, Partnership for People with Disabilities, UCEDD/LENDDonna Gilles, Ed.D, Partnership for People with Disabilities- VCU, Richmond, VA, United States;
Deana Buck, MS, Partnership for People with Disabilities- VCU, Richmond, VA, United States;
The state of Virginia was awarded a grant from MCHB to improve the age of screening and diagnosis for children in Virginia through systematic training of professionals in effective practices. The ASD Early STEP (Autism Spectrum Disorder Early Systematic Training in Effective Practices) project has created a model for autism screening and diagnostic training for 3 communities in Virginia.
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Use of Telemedicine in the early diagnosis of developmental disorders and Autism spectrum disorders.
Presenter(s)
Deepa Menon, MBBS, MD, , Kennedy Krieger Institute, UCEDD/LENDPaul LIpkin , MD, Kennedy Krieger Institute, Baltimore , MD, United States;
Given the manpower shortage of skilled diagnosticians and the increased need in remote communities for early detection and treatment of children with developmental disorders, we feel that Telemedicine is an accurate new tool that can be used to bridge the gap and to improve access to speciality evaluation and ongoing disease management.
Needs Assessment Group for Newborn Hearing Screening Systems
Presenter(s)
Kelly Kamimura-Nishimura, MD, DDBP Clinical Fellow, University of Cincinnati UCE, UCEDD/LENDNewborn Hearing Screening (NHS) is a multifaceted system of education, screening, diagnosis, referral, and treatment. Using a Group Level Assessment model, we engaged ~30 stakeholders to gather important information concerning what is needed for the improvement of the NHS process: consistency and improved communication among the people involved in the process, consideration of the family emotional aspects and their involvement in the NHS process, and NHS system gaps.
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Traumatic Brain Injury, Sleep, and Decision Making
Presenter(s)
Amanda McBean, Ph.D., Center for Excellence in Disabilities, UCEDD/LEND^Leo Schlosnagle, Ph.D., Morgantown, WV, United States, WV - Center for Excellence in Disabilities, UCEDD/LEND;
Common consequences following a TBI include reduced decision making capacity and sleep disturbances. We investigated the differences in decision making and sleep, and their relation to each other among individuals with a TBI. Poorer sleep, more urgency in decision making, worse scores on applying decision rules, and limited future time perspectives were found in the TBI group. Poorer sleep was associated with more urgency and limited future time perspectives.
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Universal Voting Systems: Effectiveness of the Prime III for Voters with a Developmental Disability
Presenter(s)
Emily Schreiber, M.A., Lend Trainee, University of Cincinnati UCE, UCEDD/LENDJane Gerhardt, JD, Family Trainee, Cincinnati, OH, United States, OH - University of Cincinnati UCE, UCEDD/LEND;
This research examined accuracy and ease of use of new touch-based voting technology. Adult participants with and without a developmental disability voted on a research ballot using the Prime III electronic voting system.
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Engaging Families and Schools in Non-adversarial Conflict Resolution: Special Education Advocacy, Facilitated-IEPs, and Procedural Safeguards
Presenter(s)
Carolyn Mason, J.D., MA, Special Education Doctoral Candidate, Vanderbilt UniversitySamantha Goldman, M.Ed., Nashville, TN, TN - Vanderbilt University, UCEDD/LEND;
Meghan Burke, PhD, BCBA-D, University of Illinois- Chicago UCEDD, Chicago, IL, United States;
This presentation will discuss three different approaches to dispute resolution for individuals with disabilities: one that pre-emptively trains non-adversarial special education advocates to work with families of students with disabilities, another that focuses on the proactive use of facilitated IEP meetings to avoid the enactment of procedural safeguards, and last, one that addresses the unusually high rates of mediation and due process for families of children with ASD.
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OHSU UCEDD Community Partners Council Mini Grant Program
Presenter(s)
Rhonda Eppelsheimer, MSW, Director, Oregon Institute on Development & Disability, UCEDD/LENDThe OHSU UCEDD Community Partners Council Community Mini Grant Program highlights a concrete example of collaboration and engaged partnership leading to meaningful benefits for people with developmental disabilities and their families. The project demonstrated inclusion, flexibility, and problem solving. This presentation can serve as a template for others interested in building deep collaborative partnerships and unleashing the power within AUCD in partnership with the larger the community.
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Using Free or Low Cost Technology to Facilitate Autism Screening and Diagnostic Tools Training
Presenter(s)
Shannon Haworth, MA, Project Manager, Partnership for People with Disabilities, UCEDD/LEND^, VA, United States;
Using free or low cost Technology the ASD Early STEP Project has facilitated autism screening, and diagnostic tools training in the Norfolk and 7 cities area, as well as facilitated community engagement.
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Rutgers Day: An Opportunity for The Boggs Center to Engage, Educate, and Empower
Presenter(s)
Robyn Carroll, MSW, Communications Manager, The Boggs Center on Developmental Disabilities, UCEDD/LENDCarrie Coffield, PhD, New Brunswick, NJ, United States, NJ - The Elizabeth M. Boggs Center on Developmental Disabilities, UCEDD;
Colleen McLaughlin, MEd, New Brunswick, NJ, United States, NJ - The Elizabeth M. Boggs Center on Developmental Disabilities, UCEDD;
Joel Nudi, MBA, New Brunswick, NJ, United States, NJ - The Elizabeth M. Boggs Center on Developmental Disabilities, UCEDD;
The Boggs Center participated in our first Rutgers Day, an annual, family-oriented open house to highlight the University's programs. Over 1,300 Rutgers students and community members learned about disabilities from Boggs Center staff through an interactive, family-friendly disability trivia prize wheel game. Rutgers Day will be an annual event for The Boggs Center to engage and educate the university community and general public about our role and disability issues.
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Collectively Impacting Infant and Early Childhood Mental Health through University-Community Leadership
Presenter(s)
Sarah Davidon, M.Ed., Director of Community Education, JFK Partners/University of Colorado Health Sciences Center, UCEDD/LENDCordelia Robinson Rosenberg, PhD, RN, Aurora, CO, United States, CO - JFK Partners/University of Colorado Health Sciences Center, UCEDD/LEND;
This poster session will describe and provide examples of collaborative leadership with regard to infant and early childhood mental health priorities, practices, strategic planning and policy development.
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Legislation Impacting Audiology and the Provision of Audiological Services: A Review of Legislation Across the United States
Presenter(s)
Shana Bauer Vaith, Audiology Doctorate Student, Mailman Center for Child Development, UCEDD/LENDThis poster will review legislation impacting audiologic service provision across the United States and the impact on the Early Hearing Detection and Intervention (EHDI) program.
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Reflecting on State Impact: Wyoming Institute for Disabilities 20th Year Anniversary Campaign
Presenter(s)
Sara DiRienzo, MA, Coordinator, Information Dissemination, Wyoming Institute for Disabilities, UCEDDThis poster highlights elements from the Wyoming Institute for Disabilities' 20th Anniversary marketing campaign. Our campaign includes a postcard series, a short video, an infographic report, and a brief handout on WIND. WIND used the approach to respond to the growing need for new and innovative marketing technique to engage audiences.
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There Is No IEP For Parenting: Engaging the Community in Supportive Practices for Parents with Intellectual and Developmental Disabilities
Presenter(s)
Malissa Duckworth, LCSW, Licensed Clinical Social Worker , Center on Developmental Disabilities, UCEDD/LENDAshley Annestedt, LCSW, University of Tennessee, Memphis, TN, United States, TN - Boling Center for Developmental Disabilities, UCEDD/LEND;
Children with I/DD are provided high levels of support and guidance through their school aged years, but what happens when they enter the world and become parents themselves? This program engages local agencies in education regarding the most effective methods for supporting, training, and advocating for parents with intellectual and developmental disabilities within the community.
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Engage for Survival: How Community Support Can Improve the Treatment Outcome For Young Children With Autism
Presenter(s)
Susannah Poe, Ed.D, Psychologist, BCBA-D, LEND Mentor, Center for Excellence in Disabilities, UCEDD/LENDOur IASD motto could be "We get by with a little help from our friends." Our year-round autism treatment clinic serves six children and 50 WVU students annually, but we have no budget for staff or supplies. Our efforts to increase community understanding of our mission and gain support, both financial and in-kind, has been successful and provided excellent experience in the importance of engagement for our student leaders.
Lasting Impact: Marketing Tips for Family and Self Advocates
Presenter(s)
Lisa Rossignol, MA, Healthcare Liaison, Center for Development & Disability, UCEDD/LENDThis presentation is a description of an activity that can be used to train family and self advocates to create coalitions and simple, low tech, low cost marketing materials for their advocacy. This presentation is best for professionals who work in advocacy development positions.
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Community Engagement through 21st Century Telecommunications
Presenter(s)
Sandra McNally, Assistant Director, Institute on Disabilities, UCEDDAmy Goldman, Philadelphia, PA, PA - Institute on Disabilities, UCEDD;
Pennsylvania's Telecommunication Device Distribution Program (TDDP) has provided adapted landline telephone equipment to Pennsylvanians with disabilities since 1995. TDDP staff identified a need to expand the program to include wireless and internet technologies, and bring the Pennsylvania program into the 21st Century. This poster will state the problem and show the challenges and processes involved in order to achieve that goal.
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Service Delivery Challenges and Strategies for a State-wide Behavioral Program for Young Children with Autism Spectrum Disorders
Presenter(s)
Ann Garfinkle, Ph.D., MT Act Early Ambassador, University of Montana Rural Institute, UCEDDThis paper discusses the challenges of providing high-quality, intensive services for young children with autism on a state-wide basis. Problems related to under-identification of children with autism, the challenges of serving rural and hard to reach populations and the challenges of developing and maintaining a qualified workforce will be discussed and solutions for the problems will be suggested.
Care for those with Developmental Disabilities in the Emergency Department
Presenter(s)
Tara Benninger, B.S., Miss, The Nisonger Center, UCEDD/LENDThis project explored factors contributing to health disparities among individuals with I/DD seeking emergency psychiatric care. Medical staff of a university-based ED and psychiatric inpatient unit were surveyed regarding their levels of knowledge and attitudes towards groups of patients and types of interventions used with challenging populations. We analyzed the data to identify disparities within emergency psychiatric care to better understand experiences among those with an intellectual or developmental disability
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Parent Perceived Challenges to Treatment Utilization in a Publicly-Funded Behavioral Intervention Program
Presenter(s)
Amy Cohen, Ph.D., Parent Perceived Challenges to Treatment Utilizati, Medical University of South Carolina, DBPErica McCaslin, MSW, University of South Carolina, College of Social Work, Columbia, SC, United States;
Marissa Yingling, MSW, University of South Carolina, College of Social Work, Columbia, SC, United States;
Robert Hock, Ph.D., LMSW, University of South Carolina, College of Social Work, Columbia, SC, United States;
Parents of children with Autism Spectrum Disorder (ASD) receiving Applied Behavior Analysis (ABA) in a statewide program completed surveys in order to: 1) Examine parent perceived challenges to treatment utilization (TU), 2) Examine whether family demographics predict increased challenges to TU, and 3) Evaluate parent recommendations for increasing TU in community-based ABA services.
Children's Mental Health System Integration - A System of Care Approach
Presenter(s)
Debra Waldron, MD, MPH, Vice Chair of Health Policy, University of Iowa Children's HospitalVickie Miene, MS, MA, LMDC, Center for Child Health Improvement and Innovation, Iowa City, IA, United States;
Iowa' s Pediatric Integrated Health program provides care coordination and family support to Medicaid eligible children/youth with mental health challenges and their families. This poster will discuss technical assistance activities that impact family and provider engagement and collaboration during implementation of this new integrated care delivery model infused with System of Care values and principles. The program uses Quality Improvement processes to build linkages with community supports and promote provider collaboration.
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Assessing the Patient Education Experiences of Parents/Guardians Following a Child's Diagnosis of Autism
Presenter(s)
Rebecca Wells, MSW, MPH, Doctoral Fellow, Center for Leadership in Disability at Georgia State University, UCEDD/LENDEmily Lowell, PhD, University of South Carolina School of Medicine, Columbia, SC, SC - Center for Disability Resources, UCEDD/LEND;
This project's goal was threefold: 1) To understand the autism diagnostic and parent education procedures at clinics in the state of South Carolina; 2) To understand parental perceptions of the diagnostic and patient education process at a specific developmental pediatric clinic in Columbia, SC; and 3) To improve the diagnostic and patient education processes in the clinic based on key informant interviews with other clinicians and on parent feedback.
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Improving Early Screening and Diagnosis of Autism in Underserved Populations in Arizona through the AZLEND MCH Training Program.
Presenter(s)
Eileen McGrath, PhD, Assistant Professor of Pediatrics , The University of Arizona, LENDThe University of Arizona LEND (AZLEND) training program provides Fellows with the opportunity to participate in a yearlong research project designed to improve early identification and referral for children with autism and other neurodevelopmental and related disorders in rural and border communities and counties and to increase early detection of delays to minimize healthcare disparities in rural areas. Project components, training methods, and study results will be discussed.
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Partnering for Strength: Unleashing creativity and passion for the growth of nonprofits serving the disability community.
Presenter(s)
robin deAlmeida, BS Communications, LEND Trainee, INACTIVE-University of New Hampshire, LENDAmazing strides are being made in the world of disability. Nonprofits often play a large role in executing the solutions these advances result in. Let's take a look at how these organizations are tasked with implementing solutions. What obstacles impede their success? How can nonprofits engage with other communities and learn from them? How do nonprofits that serve those who experience disability become not only relevant but REVOLUTIONARY?
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Toward Universal Design in the Clinical Setting
Presenter(s)
Debora Downey, PhD, Speech-Language Pathologist, Center for Disabilities and Development, UCEDD/LENDJennifer Andersen, University of Iowa, Iowa City, IA, United States, IA - Center for Disabilities and Development, UCEDD/LEND;
. This presentation will discuss issues of promoting autonomy of all individuals in the clinic setting, as well as provide a method by which individuals with disabilities may better navigate this environment. The presentation will also highlight some of the benefits and limitations of low to high end technological applications to promote patient-centered care during during clinic visits.
Charting the LifeCourse, a framework in supporting individuals with intellectual and developmental disabilities and their families across the lifespan.
Presenter(s)
Sheli Reynolds, Ph.D. , Director of Individual Advocacy and Family Support, University of Missouri, UCEDD/LENDJane St. Johon, UMKC UCEDD, Kansas City, MO, United States, MO - University of Missouri, UCEDD/LEND;
Life planning is different than service planning. Life planning encompasses having a vision for the future, and helps families and individuals explore ways to work toward achieving the vision. The LifeCourse framework and accompanying tools and resources help individuals and families plan for life, life in the community, life with the right amount of support to live, work, and play just as any other citizen.
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Past, Present and Future of Supporting ALL Family Members: Elevating UCEDD�s, LEND�s and AUCD Family Support SIG in the National Movement
Presenter(s)
Liz Hecht, Parent Project CoordinatorVyonda Martin, Oklahoma City, OK, United States, OK - Center for Learning and Leadership, UCEDD/LEND;
Sheli Reynolds, Kansas City, MO, United States, MO - University of Missouri, UCEDD/LEND;
Angela Martin, Detroit , MI, United States, MI - Developmental Disabilities Institute, UCEDD;
Katie Arnold, Sibling Leadership Network, Chicago , IL, United States;
Wanda Felty, Oklahoma City, OK, United States, OK - Center for Learning and Leadership, UCEDD/LEND;
The AUCD Network has significant impact on policies and practices that support the quality of life of self-advocates, siblings, parents and families, however, this role has sometimes been unrecognized. This session will highlight the work of the AUCD Family Support Special Interest Group (SIG) to elevate this role within the AUCD Network and within the disability field as a whole and will share opportunities for everyone to get involved.
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An Automated Language Environment Analysis (LENA) For Understanding Language Profiles in Young Children with Down Syndrome, Autism, and Typical Development
Presenter(s)
Ann Mastergeorge, Ph.D., Associate Professor, University of ArizonaUnderstanding language profiles in young children with developmental disorders is critical for targeting early intervention. The use of the Automated Language Environment Analysis (LENA) provides information related to sixteen hours of vocalizations for each child with Down Syndrome, autism, and typical development. A description of LENA, developmental language profiles and implications these analyses have for engaging families in targeted language interventions will be discussed.
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Screening and Diagnosis - a Piece of Cake! Now for the Hard Part!!
Presenter(s)
Jean Johnson, DrPH, Professor, Hawaii Center on Disability Studies UCEDD/JABSOM LEND ProgramThis presentation describes how newborn hearing screening contributes to global hearing health in these Pacific nations, providing a pathway to social justice.
Mediation In Special Education Matters: What does Voluntary Mean?
Presenter(s)
MAUREEN VAN STONE, JD, MS, Director , Kennedy Krieger InstituteMallory Finn, JD, Law Trainee, Baltimore, MD, United States;
Mediation is a negotiation where the parties come together in an effort to reach an agreement. Some school system attorneys have a practice of agreeing to mediate, and then backing out of the mediation at the last moment based on the IDEA requirement that mediation is voluntary. While the school system's approach to mediation does not violate the IDEA, it essentially forces the parents to pursue a due process hearing.
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Electronic Medical Records in the World of IDD: Lemons into Lemonade
Presenter(s)
Stephen Sulkes, MD, , Strong Center for Developmental Disabilities, UCEDD/LENDElectronic Medical Record systems can be useful in service, training, and research in ways that other information systems cannot. Three projects carried out by LEND fellows describe how to extract full value from such tools.
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Improving Mental Health for Children by Incorporating Medical Legal Partnerships (MLP) in Schools
Presenter(s)
Maureen van Stone, JD, MS, Staff Attorney, Kennedy Krieger Institute, UCEDD/LENDChristopher Smith, PhD, Baltimore, MD, United States, MD - Kennedy Krieger Institute, UCEDD/LEND;
This proposed School Medical-Legal Partnership (MLP) model will provide early intervention mental health services by training educators to screen for social determinants of health in their students. Data illustrate that many students living in poverty have an emotional disability and qualify for special education and related services. Creating this School MLP model could provide the point of entry for children and families to obtain necessary mental health services.
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Positive Outcomes for Advocates Using ?Principled Negotiation?
Presenter(s)
MAUREEN VAN STONE, JD, MS, Director , Kennedy Krieger InstituteJaclyn Machometa, JD, Law Trainee, Baltimore , MD, United States;
Christopher Smith, Ph.D., MCDD Director, Baltimore , MD, United States;
This poster will summarize a theory of negotiation by highlighting its key components and the known outcomes for the disputing parties, as well as argue that this theory can have positive outcomes, not just for the disputing parties, but for special education advocates or attorneys. The poster will include a case study and proffer research to present a new outcomes focus on principled negotiation in special education.
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Use of Interactive Television in Identifying Autism in Young Children
Presenter(s)
T. Rene Jamison, Ph.D., Associate Professor, Schiefelbusch Institute for Life Span Studies, UCEDD/LENDR. Matthew Reese, Ph.D., Kansas City, KS, United States, KS - Schiefelbusch Institute for Life Span Studies, UCEDD/LEND;
Maura Wendlend, Ph.D., Kansas City, KS, United States, KS - Schiefelbusch Institute for Life Span Studies, UCEDD/LEND;
Matt Braun, M.A., Kansas City, KS, United States, KS - Schiefelbusch Institute for Life Span Studies, UCEDD/LEND;
Carole Prather, M.S. APRN, BC, Kansas City, KS, United States, KS - Schiefelbusch Institute for Life Span Studies, UCEDD/LEND;
Megan Hadorn, B.A., University of Kansas, Lawrence, KS, United States;
Bill Black, M.A., University of Missouri, Kansas City, Kansas City, MO, United States;
Early diagnosis is imperative for early intervention, resulting in significant improvement of symptoms. Use of telemedicine (video conferencing) would increase access to autism diagnostic services, particularly in rural areas, where the disparity between first concern and diagnosis is greater. Participants in this study completed autism assessment in-person or over videoconferencing, and clinician's ability to assess autism via telemedicine was investigated through comparison of diagnostic accuracy, reliability, and parent satisfaction.
Leadership Empowerment Abuse Prevention: Selecting a curriculum, an interdiscplinary approach
Presenter(s)
shelly baer, Masters of Science, Director, Leadership Training Initiatives, Mailman Center for Child Development, UCEDD/LENDThe goal of the Leadership Empowerment Abuse Prevention project is to train individuals with disabilities about healthy relationships. This paper will discuss an interdisciplinary approach that was used to select a curriculum on healthy relationships between the domestic violence, disability service providers, and representatives from the self-advocacy community. These perspectives had different approaches to abuse prevention coming from different frameworks which presented opportunities and challenges in the curriculum's development.
Observing home visiting practice quality in early intervention
Presenter(s)
Mark Innocenti, PhD, Research & Evaluation Director, Institute for Disability Research, Policy & Practice, UCEDD/LENDWhat evidence-based behaviors do interventionists use during early intervention home visits? What behaviors lead to effective practices? How do specific practices of the interventionist lead to greater parent and child engagement? The rationale, development, research and psychometric properties of the HOVRS, an observational measure of home visits, will be presented. Practice observations will occur and a plan developed for implementing HOVRS in practice.
Cross-System Engagement to Improve Newborn Screening in Wisconsin Plain Communities
Presenter(s)
Anne B Harris, PhD, WI LEND Director, Waisman Center, UCEDD/LENDMeghan Grow, WI LEND, Genetics Counseling Program, Madison, WI, United States, WI - Waisman Center, UCEDD/LEND;
Shelby Sieren, WI LEND, Genetics Counseling Program, Madison, WI, United States, WI - Waisman Center, UCEDD/LEND;
Christine Seroogy, MD, UW-Madison, Pediatrics, Madison, WI, United States;
Greg Rice, MD, UW-Madision, Pediatrics, Madison, WI, United States, WI - Waisman Center, UCEDD/LEND;
Sharon Fleischfresser, MD, Wisconsin State Dept of Heatlh Services, CYSHCN Program, Madison, WI, United States;
Gretchen Spicer, UW-Madison, State Lab of Hygiene, Madison, WI, United States;
Kristi Jones, MPH, Genetics Systems Integration Hub, Madison, WI, United States, WI - Waisman Center, UCEDD/LEND;
Demonstrating a high level of cross-system collaboration between a community advisory board, state public health programs, LEND trainees, faculty and clinician/researchers, the "Amish Project" and a Genetic Alliance "Impact Award" are working together to increase the number of children who receive newborn screening in rural Plain communities in Wisconsin. Cross-system strategies related to providing education and outreach, and research utilizing community surveys, will be presented.
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The Logistics of Engagement: Harnessing the Collective Wisdom of Groups
Presenter(s)
Charmaine Crockett, Special Projects Coordinator, Hawaii Center on Disability Studies UCEDD/JABSOM LEND ProgramVelina Sugiyama, , Honolulu, HI, United States, HI - Center on Disability Studies, UCEDD/LEND;
Is it time to rethink the usual formats of sharing information, projects, and research? This poster presentation identifies new and innovative meeting ideas and formats that encourage conversation and real dialogue between you, your colleagues and audience members. Learn about engagement communication, alternative-seating arrangements, dynamic formats, open space technologies and the latest meeting design trends from two veteran logistic specialists.
Services for Children with ASD: Comparing Rural and Non-Rural Communities
Presenter(s)
Maria Paula Mello, M.Ed, Ms., Vanderbilt University, UCEDD/LENDThis poster compares services for children with Autism Spectrum Disorder (ASD) living in rural vs. non-rural communities. Using a large-scale, statewide survey of 14 services, families reported problems in finding parent workshops and accessing behavior support services. Compared to SLPs, BCBAs were less often located in rural (versus non-rural) counties. Parents reported driving further and were less satisfied with the effectiveness of behavioral services they received.
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A Longitudinal Investigation of Self-Determination among Young Adults with Intellectual Disabilities: Design and Participatory Research Frame
Presenter(s)
Moira Kirby, M. Ed, Ms., Institute on Disabilities, UCEDDRoss Whiting, M. Ed., Temple University - Institute on Disabilites, Philadelphia, PA, United States, PA - Institute on Disabilities, UCEDD;
The objective is to evaluate the effectiveness of a university-based postsecondary program for adults with intellectual disabilities in developing self-determination (August 2014-May 2016). This poster will present the overall design of the study as well as some preliminary results of phase one of the study: utilizing participatory research practices to develop secondary research questions regarding the importance of the four components of self-determination: self-regulation, psychological empowerment, or self-realization.
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The Power of Engaging Creative Campus Partners in University Accommodations
Presenter(s)
Teresa Nguyen, Bachelor of Arts, Diversity Fellow, JFK Partners/University of Colorado Health Sciences Center, UCEDD/LENDWhen taking a cadaver course in her undergraduate studies, Teresa, who uses a power wheelchair for independence, found it difficult to fully participate in this hands-on laboratory course. Through collaboration within different departments at her University, Teresa found several surprising partners that would point her towards the solution.
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Transforming Screening and Surveillance for Autism in Children Through the Interactive (video-enhanced) Modified Checklist for Autism in Toddlers
Presenter(s)
Louise Tiranoff, PhD, Principal Investigator & Project Director , GeneticaLensGeneticaLens, with 15+ years of experience in video documentation, has developed an interactive, video-enhanced, electronic toolkit to facilitate universal Autism Spectrum Disorder (ASD) screening and surveillance by pediatric healthcare providers.
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A Profile of children and families attending the Autism Center In Puerto Rico
Presenter(s)
Annie Alonso, Psy. D. , Interdisciplinary Training Director, Institute on Developmental Disabilities, UCEDDNanette Gonzalez, MD, San Juan, PR, PR - Institute on Developmental Disabilities, UCEDD;
Veronica Diaz, MSW, San Juan, PR, PR - Institute on Developmental Disabilities, UCEDD;
Ilia Torres, MS, Sn Juan, PR, PR - Institute on Developmental Disabilities, UCEDD;
Mario H. Rodriguez, Ph. D. , Graduate School of Public Health, University of Puerto Rico , San Juan , PR;
Marilette Alicea, MHSA, San Juan , PR, PR - Institute on Developmental Disabilities, UCEDD;
This poster will present a descriptive study of a children and families sample attending the Autism Center of Puerto Rico.
Serving Children with Developmental Disabilities and Behavioral Health Diagnoses: How are we doing in Georgia?
Presenter(s)
Mark Crenshaw, Director of Interdisciplinary Training, Center for Leadership in Disability at Georgia State University, UCEDD/LENDDaniel Crimmins, PhD, Georgia State University, Atlanta, GA, GA - Center for Leadership in Disability at Georgia State University, UCEDD/LEND;
Amy Glass, PhD, Georgia State University, Atlanta, GA, GA - Center for Leadership in Disability at Georgia State University, UCEDD/LEND;
Steve Truscott, PhD, Georgia State University, Atlanta, GA, GA - Center for Leadership in Disability at Georgia State University, UCEDD/LEND;
Linda Henderson, PhD, Georgia Department of Developmental Disabilities and Behavioral Health, Atlanta, GA;
Matt Segall, PhD, Emory University, Atlanta, GA, GA - Center for Leadership in Disability at Georgia State University, UCEDD/LEND;
Akilah Heggs, PhD Candidate, Georgia State University, Atlanta, GA, GA - Center for Leadership in Disability at Georgia State University, UCEDD/LEND;
Kelley Mautz, MPA, MS Rehabilitation Counseling Candidate, Georgia State University, Atlanta, GA, GA - Center for Leadership in Disability at Georgia State University, UCEDD/LEND;
Nathan Heald, MSW, Georgia State University, Atlanta, GA, GA - Center for Leadership in Disability at Georgia State University, UCEDD/LEND;
This presentation describes a process model for how Georgia LEND trainees explored the state's response to children with both a developmental disability and a behavioral health diagnosis and their families. Utilizing a Participatory Action Research (PAR) approach and Appreciative Inquiry (AI) interview techniques, the project team collaborated with an array of stakeholders, including state leadership professionals, treatment providers and families, to assess barriers to and opportunities for positive systems change.
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Working with our Neighbors from Our Backyard to Across the Globe: Lessons in Partnerships
Presenter(s)
Paula Sotnik, Bachelors, Senior Research Associate , Institute for Community Inclusion/Boston Children's Hospital, UCEDD/LENDWilliam Kiernan, PhD, Institute for Community Inclusion and School for Global Inclusion and Social Development, Boston, MA, United States;
There is a need to ensure all people and populations are included and that all societies are supportive of the equality of its members, whether across the globe or next door. The School for Global Inclusion and Social Development and the Institute for Community Inclusion will share strategies and lessons learned from working with an array of international and national, traditional and non traditional entities to accomplish this goal.
The Power of Re-engagement: Re-establishing Maine's Head Start State Collaboration Office
Presenter(s)
Susan Russell, M.S., Associate UCEDD Director, The University of Maine, Center for Community Inclusion, UCEDDFollowing several years of inactivity, the Maine Head Start State Collaboration Office (MHSSCO) was relocated to the University of Maine Center for Community Inclusion and Disability Studies in Fall 2013. The work of the MHSSCO is based on collaborations and partnerships: its re-engagement with existing collaborators and new partners, amid significant structural changes and funding cuts to Maine's early childhood system, coincides with a promising period of systems redesign.
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The Development of the Guidelines for Adopting the Seven Partner Values and the Toolkit
Presenter(s)
Angela Harnden, PhD, Director of Data and Outcomes, Center for Learning and Leadership, UCEDD/LENDWanda Felty, Parent, Oklahoma City, OK, OK - Center for Learning and Leadership, UCEDD/LEND;
Vyonda Martin, MA, Oklahoma City, OK, OK - Center for Learning and Leadership, UCEDD/LEND;
In fiscal year 2014 Oklahoma?s University Center for Excellence in Developmental Disabilities (UCEDD), Leadership Excellence in Neurodevelopmental Disabilities (LEND) and Consumer Advisory Committee (CAC) partnered to develop The Seven Partner Values and Toolkit. CAC members, not only advise the UCEDD- LEND, but also worked in partnership to develop Seven Partner Values, guidelines for using them and a toolkit for adopting the partnership values
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Arizona's Annual African American Symposium on Disabilities: Engaging Underserved Populations, Increasing Meaningful Statewide Partnerships, and Taking it National!
Presenter(s)
Jacy Farkas, MA, Assistant Director, Sonoran UCEDDRenaldo Fowler, BS, Arizona Center for Disability Law, Phoenix, AZ, United States;
David Carey, BS, Arizona Bridge to Independent Living, Phoenix, AZ, United States;
The African American Symposium on Disabilities has been a one-day conference providing culturally relevant information and resources to self-advocates, families and professionals. What started as an Arizona DD Network and Independent Living Center collaboration, has grown to include individuals, local organizations, and state agencies related to disability and from the greater community. The poster will discuss its humble beginnings, strategies to engaging underserved populations, measuring success, and national expansion.
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A Community-Based Participatory Survey for Children and Youth with Developmental Disabilities and Special Healthcare Needs
Presenter(s)
Sarah Swanson, Assistant Professor, Munroe-Meyer Institute of Genetics & Rehabilitation, UCEDD/LENDMark Smith, MS, Omaha, NE, NE - Munroe-Meyer Institute of Genetics & Rehabilitation, UCEDD/LEND;
Family engagement is a critical component to developing successful family support programs. (Wingspread Report, 2011). This session will provide one statewide example of how families were engaged to better document barriers to supports through survey and focus group modalities. The take away message will be: family support services are a critical need in disability services and families are primary informational resources in the development and implementation of FS projects.
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Partnership across the Rio Grande-The El Paso-Juarez Consociation of Expertise
Presenter(s)
Carol Terilli, Pediatric Physical Therapist, Rose F. Kennedy Center, UCEDD/LENDLeon Kirschner, OTR/L, MPH, Albert Einstein College of Medicine, Bronx, NY, United States, NY - Rose F. Kennedy Center, UCEDD/LEND;
Farah Alam, DDS, Albert Einstein College of Medicine, Bronx, NY, United States, NY - Rose F. Kennedy Center, UCEDD/LEND;
Alan Ross, MD, Albert Einstein College of Medicine, Bronx, NY, United States;
Clarissa Marquis-Colvard, MS, CCC-SLP, Children's Hospital of El Paso, El Paso, TX, United States;
Roy Brown, MD, Columbia University Medical Center, New York, NY, United States;
Luis Todd, MD, FAAP, Panel Physician for US Embassy and Consulates in Mexico, El Paso, TX, United States;
Alejandro Diaz, MD, Panel Physician for US Embassy and Consulates in Mexico, Juarez, TX, Mexico;
Charles and Martha Gutierrez, MDs, University of Texas at El Paso, El Paso, TX, United States;
El Paso-Juarez Consociation transports the reader through a series of activities engaging pediatric developmental clinicians and the cultures of conjoined cities separated by a national border and drug-war violence. During conflicts, vulnerable populations suffer most. The objective of this project was to bridge the cities by combining ideology and efforts among medical providers and caregivers to support children of Los Ojos de Dios orphanage in Juarez, Mexico
Communication Skills Information and Resources Module for LEND and UCEDD Trainees
Presenter(s)
Karen Edwards, MD, MPH, Co-UCEDD Director, Westchester Institute for Human Development, UCEDD/LENDCatherine Yankou, MPH, LEND Training Program Coordinator, Valhalla, NY, NY - Westchester Institute for Human Development, UCEDD/LEND;
"Communication Skills," the second module of the website Resource Modules on Health of People with Intellectual Disabilities, is designed for trainees and early career professionals to build communication knowledge and skills that can improve health access and outcomes for individuals with intellectual and developmental disabilities.
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AUCD's Promise TA Center
Presenter(s)
Leon Barnett, MSEd, Program Specialist, AUCDMichael Gamel-McCormick, PhD, Washington, DC;
AUCD�s Promise TA Center was developed to facilitate a positive impact on long-term employment and educational outcomes by reducing reliance on SSI, providing better outcomes for adults, and improved service delivery by states for youth and their families receiving SSI.
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AUCD Organizational Cultural Competence Journey
Presenter(s)
Crystal Pariseau, Director of Marketing and Public Engagement, AUCDAll Staff, Silver Spring, MD, MD - The Association of University Centers on Disabilities -;
AUCD highlights our 2013 cultural and linguistic competence assessment and journey as an organization and office. This poster describes our analysis, process, and goals for continued efforts.
Public Health Is for Everyone
Presenter(s)
Adriane Griffen, MPH, MCHES, Senior Director of Public Health and LeadershipPublic Health is for Everyone (www.phetoolkit.org) is a new, one-stop resource to increase public health professional capacity to create programs that benefit entire communities, including people with disabilities. Search and browse disability and health related resources by interests and professional needs. Resource topics include: Nutrition, Health care access, Physical activity, Emergency preparedness, Obesity, Accessibility, Tobacco, and general inclusion issues. Features practical, hands-on resources like field guides, factsheets, checklists and brochures.
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