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AUCD - Poster Symposium: The Act Early Network and You!

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Monday, November 10, 2014 9:15 AM - 11:45 AM

Location: Congressional Hall A

Session Description

New in 2014, eight AUCD poster symposia seek to deepen levels of engagement and connection between those interested in common topics. Posters have been hand-selected by a review committee and grouped by room according to theme. Facilitators will open each poster symposia with broad thoughts about the room's theme, and attendees will be allotted ample time for in-depth exploration of the information presented and make connections with others in the room. Attendees are free to select one symposia to attend as space allows; pre-registration is not required.

The Act Early Network is a collaborative initiative that supports work to improve early identification of developmental disabilities, like autism. Join this symposium for a dynamic discussion and the latest updates from the Act Early Ambassadors, state-level early identification champions, Act Early State Systems projects for improving early identification, and related efforts in identification of developmental disabilities.



Featured Presenter(s)

Faclitator: Katie Green, MPH, MCHES, Centers for Disease Control, Atlanta, GA



Presenters

The California Autism Professional Training and Information Network (CAPTAIN): Engaging our State in Implementing Evidence Based Practices
Patricia Schetter, MA, Project Coordinator, UCEDD, UC Davis MIND Institute
^
This paper will describe the process and outcomes of a statewide effort to establish a technical assistance network for Autism in California that is designed to disseminate evidence based practice tools and training resources across our state. The audience will learn how this network was established, how we engaged stakeholders from key agencies, what the network has been able to accomplish thus far and our plans for the future.

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Engaging communities one state at a time: The promotion of "Learn the Signs. Act Early." through State Systems Grants.
Kelly Nye-Lengerman, MSW, Research Associate, Institute on Community Integration, UCEDD/LEND
Jennifer Hall-Lande, PhD, Minneapolis, MN, United States, MN - Institute on Community Integration, UCEDD/LEND;
Martin Blair, PhD, Missoula, MT, United States, MT - University of Montana Rural Institute, UCEDD;
Gail Chodron, MA, Madison, WI, United States, WI - Waisman Center, UCEDD/LEND;
Nancy Lewis, MA, Albuquerque, NM, United States, NM - Center for Development & Disability, UCEDD/LEND;

Recently the CDC released new prevalence rates, which estimate that 1 in 6 children aged 3-17 has a developmental disability. Act Early State Systems Grants are a part of a larger collaborative network, which support states in building capacity around early identification and intervention. This presentation will focus on the work of 4 State Systems grantees and their strategies to promote early identification and intervention in their states.

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Screening to Succeed
Stacey Aguiar, Health Ed with a Concentration in Community Health, Early Childhood Project & Quality Improvement Mgr , RI Department of Health
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This session includes an overview of Screening to Succeed, a Rhode Island (RI) Race to The Top Early Learning Challenge project, which supports primary care providers with, financial resources and on-site technical assistance, to implement standardized developmental screening, using an electronic screening system and to link families with appropriate resources. RI?s Learn the Signs. Act Early. activities are embedded in the technical assistance provided to practices.

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Collective Impact in Hawaii: Focused Engagement to Power Community-wide Solutions
JoAnn Yuen, EdD, Associate Director, Center on Disability Studies, UCEDD/LEND
^
Collective Impact is a model for social change, fueled by the commitment of people and organizations from different sectors to develop a common approach to solve a complex social issue! Hawaii is using Collective Impact to address Homelessness and Early Childhood Health and Education. What we are learning and the conditions necessary for successful implementation.

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A Successful Public and State Partnership with Nevada Learn the Signs. Act Early
Debra Vigil, Ph.D., Associate Professor, Co-Director NvLEND, Nevada Center for Excellence in Disabilities, UCEDD/LEND
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This presentation will outline the success of partnerships with public, private and state agencies in a common goal to advance a national agenda. Nevada Maternal and Child Health Program, NvLEND, Nevada Center for Excellence in Disabilities, and other nonprofit and state agencies have a true partnership to educate healthcare providers and parents to drive an agenda around autism and other neurodevelopmental disorders through Nevada Learn the Signs Act Early.

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Considering Culture in Autism Screening: A Cultural & Linguistic Competence Training Curriculum for Pediatric Providers
Elaine Gabovitch, MPA, Instructor/Family Faculty, Eunice Kennedy Shriver Center, UCEDD/LEND
^
The Massachusetts Act Early program developed, implemented, and evaluated an educational module that trains pediatric providers in culturally competent screening, evaluation, and referral to intervention services for children with autism spectrum disorders (ASD). This poster presentation will share the themes from the 'Considering Culture in Autism Screening' training module and findings from the efficacy study to improve real-life screening practices.

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Building Comprehensive Developmental Screening Systems through State and Community Engagement: Highlights from an Environmental Scan and HRSA Autism Implementation Grantees
Sarah Beth McLellan, MPH, Sr. Program Manager, CYSHCN, AMCHP
John Miles, Autism Society of Colorado, Lakewood, CA, United States;
Cordelia Robinson Rosenberg, PhD, RN, Aurora, CO, United States, CO - JFK Partners/University of Colorado Health Sciences Center, UCEDD/LEND;
Shannon M. Haworth, MA, Richmond, VA, United States, VA - Partnership for People with Disabilities, UCEDD/LEND;

Recent data indicate as many as 1 in 4 children through age 5 are at risk for a developmental delay or disability, highlighting a need for coordinated, comprehensive systems for developmental screening and early identification. This session highlights environmental scan results of all state developmental screening activities, as well as two HRSA state autism grantees' work to engage partners, families, communities and providers to build and improve developmental screening systems.

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Nebraska State Autism Collaborative: Building a statewide autism initiative from the ground up
Kellie Ellerbusch, LPN, BLA, LEND Training Director, Munroe-Meyer Institute of Genetics & Rehabilitation, UCEDD/LEND
Cindy Ellis, MD, Nebraska LEND, `Omaha, NE, United States, NE - Munroe-Meyer Institute of Genetics & Rehabilitation, UCEDD/LEND;
Laura Maddox, PhD, BCBA, UNL-Special Education, Lincoln, NE, United States;
Annette Wragge, PhD, BCBA, Nebraska ASD Network, York, NE, United States;
Jennifer Brock, MS, SLP-CCC, Nebraska LEND, Omaha, NE, United States, NE - Munroe-Meyer Institute of Genetics & Rehabilitation, UCEDD/LEND;
Bridget Cannon-Hale, MS, Parent Training Institute, Omaha, NE, United States;
Torri Sminth-Tejral, MS, BCBA, Nebraska LEND, Omaha, NE, NE, United States, NE - Munroe-Meyer Institute of Genetics & Rehabilitation, UCEDD/LEND;
Megan Misegadis, BS, Autism Society of Nebraska, Lincoln, NE, United States;

Before the Regional Act Early Autism Summits, Nebraska did not have a statewide group dedicated to early and evidence-based identification, diagnosis, and intervention of ASDs. Since then, the Nebraska collaborative has completed multiple activities and developed numerous materials to raise awareness and improve the diagnosis and treatment of children on the spectrum, as well as increasing the number of professionals who are trained in diagnosis and interventions


Exploration of Respondent and Child Characteristics on the Outcomes of Screening Tools
Sarah O'Kelley, Ph.D., Assistant Professor/Clinical Psychologist, Civitan International Research Center, UCEDD/LEND
^Kristi Guest, Ph.D., Birmingham, AL, AL - Civitan International Research Center, UCEDD/LEND;
Michelle Patriquin, Ph.D., U. of Houston, Dept. of Psychology, Sleep and Anxiety Center for Kids, Houston, TX;
M. Kate McCalla, M.A., Birmingham, AL, AL - Civitan International Research Center, UCEDD/LEND;
Sarah E. Leger, M.A., Birmingham, AL, AL - Civitan International Research Center, UCEDD/LEND;
Peter Waselkov, B.S., Birmingham, AL, AL - Civitan International Research Center, UCEDD/LEND;

The M-CHAT and the CSBS-ITC have been recommended as screening tools to identify children in need of ASD evaluation. Our previous research in an interdisciplinary clinic for children with developmental concerns revealed elevated scores for most children with limited specificity. The current study explored if factors related to the parent or child could contribute to screening measure outcomes. Preliminary data suggests a notable impact of respondent level of education.

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California Autism Professional Training and Information Network: Evaluating California's Implementation in Schools of Evidence Based Practices in Autism
Patrice Yasuda, PhD, CA-LEND Training Director, USC, Childrens Hospital, UCEDD/LEND
Patricia Schetter, MA, BCBA , Sacramento, CA, United States, CA - UC Davis UCEDD at the MIND Institute, UCEDD;
Ananda Aspen, MA, CA Dept of Education/Diagnostic Center, Central Region, Fresno, CA, United States;

This poster will present results from a survey of statewide key stakeholders in California of their knowledge, implementation and evaluation of 24 evidence based practices in autism as defined by the National Professional Development Center for Autism Spectrum Disorders (NPDC-ASD). The audience will learn which evidence based practices participants felt most and least knowledgeable about. Implications for future trainings are discussed.

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The California Autism Professional Training and Information Network (CAPTAIN): Evaluating Interagency Collaborations
Patrice Yasuda, PhD, CA-LEND Training Director, USC, Childrens Hospital, UCEDD/LEND
Patricia Schetter, MA, BCBA, Sacramento, CA, United States, CA - UC Davis UCEDD at the MIND Institute, UCEDD;
Ananda Aspen, MA, CA Dept of Education/Diagnostic Center, Central Region, Fresno, CA, United States;

Interagency collaborations of key stakeholders are critical for ensuring that the educational needs of an individual with autism spectrum disorder are met. This poster will present results from a survey of statewide stakeholders in California of their knowledge of their agency's interagency procedures for autism related activities and key transition periods between agencies (Part C to B/IDEA, Part B/IDEA to Adult Services). Implications for training will be discussed.

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Engaging Early Childhood Systems in Developmental Monitoring of all Children: Three States' Experiences Partnering Beyond the Obvious
Gail Chodron, MA, , Waisman Center, UCEDD/LEND
Stephan Viehweg, ACSW, LCSW, IMH-E(IV), Indianapolis, IN, IN - Riley Child Development Center - Indiana University, LEND;
Deana McGuire Buck, Richmond, VA, VA - Partnership for People with Disabilities, UCEDD/LEND;

Act Early Ambassadors from Indiana, Virginia, and Wisconsin share experiences engaging early childhood cross-sector partners to improve developmental monitoring of all children. The Act Early Initiative promotes universal developmental monitoring as an adjunct to developmental screening with a validated tool. Engagement in early childhood collaborations requires sensitivity to differing partner perspectives, and the ability to think in terms of child development in general, rather than delay, disability, and intervention.

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Families Speak Out Regarding Supports and Services for Individuals on the Autism Spectrum in New Hampshire
Rae Sonnenmeier, Ph.D., Clinical Associate Professor, New Hampshire LEND Program
Elizabeth Collins, RN-BC MS, Special Medical Services (Title V Program) , Concord, NH, United States;
Jenn Pineo , New Hampshire Family Voices , Concord, NH, United States;
Betsy Humphreys, Ph.D., NH LEND Program, Durham, NH, United States;

Partnerships among several HRSA funded programs in New Hampshire form a strong foundation for identifying strengths, gaps, and solutions for improving the system of care for individuals on the autism spectrum and their families. Findings from focus groups conducted with families of individuals across the age span will be presented.