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AUCD - Concurrent Sessions

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Tuesday, November 19, 2013 1:30 PM - 2:45 PM

Location: Meeting Room Level


Presenters

Including New Americans in LEND Programs: CALC, Advocacy & Systems Change
Jean Beatson, EdD, RN, Co-Program Director, Vermont Leadership Education in Neurodevelopmental Disabilities, LEND
Maria Mercedes Avila, PhDc, UVM, Burlington, VT, United States, VT - Interdisciplinary Leadership Education Program for Health Professionals, LEND;
Stephen Contompasis, MD, Program Director, Burlington, VT, United States, VT - Interdisciplinary Leadership Education Program for Health Professionals, LEND;
Fatuma Bulle, Family Fellow, Burlington, VT, United States, VT - Interdisciplinary Leadership Education Program for Health Professionals, LEND;
Jeanine Buzigiye, BA, Education Fellow, Burlington, VT, United States, VT - Interdisciplinary Leadership Education Program for Health Professionals, LEND;

This presentation will discuss recruitment of refugees to VT LEND. Specifics will be presented on CALC professional development for faculty/staff & trainees, and mentorship. Two new American trainees will present their vision and work in the Medical Home wing as it relates to culturally responsive care coordination and the role of the Community Health Worker. Steps for advocacy and systems change in collaboration with Vermont�s healthcare reform will be discussed.

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Incorporating Life Course Theory and Social Determinants of Health in LEND Programs
Karen Edwards, MD MPH, Co-UCEDD Director, Westchester Institute for Human Development, UCEDD/LEND
Patricia Towle, PhD, Valhalla , NY, United States, NY - Westchester Institute for Human Development, UCEDD/LEND;
Barbara Levitz, MSEd, Valhalla, NY, United States, NY - Westchester Institute for Human Development, UCEDD/LEND;

LEND (Leadership Education in Neurodevelopmental and related Disabilities) Programs have worked to strengthen incorporation of Life Course Theory and Social Determinants of Health (LCT/SDH) in program curriculum for the past several years. Three LEND Programs will present methods and resources used in their programs to incorporate LCT/SDH. Participants will work in small groups to share experiences and to work on new ways to bring LCT/SDH into their programs.


Addressing Diversity in Backgrounds and Support Systems by Honoring Spirituality and Congregational Connections.
Bill Gaventa, M.Div., Adjunct Professor and Consultant, Texas Center for Disability Studies, UCEDD
Erik Carter, Ph.D. , Nahsville, TN, United States, TN - Vanderbilt University, UCEDD/LEND;
Tom Boehm, M.A., M.Div., Nashville,, TN, United States, TN - Vanderbilt University, UCEDD/LEND;
Derek Nord, Ph.D., Minneapolis, MN, United States, MN - Institute on Community Integration, UCEDD/LEND;
Joe Timmons, M.S.W., Minneapolis, MN, United States, MN - Institute on Community Integration, UCEDD/LEND;
Jenny Hatfield-Callen, M.A. , Kansas City, MO, United States, MO - University of Missouri, UCEDD/LEND;

Addressing diversity in inclusive, community based services and supports means addressing the many ways that people with disabilities and their families receive supports. A primary natural support system for many is their faith community. In this session, four UCEDD members of the national Collaborative on Disability, Religion, and Inclusive Spiritual Supports will describe UCEDD initiatives to enhance those supports through training, technical assistance, research and service development.


Academic publishing: An introduction to the peer review and editorial process for advanced graduate students and early career professionals
Glenn Fujiura, PhD, Professor, Institute on Disability & Human Development, UCEDD/LEND
Len Abbeduto, PhD, University of California, Davis, CA, United States, CA - UC Davis UCEDD at the MIND Institute, UCEDD;
Michael Wehmeyer, PhD, University of Kansas, Lawrence, KS, United States, KS - Schiefelbusch Institute for Life Span Studies, UCEDD/LEND;
Karrie Shogren, PhD, University of Kansas, Lawrence, KS, United States, KS - Schiefelbusch Institute for Life Span Studies, UCEDD/LEND;

This session addresses the academic publication process, from peer review to the production process, from the perspective of the American Association on Intellectual and Developmental Disabilities (AIDD) publications program. Emphasis is given to providing advanced graduate students and early career professionals advice on navigating manuscript development and submission in a Q&A format. The panel includes the editors of AJIDD, IDD, Inclusion and the Director of the AAIDD publications program.


Exposing Students to Maternal and Child Health Careers through Clinical, Research, and Community Advocacy and Engagement
Harolyn Belcher, MD, MHS, Associate Director, LEND/Director, Center for Diversity in Public Health Leadership Training, Kennedy Krieger Institute, UCEDD/LEND
Shanae Henry, MCHC/Rise Up Trainee, Howard University, Washington D.C., DC, United States;
Allen Young, MPH MCHC/Rise Up Trainee, Johns Hopkins School of Medicine, Baltimore, MD, United States;
Quyen Tren, Ferguson Fellow, University of Maryland School of Pharmacy, Baltimore, MD, United States;
Dr. Jacqueline Stone, PhD, Clinical and Community Training Director, Baltimore, MD, United States;

The panel will introduce the audience to MCHC/RISE-UP achievements through the experiences of faculty and student participants. The MCHC/RISE-UP, funded by the Centers for Disease Control and Prevention, introduces undergraduate students from diverse backgrounds and abilities to the public health field, focusing on maternal and child health issues. The MCHC/RISE-UP created a national consortium of University Centers of Excellence in Developmental Disabilities for undergraduate student MCH leadership experience.


Making Housing Work: Challenges, Options and Experiences
Diane Dressler, BS, Program Director, Kennedy Krieger Institute, UCEDD/LEND
Sue Swenson, MBA, US Dept. of Education, OSERS and parent, Washington, DC, United States;
George Braddock, Creative Housing Solutions and parent, Eugene, OR, United States;
Mary Scott, M.Ed., Baltimore County Public Schools and parent, Towson, MD, United States;

Young adults (and their families) face challenges as they transition to independence. Will I need to continue to live with my parents? How can I afford to rent or own my own place? Will services be available? Will the environment support my needs? This session will outline the affordability challenges, provide options for overcoming these challenges, describe adaptations that enable environments to meet the needs of people and illustrate successes.


Promoting Quality in an Inclusive and Diverse World
Cathy Terrill, MS, President and CEO, CQL
Renata Ticha, PhD, Minneapolis, MN, MN - Institute on Community Integration, UCEDD/LEND;

This session will highlight data available for trend analysis on an individual, organizational, state and national level to promote a quality life in an inclusive world.� Join us as we discuss a world of dignity, opportunity and community for all people.


Intersecting Disparities: Disability, Race and Ethnicity
Suzanne Bronheim, PhD, Associate Research Professor, Georgetown University Center for Child and Human Development
Julie Bershadsky, Human Services Research Institute, Washington, DC;
Susan Hetherington, PhD, Rochester, NY, NY - Strong Center for Developmental Disabilities, UCEDD/LEND;

This session will present three research studies that explored how�the intersection of race, ethnicity and disability result in differential treatment within the array of service systems supporting children, youth and adults with disabilities and their families. Presenters will discuss disparities related to health care, family support and education.


Promoting Social Inclusion in Your UCEDD Programs
Julie Christensen, LMSW, PhD Candidate, Director of Employment Programs, Strong Center for Developmental Disabilities
Cindy Singletary, National Youth Leadership Network, Biloxi, MS, United States;
Jessica Schuttler, PhD, Kansas City, KS, United States, KS - Schiefelbusch Institute for Life Span Studies, UCEDD/LEND;
Liesl Edwards, PhD, Kansas City, KS, United States, KS - Schiefelbusch Institute for Life Span Studies, UCEDD/LEND;
Rene Jamison, PhD, Kansas City, KS, KS - Schiefelbusch Institute for Life Span Studies, UCEDD/LEND;
Staci Forrest, National Youth Leadership Network, Bethesda, MD;

Social Inclusion is a vital aspect of transitioning youth with disabilities. However, little is known about how approaches are utilized or perceived by these individuals. We will highlight three approaches that can be applied to UCEDD programs, including challenges and youth perspectives from various groups This will include adolescents with ID, females with ASD, and young adults with physical disabilities, proving its ability to be applied to your UCEDD.


Supporting Inclusion of Diverse Populations through Workforce Recruitment, Training, and Changing Service Delivery Models
David Deere, MSW, MTh, Director, Partners for Inclusive Communities, UCEDD/LEND
Brenda Reynolds, Hot Springs, AR, AR - Partners for Inclusive Communities, UCEDD/LEND;
David Hagner, PhD, Concord, NH, NH - Institute on Disability, UCEDD;
Caitlin Bailey, MS, Newark, DE, DE - Center for Disabilities Studies, UCEDD;

Presentations will include (a) analysis of national trends in best practices in disability services, (b) an on-line training of a consultation model for job support strategies, (c) diversity training for early childhood workers, and (d) a program to recruit minority students into health professions.


Training and Advocacy for Latinos with Disabilities and their Families
Celia Feinstein, MA, Executive Director, Institute on Disabilities, UCEDD
Phyllis Guinivan, PhD, Newark, DE, United States, DE - Center for Disabilities Studies, UCEDD;
Emilio Pacheco, Visio for Equality; Kristin Ahrens, Philadelphia, PA, United States, PA - Institute on Disabilities, UCEDD;
Sandy Magana, PhD, MSW, Chicago, IL, United States, IL - Institute on Disability & Human Development, UCEDD/LEND;
Anna Ornelas and Miriam Lagunes, Georgetown, DE, United States;
Annalisa Ekbladh, Panel Moderator and Family SHADE Project Coordinator, Newark, DE, United States, DE - Center for Disabilities Studies, UCEDD;

Presentations will describe (1) a training partnership of family and self-advocacy groups who are supported by the UCEDD to develop and deliver training to people with disabilities and families throughout PA, (2) the development of an intervention that uses promotoras de salud to provide education to Latino parents of children with autism, and (3) Family SHADE (Family Support and Healthcare Alliance DElaware), a member-driven organization comprised of families of children with special health care needs and the organizations that serve them. Through all of these programs, families learn how to independently access community resources, thereby improving the quality of life of their children.