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AUCD - Concurrent Sessions

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Tuesday, November 19, 2013 10:30 AM - 11:45 AM

Location: Meeting Room Level


Presenters

Improving Early Identification of Children with Developmental Delays in Lower Resource Families from CDC�s Learn the Signs. Act Early. Program
Catherine Rice, PhD, Behavioral Scientist, Centers for Disease Control and Prevention
Melissa Raspa, Phd, Research Triangle Institute (RTI), Research Triangle Park, NC, United States;
Zolinda Stoneman, PhD, University of Georgia, Athens, GA, United States;
, , United States;
Daniel Crimmins, PhD, Georgia State University, Atlanta, GA, United States;

This panel will summarize three research projects to better inform methods to facilitate lower resource parents� role in early identification of developmental delay.

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The Arc's HealthMeet: Promoting Health for People with Intellectual Disabilities
Ann Cameron Williams, Ph.D. , Senior Executive Officer, Research and Innovations, Institute on Disability & Human Development, UCEDD/LEND
Michael Knox, Ph.D., New Brunswick, NJ, United States, NJ - The Elizabeth M. Boggs Center on Developmental Disabilities, UCEDD;
Amy Hewitt, University of Minnesota, Minneapolis, MN, United States, MN - Institute on Community Integration, UCEDD/LEND;

This session presents a CDC-funded initiative within Disability and Health. HealthMeet, an initiative of The Arc in partnership with two UCEDDs and AUCD, aims to reduce health disparities to increase the longevity and quality of life for individuals with ID. During year one, Chapters of The Arc in five states have been conducting free health assessments to people with ID, and offering health promotion training to key stakeholder audiences.


Partnerships in Employment: Systems Changes for Transition Aged Youth
Julie Christensen, LMSW, PhD Candidate, Director of Employment Programs, Strong Center for Developmental Disabilities
Erik W. Carter, PhD, Nashville, TN, United States, TN - Vanderbilt Kennedy Center for Research on Human Development - IDDRC;
Olivia Raynor, PhD, Los Angeles, CA, United States, CA - Tarjan Center UCLA, UCEDD;
Beth Swedeen, MSW, Wisconsin Board for People with Disabilities, Madison, WI, United States;
Oliver Burnette, Kansas City, MO, United States, MO - University of Missouri, UCEDD/LEND;

Eight states are receiving funding from the Administration on Intellectual and Developmental Disabilities to address barriers to employment for youth with IDD. The Partnerships in Employment Project requires extensive collaboration and communication between state vocational rehabilitation, developmental disabilities and special education agencies. This panel will discuss current challenges and policy and practice outcomes produced from 5 of the projects and the implications for replication in other states.


A Collaborative Interagency, Interdisciplinary Approach to Transition from Adolescence to Adulthood - Implications for Practice
Tony Antosh, Ed.D., Director, The Paul V. Sherlock Center on Disabilities, UCEDD
Tawara Goode, MA, National Center on Cultural Competence, Washington, DC, DC - Georgetown University Center for Child & Human Development, UCEDD;
Kim Musheno, Silver Spring, MD, MD - The Association of University Centers on Disabilities -;
Ilka Riddle, PhD, Cincinnati, OH, OH - University of Cincinnati UCE, UCEDD/LEND;

During the past year AUCD has promoted an approach to transition that focuses on self-determination, is culturally competent, encompasses all dimensions of transition, and requires interagency collaboration. This monograph has been a stimulus for a national discussion about transition. The intent of this session is to engage participants in a discussion about the practical implications of the approach as it applies to adolescents, particularly those from diverse cultures.


Some Strategies on How University Centers Support Self-Advocacy Efforts
Mark Smith, MS, Assistant Professor, Munroe-Meyer Institute of Genetics & Rehabilitation, UCEDD/LEND
Mitchell Levitz, Valhalla, NY, United States, NY - Westchester Institute for Human Development, UCEDD/LEND;
Wanda Felty, Oklahoma City, OK, United States, OK - Center for Learning and Leadership, UCEDD/LEND;
Shiloh Blackburn, Moscow, ID, United States, ID - Center on Disabilities and Human Development, UCEDD;
Jack Brandt, Blacksburg, VA, United States, VA - Partnership for People with Disabilities, UCEDD/LEND;
Barbara Levitz, MSEd, Valhalla, NY, NY - Strong Center for Developmental Disabilities, UCEDD/LEND;

A panel of four UCEDDs will provide descriptions of how their UCEDD supports self-advocacy efforts in their state. The presentation provides new perspectives, ideas and practical strategies for the attendees in order to encourage more self-advocacy initiatives within the AUCD network. Examples include self-advocacy group coordination and training, partnering for statewide networking, and expanding independent statewide self-advocacy leadership organizations. The presenters represent both geographic diversity and innovative approaches.


Native American Communities and Disability: The current landscape and how to engage and support individuals and communities.
Leslie Cohen, JD, Director, Sonoran UCEDD
Vyonda Martin, MA, Oklahoma City, OK, United States, OK - Center for Learning and Leadership, UCEDD/LEND;
Mildred Manuel, MA, CAC, Sells, AZ, United States, AZ - Sonoran UCEDD;

How doe we as Centers in the network engage effectively with the American Indian/Alaskan Native (AI/AN) communities in our state, each with its own sovereignty, customs and beliefs. . This session will provide an overview of AI/AN communities and disability (building on the AI/AN Needs Assessment Project), describe engagement efforts in Arizona and Oklahoma, and provide the perspective of an AI/AN community (CAC member from Tohono O'Odham Nation)


Genetic Testing, Disability and Ethics: Exploring Past and Current Issues
Kruti Acharya, MD, , Institute on Disability & Human Development, UCEDD/LEND
^|Lex Bolyanatz, MSW, Chicago, IL, IL - Institute on Disability & Human Development, UCEDD/LEND
Much research has been done surrounding the practices and implications of pre/postnatal genetic testing. However, rapid technological shifts continue to push ethical boundaries. This session will provide a review of the literature on prenatal testing and the response of the Disability Rights Movement, as well as offer insight on the current ethical issue of the disclosure of genetic information.


Supporting the Lives of Adolescents with Intellectual and other Developmental Disabilities
Elizabeth Laugeson, Psy.D., Associate Professor, Tarjan Center UCLA, UCEDD
Erik Carter, PhD, Nashville, TN, TN - Vanderbilt University, UCEDD/LEND;
Katelyn Borras, MS, Newark, DE, DE - Center for Disabilities Studies, UCEDD;

This panel focuses on evidence-based approaches for improving the social competence and connections of youth with disabilities. We will address (a) the PEERS school-based social skills curriculum for adolescents with ASD, (b) peer-mediated interventions for adolescents with severe disabilities, and (c) bullying and suicide ideation among adolescents with disabilities.


Empowering Students and Young Adults who are Transitioning to Adult Life: Three program models
Margo Izzo, Ph.D., Program Director, The Nisonger Center, UCEDD/LEND
Natalie Stollon, MSW, Philadelphia, PA, PA - Children's Seashore House/ Children's Hospital of Philadelphia, LEND;

This session will describe successful program models that address transition needs as youth prepare for careers, college and adult health care. One model integrates evidenced based transition curricula into high school courses. Two models demonstrate a holistic approach to transition which includes preparation for adult health care and employment. �The presenters will provide the framework for each program and lessons learned from development and implementation.


Early Identification and Intervention: Factors, Standards and New Solutions�
Toby Long, PhD, Director of Training, Georgetown University Center for Child & Human Development, UCEDD
Jennifer Marshall, PhD, Tampa, FL, FL - Florida Center for Inclusive Communities, UCEDD;
Christopher Smith, Southwestern Autism Research and Resource Center, Boise, ID;

Presentations will (1) present study results quantifying the number and type of parent concerns regarding their child�s development and rates of enrollment in public interventions, (2) present information on current standards of practice across discipline groups and Part C programs and recommend professional development strategies that increase the likelihood that services will be provided by qualified EI personnel, and (3) highlight the use of realtime telemedicine and Behavior Imaging�; to potentially expedite an autism diagnostic assessment via video data collected in natural environments.