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AUCD - Concurrent Sessions

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Tuesday, December 4, 2012 10:30 AM - 11:45 AM

Session Description

  • Room C-Cardozo: Promising Practices in Policy and Advocacy: Voices from the Pacific-West LEND Leadership Consortium
  • Room F-Fairchild-East: Innovative Technology:  Tools to Help All Individuals
  • Room G-Gunston-East: Healthy Relationships and Sexuality Classes for Individuals with Intellectual Disabilities Facilitated by Individuals with Disabilities
  • Room Columbia 12Managing Threatening Confrontations: A crisis response program tailored to support people with developmental disabilities who present challenging behaviors
  • Room Columbia 11Community Inclusion Programming for Autism:  Not Just Outreach Anymore
  •  Room Columbia 4: UCEDD/Minority-Serving Institution Partnerships: Accomplishments and Lessons Learned at the End of Three Years
  • Room Columbia 3:Academic publishing: An overview of the peer review and editorial process for advanced graduate students and early career professionals
  • Room E-EmbassyUCEDD and Family Medicine: The New Jersey and Arizona Experience in Providing a Primary Health Home Model for Adults
  • Room G-Gunston-WestCore Functions and Core Questions:  Addressing spirituality and spiritual supports in training, technical assistance, research, and dissemination
  • Room D-Du Pont"Learn the Signs. Act Early." Initiative: An Update on System and Research Activities
  • Room F-Fairchild-West: Self-Advocacy On Line: A Tool and Resource for Self-advocates.

View session descriptions below.

 




Presenters

Promising Practices in Policy and Advocacy: Voices from the Pacific-West LEND Leadership Consortium
Sally Stuart, PhD, UW LEND Associate Director/Training Director, Center on Human Development & Disability, UCEDD/LEND
Beth Ellen Davis, MD, MPH, University of Washington LEND, Seattle, WA, United States, WA - Center on Human Development & Disability, UCEDD/LEND;
Sandra Heimerl, PT, DPT, MS, New Mexico LEND, Albuquerque, NM, United States, NM - Center for Development & Disability, UCEDD/LEND;
Eileen McGrath, PhD AND Jody Pirtle, MEd , PhD, University of Arizon, LEND, Tucson, AZ, United States, AZ - Institute for Human Development, UCEDD/LEND;
Maureen Turner, PhD, University of Washington LEND, Seattle, WA, United States, WA - Center on Human Development & Disability, UCEDD/LEND;
Louise Iwaishi, MD, Hawaii LEND, Honolulu, HI, United States, HI - Center on Disability Studies, UCEDD/LEND;

MCH LEND long-term trainees must possess skills in policy development and advocacy to affect systems and policy change and to advocate for MCH populations. In this session, members of the Pacific-West LEND Leadership Consortium will discuss innovative strategies and activities for implementing policy development and advocacy skills into LEND curricula. These methods can be generalized for clinically-based; newly funded; distance learning; and to other MCH training programs and UCEDDs.


Innovative Technology: Tools to Help All Individuals
Lori Cooney, MEd, Think College Emerging Scholar
^
Innovative technology can assist individuals with disabilities as they learn hard skills (content), soft skills (social competence), and practical skills (e.g. finding employment). Presenters will share research on mixed-reality and other technologies in the classroom. Participants will leave this session with practical strategies for today and ideas for tomorrow.


Healthy Relationships and Sexuality Classes for Individuals with Intellectual Disabilities Facilitated by Individuals with Disabilities
Charles Davis, MSW, Transition Services Coordinator, Oregon Institute on Development & Disability, UCEDD/LEND
Dana Owens, Public Health, Emerging Leaders Northwest, OHSU UCEDD, Portland , OR, United States;
Adrianna Richardson, na, Emerging Leaders Northwest, OHSU UCEDD, Portland , OR, United States;

Relationships and sex are happening for people with disabilities! Join a discussion with co-facilitators with disabilities who developed and teach a course on healthy relationships and sexuality (based on Planned Parenthoods curriculum) designed for people with intellectual disabilities. Learn about the history, development, implementation and research implications for this unique course. Participants will also learn ideas and tools to approach healthy relationship and sexuality education for individuals with intellectual disabilities.


Managing Threatening Confrontations: A crisis response program tailored to support people with developmental disabilities who present challenging behaviors
Paul White, MA, Program Manager3, Waisman Center, UCEDD/LEND
James Haessly, PhD, Madison Metropolitan School District, Madison, WI, United States;

The UW Waisman Center has developed a crisis response program that has been used extensively across Wisconsin and beyond including the UK and Australia. Titled Managing Threatening Confrontations this seminar is tailored to meet the unique challenges people with DD and co-occurring mental heath diagnoses. . The presenters will share the seminar's essential components that have made the seminar so successful.


Community Inclusion Programming for Autism: Not Just Outreach Anymore
Wendy Ross, MD, Developmental Pediatrician, Autism Inclusion Resources
Beth Ziebarth, Smithsonian, Washington, DC, WA, United States;
Patricia Voorhees, Widener University, Chester, PA, United States;
Roger Ideishi, JD, OTRL, University of the Sciences, Philadelphia, PA, United States;
Dennis O'Brien, Councilman-at-Large and Family Member, Philadelphia, PA, United States;
Richard Parella, United Airlines, Chicago, IL, United States;

Community inclusion is a top priority for families when thinking about the futures of individuals with autism. This session will describe the importance of collaboration among professionals and community members in creating meaningful opportunities for community integration over the lifespan. Strategies, successes, and challenges, will be discussed in the context of examples of community programs. Together we will explore principles of effective inclusion and emerging best practices.


UCEDD/Minority-Serving Institution Partnerships: Accomplishments and Lessons Learned at the End of Three Years
Daniel Crimmins, PhD, Director, Center for Leadership in Disability at Georgia State University, UCEDD/LEND
Sunny Onyeabor, MD, MPH, Morehouse School of Medicine, Atlanta, GA;
Barbara Wheeler, PhD, Los Angeles, CA, CA - USC, Childrens Hospital, UCEDD/LEND;
Beatrice Yorker, RN, MS, JD, FAAN, College of Health and Human Services, California State University, Los Angeles, Los Angeles, CA;
Kristina Majewski, JD, Association of University Centers on Disabilities , Silver Spring, MD;
Suad Jama, MSW, Administration on Intellectual and Developmental Disabilities, Washington, DC;

This symposium will review the three-year outcomes of the two AIDD-funded partnerships between UCEDDs and MSIs ? one in Georgia and the other in California. The session will report on project accomplishments, obstacles encountered and lessons learned, sustainability, and results from an independent evaluation conducted in this final year of the project.


Academic publishing: An overview of the peer review and editorial process for advanced graduate students and early career professionals
Glenn Fujiura, PhD, Professor, Institute on Disability & Human Development, UCEDD/LEND
Lisa O'Hearn, MA, American Association on Intellectual and Developmental Disabilities, Washington, DC, United States;
Lisa Lisa Culp-Neikirk, MA, American Association on Intellectual and Developmental Disabilities, Washington, DC, United States;
Kate Caldwell, PhD, American Association on Intellectual and Developmental Disabilities, Washington, DC, United States;
Matthew Janicki, PhD, Institute on Disability and Human Development, Chicago, IL, United States;

This session addresses the academic publication process, from peer review to the production process, from the perspective of the American Association on Intellectual and Developmental Disabilities (AIDD) publications program. Emphasis is given to providing advanced graduate students and early career professionals advice on navigating manuscript development and submission in a Q&A format. The panel includes the editor of IDD, Director of the AAIDD publications program, and the AAIDD Staff Editor


UCEDDs and Family Medicine: The New Jersey and Arizona Experience in Providing a Primary Care Health Home Model for Adults
Deborah Spitalnik, PhD, Executive Director, The Boggs Center on Developmental Disabilities, UCEDD/LEND
Tamsen Bassford, MD, Tucson, AZ, AZ - Sonoran UCEDD;

This session will describe and compare the efforts of two UCEDDS to utilize Family Medicine Residency training programs to address the primary health care needs of adults with developmental disabilities through a health home model. The education of resident physicians will be discussed, as well as the potential of Family Medicine, as a life span discipline, in addressing the transition to adult health care


Core Functions and Core Questions: Addressing spirituality and spiritual supports in training, technical assistance, research, and dissemination
Bill Gaventa, M.Div., Director, National Collaborative on Faith and Dis., Collaborative on Faith and Disability
Erik Carter, Ph.D., Nashville, TN, United States, TN - Vanderbilt University, UCEDD/LEND;
Penny Seay, Ph.D., Executive Director, Austin, TX, United States, TX - Texas Center for Disability Studies, UCEDD;
Marilyn Hammond, Ph.D., Salt Lake City, UT, United States, UT - Center for Persons with Disabilities, UCEDD/LEND;
Eric Moody, Ph.D., Denver, CO, United States, CO - JFK Partners/University of Colorado Health Sciences Center, UCEDD/LEND;
Jenny Hatfield-Callen, MA, Kansas City, MO, United States, MO - University of Missouri, UCEDD/LEND;

Eleven UCEDD?s have formed the Collaborative on Disability, Religion, and Inclusive Spiritual Supports.to address inclusive spiritual supports in all of the core functions of a UCEDD/LEND program. Seminaries and other training programs for clergy and lay leaders also do training, technical assistance, research and dissemination. The panel outlines several of the UCEDD initiatives, new frontiers in spiritual supports, and the vision and organization of the new Collaborative.


?Learn the Signs. Act Early.? Initiative: An Update on System and Research Activities
Tory Christensen, Sr Project Specialist, Virginia Department of Health, SDHG
Catherine Rice, PhD, CDC/NCBDDD, Atlanta, GA;
Gail Chodron, MA, WI Act Early Ambassador; Waisman Center, LEND/UCEDD, Madison, WI;
Toni Whitaker, MD, TN Act Early Ambassador; Boling Center for Developmental Disabilities, LEND/UCEDD, Memphis, TN;
Jennifer Burt, PhD, AUCD CRA Grantee; Munroe-Meyer Institute of Genetics & Rehabilitation, LEND/UCEDD, Omaha, NE;

CDC?s ?Learn the Signs. Act Early.? program, a joint effort of CDC, MCHB, AUCD, and AMCHP, works to promote collaboration among state-level early childhood programs in improving screening, diagnosis, and referral. Panelists will discuss key Act Early activities, including AMCHP State Systems Grants, Act Early Ambassadors, and Act Early research.

Read and download presentation materials >


Self-Advocacy On Line: A tool and resource for self-advocates
Amy Hewitt, PhD, Director, Institute on Community Integration, UCEDD/LEND
Ann Cameron-Caldwell, PhD, The Arc national, Chicago, IL, MN - Institute on Community Integration, UCEDD/LEND;
Elizabeth Weintraub, AUCD, Springville , MD;

Self-Advocacy On Line i(SAO) is a resource to support self-advocates and the self-advocacy movement. SAO provides a directory of self-advocacy groups, a story wall that includes stories form self-advocates about issues of importance to them, interactive training for self-advocates and translated research for use by self-advocates. This session will share information about this resource, how it has been developed and its use.