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AUCD - Concurrent Sessions #22-32

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Tuesday, November 8, 2011 01:30PM - 02:45PM

Location: Third Floor Meeting Rooms & Potomac Rooms


Presenters

Death to snail mail: Integrating new technology to serve rural populations.
Melina Danko, M.S., Dissemination/Public Relations Manager, Center for Excellence in Disabilities, UCEDD/LEND
Sarah Ott, M.S., Morgantown, WV, United States, WV - Center for Excellence in Disabilities, UCEDD/LEND;

This presentation will address incorporating new and exploratory uses for technologies within a Center?s core functions and key projects to increase the number of rural individuals reached through training, services and dissemination.


Public Policy Partnership: An example of best practice in State DD Network Collaboration
Daniel Bier, Associate Director, Waisman Center, UCEDD/LEND
Liz Hecht, Madison, WI, United States, WI - Waisman Center, UCEDD/LEND;
Lisa Pugh, Disability Rights Wisconsin, Madison, WI, United States;

This session will review the purpose, structure, achievements and challenges of a Public Policy Partnership that was designed in 2010 by the ADD Network Partners in Wisconsin. Elements include: an MOU that outlines the terms of the partnership, pooled funding, joint hire of a Public Policy Coordinator, creation of a policy agenda, and impact.


Role of allied health professions in early detection of autism: National surveys of pre-referral practices and service implications reviewed
Lily Nalty, M.A., CCC-SLP, Director, TA Specialist, South Carolina Part C, Center for Disability Resources, UCEDD/LEND
Sandra Schefkind, MS OTR/L, AOTA, Bethesda, MD, United States;
Elizabeth Kennedy, PT PhD PCS, APTA, University of South Alabama, Mobile, AL, United States;
Cheryl Rhodes, MS LMFT, AUCD-CDC Fellow for Learn the Signs. Act Early.NCBDDD CDC , Atlanta, GA, United States;
Georgina Peacock, MD MPH FAAP, Medical Officer CDC/National Center on Birth Defects and Developmental Disabilities, Atlanta, GA, United States;

This session will describe the AOTA, APTA, and ASHA partnership with CDC?s ?Learn the Signs. Act Early.? Campaign. Preliminary research findings from surveying over 4000 practitioners will be presented. Resources, strategies, and recommendations to support families through earlier detection and through intervention will be discussed.

Read and download presentation materials >


Universal Design in Three Movements: Research, College-level Supports, and Organizational Change
Kristina Passman Nielson, PhD, Assoc. Prof., The University of Maine, Center for Community Inclusion, UCEDD
Sandra Horne, M.A., Orono, ME, United States, ME - The University of Maine, Center for Community Inclusion, UCEDD;
Lu Zeph, Orono, ME, United States, ME - The University of Maine, Center for Community Inclusion, UCEDD;
Kelly Roberts, PhD, Honolulu, HI, HI - Center on Disability Studies, UCEDD/LEND;
Robert Stodden, PhD, Hololulu, HI, HI - Center on Disability Studies, UCEDD/LEND;
Ashley Watts, MS, Morgantown, WV, WV - Center for Excellence in Disabilities, UCEDD/LEND;
Sarah Ott, MS, Morgantown, WV, WV - Center for Excellence in Disabilities, UCEDD/LEND;

The need for integrated work in the area of Universal Design to support learners with disabilities is paramount for success in institutions of higher education. These three examples begin the dialogue, highlighting research, assistance, and structural change. We hope to engage the audience in ways to further support UD and UDL in higher education.


Transition to College for Students with ID: A Review of Five Programs from New York to Hawaii
Debra Hart, EdM, Principal Investigator, Institute for Community Inclusion/Boston Children's Hospital, UCEDD/LEND
Bob Stodden, PhD, Honolulu, HI, United States, HI - Center on Disability Studies, UCEDD/LEND;
Jean Ness, Minneapolis, MN, United States, MN - Institute on Community Integration, UCEDD/LEND;
Mary Mercer, MS, Minot, ND, United States, ND - North Dakota Center for Persons with Disabilities, UCEDD;
Martha Mock, PhD, Rochester, NY, United States, NY - Strong Center for Developmental Disabilities, UCEDD/LEND;
Margo Izzo, PhD, Columbus, OH, United States, OH - The Nisonger Center, UCEDD/LEND;

The goal of the TPSID demonstration projects is to deliver inclusive postsecondary options for students with ID including participation in college classes, internships, housing and social experiences. Gain an overview and highlights from programs in the following five states: New York, Ohio, Hawaii, North Dakota and Minneapolis.


South Carolina Act Early Team Statewide Impact: Enhancing Community Pediatric Diagnostic Capacity & Policy Changes Benefitting Children with ASD
DAVID ROTHOLZ, MD, Executive Director, Center for Disability Resources, UCEDD/LEND
Jane Charles, MD, Medical University of South Carolina, Charleston, SC, United States;
Kathi Lacy, PhD, South Carolina Department of Disabilities and Special Needs, Columbia, SC, United States;
David Rotholz, PhD, Columbia, SC, United States, SC - Center for Disability Resources, UCEDD/LEND;

This session includes two interrelated presentations on recent South Carolina Act Early Team. One focuses on training general pediatricians to perform second level screening for children (24- 36 months) suspected of having an Autism Spectrum Disorder. The second concerns policy developments/recommendations affecting statewide services for young children with ASD.


From Advocacy to Leadership: Self Advocates as essential allies within UCEDDs
Harold Kleinert, Ed.D., Director, Interdisciplinary Human Development Institute, UCEDD
Shannon Caldwell, B.A., CAC Liason - HDI, Lexington, KY, United States, KY - Interdisciplinary Human Development Institute, UCEDD;
Marybeth Vallance, MSW, Preservice Training Coordinator, Lexington, KY, United States, KY - Interdisciplinary Human Development Institute, UCEDD;
Milton Tyree, B.A., Adult Services Director, Lexington, KY, United States, KY - Interdisciplinary Human Development Institute, UCEDD;
Tanya Baker McCue, MEd, Albuquerque, NM, NM - Center for Development & Disability, UCEDD/LEND;
Marilyn Martinez, Self-Advocate, Albuquerque, NM, NM - Center for Development & Disability, UCEDD/LEND;

CACs are instrumental in setting and evaluating UCEDD priorities. They can also take leadership roles in the actual work of UCEDDs, especially in the design of innovative, evidenced-based training approaches. This session will describe recent UK-HDI CAC initiatives that created products for statewide, and perhaps even national, use, and demonstrate the diverse ways in which self-advocates can partner in every aspect of planning, implementation and evaluation of UCEDD programs.


The impact of disaster on individuals with disabilities and collaborative approaches to inclusive emergency preparedness
Laura Stough, Ph.D, Associate Professor, Center on Disability and Development, UCEDD
Elizabeth McAdams Ducy, MA, College Station, TX, United States, TX - Center on Disability and Development, UCEDD;
Amy N. Sharp, Ph.D, College Station, TX, United States, TX - Texas Center for Disability Studies, UCEDD;
Judith Holt, Ph.D, Logan, UT, United States, UT - Center for Persons with Disabilities, UCEDD/LEND;
Jeff Sheen, MSW, Logan, UT, United States, UT - Center for Persons with Disabilities, UCEDD/LEND;
Phyllis Guinivan, PhD, Newark, DE, United States, DE - Center for Disabilities Studies, UCEDD;
Gary Mears, EdD, Newark, DE, United States, DE - Center for Disabilities Studies, UCEDD;
Ilka Riddle, PhD, Newark, DE, United States, DE - Center for Disabilities Studies, UCEDD;

This combined concurrent session will: 1.) Present findings on the social supports of individuals with disabilities three years after Hurricane Katrina, with a focus on how the configuration of these social supports changed from before to after the storm and 2). Share new collaborative approaches and tools that can be used to address inclusive emergency preparedness and to assist people with developmental disabilities and their families in the preparation of customized emergency readiness plans.


UCEDD-Minority Serving Institutions Partnerships in Georgia and California: The momentum builds?Year 2 Accomplishments and Reflections
Barbara Wheeler, Ph.D., Associate Director, USC, Childrens Hospital, UCEDD/LEND
Beatrice Yorker, RN, JD, FAAN, Dean, College of Health and Human Services, California State UIniversity Los Angeles, Los Angeles, CA, United States;
Daniel Crimmins, PhD, Atlanta, GA, United States, GA - Center for Leadership in Disability at Georgia State University;
Mitchell Tepper, PhD, MPH, Atlanta, GA, United States, GA - Center for Leadership in Disability at Georgia State University;
Yvonne Fry-Johnson, MD, MSRC, Satcher Leadership Institute, Morehouse School of Medicine, Atlanta, GA, United States;
Jennifer Johnson, EdD, Administration on Developmental Disabilities, Washington, DC, United States;
Suad Jama, MSW, Administration on Developmental Disabilities, Washington, DC, United States;

This symposium will present Year Two accomplishments from the two ADD-funded Minority Partnership Grants. Reflecting two models, each targeting different student groups who are under-represented in the disability field, teams from both projects will describe how the partnerships have matured and what progress has been made towards sustainable collaborations.


Voices of Families: The Critical Role of Aging Parents and Siblings
Jane Harlan-Simmons, , Indiana Institute on Disability and Community, UCEDD
Sharon Hauss, Bloomington, IN, United States, IN - Indiana Institute on Disability and Community, UCEDD;
Tamar Heller, PhD, Chicago, IL, United States, IL - Institute on Disability & Human Development, UCEDD/LEND;
Ashley Coulter, Nashville, TN, United States, TN - Vanderbilt Kennedy Center for Research on Human Development - IDDRC;
Katie Arnold, MS, Chicago, IL, United States, IL - Institute on Disability & Human Development, UCEDD/LEND;

As adults with disabilities live longer, parents are aging out of caregiver roles, budgets are being reduced and the strain on families and service systems is growing. Adult siblings are becoming the caregivers and/or advocates. What research is being done around adult siblings in the role of caregiver and advocate? What are the implications for the direction of family support services?


Civic Engagement, UCEDDs and Opportunity for People with ALL Abilities - Ten years and the Journey Continues...
Paula Sotnik, Senior Program Associate, Institute for Community Inclusion/Boston Children's Hospital, UCEDD/LEND
Leslie J. Cohen, Director and Assistant Professor, tuscon, AZ, AZ - Sonoran UCEDD;
Jerry R. Alliston, Ph D, Hattiesburg, MS, MS - Institute for Disability Studies, UCEDD;
Jewel Bazilio-Bellegarde, MPH, Corporation for National and Community Service, washington, DC;
Deb Zuver, MA, LMFT, RDT/BCT , Project STIR Steps Toward Independence and Responsibility , Chapel Hill, NC, NC - Carolina Institute for Developmental Disabilities, UCEDD/LEND;
Daniel Bier, MPA, MSW, CAE, madison, WI, WI - Waisman Center - IDDRC;

NSIP, in partnership with AUCD and the 67 UCEDDs continue to make significant strides in civic engagement and disability inclusion. UCEDDs are effective change agents, resulting in inclusive service and volunteerism policy and practice changes. Learn about the movement and be a part of it!