AUCD - Welcome Reception and Posters
<< Back to ProgramMonday, November 7, 2011 05:00PM - 07:00PM
Location: Independence Center
Session Description
The AUCD Poster Session is an opportunity to browse through one of the most comprehensive collections of current research, state of the art initiatives, and promising practices in the field of developmental disabilities anywhere. Join us for an evening reception with delicious food, friendly company, and over 130 posters to browse at your leisure.
Posters will remain on unstaffed display through 4pm Tuesday.
Details for presenters on designing your poster and poster session expectations can be found here.
Presenters
Contrast between MCHAT and ADOS scores in 18-month-olds with and without later diagnostic outcomes of autismPresenter(s)
Rebecca Landa, Ph.D., Director, Center for Autism and Related Disorders, Kennedy Krieger Institute, UCEDD/LENDRebecca Landa, Ph.D., Kennedy Krieger Institute, Baltimore, MD, United States, MD - Kennedy Krieger Institute, UCEDD/LEND;
In a prospective study of autism, MCHAT and ADOS measures were administered at 18 months to groups at high and low risk for autism. Outcome assessments, with diagnostic classification, occurred at 36 months. The sensitivity and specificity of the MCHAT will be discussed.
Family-Centered Inclusive Practices Represented in Interdisciplinary Clinical Evaluation Reports of Young Children Diagnosed with ASD and other Developmental Disabilities
Presenter(s)
Cheryl Jorgensen, Ph.D., Project Director and Assistant Research Professor, INACTIVE-Institute on Disability, UCEDDCabrinni Kulush, M.S., Trainee and Parent, Durham, NH, United States, NH - New Hampshire LEND Program;
Ann Dillon, M. Ed., Coordinator of Family Centered Training & Services, Durham, NH, United States, NH - New Hampshire LEND Program;
Elizabeth Humphries, M.Ed., LEND Interdisciplinary Training Director, Durham, NH, United States, NH - New Hampshire LEND Program;
, NH;
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, South Acworth, NH;
This session will present results of a research project that identified exemplars of family-centered inclusive practices in interdisciplinary clinical evaluation reports for children diagnosed with autism spectrum disorder (ASD) or other developmental disability between the ages of 18 months and 5 years. Recommendations for the field will also be presented.
AAIDD Promotes Progressive Policies, Sound Research, Effective Practices, and Universal Human Rights for People With Intellectual and Developmental Disabilities
Presenter(s)
Margaret Nygren, EdD, Executive Director, AAIDDSince 1876, the American Association on Intellectual and Developmental Disabilities (AAIDD) has been providing worldwide leadership in the field of intellectual and developmental disabilities. We're a powerful community of leaders with a strong voice and important mission. AAIDD is the oldest and largest interdisciplinary organization of professionals and citizens concerned about intellectual and developmental disabilities.
Developmental Disabilities Across the Lifespan: A Problem Based Approach
Presenter(s)
Angela Rosenberg, PT, DrPH, Training DirectorEmily Furgang, OT, Doctoral Student, Chapel Hill, NC, United States;
The focus of this poster is to describe the curriculum for an exclusively problem-based course, Developmental Disabilities Across the Lifespan: An Interdisciplinary Approach. The course structure uses a blended learning approach to facilitate advanced knowledge of developmental disabilities (DD) and prepare participants as evidence-based clinicians, advocates, leaders, and change-agents relative to contemporary practice issues in the DD arena.
The Diagnosis of Autism in Community Pediatric Settings: Does Advanced Training Facilitate Practice Change?
Presenter(s)
Zachary Warren, Ph.D., Dr., Vanderbilt University, UCEDD/LENDThis training model was designed to enhance ASD diagnosis and consultation within community pediatric practice, in order to address the time lag between initial concerns and formal diagnostic classification/intervention provision. Results from the training--including changes in practioners' attitudes towards issuing ASD diagnoses, changes in strategies used in practice, and perceived obstacles to model implementation--are discussed.
Beyond Modeling: Staff Coaching Using Video Analysis
Presenter(s)
Matt McAlear, M.Ed., BCBA, Vice President and Chief Program Officer, Easter Seals Bay AreaThe purpose of this presentation is to provide an overview of the use of video analysis as a staff coaching tool. The presentation includes an explanation of current procedural methods, clinical uses, and demonstrations of the efficacy of a telemedicine-delivered staff coaching program for providing innovative, individualized feedback to staff working with children with Autism Spectrum Disorder (ASD).
Health Care Expenditures Among Medicaid Enrolled Children With Cerebral Palsy With And Without Co-occuring Intellectual Disability
Presenter(s)
Vijaya Kancherla, PhD, Pierre Decoufle Fellow (AUCD)This study presents findings from a large multi-state administrative database on medical expenditures among children 17-years or younger receiving Medicaid services for cerebral palsy relative to children without cerebral palsy, further stratifying by the presence of co-occurring intellectual disability.
Mind the Gap: A Gap Detection Study
Presenter(s)
Jennie Bellis, B.S., Ms., Center for Disabilities, UCEDD/LENDAllison Root, B.A., SD-Center for Disabillities, UCEDD/LEND, Vermillion, SD, United States, SD - Center for Disabilities, UCEDD/LEND;
Gap detection measures are an essential part to a comprehensive battery of assessments for the diagnosis of central auditory processing disorders. The purpose of this study is to compare the performance of 10 young adults with no presenting audiologic concerns and no other co-morbid disorders on two WC and two BC assessments of gap detection.
National Gateway to Self-Determination Website: A Clearinghouse of Resources, Training, and Information
Presenter(s)
George Gotto, Ph.D., Director, University of Missouri, UCEDD/LENDSusan Palmer, PhD, Lawrence, KS, United States, KS - Schiefelbusch Institute for Life Span Studies, UCEDD/LEND;
Presenters will display the Gateway to Self-Determination Web Portal, developed for self advocates, professionals, and policy-makers on current best and evidence-based practices for enhancing self-determination in the lives of people with developmental and intellectual disabilities. Special attention will be given to the Resource Guide of approaches, strategies, resources, and curricula.
Training video: Teaching effective communication skills to healthcare professionals working with individuals with developmental disabilities
Presenter(s)
helen buhler, CCC-SLP; PhD, Dr. , Westchester Institute for Human Development, UCEDD/LENDBrie Donelan, MS, WIHD, Valhalla, NY, United States, NY - Westchester Institute for Human Development, UCEDD/LEND;
Janice Kilgallen, MSW, MA, WIHD, Valhalla, NY, United States, NY - Westchester Institute for Human Development, UCEDD/LEND;
The purpose of this project was to develop an evidence-based communication skills training video for healthcare providers working with individuals with developmental disabilities (I/DD). Goals for this project included conducting interviews with community partners to determine which communication skills to target and to create a realistic and high-quality training video.
An iPad App to Promote Self-Determination in Health for People with Developmental Disabilities: My Health, My Choice, My Responsibility
Presenter(s)
Marilyn Vitale, M.A., Program Coordinator, Westchester Institute for Human Development, UCEDD/LENDMitchell Levitz, Valhalla, NY, United States, NY - Westchester Institute for Human Development, UCEDD/LEND;
David O'Hara, Ph.D., Valhalla, NY, United States, NY - Westchester Institute for Human Development, UCEDD/LEND;
Using an iPad can be a fun and informative way to learn about healthy living. My Health, My Choice, My Responsibility is a self-directed learning App covering eight health topics. The poster shows how you can use the App to become informed and to take charge of your health!
The Self- Efficacy Index for Direct Support Professionals (SEI-DSP): Measuring Support Skill Confidence to Improve Quality in Community-based Disability Services
Presenter(s)
Carol Britton Laws, MSW, Doctoral Candidate, Doctoral Candidate, Institute on Human Development and Disability, UCEDDThis presentation describes the development, perceived need, and pilot testing of a self-efficacy instrument to measure staff confidence in his/her ability to achieve the Community Support Skill Standards (CSSS). Results of both a survey to assess need and the pilot are shared and implications for practice and research are discussed.
Teaching and Learning through Family Stories
Presenter(s)
Deb Samson, BA, Sociology, Consultant, Center for Disabilities and Development, UCEDD/LENDAnn Riley, MA,, Assistant Director, Iowa City, IA, United States, IA - Center for Disabilities and Development, UCEDD/LEND;
Jackie Kuntz, Parent, C-PAC member, Iowa City, IA, United States, IA - Center for Disabilities and Development, UCEDD/LEND;
This session will provide participants information about and an interactive sample of the content for a workshop held annually in Iowa - for parents. People will understand the logistics of planning, delivering, follow up and support for participants and workshop alumni. This is an interesting activity -learn from lessons learned!
Fetal Alcohol Spectrum Disorders training needs assessment for foster and adoptive families in New York State.
Presenter(s)
Lisa Katz, LMSW, LEND faculty, Westchester Institute for Human Development, UCEDD/LENDCatherine Yankou, MPH, WIHD, Valhalla, NY, United States;
Susannah Bourbeau, MSW, WIHD, Valhalla, NY, United States;
Kate Gardiner, MS, WIHD, Valhalla, NY, United States;
Christina O'Neill, MSEd, WIHD, Valhalla, NY, United States;
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This convenience based research study focused on the question: Do foster and adoptive families in New York State need more training on FASD? Results of the study will help to generate appropriate training materials on FASD to help increase awareness of this condition within this cohort.
Bridging the Gap: Raising Awareness & Increasing Accessibility to Autism Services in Non-English Speaking Communities
Presenter(s)
Sarah Hoffmeier, MSW, Family Service & Training Coordinator, KS TASN Autism & Tertiary Behavior SupportsLori Chambers, MS, SLP-CCC, Kansas Instructional Support Network/KU CCHD LEND, Kansas City, KS, United States;
In the southwest region of Kansas, research suggests lower prevalence of autism spectrum disorders among Hispanics than among non-Hispanic whites. In an effort to address this disparity, Kansas Instructional Support Network (KISN) and KU?s Center for Child Health and Development address this area of need through awareness and training
Read and download presentation materials >
Effects of Person-Centered Planning on Parent Expectations
Presenter(s)
Caroline Arakelian, MEd, , INACTIVE-University of New Hampshire, LENDMartha Fountain, Durham, NH, United States, NH - New Hampshire LEND Program;
The transition from a structured school setting to adult life can be difficult for young adults with Autism Spectrum Disorder (ASD) and their families. Yet, there is evidence that positive parent expectations regarding a student?s future plans (obtaining a driver?s license, attending a 2-year or 4-year college program, becoming employed, and living self-sufficiently) correlate with a more successful transition. Presenters will discuss person-centered planning methods to assist students affected by ASD transition into the community.
The UCEDD Family: Promoting and Supporting the Involvement of Families as Faculty, Staff and Advisors Beyond LEND Programs
Presenter(s)
Fran Goldfarb, MA, Director, Community Education, USC, Childrens Hospital, UCEDD/LENDBarbara Levitz, MS Ed, Valhalla, NY, United States, NY - Westchester Institute for Human Development, UCEDD/LEND;
Ruth Roberts, EdD, Memphis, TN, United States, TN - Boling Center for Developmental Disabilities, UCEDD/LEND;
Mark Smith, MS, Omaha, NE, United States, NE - Munroe-Meyer Institute of Genetics & Rehabilitation, UCEDD/LEND;
Jacalyn Yingling, MS, Rochester, NY, United States, NY - Strong Center for Developmental Disabilities, UCEDD/LEND;
Much has been discussed about the role of Family as faculty in LEND programs. However, family participation goes beyond LEND, existing in and integral to UCEDDs as well. This presentation will highlight the family role beyond LEND, including best practice and strategies for successful integration of family throughout UCEDDs.
Michigan Family Support Initiative: Supporting Families and Advancing the Transition of Individuals with Disabilities to Community-based Supports
Presenter(s)
Angela Martin, LMSW, Senior Associate Director, Developmental Disabilities Institute, UCEDD/LENDElizabeth Janks, LMSW, ACSW, Detroit, MI, United States, MI - Developmental Disabilities Institute, UCEDD;
The Michigan Family Support Initiative is a statewide project that delivers comprehensive and casual supports to families who have a family member with developmental disabilities who is transitioning from a 7+ person living arrangement to a person-centered, community living arrangement. This presentation will describe key project activities and preliminary findings.
Experiences that Facilitate Parent Participation in the Educational Decision-Making Process of Young Children with Disabilities
Presenter(s)
Lauren Giovingo, Ph.D., Interdisciplinary Training Coordinator, Louisiana State University Human Development Center - New Orleans, UCEDD/LENDLinda Flynn-Wilson, Ph.D., New Orleans, LA, United States, LA - Louisiana State University Human Development Center - New Orleans, UCEDD;
Lauren Giovingo, Ph.D., New Orleans, LA, United States, LA - Louisiana State University Human Development Center - New Orleans, UCEDD;
Eileen Aguilar, B.A., New Orleans, LA, United States, LA - Louisiana State University Human Development Center - New Orleans, UCEDD;
Liz Gary, B.S., New Orleans, LA, United States, LA - Louisiana State University Human Development Center - New Orleans, UCEDD;
Maria Ruiz, M.S., New Orleans, LA, United States, LA - Louisiana State University Human Development Center - New Orleans, UCEDD;
Erin Rushing, M.S., New Orleans, LA, United States, LA - Louisiana State University Human Development Center - New Orleans, UCEDD;
Philip Wilson, Ph.D., New Orleans, LA, United States, LA - Louisiana State University Human Development Center - New Orleans, UCEDD;
The presenters will discuss the experiences and events identified by parents of young children with disabilities as having been the most helpful to them while participating in the educational decision-making process. Information about the Q-Sort developed for this study and details of the data collection process also will be shared.
Development and Performance of Communities of Practice to Support Students with Disabilities in Science, Technology, Engineering and Mathematics Fields
Presenter(s)
Steven Brown, Associate Professor, Hawaii Center on Disability Studies UCEDD/JABSOM LEND ProgramHolly Manaseri, Ph.D., Honolulu, HI, United States, HI - Center on Disability Studies, UCEDD/LEND;
Kelly Roberts, Ph.D., Honolulu, HI, United States, HI - Center on Disability Studies, UCEDD/LEND;
Robert Stodden, Ph.D., Honolulu, HI, United States, HI - Center on Disability Studies, UCEDD/LEND;
Kiriko Takahashi, M.A., Honolulu, HI, United States, HI - Center on Disability Studies, UCEDD/LEND;
The purpose of this presentation, targeted to faculty and others interested in supporting students with disabilities interested in STEM fields to succeed in postsecondary education, is to share how three Communities of Practice (COP) were developed at one research university and two community colleges on the island of O?ahu, Hawaii.
Surprised to be Standing: A Spiritual Journey
Presenter(s)
Steven Brown, Associate Professor, Hawaii Center on Disability Studies UCEDD/JABSOM LEND ProgramLongtime disability rights advocate and pioneering Disability Culture advocate Steven E. Brown?s 2011 memoir Surprised to be Standing: A Spiritual Journey approaches disability from the perspective of a disability rights advocate who finds himself on an unexpected healing journey.
Beyond Necessities: increasing physical activity opportunities for children with disabilities through innovative collaborations.
Presenter(s)
Sarah Ott, M.S., Program Development and Evaluation Manager, Center for Excellence in Disabilities, UCEDD/LENDThis presentation will explore an innovative collaboration between the CED at West Virginia University and the WVU Department of Physical Activity and Sports Sciences and their effectiveness of incorporating the universal design for learning framework in adapted physical education classes.
Partners in Policymaking in South Dakota: An Innovative Model for Statewide Impact
Presenter(s)
Judy Struck, Ed. D., Executive Director, Center for Disabilities, UCEDD/LENDShelly Grinde, MA, Sioux Falls, SD, United States, SD - Center for Disabilities, UCEDD/LEND;
Partners in Policymaking is an innovative leadership training program designed for adults with disabilities, family members, and parents of children with disabilities. The mission of the program is twofold: to learn best practices and expand personal competencies to meaningfully engage policymakers and fully participate in communities of choice. This poster will highlight the impact that this self-advocacy training program has had in SD.
Going Home: A Familial, Medical, and Educational Exploratory Investigation
Presenter(s)
Jody Pirtle, M.A., Assistant Clinical Professor, Institute for Human Development, UCEDDParticipants will be presented with the results of an exploratory study in which 14 children with language delays and their families participated in a targeted summer language intervention program that was conducted in a rural medical home and extended into the families' homes.
TAESE Keeps the Main Thing, the Main Thing: Children with Disabilities and Their Families
Presenter(s)
Martin Blair, PhD, Associate Division Director, Institute for Disability Research, Policy & Practice, UCEDD/LENDFor 30 years, the Center for Technical Assistance for Excellence in Special Education (TAESE) has provided services such as educational event planning, training, and education-focused consultation. TAESE administers the Mountain Plains Regional Resource Center, TASK/12 education interpreter training and certification program, national Dispute Resolution Consortium, and many other State and federal contracts and agreements.
The LENA Automatic Autism Screen: Additional Validation
Presenter(s)
Renee Charlifue-Smith, M.A., Speech-language pathologist, Senior Instructor, JFK Partners/University of Colorado Health Sciences Center, UCEDD/LENDSteven A. Rosenberg, Ph.D., University of Colorado Denver, Aurora, CO, United States;
Jill Gilkerson, Ph.D., LENA Foundation, Boulder , CO, United States;
Cordelia C. Robinson, Ph.D., Aurora, CO, CO - JFK Partners/University of Colorado Health Sciences Center, UCEDD/LEND;
Jeffrey A. Richards, Ph.D., LENA Foundation, Boulder , CO, United States;
Dongxin Xu, Ph.D., LENA Foundation, Boulder , CO, United States;
Vocal output captured by LENA recordings can successfully differentiate children with autism from typically developing children and children with language delays. This poster will present findings from an ongoing study that is collecting data to test the accuracy of the LENA Foundation?s algorithms for identifying children at risk for autism.
Resolving Accommodation Issues
Presenter(s)
Dinah F.B. Cohen, Director, DoD CAP, Federal Government - Department of DefenseThe Department of Defense (DoD) Computer/Electronic Accommodations Program (CAP) provides assistive technology and services to federal employees with disabilities and wounded Service members to increase access to information and employment opportunities. As a centrally-funded organization, CAP supports the Executive Order by eliminating the costs of assistive technology and accommodation solutions. This model helps supervisors and employees resolve accommodations issues throughout the employment lifecycle, including the placement, training and retention of federal employees via telework and other forms of reasonable accommodation.
Predictors of speech and language outcomes for children who are hard-of-hearing
Presenter(s)
Lenore Holte, Ph.D., LEND Director, Center for Disabilities and Development, UCEDD/LENDRuth Bentler, Ph.D., University of Iowa, Iowa City, IA, United States;
J. Bruce Tomblin, Ph.D., University of Iowa, Iowa City, IA, United States;
Mary Pat Moeller, Ph.D., Boystown National Research Hospital, Omaha, NE, United States;
We are currently involved in a multi-center study designed to explore factors contributing to positive outcomes in children with mild to severe hearing loss. This poster will focus on predictors of speech and language outcomes. Findings indicate that access to as much of amplified speech as possible is critical for success.
Supporting State Efforts to Act Early for All Children: An Introduction to Project BEST.
Presenter(s)
Jane Squires, PhD, Director, Center on Human Development, UCEDDLiz Twombly, M.S., Early Intervention Program University of Oregon, Eugene, OR, United States;
Do you feel like your state Part C child find system could be more efficient, equitable, or timely? This poster session will introduce Project BEST, which is focused on creating indicators to support the timely identification, referral and provision of services to children eligible for Part C early intervention services.
Mississippi Autism Collaboration Coalition
Presenter(s)
Alicia Westbrook, Masters of Education and Psychology, , Institute for Disability Studies, UCEDDBeth Bruton, Hattiesburg, MS, United States, MS - Institute for Disability Studies, UCEDD;
Beth Felder, M.D, Institute for Disability Studies, Hattiesburg, MS, United States;
Mississippi Autism Collaboration Coalition (MACC) was developed after stakeholders participated in Learn the Signs. Act Early Regional Summit. MACC has been promoting autism awareness in our state by educating EPSDT providers on early screening specific to ASD and the dissemination of Learn the Signs. Act Early campaign material.
Flying Together Beyond Loss: Grieving support for adults with developmental disabilities via aerial movement art
Presenter(s)
Yumi Shirai, Ph.D., Assistant Professor, Sonoran UCEDDSusan Silverberg Koerner, Ph.D., Div. of Family Studies and Human Development, University of Arizona , Tucson, AZ, United States;
Lynne Tomasa, Ph.D., Dep. of Family and Community Medicine, Tucson, AZ, United States, AZ - Sonoran UCEDD;
After attending this session, participants will understand (1) the public mental health issue that adults with DD have limited opportunities for grief when they experience significant loss; (2) the design and goals of this five-month group grieving workshop; and (3) the preliminary and mid-term results of this study.
Moving Mountains: How A Small Group of Committed People Have Improved Autism Resources for WV Children
Presenter(s)
Susannah Poe, EdD, Psychologist, BCBA-D, LEND Mentor, Center for Excellence in Disabilities, UCEDD/LENDEarlene Anglin, MS, parent, Culloden, WV, United States;
Jill McLaury, MS, BCBA, Director, Bright Futures Learning Services, Charleston, WV, United States;
Kathy Shapell, MA, executive director, Augusta Levy Learning Center (ABA-based school), Wheeling, WV, United States;
Allison Tetreault , MA, BCBA, long term trainee, Morgantown, WV, United States, WV - Center for Excellence in Disabilities, UCEDD/LEND;
Cindy Legrande, MC, CCC-SLP, Director, Circle of Friends Preschool, Huntington, WV, United States;
One year ago, a small group of West Virginians gathered at the Philadelphia Act Early Summit and began a movement to improve evidence-based services for all WV children with autism. This presentation outlines how the Mountaineer Autism Project has impacted legislation and service delivery for thousands of families.
Tilting the Balance: Strategies Leading to the Passageof Autism Insurance Legislation in WV
Presenter(s)
Susannah Poe, Ed.D., Psychologist, BCBA-D, LEND Mentor, Center for Excellence in Disabilities, UCEDD/LENDAmy Goodwin, BSJ, Parent; owner; CEO, The Goodwin Group, Charleston, WV, United States;
Earlene Anglin, MS, Parent, Culloden, WV, United States;
Jill McLaury, MS, BCBA, Director, Bright Beginnings Learning Services, Charleston, WV, United States;
Cindy LeGrande, MC-CCC/SLP, Circle of Friends Preschool, Hurricane, WV, United States;
Kathy Shapell, MS, Augusta Levy Learning Center, Wheeling, WV, United States;
Allison Tetreault, MA, BCBA, Trainee, Morgantown, WV, United States, WV - Center for Excellence in Disabilities, UCEDD/LEND;
For four years, parents and professionals in WV worked independently and unsuccessfully to pass autism insurance legislation. Our presentation outlines the unique and well-orchestrated strategies used this year to unite the community and become the 25th state to pass this important legislation.
An Approach to Postsecondary Education Program Development: Integrating Evaluation Results to Improve Outcomes
Presenter(s)
Donna Yerby, M.Ed., Educational Specialist/Assistant Director, Carolina Institute for Developmental Disabilities, UCEDD/LENDDeborah Zuver , M.A., Carolina Institute for Developmental Disabilities , Chapel Hill, NC, United States, NC - The Carolina Institute for Developmental Disabilities - IDDRC;
The poster outlines an objective outside evaluation of a model Transition and Postsecondary Program for Students with Intellectual Disabilities. Measures administered in year one include interviews with program students, focus groups of parents and typical college students, survey of faculty, and review of systems. Specific outcomes inform ongoing program development.
Functional Difficulties of Children with Special Health Needs: common denominators across health conditions
Presenter(s)
don lollar, Ed.D., Director, OHSU UCEDD, Oregon Institute on Development & Disability, UCEDD/LENDDiagnosis has provided the foundation for medical and public health activities, as well as funding and research from the beginning of classifications of health. Moving beyond diagnosis to classifying functioning provides the basis for an additional rich set of information that will inform clinical and public health science, programs, and systems. This presentation shows the heuristic and practical utility of functional data.
Exploring Common Reasons for Tobacco Use and Barriers to Cessation by People with Disabilities in Mississippi
Presenter(s)
Charles Hughes, EdS, Exec. Assistant for Dissemination, Data and Planni, Institute for Disability Studies, UCEDDThis presentation provides a report summary regarding Mississippians with disabilities who smoke or use other tobacco products, whether they are interested in quitting, and what barriers prevent participation in cessation programs or limit them from receiving smoking cessation information and accessing resources. Data collection methodology and results will be presented.
First Step to Success: Initial Implementation in Hawai`i Preschools
Presenter(s)
Jean Johnson, DrPH, Professor, Hawaii Center on Disability Studies UCEDD/JABSOM LEND ProgramNaomi Rombaoa Tanaka, MS, Honolulu, HI, United States, HI - Center on Disability Studies, UCEDD/LEND;
Susan Mrazek, MA, Honolulu, HI, United States, HI - Center on Disability Studies, UCEDD/LEND;
Ranilo Laydo, PhD, Honolulu, HI, United States, HI - Center on Disability Studies, UCEDD/LEND;
Annemieke Golly, PhD, University of Oregon, Eugene, OR, United States;
First Step to Success (FSTS) is a program designed to help reduce antisocial behaviors and increase school readiness. Project coaches manage school and home components with teachers and families of Target Students. Program overview and data from the initial 3 year implementation of FSTS in Hawai`i preschools will be shared.
What I Want for My Future: Perspectives of a Teenager with Down syndrome
Presenter(s)
Geoffrey Mikol Caldwell, Self Advocate, Member of SABEThis poster session is about sharing my ideas of a good and healthy future for me, Geoffrey Mikol Caldwell, as I get older. I am learning about self advocacy and am working towards my life goals. Stop by to talk with me and see my pictures and videos on my iPad, and hear about what it is I want to do as I get older.
Using Therapy Dogs during Motor Skills Testing with Children with Autism.
Presenter(s)
Nancy Getchell, Ph.D., Dr. , Center for Disabilities Studies, UCEDD/LENDDannielle Miccinello, MS, Thomas Jefferson University, Philadelphia, PA, United States;
Animal assisted intervention (AAI) can increase engagement and attention while decreasing disruptive behaviors. We examined the effects of a therapy dog on 7 children with ASD during a standardized motor skills assessment. Results were mixed, but several themes emerged; for this group, older children seemed to benefit from AAI.
Specialized Health Needs Interagency Collaboration Project: How healthcare advances have changed school services for children with developmental disabilities
Presenter(s)
Joan Carney, M.Ed., Director Fairmount Rehabilitation ProgramsBarbara Obst, MS RN, SHNIC, Baltimore, MD, United States, MD - Kennedy Krieger Institute, UCEDD/LEND;
Children with specialized health needs pose particular challenges to providing appropriate educational programming while having medical needs met. This presentation describes a collaborative program with a 20 year history of providing training to school personnel and examines how medical advances have effected educational service provision for children with disabilities.
The Transition Journey: Issues and strategies for youth with disabilities aging out of the foster care system
Presenter(s)
sara lichtenwalter, Ph.D., Associate Professor , CCDLichtenwalter, Ph.D., Gannon University , Erie , PA, United States;
Hackman, Ph.D, Gannon University , Erie , PA, United States;
After briefly reviewing the outcome disparities between youth with and without disabilities in the foster system, a variety of innovate interventions are explored that emphasize moving beyond the mere presence of our youth in various social, educational and workplace settings to their meaningful participation and leadership in these venues.
Two Rocky Mountain region UCEDDs implement Assistive Technology Act activities in vastly different ways to meet individual state needs
Presenter(s)
Sandra Root-Elledge, M.A., Executive Director, Wyoming Institute for Disabilities, UCEDDMarilyn Hammond, Ph.D., Utah Center for Persons with Disbilities, Logan, UT, United States, UT - Center for Persons with Disabilities, UCEDD/LEND;
Sachin Pavithran, M.S., Utah Center for Persons with Disabilities, Logan, UT, United States, UT - Center for Persons with Disabilities, UCEDD/LEND;
Alyssa Newcomb, B.S.W., Wyoming Institute for Disabilities, Laramie, WY, United States, WY - Wyoming Institute for Disabilities, UCEDD;
As lead agencies for their state's Assistive Technology Act programs, Wyoming's Institute for Disabilities and Utah's Center for Persons with Disabilities are mandated to implement distinct activities. Yet, some of the activities vary between the two states. Learn about the differing AT Act implementations by these neighboring UCEDDs.
Parent Involvement in Part C Early Intervention: What Role Does Setting Play?
Presenter(s)
Steven Rosenberg, Associate Professor, JFK Partners/University of Colorado Health Sciences Center, UCEDD/LENDCordelia Robinson, Ph.D., Aurora, CO, CO - JFK Partners/University of Colorado Health Sciences Center, UCEDD/LEND;
This session presents findings of a study of Part C early intervention that examined the association between service setting and parent involvement with those services. Levels of parent involvement with the early intervention services are presented and implications for understanding benefits of natural environments are discussed.
CAC Members: Meaningful Involvement Through Administering the Community Partner Fund in Nevada
Presenter(s)
Mary Bryant, BS, Director, Path to Independence, Nevada Center for Excellence in Disabilities, UCEDD/LENDMary Bryant, BA, Reno, NV, NV - Nevada Center for Excellence in Disabilities, UCEDD;
Tiffany Hunter, CAC Member, Self-Advocate, Stagecoach, NV;
Santa Perez, BA, CAC Member, Self-Advocate, Las Vegas, NV;
Steve Rock, PhD, Reno, NV, NV - Nevada Center for Excellence in Disabilities, UCEDD;
The CAC administers the NCED?s Community Partner Fund (CPF). This fund enables community organizations to apply for mini-grants of up to $1,000. Awarding the CPF mini-grants has led to meaningful involvement for CAC members. It has been very helpful to the NCED to have this assistance and CAC members find it challenging and rewarding.
Student and family driven transition for youth with Autism Spectrum Disorders
Presenter(s)
Alan Kurtz, M.Ed., Coordinator of Education and Autism, The University of Maine, Center for Community Inclusion, UCEDDDavid, Hagner, Durham, NH, United States, NH - Institute on Disability, UCEDD;
This poster session reports on the results of two-state research project examining the effects of a multi-component family-centered intervention designed to improve transition planning and outcomes for youth with Autism Spectrum Disorders.
Interdisciplinary Teamwork Pedagogy in the LEND Training Program: Results from a National Training Director and Instructor Survey
Presenter(s)
Carole Ivey, Ph.D., Assistant Professor, Partnership for People with Disabilities, UCEDD/LENDEvelyn Reed, Ph.D., VCU School of Education, Richmond, VA, United States;
Donna Gilles, Ed.D., Richmond, VA, United States, VA - Partnership for People with Disabilities, UCEDD/LEND;
This presentation will disseminate the results of a national study examining the interdisciplinary teamwork pedagogy of the Leadership Education in Neurodevelopmental and Related Disabilities (LEND) training programs. Results will be provided with an opportunity for discussion of the implications for interdisciplinary training, practice, and research.
Children with autism spectrum disorders in China: what resources are available to them and their families?
Presenter(s)
Mary Bruder, Ph.D. , Professor of Pediatrics, A. J. Pappanikou Center for Developmental Disabilities, UCEDD/LENDZheng Song, M.D., MPH, Farmington, CT, United States, CT - A. J. Pappanikou Center for Developmental Disabilities, UCEDD/LEND;
The study aims to find out what resources and social supports for children with Autism Spectrum Disorders (ASDs) are available in China. The ultimate goal is to call for social justice for this group of children and their families.
Collaborating Together: Formation of a State Self-Advocacy Non-Profit Organization in Virginia
Presenter(s)
shelly baer, BA, Director, Leadership Training Initiatives, Mailman Center for Child Development, UCEDD/LENDThis poster highlights the collaboration between the Partnership for People with Disabilities, Virginia?s University Center for Excellence in Developmental Disabilities, and the Virginia Board for People with Disabilities, the State Developmental Disabilities Council, to support a group of cross-disability organizations to form a statewide, disability-led non-profit organization focused on systems change.
Virtual Home Visits: Participant Responses and Programmatic Outcomes
Presenter(s)
Barbara Fiechtl, MS, Program coordinator, Institute for Disability Research, Policy & Practice, UCEDD/LENDSue Olsen, MEd, Logan, UT, United States, UT - Center for Persons with Disabilities, UCEDD/LEND;
Sarah Rule, PhD, Logan, UT, United States, UT - Center for Persons with Disabilities, UCEDD/LEND;
This presentation describes outcomes reported by early intervention service providers and families who experienced virtual home visits. It introduces issues associated with videoconferencing as a mode of service delivery. Outcome data and programmatic cost savings will be reported.
Maternal Breastfeeding Experiences and Neonatal Breastfeeding Behaviors of Children later Diagnosed with Autism
Presenter(s)
Ruth Lucas, PhD Nursing, PhDc, Institute on Disability & Human Development, UCEDD/LENDAnn Cutler, PhD, Institute on Disability & Human Development, UCEDD/LEND, Chicago, IL, United States, IL - Institute on Disability & Human Development, UCEDD/LEND;
Pamela Hill, PhD, University of Illinois at Chicago, College of Nursing, Moline, IL, United States;
Karen Kavanaugh, PhD, University of Illinois at Chicago, College of Nursing, Chicago, IL, United States;
Clarisa Medina Poeliniz, MS, PNP, RN, University of Illinois at Chicago, Chicago, IL, United States;
Colleen Corte, PhD, University of Illinois at Chicago, College of Nursing, Chicago, IL, United States;
Rebekah Hamilton, PhD, Rush University, College of Nursing, Chicago, IL, United States;
Maternal descriptions of three neonatal breastfeeding behaviors of children later diagnosed with autism spectrum disorder were reported: insatiable feeding, a vigorous suck without pausing during breastfeeding, diminished social interaction, and large weight gain during the first year of life. Further research is indicated to investigate whether insatiable feeding behavior is an early sign of ASD.
Bringing a National Campaign Home: Wisconsin's Success with State Branding of the CDC's "Learn the Signs. Act Early." (LTSAE) Campaign
Presenter(s)
Gail Chodron, Doctoral candidate, , Waisman Center, UCEDD/LENDKim Liebhardt, MSW, WI LEND Trainee, Madison, WI, United States, WI - Waisman Center, UCEDD/LEND;
Carrie Arneson, MS, Waisman Center, Madison, WI, United States, WI - Waisman Center, UCEDD/LEND;
Anne Harris, PhD, Waisman Center, Madison, WI, United States, WI - Waisman Center, UCEDD/LEND;
Amy Whitehead, MPA, Waisman Center, & Wisconsin Children and Youth with Special Health Care Needs Program (Title V), Madison, WI, United States, WI - Waisman Center, UCEDD/LEND;
Using a national campaign often requires a strategy for connecting the target audience with local/state resources. Two UCEDD-based projects worked with state partners and the CDC to customize LTSAE materials for Wisconsin. A state developmental milestones brochure, "Act Early Wisconsin" website, and statewide dissemination plan were developed and launched.
Do You Know Your State Technology Act Program?: Strategies For Increasing Access To and Acquisition of Assistive Technology
Presenter(s)
Sara Sack, Ph.D., Director of Assistive Technology Programs, Schiefelbusch Institute for Life Span Studies, UCEDD/LENDAmy Goldman, M.A., Philadelphia, PA, United States, PA - Institute on Disabilities, UCEDD;
Jane Gay, M.A., Iowa City, IA, United States, IA - Center for Disabilities and Development, UCEDD/LEND;
Sandy Root-Elledge, Ph.D., Laramie, WY, United States, WY - Wyoming Institute for Disabilities, UCEDD;
Sonke Dornblut, M.A., Durham, NH, United States, NH - Institute on Disability, UCEDD;
Kathleen Powers, Augusta, ME, United States, ME - The University of Maine, Center for Community Inclusion, UCEDD;
Carol Page, Columbia, SC, United States, SC - Center for Disability Resources, UCEDD;
Assistive technology devices and services support individuals with disabilities in working, learning, playing, and living well in the community. AT programs provide demonstration, short term loan, financial assistance services and reassignment of used technology. All states and territories have AT Act Programs. 16 of the 56 programs are connected with UCEDD programs. Learn more about this important resource.
Families Fostering Self-Determination Among Children and Youth with Intellectual Disabilities or Autism
Presenter(s)
Colleen Moss, Project CoordinatorColleen Moss, University of Wisconsin-Madison, Madison, WI, United States, WI - Waisman Center, UCEDD/LEND;
, TN, United States;
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This presentation focuses on the pivotal roles parents play in fostering self-determination among their children with developmental disabilities. We will present findings from a study examining the views and efforts of more than 750 parents of children across the grade span. Implications for practice and policy are offered.
In Their Own Words: Investigating the Types and Functions of Repetitive Behaviors Using Autobiographical Accounts from Individuals with Autism.
Presenter(s)
Janice Kilgallen, MSW, Ms., Westchester Institute for Human Development, UCEDD/LENDDr. Patty Towle, PhD, Valhallo, NY, United States, NY - Westchester Institute for Human Development, UCEDD/LEND;
In this project, several autobiographies by adults with ASD were subjected to content analysis in order to develop a typology of type and function of restricted repetitive behaviors (RRB)s, for which research is lacking. Results were compared to current literature using traditional methods.
Estimating the proportion of infants and toddlers with developmental delays?
Presenter(s)
Steven Rosenberg, Associate Professor, JFK Partners/University of Colorado Health Sciences Center, UCEDD/LENDCordelia C. Robinson, Aurora, CO, United States, CO - JFK Partners/University of Colorado Health Sciences Center, UCEDD/LEND;
Misoo Ellison, Aurora, CO, United States, CO - JFK Partners/University of Colorado Health Sciences Center, UCEDD/LEND;
This session will present empirical and theoretical estimates of the prevalence of developmental delays among young children. Methods for calculating estimates of the proportion of children who are likely to be Part C eligible will also be presented.
Supportive Parenting in Rhode Island: Outcomes for families when parents with disabilities have support from a ?Life Choices Mentor?
Presenter(s)
Claire Rosenbaum, Adult Supports Coordinator, The Paul V. Sherlock Center on Disabilities, UCEDDThis poster presentation describes support for parents with intellectual disabilities provided by the Sherlock Center on Disabilities at Rhode Island College. The presentation outlines the process and specifics of support from a ?life choices mentor? and outcome data for families served by the project since 2005.
Exploring the Perspectives of Fathers of Children with Autism Spectrum Disorders
Presenter(s)
Paul Carbone, MD, Associate Professor of PediatricPaul Carbone, MD, University of Utah, Salt Lake City, UT, United States;
Fathers' voices and needs are often overlooked even though they play an integral role in a child?s development. This research provides insight into what fathers perceive about parenting a child with ASD. It provides information for professionals to better serve families of children with ASD.
Training Beneficiaries to Access mymedicare.gov
Presenter(s)
Linda Madsen, Project Director, North Dakota Center for Persons with Disabilities, UCEDDBrenda Munson, Minot, ND, United States, ND - North Dakota Center for Persons with Disabilities, UCEDD;
The North Dakota Center for Persons with Disabilities (NDCPD) trained Medicare beneficiaries how to create and manage their mymedicare.gov account through the use of tablet computers. By reviewing their Medicare Summary Notices (MSN) on a regular basis, beneficiaries were more likely to identify if they had been wrongly charged.
Inclusive Child Care Training Program: Training for Child Care and Early Education Providers
Presenter(s)
Mary Coster, Master's in Social Work, Program Director, Children's Services and TrainingThe Inclusive Child Care Training Program has developed over 40 trainings modules and trained over 5,800 early care and education providers in Maryland in ways to promote the inclusion of children with disabilities and special health care needs. This presentation will provide suggestions so that other states can adopt this model.
Communities Uniting for Early Diagnosis of Autism and Related Disabilities ? Outcomes from Washington State Community Asset Mapping Project
Presenter(s)
Susan Wendel, MS, OTR, LEND Discipline Lead, OT, Center on Human Development & Disability, UCEDD/LENDAmy Carlsen, RN, Lead, Family Parternship Discipline , Seatlle, WA, United States, WA - Center on Human Development & Disability, UCEDD/LEND;
Utilizing community asset mapping strategies UW LEND, WA Title V, and local community champions are improving equitable access in rural communities to timely diagnosis of children with autism and related disabilities by building innovative community coalitions with public health, primary care, early intervention, schools, mental health, and family partners.
Fine Arts as Recreation and Employment - Real Opportunities Make People Productive
Presenter(s)
Helen Panzironi, MSW, Fine Arts and Community Training Program Manager, Center for Excellence in Disabilities, UCEDD/LENDClark Pinson, Ph.D., WVU School of Counseling Psychology, Morgantown, WV, United States;
Fine Arts programs supports artists with disabilities so they may achieve their goals for the future, whether interested in the arts as a profession or as recreation. This poster session describes how staff can act as navigators linking people to a diverse range of community opportunities.
Project Conectar: Building the Capacity of a Community to Learn the Signs Act Early
Presenter(s)
Bobbie Vaughn, PhD, Research Associate Professor, Florida Center for Inclusive Communities, UCEDDlinda Callejas, PhD, University of South Florida, Tampa, FL;
Myrna Veguilla, PhD, University of South Florida, Tampa, FL;
This two-year RTOI employed the use of natural helpers in a Hispanic community to help familes learn the signs act early. Presenters will provide quantitative and qualitative data that shows the impact of a model of natural helpers or promotoras in providing screening and information to Hispanic families on recognizing critical milestones and getting access to services. Participants will receive a project version of Milestone Moments in English and Spanish
Exploring Sustainability of Groups for Parents of Children with Disabilities
Presenter(s)
Pamela Thyng, MAT, MS, Mrs., INACTIVE-University of New Hampshire, LENDRebecca Sand, MA, NH LEND Program, Durham, NH, United States;
Mary Banach, PhD, UNH, Durham, NH, United States;
Leslie Couse, PhD, UNH, Durham, NH, United States;
Support groups meet an important need identified by parents for a post-diagnosis service. Yet despite advance planning, attendance can be sparse. Through interviews with parents and providers this research examined how to support parents through groups in ways that are convenient, manageable and fulfill their needs.
Using Historical Knowledge of Individuals' Disability Experiences in Collaborative Clinical and Research Environments Improve the Odds Towards Long-Term Epidemiology.
Presenter(s)
Michele Newman, Bachelor of Science, Director, No Cracks Campaign, JFK Partners/University of Colorado Health Sciences Center, UCEDD/LENDSome individuals afflicted with developmental disabilities are highly intelligent; especially about their own disability. Professionals and educators neglect to recognize them as valuable resource tools who are often eager to assist with research, help set diagnostic parameters, or assist to improve clinical therapies dealing with their particular disabilities.
Perceptions of Family Centered Care in Primary Healthcare by Families of Children with Disabilities: Are We Moving Forward?
Presenter(s)
Michaela Zajicek-Farber, MSW,PhD, Associate Professor, CUA-NCSSSAjita Robinson, MA-R, GWU, Washington, DC, DC, United States, DC - Children's National Medical Center, LEND;
To understand barriers of implementing family centered services (FCC) in primary healthcare, a pilot study presents descriptive qualitative findings on six elements of FCC reported by 20 families of children with disabilities during semi-structured interviews using a standardized instrument. Implications for practice and policy, limitations, and future research are considered
Inclusive Spiritual Supports: Building a National Collaboration among UCEDDs and Seminaries
Presenter(s)
William Gaventa, M.Div, Associate Professor, Pediatrics, The Boggs Center on Developmental Disabilities, UCEDD/LENDErik Carter, Ph.D, Nashville, TN, United States, TN - Vanderbilt University, UCEDD/LEND;
Courtney Taylor, M.Div., Nashville, TN, United States, TN - Vanderbilt University, UCEDD/LEND;
Disciplines in both social sciences and theology are paying growing attention to the importance of spiritual supports for people with intellectual and developmental disabilities. UCEDD?s and seminaries have the same core missions: training, technical assistance, research and dissemination, only in different arenas. The workshop focuses on the landscapes of research, training, service and dissemination in both arenas, and initiatives between UCEDD?s and seminaries at local and national levels.
Where do you stand? EMPLOYMENT/DAY ACTIVITY OUTCOMES FOR Persons with Intellectual Disabilities and Persons Supported by Mental Health Agencies.
Presenter(s)
Mary Anne Pallack, M Ed, Associate Director, The Paul V. Sherlock Center on Disabilities, UCEDDVicki Ferrara, MA, Paul V. Sherlock Center on Disabilities, Providence, RI, United States, RI - The Paul V. Sherlock Center on Disabilities, UCEDD;
This poster session addresses RI?s initiative to obtain annual data re: employment and day activity outcomes for persons who have I/DD and MH. Impact, process, data collection methods and lessons learned will be shared.
Innovative Training for Early Identification of Autism Spectrum Disorders: Focus on Assessment Strategies
Presenter(s)
Patricia Towle, PhD, Ph.D., Psychologist, Westchester Institute for Human Development, UCEDD/LENDMikaru Shichi Lasher, Ph.D., WIHD, Valhalla, NY, United States, NY - Westchester Institute for Human Development, UCEDD/LEND;
This presentation will describe a training conference on assessment instruments for evaluating young children who may have autism spectrum disorders (ASD). The conference was part of a county-wide training program for early intervention and preschool practitioners, which included workshops, interactive media, an assessment library, and training in test instruments.
Inclusive STEM: Forging Accessible Pathways to STEM Careers
Presenter(s)
Ronda Jenson, PhD, Director of Research, University of Missouri, UCEDD/LENDKC-BANCS (Building an Alliance for New Careers in STEM) seeks to increase the number of students and veterans with disabilities who complete degrees in STEM fields and ultimately enter the STEM workforce. KC-BANCS does this through partnerships with regional STEM educators, community organizations, and individuals with disabilities.
Graduate Certificate in Disability and Diversity Studies offered through distance education by the Center on Disability Studies/UCED
Presenter(s)
Norma Jean Stodden, Special Education, Associate Professor, Hawaii Center on Disability Studies UCEDD/JABSOM LEND ProgramSteve Brown, History, UCED, Honolulu, HI, United States, HI - Center on Disability Studies, UCEDD/LEND;
Kelly Roberts, Special Education, UCED, Honolulu, HI, United States, HI - Center on Disability Studies, UCEDD/LEND;
The Center on Disability Studies at the University of Hawai?i offers a graduate level Certificate in Disability and Diversity Studies through distance education. This poster highlights courses for students and professionals across disciplines which provide interdisciplinary experiences in joint planning, decision-making, and goal setting.
Henry Inc. & Annie LLC: Being the CEO of your child?s company
Presenter(s)
Amy Hess, BA/Ma, ATN Site Coordinator, Nationwide Childrens Hospital/Autism Treatment NetworkAmy Kelly, BS/MBA, Strafford, PA, United States;
Thomas Hess, MA, ATN Family Representative, Columbus, OH, United States, OH - The Nisonger Center, UCEDD/LEND;
Session will feature married and single parent?s perspectives of family centered care coordination. Discussion will center on 1.) Care coordination with multidisciplinary teams including family participation and 2.) How to implement effective care coordination with changing family dynamics and limited funding. Discussion will include the Autism Treatment Network Family toolkit
Social and Vocational Skills Training Reduces Self-reported Anxiety and Depression Among Young Adults on the Autism Spectrum
Presenter(s)
Tom Fish, Ph.D., Dr., The Nisonger Center, UCEDD/LENDThis presentation will provide an overview of the Aspirations program as well as results from a study conducted to determine the efficacy of the intervention. Specifically, 42 individuals with high functioning autism were surveyed before and then after an 8 week intervention. Participants reported significantly lower rates of depression and anxiety. They also indicated that peer relationships as well as a sense of an expanded social network had improved.
Supporting Families to Seek Timely EI/ECSE Services: Barriers & Strategies
Presenter(s)
Debra Eisert, Ph.D., Associate Director, Center on Human Development, UCEDDThe ACES Project identified barriers, motivators, and other factors in the Early Intervention/Early Childhood Special Education system in Oregon that influence families to act early on concerns that child developmental milestones are not being met. Mixed methods were used to collect and analyze data from service providers and parents.
Think College New York! And TPSID
Presenter(s)
Martha Mock, Ph.D., Professor, University of RochesterKristen Love, M.Ed., Rochester, NY, United States, NY - Strong Center for Developmental Disabilities, UCEDD/LEND;
The poster presentation is an overview of work related to a statewide mini-grant and the federally funded TPSID project in New York State to increase inclusive higher education options for students with intellectual disabilities. Emphasis will be on state-wide planning activities, policy work, and expansion efforts for four New York colleges.
Creating a Roadmap to Employment for Temporary Assistance to Needy Families (TANF) Recipients
Presenter(s)
Jennifer Tenney, MA, Program Manager, Center for Excellence in Disabilities, UCEDD/LENDA contract with the West Virginia Department of Health and Human Resources to help TANF participants become better prepared to enter the workforce, using aptitude and interest testing, before the 60 month lifetime benefits threshold is reached.
Interdisciplinary Leadership Training in Medical Home Settings- Aligning Maternal Child Health Training with the Vermont Blueprint for Health.
Presenter(s)
Stephen Contompasis, M.D., DirectorJean Beatson, EdD, RN, University of Vermont, Burlington, VT, United States, WA - Center on Human Development & Disability, UCEDD/LEND;
Participants will present a poster-- outlining the key objectives and activities of newly created medical home wing of interdisciplinary training of the Vermont LEND program.
From Curiosity to Necessity: The Evolution of Assistive Technology at One UCEDD
Presenter(s)
Jean Sherman, Ed.D, RN, Director of Adult Programs, Mailman Center for Child Development, UCEDD/LENDMichelle Schladant, PhD., Miami, FL, United States, FL - Mailman Center for Child Development, UCEDD/LEND;
Learn how a demonstration training program has evolved over a 12-year period to become an integral facet of the University of Miami's Mailman Center UCEDD. From its early, narrowly-targeted inception this AT program now serves individuals with a broad range of ages and disabilities.
Legal Issues Affecting Military Families Raising Children with Disabilities
Presenter(s)
MAUREEN VAN STONE, JD, MS, Director , Kennedy Krieger InstituteThis program highlights the complexity of legal issues surrounding the special education process for military families raising children with disabilities.
ASD Diagnosis: Braiding educational, medical and telemedicine resources.
Presenter(s)
Catherine Smith, PhD, Clinical Assistant Professor , Schiefelbusch Institute for Life Span Studies, UCEDD/LENDKathryn Ellerbeck, MD, FAAP, Center for Child Health and Development, Kansas City, KS, United States, KS - Schiefelbusch Institute for Life Span Studies, UCEDD/LEND;
Catherine Smith, PhD, Center for Child Health and Development, Kansas City, KS, United States, KS - Schiefelbusch Institute for Life Span Studies, UCEDD/LEND;
Lee Stickle, MS, Kansas Instructional Support Network, Kansas City, KS, United States, KS - Schiefelbusch Institute for Life Span Studies, UCEDD/LEND;
Sarah Hoffmier, LMSW, Kansas Instructional Support Network, Kansas City, KS, United States, KS - Schiefelbusch Institute for Life Span Studies, UCEDD/LEND;
Matt Reese, PhD, Center for Child Health and Development, Kansas City, KS, United States, KS - Schiefelbusch Institute for Life Span Studies, UCEDD/LEND;
Lisa Walsh, PhD, Center for Child Health and Development, Kansas City, KS, United States, KS - Schiefelbusch Institute for Life Span Studies, UCEDD/LEND;
Louann Rinner, MSEd., OTR/L, Center for Child Health and Development, Kansas City, KS, United States, KS - Schiefelbusch Institute for Life Span Studies, UCEDD/LEND;
Matthew Braun, MA, CCC-SLP, Center for Child Health and Development, Kansas City, KS, United States, KS - Schiefelbusch Institute for Life Span Studies, UCEDD/LEND;
The Kansas Collaborative Model was developed to increase the capacity for timely ASD diagnostic services by partnerning providers from medical, educational and telemedicine service systems. This presentation will describe characteristics and effectiveness of the Kansas Collaborative Model in the ASD diagnostic process.
MOST (Meaningful Opportunities for Successful Transitions): Outcomes from the First Three Years of Implementing an Innovative Transition Program
Presenter(s)
Deborah Fisher, Psy.D., Deputy Director, Jewish Foundation for Group HomesGila Shusterman, Ph.D., Jewish Foundation for Group Homes, Rockville, MD, United States;
Outcomes for the first 23 participants in MOST, an innovative one-year, person-centered post-secondary transition program will be described. By focusing each individual?s program on working toward individualized, short-term goals, MOST has successfully enabled participants to build the skills recognized as essential for successful transitioning -- Self-sufficiency, Community Integration, and Vocation.
Building a National Agenda for Family Support
Presenter(s)
Elizabeth Hecht, Specialist for Public Policy, Waisman Center, UCEDD/LENDMichelle Reynolds, PhD, Kansas City, MO, United States, MO - University of Missouri, UCEDD/LEND;
Vyonda Martin, Oaklahoma City, OK, United States, OK - Center for Learning and Leadership, UCEDD/LEND;
This session will review the recommendations and action plan developed by a diverse group of national Family Support leaders in March 2011. Recommendations are designed to advance high-level policy and strategy discussions on Family Support, and to generate action on federal and state policy on Family Support, including the re authorization of the Developmental Disabilities Act.
Embedding the Life Course Perspective into the LEND Curriculum: Leadership Competencies, Experiential Learning Activities and Collaboration within the PacWest Consortium
Presenter(s)
Sandra Heimerl, DPT, MS, LEND Director, Center for Development & Disability, UCEDD/LENDLiz Adams, PhD, RD, Portland, OR, OR - Oregon Institute on Disability & Development, UCEDD/LEND;
Louise Iwaishi , MD, Honolulu, HI, HI - Center on Disability Studies, UCEDD/LEND;
Eileen R. McGrath, PhD, Tucson, AZ, AZ - Institute for Human Development, UCEDD;
Sally N. Stuart, PhD, LICSW, Seattle, WA, WA - Center on Human Development & Disability, UCEDD/LEND;
Marion Taylor Baer, PhD, RD, Los Angeles, CA, CA - USC, Childrens Hospital, UCEDD/LEND;
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The Los Angeles Mental Health and Developmental Disabilities Education Program: A cross-systems collaborative addressing needs of individuals with dual diagnoses.
Presenter(s)
Alicia Bazzano, MD, MPH, Chief Physician, Westside Regional CenterErica Schuster, Westside Regional Center, Culver City, CA, United States;
Agnieszka Spatzier, MPH, Westside Regional Center, Culver City, CA, United States;
Bertina Lee, MPH, Westside Regional Center, Culver City, CA, United States;
Peggie Webb, MA, Mosaic Connections, Inc., San Diego, CA, United States;
Lawrence Schallert, MSW, Child and Family Center, Santa Clarita, CA, United States;
Danise Lehrer, LCSW, Westside Regional Center, Culver City, CA, United States;
The LAMHaDDE Program created a multi-disciplinary, cross-system Taskforce and developed a series of collaborative trainings to improve care of individuals with developmental disabilities and mental health disorders. Over 700 health and social service professionals learned skills to optimize client outcomes, create more inclusive therapeutic environments, and facilitate inter-agency partnerships.
Life-Transitions of Adults with Down Syndrome: A Secondary Analysis of Adult Sibling Survey Data
Presenter(s)
Rebecca Graves, MSN (Master's in Science of Nursing), PhD student, Center on Developmental Disabilities, UCEDD/LENDJ. Carolyn Graff, PhD, University of Tennessee Health Science Center, Memphis, TN, United States, TN - Boling Center for Developmental Disabilities, UCEDD/LEND;
This study contributes to the understanding of health related to aging in adults with Down syndrome by examining the complex associations between life-transitions, functional abilities, and health among this population using data provided by their siblings through the Adult Sibling Survey generated by Hodapp and Urbano (2007).
The Project SEARCH Business Advisory Council: Linking Business Needs to Transition-to-Work Training Practices
Presenter(s)
Julie Christensen, LMSW, AUCD Director, Center for Disabilities and Development, UCEDD/LENDSusan Hetherington, MEd, Rochester, NY, United States, NY - Strong Center for Developmental Disabilities, UCEDD/LEND;
The Project SEARCH Business Advisory Council is an innovative example of how businesses, schools, vocational rehabilitation, adult agency providers, and state developmental disabilities offices can partner together to ensure that transition-to-work programs are adequately preparing people with disabilities to meet the needs of the competitive workforce.
Hawaii's Visions for Persons with Developmental and Intellectual Disabilities
Presenter(s)
Robert Johnson`, PhD, Professor (Retired), Hawaii Center on Disability Studies UCEDD/JABSOM LEND ProgramJean Johnson, DrPH, Honolulu, HI, United States, HI - Center on Disability Studies, UCEDD/LEND;
Gail Yoki, MA, Honolulu, HI, United States, HI - Center on Disability Studies, UCEDD/LEND;
Josie Woll, RN, Honolulu, HI, United States, HI - Center on Disability Studies, UCEDD/LEND;
Cassilly Woll, HS Diploma, Honolulu, HI, United States, HI - Center on Disability Studies, UCEDD/LEND;
Thomas Conway, MFA, Honolulu, HI, United States, HI - Center on Disability Studies, UCEDD/LEND;
This presentation describes Hawaii's program for training care givers for persons with developmental and intellectual disabilities. Training materials will be available for examination.
Public health surveillance of adults with intellectual disability: building the information and knowledge base
Presenter(s)
Alexandra Bonardi, OTR/L, MHA, Assistant Director - CDDER, Eunice Kennedy Shriver Center, UCEDD/LENDEmily Lauer, MPH, Shriver Center, Waltham, MA, United States, MA - Eunice Kennedy Shriver Center, UCEDD/LEND;
Sarah Taub, MA, Human Services Research Institute, Cambridge, MA, United States;
This session will focus on national health surveillance efforts and recommendations from the 2010 - 2011 AUCD Research Topic of Interest: Health Surveillance of Adults with Intellectual Disability. The project team will present material from thier compendium of national data sources, review issues of operationalzation of the definition of intellectual disability, and highlight recommendations to enhance national health surveillance efforts in this population.
Redesigning a diabetes self-management curriculum to address accessibility for individuals with intellectual disabilities
Presenter(s)
Linda Gottfredson, Ph.D., Professor, Center for Disabilities Studies, UCEDD/LENDKathy Stroh, MS, RD, CDE, Educator Trainer, Delaware Division of Public Health, Dover, DE, United States;
Eileen Sparling, Ed.M., Center for Disabilities Studies, University of Delaware, Newark, DE, United States, DE - Center for Disabilities Studies, UCEDD;
Annalisa Ekbladh, BS, Center for Disabilities Studies, University of Delaware, Newark, DE, United States, DE - Center for Disabilities Studies, UCEDD;
Existing diabetes self-management programs are often not designed for individuals with intellectual disabilities. We will describe an approach to identifying barriers to successful diabetes self-management through providers', individuals with disabilities' and caregivers' eyes and design a more effective self-management curriculum appropriate for individuals with intellectual disabilities.
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Is Your Audience Interested in Your Message? Using Adult Learning Theories to Design More Effective Presentations
Presenter(s)
Lee Wallace, MS, RD, LDN, FADA, Chief of Nutrition, Center on Developmental Disabilities, UCEDD/LENDThis session will look at adult learning theories from the literature, including adult learning styles, needs, and preferences. The theories will be demonstrated in practice for developing lectures, PowerPoint presentations, educational handouts; for small groups, large meetings or workshops, and online education. References and resources will be provided.
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A review of inclusion of people with disabilities in current efforts to reduce racial and ethnic health disparities
Presenter(s)
Willi Horner-Johnson, PhD, Dr., Oregon Institute on Development & Disability, UCEDD/LENDPamala Trivedi, PhD, National Center for Cultural Competence, Washington, DC, United States, DC - Georgetown University Center for Child & Human Development, UCEDD;
Danielle Bailey, MPH, Oregon Office on Disability and Health, Portland, OR, United States;
Tawara, Goode, National Center for Cultural Competence, Washington, DC, United States, DC - Georgetown University Center for Child & Human Development, UCEDD;
Disability is more common in some underserved racial and ethnic groups. Yet there has been little attention to the health needs of people of color with disabilities. This presentation describes inclusion of people with disabilities in federally-funded, foundation-funded, and state-level interventions addressing racial and ethnic health disparities.
?Hearing The Silent?- Understanding what is impeding children with disabilities from participating. The caregiver perspective using visual ethnography
Presenter(s)
Leon Kirschner, MPH, OT, Occupational Therapist, Rose F. Kennedy Center, UCEDD/LENDBrigitte Desport, OTD, New York Technical College, Old Westbury, NY;
Debra Tupe, PHD, Columbia University, New York, NY;
The poster presentation introduces and details the development and piloting of a new tool created to help families who may have linguistic, socio-economic and/or literacy difficulties to help identify barriers that are preventing their children from participating in desired activities and roles.
Collaborative behavior interventions for home and school: What happens when parents, teachers and mental health providers work together?
Presenter(s)
Mallorey Beckloff, EdS/ PhD anticipated in August 2011, , Schiefelbusch Institute for Life Span Studies, UCEDD/LENDT. Rene Jamison, PhD, KU Med, Kansas City, KS, United States, KS - Schiefelbusch Institute for Life Span Studies, UCEDD/LEND;
R. Matthew Reese, PhD, KU Med, Kansas City, KS, United States, KS - Schiefelbusch Institute for Life Span Studies, UCEDD/LEND;
Steven Lee, PhD, KU Lawrence, Lawrence, KS, United States;
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Results from this multiple baseline study support the importance of collaboration between parents, teachers and outside mental health providers. Using an empirically supported consultation process, collaborative behavior interventions were developed and implemented at home and school. An overview of supporting literature, specific methods, multiple baseline graphs, and future research directions will be provided.
Supporting People with Intellectual Disabilities in Exercising Their Right to Vote
Presenter(s)
Caroline Coffield, PhD, Instructor of Pediatrics, The Boggs Center on Developmental Disabilities, UCEDD/LENDDeborah Spitalnik, PhD, The Elizabeth M. Boggs Center on Developmental Disabilities, UCEDD, New Brunswick, NJ, United States, NJ - The Elizabeth M. Boggs Center on Developmental Disabilities, UCEDD;
The Boggs Center?s Supporting People with Intellectual Disabilities in Exercising Their Right to Vote project, a collaboration with Disability Rights New Jersey (NJ?s P & A), focuses on developing educational materials and trainings about voting rights and the voting process for individuals with intellectual disability and those who support them.
Accessing the General Curriculum: Adapting Literature for Students with Intellectual Disabilities and Complex Learning Needs
Presenter(s)
Susan Dell, PhD, Associate Professor, The Paul V. Sherlock Center on Disabilities, UCEDDAll students can access the general curriculum as a basis of their education in literacy. This can be a challenge for students with significant intellectual disabilities, as many students read using picture symbols rather than typical text. The access process, available resources, and technology to adapt literature are the key components of this presentation.
Accessible Meetings and Events
Presenter(s)
Corina Miclea Rotsko, MTA, Project AssistantAs meetings represent an important opportunity for networking and exchange of ideas, accessibility is essential to creating an environment that accommodates people with disabilities and provides the venue for meaningful communication. This poster presents specific guidelines for accessible meetings, along with accompanying pictures (where applicable), to illustrate them in practice.
Changing Attitudes: Learning Experiences in Disability for Health Sciences Students
Presenter(s)
Leslie Cohen, JD, Director, Sonoran UCEDDLynne Tomasa, PhD, Sonoran UCEDD, Tucson, AZ, United States, AZ - Sonoran UCEDD;
James Kerwin , MD, Tucson, AZ, United States, AZ - Sonoran UCEDD;
Evaluation findings from inter-professional activity for health sciences students in 2010 and 2011 (n = 317) involving active participation from persons with disabilities. Having persons with disabilities as active participant teachers has a positive impact on changing students? attitudes toward providing health care and support services to people with disabilities.
Using Art as a tool to raise Self-Empowerment and Awareness
Presenter(s)
Wanda Denise Jackson-Castro, Ph.D., Patient Education Coordinator, Mailman Center for Child Development, UCEDD/LENDRochelle Baer, M.S., Miami, FL, United States, FL - Mailman Center for Child Development, UCEDD/LEND;
The Mailman Center provides services that address the physical as well as the psychological needs of individuals with neurodevelopmental disabilities and children with special health care needs. This unique poster presentation utilizes a triptych format in illuminating two programs that encourage the development of self-esteem as an element for self-discovery.
Iowa Community ACCESS Project: Building the Capacity of Local Disability Organizations to Promote Inclusion and Improve Community Livability
Presenter(s)
Jane Gay, BSN, Project Director - IA CAPS, Center for Disabilities and Development, UCEDD/LENDKay Degarmo, BSW, Iowa City, IA, United States, IA - Center for Disabilities and Development, UCEDD/LEND;
Model project trains, mentors, and certifies volunteers and staff with disabilities from local disability organizations to influence community change. Using needs assessment, education, action and advocacy, Access Specialists promote full inclusion and improve community livability in the areas of emergency preparedness and community accessibility. Preliminary results are very promising.
Take a Look at Me: Using a Strengths-Based Portfolio to Support Young Children and their Families
Presenter(s)
Carol Darrah, M.S., Early Intervention Program Coordinator, Institute on Human Development and Disability, UCEDDMary E. Rugg, M.Ed., Athens, GA, United States, GA - Institute on Human Development and Disability, UCEDD;
The Take a Look at Me portfolio is a practical tool that brings research to practice. It empowers families and providers to build responsive relationships and identify learning opportunities based on children?s abilities and interests. This session will highlight the benefits of this strengths- based approach and strategies for implementation.
Come into my world...from a preschool lesson plan to life's lessons learned...making a difference in someone's life!
Presenter(s)
Mary Rugg, M.Ed. , EI Project Director , Institute on Human Development and Disability, UCEDDRebecca Brightwell , MBA, IHDD Associate Director , Athens , GA, United States, GA - Institute on Human Development and Disability, UCEDD;
Zo Stoneman , PhD, IHDD Director , Athens , GA, United States, GA - Institute on Human Development and Disability, UCEDD;
This is the story of Betsy Wynne, a young woman learning to rise above circumstances to test the boundaries of her strengths and perseverance. It's also a documentary of how just a 'few people' can make a difference in someone's life by simply encouraging them to be their best self. From teaching young children about disability awareness to inspiring us all to pursue our dreams, learn how her determination continues to make a difference for all!
Prevention of Childhood Obesity: National Standards for Health and Safety in Child Care and Early Education
Presenter(s)
Cordelia Robinson Rosenberg, Ph.D., RN, Professor, JFK Partners/University of Colorado Health Sciences Center, UCEDD/LENDNew standards include: Prevention strategies such as the importance of encouraging breastfeeding, appropriate food categories, and portions Emphasis on healthy foods in child care Promoting physical activities Operating safe play areas Limiting screen time in child care, except for school work and use of assistive, adaptive technology
Parent-Directed Consultations via Videoconference: Participant Feedback
Presenter(s)
Barbara Fiechtl, Program coordinator, Institute for Disability Research, Policy & Practice, UCEDD/LENDGina Pola- Money, LEND Family faculty, Salt Lake City, UT, United States, UT - Center for Persons with Disabilities, UCEDD/LEND;
JoLyn Webster, M.Ed, LEND distance coordinator, Minot, ND, United States, ND - North Dakota Center for Persons with Disabilities, UCEDD;
This presentation will provide information regarding the implementation of interdisciplinary, Parent-Directed Consultations as utilized in the Utah Regional LEND program. These consultations, conducted via videoconferencing, create an opportunity for trainees and families in rural areas to share information across state lines. Feedback from parents and trainees will be shared.
No Cooking Skills Needed: Using Existing Resources to Put Together an Enviable Life
Presenter(s)
Diane Dressler, B.S., Program Director, Kennedy Krieger Institute, UCEDD/LENDMary Scott, M.Ed., Parent, Towson, MD, United States;
Gail Godwin, M.S., Local Partner - Shared Supports, MD., Baltimore, MD, United States;
Annie, a young woman with significant disabilities, lives in a fabulous apartment in a bustling Baltimore suburb. Annie rents with the assistance of a Housing Choice Voucher and designs her supports through a self-directed services waiver. This presentation will describe how people with significant disabilities can lead an enviable life.
Attitudes Regarding Inclusion of Students with Intellectual Disabilities at College
Presenter(s)
Megan Griffin, M.Ed., doctoral candidate, Vanderbilt University, UCEDD/LENDInclusive postsecondary education (PSE) programs are increasingly available to students with intellectual disabilities. To investigate the attitudes of typical undergraduates toward their inclusion, we conducted a survey during the first semester of a PSE program. Results document positive attitudes among undergraduates; group differences were related to gender and comfort level.
A UCEDD's Activities Supporting for Individuals with ASD and Their Families Across the Age Span
Presenter(s)
Susan Russell, M.S, Associate Director, The University of Maine, Center for Community Inclusion, UCEDDSandra Horne, M.A., Orono, ME, United States, ME - The University of Maine, Center for Community Inclusion, UCEDD;
In this poster session we describe the multiple state and national initiatives in which the Center for Community Inclusion and Disability Studies at the University of Maine actively participated related to the support of individuals with Autism Spectrum Disorders and and their families.
Evaluating the Efficacy of a Behavioral Summer Treatment Program for Children with High Functioning Autism Spectrum Disorders
Presenter(s)
Elisabeth Mitchell, M.A., Doctoral Trainee in Clinical Psychology, Civitan International Research Center, UCEDD/LENDThe present study examines the efficacy of a comprehensive Summer Treatment Program for children with high functioning autism spectrum disorders (HFASD). A better understanding of the efficacy of this intervention on specific aspects of behavioral and social functioning of children with HFASD will have important implications for future intervention programs.
Active Video Gaming to Promote Exercise and Social Inclusion for Youth with Mobility Disabilities
Presenter(s)
Jennifer Rowland, PhD, PT, MPH, Assistant Professor, Institute on Disability & Human Development, UCEDD/LENDYouth with disabilities face barriers for accessible exercise options. Active video games is introduced as a way to increase accessibility and social inclusion for youth with mobility disabilities by breaking down barrers related to inaccessibility.
Shhhhhhhh, Let's Talk about Sex: Examining Sexual Health for People with IDD
Presenter(s)
Karen Ward, Ed.D., Director, Center for Human Development, UCEDD/LENDJulie Atkinson, M.S., Anchorage, AK, United States, AK - Center for Human Development, UCEDD;
Bethany Stevens, Atlanta, GA, United States, GA - Center for Leadership in Disability at Georgia State University;
Tia Nelis, Chicago, IL, United States, IL - Institute on Disability & Human Development, UCEDD/LEND;
This panel features a diverse group of researchers and self-advocates from 3 UCEDDs discussing sexuality for people with intellectual and developmental disabilities (IDD). Study findings from a friendships and dating program will be presented, along with sexual self-advocacy principles, and a new framework for disability cultural competency in sexual health.
The Resource Finder: An Information Dissemination Model
Presenter(s)
Jacqueline Stone, Ph.D., PT, Director, Information Dissemination, Maryland Center for Developmental Disabilities at Kennedy Krieger InstituteThe Resource Finder, a project of the Maryland Center for Developmental Disability at Kennedy Krieger Institute, provides resources on developmental disabilities and related disorders to assist self-advocates, parents/caregivers, providers. The Resource Finder is accessible through an 800 telephone number, e-mail, a website, and a new statewide community calendar.
Parents as Detailers to Increase Primary Care Provider Referrals for Early Intervention
Presenter(s)
Robert Wild, MS, MPH, Research Associate, Center for Leadership in Disability at Georgia State University, UCEDD/LENDStacey Ramirez, Atlanta, GA, United States, GA - Center for Leadership in Disability at Georgia State University;
Daniel Crimmins, PhD, Atlanta, GA, United States, GA - Center for Leadership in Disability at Georgia State University;
This poster presentation will present a novel method of disseminating current, best-practice developmental surveillance, screening, and referral information to pediatricians and family physicians who serve children five and younger using the Centers for Disease Control and Prevention's Learn the Signs/Act Early health education campaign materials.
SpecialQuest and UCEDDs: A Closer Look at the SpecialQuest Approach to Including Young Children with Disabilities
Presenter(s)
Joe DeBonis, M.A., Counselor, Center for Development & Disability, UCEDD/LENDDeana Buck, M.Ed, Partnership for People with Disabilities, UCEDD/LEND, Richmond, VA, United States;
Corinne Hill, M.Ed, Partnership for People with Disabilities, UCEDD/LEND, Richmond, VA, United States;
Rick Hufnagel, Wyoming Institute for Disabilities, Laramie, WY, United States;
Mette Pedersen, M.Ed, MA, NM Center for Development and Disability, Albuquerque, NM, United States;
Laurie Westlake, PhD, Wyoming Institute for Disabilities, Laramie, WY, United States;
This session will provide an opportunity to learn from UCEDDs in three states that are actively involved with SpecialQuest Birth ? Five which is a training approach to young including children with disabilities in early childhood settings like Head Start and child care centers. There will be brief updates from SpecialQuest state leadership teams regarding ongoing statewide efforts followed by more in-depth exposure to the SpecialQuest training materials and approach.
Perception of disability services and behavioral health services in Indian Country
Presenter(s)
Thomas Pavkov, Ph.D., Professor of Psychology, Institute for Social and Policy Research at Purdue University CalumetLann Thompson, Ed.D., Indiana University, Indianapolis, IN, United States, IN - Riley Child Development Center - Indiana University, LEND;
Jessica Fish, M.S., Florida State University, Tallahassee, FL, United States;
The present study examines the perceptions of 275 elders, tribal leaders, service providers and caregivers related to the availability and adequacy of disability and behavioral health related services in Indian country. The findings suggest many respondents perceive services to be unavailable and/or inadequate across an array of service types.
Development, implementation, evaluation and community-based replication of the LEND interdisciplinary Family Navigator IEP coaching training program: A model
Presenter(s)
Sonia K. Aller, Ph.D., Communication Disorders Dirctor, USC, Childrens Hospital, UCEDD/LENDFran Goldfarb, MA CHES, Los Angeles, CA, United States, CA - USC, Childrens Hospital, UCEDD/LEND;
Patrice Yasuda, Ph.D., Los Angeles, CA, United States, CA - USC, Childrens Hospital, UCEDD/LEND;
Elizabeth Leanders-Vaughn, M.A., BCBA, Southwest SELPA, Torrance, CA, United States;
The USC LEND Family Navigator Clinic is a model program integrating the leadership training tenets of interdisciplinary education and teaming/process, collaborative/strength-based family-centered care, research and systems change. The evolution and outcomes of the Navigator Clinic and the leadership roles of trainees from eight disciplines will be discussed
Youth in Transition: The impact of Person-Centered Planning for young adults, their families and support coordinators
Presenter(s)
Jacy Bell, MA, Program & Data Coordinator, Sonoran UCEDDLeslie Cohen, JD, Tucson, AZ, United States, AZ - Sonoran UCEDD;
Lynne Tomasa, PhD, Tucson, AZ, United States, AZ - Sonoran UCEDD;
Survey data findings from Southern AZ Person-Centered Planning Model Program participants which include youth with developmental disabilities (age 16 through 22) transitioning to adulthood, family members and DES/DDD support coordinators. Data reveals the impact and effectiveness of person-centered planning from the perspective of all three participant sets.
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Employment for All
Presenter(s)
Zolinda Stoneman, Director, Institute on Human Development and Disability, UCEDDDoug Crandell, Athens, GA, United States, GA - Institute on Human Development and Disability, UCEDD;
Becky Brightwell, Athens, GA, United States, GA - Institute on Human Development and Disability, UCEDD;
Phil Chase, Athens, GA, United States;
Adele Patrick, Athens, GA, United States, GA - Institute on Human Development and Disability, UCEDD;
Tracy Rackensperger, Athens, GA, United States, GA - Institute on Human Development and Disability, UCEDD;
Presents information on four employment initiatives at IHDD: 1) Medicaid Infrastructure Enhancement, 2) AgrAbility in Georgia, 3) Work Works web-based training, and 4) story-telling through film and print.
A Great Opportunity - Senior Corps, AmeriCorps, and Learn and Serve America!
Presenter(s)
Paula Sotnik, Senior Research Associate , Institute for Community Inclusion/Boston Children's Hospital, UCEDD/LENDJewel Bazilio-Bellegarde, MPH, Corporation for National and COmmunity Service, Washington, DC, DC;
Erin Gannon, Masters in Art Education, National Service Inclusion Project, boston, MA, MA - Institute for Community Inclusion/Boston Children's Hospital, UCEDD/LEND;
The Corporation for National and Community Service is a federal agency that engages more than five million Americans in service through Senior Corps, AmeriCorps, and Learn and Serve America, and leads President Obama's national call to service initiative, United We Serve.
Working Across Multiple Sites: Two Case Studies from Regional LENDs
Presenter(s)
DAVID DEERE, MSW, MTh, , Partners for Inclusive Communities, UCEDD/LENDJudith Holt, PhD, Logan , UT, UT - Center for Persons with Disabilities, UCEDD/LEND;
William E. MacLean, PhD, Laramie, WY, WY - Wyoming Institute for Disabilities, UCEDD;
Lauren Giovingo, PhD, New Orleans, LA, LA - Louisiana State University Human Development Center - New Orleans, UCEDD;
Maria Ruiz, MA, New Orleans, LA, LA - Louisiana State University Human Development Center - New Orleans, UCEDD;
Participants will learn how two regional LEND programs have incorporated trainees and faculty from multiple states. While the case studies are from LEND programs, the principles used are applicable to other types of activities. Presenters will explain how they use various technologies to connect participants from multiple sites, as well as maximizing face-to-face encounters.
Stakeholder Input for Arkansas Health Benefits Exchange
Presenter(s)
DAVID DEERE, MSW, MTh, , Partners for Inclusive Communities, UCEDD/LENDThe Arkansas UCEDD/LEND was engaged by the state Insurance Department to gather stakeholder input for the Health Benefits Exchange, which is a requirement of health care reform. Two LEND faculty members and three trainees conducted key informant interviews, community meetings, and a Web-based survey. Data from those activities will be presented.
Developing an Accessible Survey with People with Developmental Disabilities on Abuse and its Impacts
Presenter(s)
Marsha Katz, Project Director, University of Montana Rural Institute, UCEDDEmily Lund, B.S., Texas A & M, College Station, TX, United States;
Mary Oschwald, Portland State University, Portland , OR, United States;
Dora Raymaker, M.S., Oregon health and Science University, Portland, OR, United States;
Rebecca Goe, M.A., University of Montana, Missoula, MT, United States, MT - University of Montana Rural Institute, UCEDD;
Rosemary Hughes, Ph.D., University of Montana, Missoula, MT, United States, MT - University of Montana Rural Institute, UCEDD;
Sandy Leotti, Portland State University, Portland, OR, United States;
This interactive workshop is designed to stimulate interest among advocates, clinicians, and researchers to engage in research on violence in the context of developmental disability. Presenters will describe and demonstrate a computerized self-administered survey with an emphasis its multiple accessibility and safety features.
Who knows what?: Results of a campus-wide survey of perceived self and others' knowledge of disability-related topics
Presenter(s)
Emily Lund, B.A., Graduate Research Assistant, Center on Disability and Development, UCEDDAmy Sharp, PhD, Texas A&M University, College Station, TX, TX - Center on Disability and Development, UCEDD;
A campus-wide survey of perceived self and others? knowledge of various disability-related topics yielded over 3300 responses from the university community. Respondents generally perceived both themselves and others to be somewhat knowledgeable, but differences in perceptions of others? knowledge exist according to disability status. Implications for practice are discussed.
Pediatric Residency Service Learning Via Technical Assistance to Secondary School Personnel: Creating Effective Medical-Educational Partnerships
Presenter(s)
Steven Koch, PhD, Research Director, Indiana University School of Medicine, LENDMary Ciccarelli, MD, Indiana Univeristy School of Medicine, Indianapolis, IN, United States;
Through a clinical rotation with the Center for Youth and Adults with Conditions of Childhood, pediatric residents were asked to develop a Fact Sheet related to a chronic medical condition geared for secondary school teachers. This poster will present the goals from this project for both pediatric residents and teachers.
Externalizing and internalizing behaviors in children of only-Spanish-speaking parents and psychotherapy outcomes
Presenter(s)
Ethel Teichberg-Sabath, PsyD, LCSW, Clinical Psychologist, Licensed Clinical Social Wo, Rose F. Kennedy Center, UCEDD/LENDSusan Chinitz, PsyD, Bronx, NY, NY - Rose F. Kennedy Center, UCEDD/LEND;
Erin Stettler, MPH, Bronx, NY, NY - Rose F. Kennedy Center, UCEDD/LEND;
The study reports on young children of only-Spanish speaking families, with behavioral problems and developmental disabilities who presented to a University Affiliated program for assessment and intervention to address those problems. The study also provides information about young children from English speaking families.
NYLN Poster Session
Presenter(s)
Betsy Valnes, Executive Director, National Youth Leadership NetworkBetsy Valnes, MA, National Youth Leadership Network, Bethesda, MD, United States;
This session will share information and resources about NYLN as an organization and resource for state teams.
PERCEPTIONS OF INCLUSION BY US VIRGIN ISLAND EDUCATORS
Presenter(s)
Charles H. Beady, Jr., Ph.D., Associate Director, Virgin Islands UCE, UCEDDYegin Habtes, Ph.D., VIUCEDD, #2 John Brewer's Bay, VI, United States, VI - Virgin Islands UCE, UCEDD;
Angela Plunkett, M.A., VIUCEDD, #2 John Brewer's Bay, VI, United States, VI - Virgin Islands UCE, UCEDD;
This poster display is an example of research the Virgin Island University Center for Excellence in Developmental Disabilities has conducted to help see to it that the Virgin Islands and indeed the Unites States of America become truly inclusive for all its citizens, regardless of their physical and mental circumstances.