Conference Header
Conference Header

AUCD - Poster Symposium: Parent/Family Involvement, Support & Respite

<< Back to Program


Monday, November 6, 2017 4:40 PM - 5:40 PM

Location: Grand Ballroom Central Salon


Presenters

Quality of Life Expectations and Plans of Midlife Parents of Children with and Without Autism Spectrum Disorders
Jen Wong, Ph.D., Assistant Professor, The Nisonger Center, UCEDD/LEND
^, ,
This qualitative study examined midlife parents' quality of life expectations and plans about their child with and without ASD. Finding showed that mothers and fathers of children with ASD reported greater concerns about their child's future daily living skills, education, and employment as compared to parents of children without disabilities. Implications on ways to equip family caregivers to better prepare their child's future quality of life will be discussed.


Summer Camp- Addressing the Special Care Needs of Rural Children
Anne Cronin, Ph.D., OTR/L, ATP, Professor, Center for Excellence in Disabilities, UCEDD/LEND
Holly Sauvageot, BHS, Morgantown, WV, United States, WV - Center for Excellence in Disabilities, UCEDD/LEND;
Megan Stout, MOT, Morgantown, WV, United States;
, ,
The WV Department of Education sponsors a summer camp program to address assistive technology needs in medically complex children without regular access to specialists in their rural communities. We describe the camp, present a synopsis of the diversity of children served through camp and catalog their needs as perceived by their families. Associated issues including the impact of natural disasters and the opioid epidemic on families is introduced.

Read and download presentation materials >


Teaching Parents To Identify The Function of Behavior and Communicate Needs
Sherrilyn Smith, Master of Art, , LoneStar, LEND
^, ,
Autism Spectrum Disorder (ASD) is a group of developmental disabilities that can cause significant social, communication and behavioral problems (Centers for Disease Control, 2015). ASD literature describes the negative impact of behavior problems on family functioning, such as increased parental stress, depression, anxiety, marital discord, and decreased family adjustment cohesion, emotional expression, attachment, and well-being (Marcus, Kuce, & Schoplef, 2007).


Sensory Processing Toolkit: A Guide for Teachers and Parents in Early Childhood Education
Elizabeth Koss, Occupational Therapy, Occupational Therapist, The Nisonger Center, UCEDD/LEND
Grace Reifenberg, Masters of Occupational Therapy, Columbus, OH, United States, OH - The Nisonger Center, UCEDD/LEND;
Laura Simon, IDD Psychology, Columbus, OH, United States, OH - The Nisonger Center, UCEDD/LEND;
, ,
Sensory processing differences may interfere with a child's participation in the school environment. In order to determine evidence-based strategies for improved sensory regulation, a review of the current literature was completed. Evidence supports 1 "do it" or green light intervention, 3 "maybe do it" or yellow light interventions, and 1 "don't do" or red light intervention. This toolkit provides an overall outline of these evidence-based strategies to promote sensory regulation.


Needs and Quality of Life in Families with Children with Developmental Disabilities or Delay
Annie Alonso, Psy. D. , , Institute on Developmental Disabilities, UCEDD
Emely Perez, BA, San Juan, PR, NY - Westchester Institute for Human Development, UCEDD/LEND;
Juan Trinidad, BA, San Juan, PR, NY - Westchester Institute for Human Development, UCEDD/LEND;
Maria Reyes, MSW, San Juan, PR, PR - Institute on Developmental Disabilities, UCEDD;
Mario Rodriguez, Ph.D. , San Juan, PR, PR - Institute on Developmental Disabilities, UCEDD;
Ilia Torres, MS, San Juan, PR, PR - Institute on Developmental Disabilities, UCEDD;

The purpose of this presentation is to share findings of the needs and quality of life in families with children with intellectual and developmental disabilities. This need study was done in collaboration with the Puerto Rico Down Syndrome Foundation and the Spina Bifida & Hydrocephaly Association. The results report common challenges that experience many of the families with IDD children. .


Evaluation of an Integrated Mindfulness Parenting Program with Parents of Young Children in a Low-SES Neighborhood
Andrew Roach, PhD, Associate Director, Center for Leadership in Disability at Georgia State University, UCEDD/LEND
Josephine Mhende, MPH, Atlanta, GA, United States, GA - Center for Leadership in Disability at Georgia State University, UCEDD/LEND;
Brian Barger, PhD, Atlanta, GA, United States, GA - Center for Leadership in Disability at Georgia State University, UCEDD/LEND;
, ,
This poster will present an investigation of whether mindfulness instruction resulted in improved self-reported mindfulness and reduced depression, anxiety, and family stress in parents of young children living in a low socioeconomic status (SES) neighborhood. Based on the parents' reports of program acceptability and the impact on their well-being, mindfulness training appears to be a promising strategy for inclusion in parenting education programs.


Group-Based Mindfulness Program for Parents of Children with ASD
Suzannah Iadarola, Ph.D., BCBA-D, Assistant Professor of Pedatrics, Strong Center for Developmental Disabilities, UCEDD/LEND
Suzannah Iadarola, Ph.D., BCBA-D, Rochester, NY, United States, NY - Strong Center for Developmental Disabilities, UCEDD/LEND;
Valerie Smith, Rochester , NY, United States, NY - Strong Center for Developmental Disabilities, UCEDD/LEND;
Susan Hetherington, Ph.D., Rochester, NY, United States, NY - Strong Center for Developmental Disabilities, UCEDD/LEND;

This session describes the development and deployment of a mindfulness-based group program for parents of children with autism spectrum disorder (ASD). Mindfulness interventions emphasize maintaining awareness in the present moment, as well as non-judgmental acceptance of self and others. We present data on the use of our program in research, as well as adaptations and implementation in our broader community. Challenges, successes, and implications of the program will be discussed.

Read and download presentation materials >


Partnering with Families and Community Members: Supporting Family-Centered Care in Leadership Education
Phyllis Shingle, LCSW CIRS, NM LEND Family Faculty, Center for Development & Disability, UCEDD/LEND
Alyx Medlock, M.S., CCC-SLP, Albuquerque, NM, United States, NM - Center for Development & Disability, UCEDD/LEND;
Cathy Salazar, Family member , Albuquerque, NM, United States, NM - Center for Development & Disability, UCEDD/LEND;

The New Mexico LEND program has implemented an intensive family and community as faculty initiative to train pre-service and mid-career professionals in family-centered care. The poster describes the process, structure, challenges and outcomes for families, self-advocates, and trainees.


Assessing Opportunities for Implementation of Respite Care Programs in Faith-Based Organizations
Eric Moody, Ph.D., Asst Prof, JFK Partners/University of Colorado Health Sciences Center, UCEDD/LEND
^, ,
Respite care remains a critical need, but there few programs that provide quality respite care. Night Lights is a respite program implemented in several faith-based organizations in Colorado. To explore the readiness of other organizations to adopt this model, we surveyed faith-based groups from nine states. Results suggest foundational work is needed to help faith groups better understand respite care and how it might fit with their existing missions.


How Seizure Action Plans Provide a Healthy Safe Space for Children with Epilepsy
Saran Martin, MPH, Program Manager, Epilepsy Foundation
^
In this presentation, we will discuss common concerns regarding caregiving for individuals with epilepsy with a special emphasis on children. This workshop will highlight three signature programs at the Epilepsy Foundation: Managing Students with Seizures: A Training for School Nurses, Seizure Training for School Personnel, and Seizure Training for Childcare Personnel. Thereafter, we will carefully dissect the Seizure Action Plan that is an essential component of each of these trainings.

Read and download presentation materials >


Transition Bootcamp and Booster Sessions: Empowering Families and Youth with Disabilities to Plan for Successful Transition to Adult Life
Ilka Riddle, PhD, UCEDD Director, University of Cincinnati UCE, UCEDD/LEND
^, ,
Transition Bootcamp Conference in southwest Ohio and regional, monthly Booster Sessions provide information that families need to address the transition process from school to adult life. Topic experts engage with family members and youth to provide support for their transition process. Presenters will provide information on how they developed the conference and sessions, how they established partnerships, expanded sessions across the state and sustained this transition effort.


The Colorado Parent Mentoring Program: Parent to Parent Support Improves Family Functioning and Satisfaction with Care
Kristen Kaiser, MA, Director of Community Projects, JFK Partners/University of Colorado Health Sciences Center, UCEDD/LEND
Eric J. Moody, PhD, Aurora, CO, United States, CO - JFK Partners/University of Colorado Health Sciences Center, UCEDD/LEND;
Bethany Rigles, MA, University of Colorado Boulder, Boulder, CO, United States;
Lorraine Kubicek, PhD, Aurora, CO, United States, CO - JFK Partners/University of Colorado Health Sciences Center, UCEDD/LEND;
Jonathan Davis, PhD, Aurora, CO, United States, CO - JFK Partners/University of Colorado Health Sciences Center, UCEDD/LEND;
Cordelia Robinson Rosenberg, PhD, RN, Aurora, CO, United States, CO - JFK Partners/University of Colorado Health Sciences Center, UCEDD/LEND;
,
The Colorado Parent Mentoring Program was created to provide parents with a child newly diagnosed with ASD the resources and emotional support needed to access services and begin to build a lasting network of support. We will discuss the elements of the program and the findings of efficacy in providing educational and emotional support and impacting quality of life.


Involving Minority Families of Children with Disabilities in an Early Childhood Program: Preliminary Findings from a Mixed-Methods Study
Kimmie Tang, EdD, Assistant Professor
Zheng Yang, PhD, California State University Dominguez Hills, Department of Public Administration and Public Policy, Carson, CA;
Dennis Kao, PhD, California State University Fullerton, Department of Social Work, Fullerton, CA;

Often facing significant challenges, minority and low-income families of a child with disabilities are less likely to be involved with their child's education. This presentation highlights the findings from a mixed methods study exploring the involvement of minority and low-income families with a child with disabilities being served at a university-based early childhood program.

Read and download presentation materials >


Celebrating 22Q at the Bronx Zoo
Carol Terilli, PT, DPT, Assistant Professor, Pediatrics, individual
Elizabeth Ridgway, OTD, OTR, Bronx, NY, United States, NY - Rose F. Kennedy Center, UCEDD/LEND;
Erica Kessler, RN, Albert Einstein College of Medicine/CHAM, Bronx, NY, United States;
Bernice Morrow, PhD, Albert Einstein College of Medicine/CHAM, Bronx, NY, United States;
, ,
22q at the Zoo is an international event supporting families that have this often misdiagnosed "rare disease" in common. Recently brought to the Bronx, individuals and their families adjoined in this unique experience are brought together on this designated day to share, learn and enjoy their affinity. Their commonalities are amplified in numbers giving voice to their differences and creating a space where their experiences are not so uncommon.


Strategies for Fostering Health Literacy through Family Resiliency and Shared Storybook Reading in Early Childhood
Joshuaa Allison-Burbank, MA, CCC-SLP, Clinical Instructor, Schiefelbusch Institute for Life Span Studies, UCEDD/LEND
Krista Voelmle, MA, University of Kansas Intercampus Program in Communicative Disorders, Kansas City, KS, United States, KS - Schiefelbusch Institute for Life Span Studies, UCEDD/LEND;

This presentation will highlight the benefits of shared storybook reading in early childhood and how this can promote communication and social-emotional development. This presentation will also focus on parent coaching and how to embed family resiliency into shared storybook reading. Topics will include how speech-language pathologists can set up opportunities for a daily structured routine, parent-child bonding, and establishes an environment that can empower parents as teachers.


Peer Navigators Supporting Parents with Intellectual Disabilities with Children in Custody to Strengthen Their Parenting Skills
Susan Yuan, Ph.D., Emerita, Center on Disability & Community Inclusion, UCEDD
^,
Parents with intellectual disabilities can succeed at raising their children, but often need supports to strengthen their skills in childcare and maintaining a successful family. Two agencies in Washington DC, child welfare and developmental disabilities have contracted with The Association for Successful Parenting to support parents through the use of Peer Navigators with life experience of disability.